Calling all TNs
Comments
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CS - I used to work with a guy from England, loved him, had the greatest, dryest sense of humor. Not sure how the subject ever came up but one day I must have used the word fanny to describe someones rear end. He was so shocked I said that, apparently fanny in England slang for a woman's girly parts. I think we both giggled over that at least once everyday after that.
Well, up for my second work week, didn't make my eliptical this morning and have to do food shopping tonight. Have a strange feeling I'm not getting out of work on time tonight so it will be another late night.
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How hard I am laughing at your posts. Yes, our languages (North American & English) are the same but so very, very different. Cocker... the English from England is pretty much the same as yours, but here in Canada... ?
Heather I laughed about the meaning of 'fanny'. I rememeber when I first moved here and saw a "fanny pack" advertised...I thought WTF is that.... turns out we call them 'bum bags'
To all with horrible SE's - hope they are getting more bearable as time goes on.
Enjoy your days.
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Good morning all. Laughing at the fanny pack post. It reminded me of a trip I made to London once... I got into all kinds of trouble with the language....lol.
Ladies, I'm starting to freak out a little bit. I have a check up with my BS later this week, and then next week I'm scheduled for the dreaded 6 month mammo/sonogram. My anxiety is kicking in right on schedule....couldn't sleep last night. Does anyone else go through this?
What scares me is this: I never felt my original lump, nor did my gynocologist. All I had were some strange pains in that breast. Then I had my regular mammo, and there was a 2.3 cm tumor sitting there. So even though I don't feel any lumps now, I do have pains in the bad breast. I've had them ever since my lumpectomy & rads....sometimes a shooting pain, sometimes my breast will feel hot, or heavy. I'm 14 months out of treatment....anyone else still having this stuff? I'm always so worried. Thanks for listening.
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http://www.mediabistro.com/tvnewser/robin-roberts-will-undergo-bone-marrow-transplant_b132160
Just wanted to share this terrible news. My heart goes out to her family. She is a Trineg as well
Waving and saying hello to everyone. I am just loving all the comedy ladies. It really does lighten things up.
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Fighter~ tears, tears, sob, smile, what a beautiful woman Robin is. Thank you for sharing.
Hope~ absolutely on the breast pain! I never had any pain in the breast, not even the day I found what felt like a golf ball in my boob when I was in the shower that day. Now after lumpectomy, chemo, and rads, I HURT. It's been a year this week since I finished treatment. I still can't sleep on the "bad" side, lifting stuff hurts later, bras hurt, skin burns, and for a long while I had terrible "pulling" pains inside the breast. My RO at my six month follow up actually asked me if I was having the pains yet. They used to hurt so bad and were so intense I would have to stop in my tracks.
BernieEllen~laughing out loud! That is a good one!
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Minxie - I wish you could have StarShiny's wish for a crystal ball. It's easier when you get a clear cut, "here's what you need to do" answer. (hug)
McCrimmon - I've been to quite a few psychics over the years, and I can say that I only met 2 that I truely believed had a gift. (fake psychics hate me, because I won't give them clues to read me with). Both of those 2 psychics told me things, that there is no way somebody could have guessed.
Ruth - I don't think 20 soy beans would cause that (I eat them frequently), and I would suggest you give the doc a call to see what they think. As to the path to enlightenment........we must all be fricking shiny geniuses after dealing with this disease!!!! Feel better!!
Mags - I'm so sorry for all of you dealing with LE, I can't begin to imagine what you're all dealing with. Sounds bloody awful!
Cocker - psssst - try shipping Chloe to Karen, with no return address, I think you can suck her into another dog. Feel better Hun. Boils may be the size of a pea, but they feel like Mount Vesuvius!
Jan - rut roh, Chloe pulls another stunt and I fear Cocker may ship her to visit with your wildlife.
Tazzy - thanks for the lesson on "fanny". Not one I knew.
Hope - I'm only 4 mo out of rads, so I can't say what 14 mo should be, but I do have the sharp shooting pains. I wish I could calm your anxiety, but I think it's normal in our situations. (hug).0 -
a silly story.......just went for my 6 month mammo, I was nervous......you never know. My original lump was not felt but turned up on my yearly mammo. I have all the pics taken and am sitting waiting to be told if the radiologist needs any more pics or if I'm done. The tech comes and tells me the radiologist needs more pics, my anxiety level has just shot up. The tech takes more pics, then she tells me they also want more pics on the other breast.......guess where my anxiety level is now. So, now I am sitting in the waiting room again waiting to see if we're finished. I look down at my feet and for the first time since I got dressed this morning I notice I am wearing two different color flip flops........who knows how many people have noticed this, okay so maybe I was very nervous this morning.
And a good ending to the story......the tech comes back, asks me to step out into the hall, then she tells the radiologist says everything looks good and they recommend I come back in a year (of course, I still want 6 month mammos). I actualy had to ask her to repeat herself, thinking I didn't hear right...........
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Fighter - I saw the news about Robin Roberts, very saddened by her news. She is sort of my hero, I admire her and think about her BC experience every time I see her on TV. She looks so healthy and toned. Anyway, in one of the articles, it says that this blood disease she has may have been brought about by chemo she had had for BC. I remember my own very educated Onco. had told me that one in one thousand woman going through chemo can potentially develop leukemia....... apparently what Robin has used to be called pre-leukemia, now it is called MDS or something like that. I can't imagine that she is the one in one thousand. God bless her and give her strength. This is always at the back of my mind, this potential from having had chemo. She was at the 5-year mark, can you believe the disappointment she must be facing. My heart goes out to her. At 5 years, I would feel on top of the world if this thing does not recur. Aren't we all just dying to reach that 5 year mark? Hope everyone is doing fine. For every post that I read on the last few pages, I have something to say (I am a very talktative and opinionated woman), so much to say, but no time ladies, so am just passing by with this one special comment today. Love you all, have a wonderful, bright day, make some vacation plans and just dream away. I am dreaming of a tropical vacation to Fiji Islands coming up in Jan. 2013.
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Diagnosed 5 months before my 52 birthday! Found a lump in Feburary doctor set me up for Mamogram and Ultrasound in March. BS did Bilateral Mastectomy in April, removed 19 lymphnodes 2 were cancerous. Tumor grew unbelieavable quick by the time of surgery it was 6cm. Starting chemo next week dose dense ACT- 14 day cycle for 16 weeks then radiation. We have a family history and I still have to get a Genetic Test done. My mom died from breast cancer in 90, my little sister beat it in 98 and I know I'm going to beat it because there is so much more today then back then.
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My heart goes out to Robin. Thanks for sharing the link Fighter. I just read the article about Robin in Good Housekeeping. She is an inspiration and a fighter.
Her interview about her recent diagnosis reminds me of the love and support that my team has given me throughout my journey. My work team is my second family and they have been so supportive through all my ups and downs. I can also relate to what Robin says about "normalcy". I cannot wait to get back to work and to have my normal life back. I just want that normalcy to return.
Wishing you all a great day. It's sunny and so HOT here today.
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Hi RozieP--thanks for sharing your stats and welcome to the TN group here...such a great blend of women from all over the world!! I had DD taxol 4x then DD A/C-- stats show that taxol first improves survival rate for us TN's so may want to ask if doc will do that first. It is a little easier than the A/C (at least it was for me) and you can get broke into the chemo routine. Ask anything you like here...nothing and I mean nothing is off limits. It is a real personable group and you're family now sista!!
Just made my appt for Wed to have my chemo port removed. Been putting it off since I was given the all clear in April since the Le started in the arm---it is getting annoying for sure -cannot get it controlled. SIGH!! Still excited to get that $^&$^% port out!
Maggie
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Hope 60 - the fear did lessen, over time for me. Kudos for making it to yearly mammos!!! Love the bit about the flip flops
Fighter - what part of VA are you in?
Rozie - so sorry about your mom. I love your spirit. I hope you sail through chemo! Let us know if you have any questions.
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Took my fat butt clothes shopping today. I use to love clothes - now I'm happy if all my bits are covered. Wed. Haircut and eyebrow waxing! I'm going to a Bonnie Raitt concert, that evening. I'm excited - but just thinking about it all makes me very tired.
Question - anyone have easy bruising? I keep finding them - I stopped aspirin 2 weeks ago.0 -
RozieP - Sure you will beat this, absolutely! What's up with age 51/52. I got diagnosed at 52 as well. It is as if something protects us when we are having our periods, and then soon thereafter, when it stops, comes the BC.
Hope - pain may be from your treatments. I still have pain even though I am two years out. We have absolutely no control over the results, do we? I am trying to tell myself this all the time. Whatever is to happen is going to happen, so why stress, let it go, let it happen, whatever. It is so difficult for me to have positive thoughts, especially after our first shock. Good luck!
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Gota joke, got a joke
A chap gets off the bus from work one night and suddenly realizes its his wife's birthday and he hasn't got a present.
He thinks oh god, what am I going to do. I can't go home on her birthday without a present, she will kill me.
He looks around and the only shop still open is a pet shop. So he think's oh well its better than nothing I'll see if they have anything suitable.
Goes in the shop and he hears a little voice "whatcha mate", "come on in". He takes no notice and continues browsing.
Then he hears the voice again "Hello mate" "come over here and see me" I'm lovely". Still takes no notice.
The pet shop owner comes up to him to see if he can help. So he explains about the wifes birthday present and how he can't go home without one. Then the voice comes again. "Over here mate, come and see me" "Trust me I will solve all your problems". So the chap says to the pet shop owner who is that? and the man said oh thats our little parrott. He's a gorgeous chap. And all the while the little voice is chatting away.
The pet shop owner said why not take him home to your wife she would really like him. He says there is only one problem with him, when I was cleaning out his cage one day the door swung back and cut off his little legs but apart from that he is perfect. So the chap says well how does he hang on the perch. So the pet shop owner says no problem he just curls his little cock around the perch and it keeps him on. So the chap says oh that's no problem I'll buy him.
So off he goes home and the wife is delighted with her birthday present.
He comes home the next night and as soon as he gets in the door the parrott says "blimey mate you should have been here today. She was upstairs with the milk man banging away, shocking". "A little while after that the postman came and she was at it again". "Then the rent man came and they were at it over the kitchen table" God it was awful.
The chap says well don't stop now, what happened next and the parrott said I dunno I got a stiffy and fell off the perch.
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RETIRED HUSBAND
After I retired, my wife insisted that I accompany her on her trips to Target. Unfortunately, like most men, I found shopping boring and preferred to get in and get out. Equally unfortunate, my wife is like most women - she loves to browse.
Yesterday my dear wife received the following letter from the local Target:
Dear Mrs. Harris ,
Over the past six months, your husband has caused quite a commotion in our store. We cannot tolerate this behavior and have been forced to ban both of you from the store. Our complaints against your husband, Mr. Harris , are listed below and are "documented by our video surveillance cameras":
1. June 15: He took 24 boxes of condoms and randomly put them in other people's carts when they weren't looking.
2. July 2: Set all the alarm clocks in Housewares to go off at 5-minute intervals.
3. July 7: He made a trail of tomato juice on the floor leading to the women's restroom.
4. July 19: Walked up to an employee and told her in an official voice, 'Code 3 in Housewares. Get on it right away'. This caused the employee to leave her assigned station and receive a reprimand from her Supervisor that in turn resulted with a union grievance, causing management to lose time and costing the company money.
5. August 4: Went to the Service Desk and tried to put a bag of M&Ms on layaway.
6. August 14: Moved a 'CAUTION - WET FLOOR' sign to a carpeted area.
7. August 15: Set up a tent in the camping department and told the children shoppers they could come in if they would bring pillows and blankets from the bedding department to which twenty children obliged.
8. August 23: When a clerk asked if they could help him he began crying and screamed, 'Why can't you people just leave me alone?' EMTs were called.
9. September 4: Looked right into the security camera and used it as a mirror while he picked his nose.
10. September 10: While handling guns in the hunting department, he asked the clerk where the antidepressants were.
11. October 3: Darted around the Store suspiciously while loudly humming the ' Impossible' theme.
12. October 6: In the auto department, he practiced his 'Madonna look' by using different sizes of funnels.
13. October 18: Hid in a clothing rack and when people browsed through, yelled 'PICK ME! PICK ME!'
14. October 22: When an announcement came over the loud speaker, he assumed the fetal position and screamed 'OHNO! IT'S THOSE VOICES AGAIN!
15. Took a box of condoms to the checkout clerk and asked where is the fitting room?
And last, but not least:
16. October 23: Went into a fitting room, shut the door, waited awhile, and then yelled very loudly, 'Hey! There's no toilet paper in here.' One of the clerks passed out.0 -
Dormac - yours is way funnier. Good one. I like that.
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DorMac and CS - Thanks for giving me great reasons to laugh.
I have a question about %s. I was initially dx'd TN, but apparently my subsequent pathology after my bmx in Oct showed about 1% for ER. That didn't come up until I was about halfway through chemo and was going over something with my MO. She said 1% is still considered TN. I'm not a big soy eater, but I was cleared to go back on my birth control (IF my period comes back) by my MO and gynecological onc, who also said I don't need to worry about an ooph until I'm nearing 50, even though I'm brca2, because the avg age of ovarian cancer for brca2 is 53 or 54. I do plan on the ooph a little sooner than that (I figure this gives me time to regroup), but should I be concerned about estrogen, soy, etc?
I peek in here from time to time. I just had my exchange on Thursday and am doing well, and 10 weeks pfc and doing pretty well, aside from some lingering neuropathy and occasional fatigue. Lots of little blessings to be thankful for. I'll look forward to checking in every once in a while.
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rache...egads..I hate soy...never eat the stuff...
Tazzy...ok..you graduated from chemo..that is HUGE...personally..I will take surgery and rads over chemo anytime!...but JMHO..
soo...Bernie...Cleveland hey? how did you come up with Cleveland in your joke? I love one hour from Cleveland..went there yesterday..to the newly opened casino, then to the Hard Rock Cafe, then to see Crosby, Stills and Nash at a pavilion on the Cuyahoga River...we had so much fun...long day..from 2 until 1:00 am but it was worth it...CSN is pretty good for 70 year old guys..a couple of 50 year old plus ladies..which had imbided some alcohol and pot came and sat right in front of us..one of them missed the seat and ended up in my DH's lap...he was in shock...she give the "peace" sign and took off...hilarious.
And for you ladies diagnosed in your 50's...we know that tn is usually younger ladies but on this thread we tn's seem to run the gamut on age...we've got 30's to 60's and maybe older...I really hope they find out what causes this crap in my lifetime...
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Titan.... I have heard other people say that about chemo. If you can get through chemo then the rest in comparison is way easier. Very encouraging - thanks and I am happy to hear your JMHO.
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Thank you ladies for responding about my pre-exam freak out. I'm at a point where I can go for long stretches without thinking about BC at all.......but then when it's time for a doc appointment or test, anxiety just takes over. I guess it comes with the territory.
OBYK - I wasn't the one with the flip flop story.....that was SusieSue's post. Although I'm totally capable of doing the same thing!
Rozie - Welcome. I had the same treatment you'll be having. I hope it goes well for you!
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Love this thread! You ladies are one in a million!
Hope everyone has a lovely evening with minimal SE!
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Ditto...I love this thread, too. You just never know what'll be the topic of the day. Imagine the fun we'd have it we all got together. Let's all go to New Zealand to see CockerSpaniel...lol.
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LuvRVing - Michele, just checked out your updated site to read about your tour of the Louvre. Sounds very interesting. I think if I ever visit Paris, I'll put a fake cast on, rent a wheelchair and get the "deluxe" tour! By the way, besides making me hungry, you must have really enjoyed your crepes from Mumbles as that is the second time you posted pictures of them! Perhaps you should be looking into setting up an american franchise for them. But, really, thanks for the posts - it seems that you all had a really great time and we get to see Paris through your eyes while sitting at home dealing with our various SEs. Do you still have more to post? Hope everything else is going well for you, too.
Doreen
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Hey Sugar... I'm in total agreement with you on ALL going to visit Cocker in NZ - now what a trip that would be eh?
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thanks for the laughs tonight!!!! am enjoying this thread greatly because it makes me feel as if I'm not alone!!!
hope everyone is doing well.
Kelly
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Good Evening Ladies
Well Sugar and Tazzy and anybody else who wants to come. You would all be made very very welcome. We would have a blast and laugh from dawn till dusk. Wouldn't that be great.
I went to see my oncologist today and ended up with me legs in the air showing off my 'girly bits', I just love that 'girly bits'. There is something so elegant about that. Tell yer you aint got no secrets when you got BC and she had a student in the room, though to be fair she did say would I mind and I didn't know she was going to 'look' when I said no I didn't mind. Anyway she said to give the boil a few more days and it should come right without lancing. Lancing, nobody mentioned to me anything about lancing. They can keep their bloody hands off cause I can hardly walk or sit let alone let them lance it. I told her about me tingly fingers and she said there is another chemo I could have but its every three weeks again and could cause nausea and vomiting so I said thats quite alright I will go on with Taxol even if me hand falls off.
Kellycbk - welcome. You will never be alone on here girl. Glad you enjoy the laughs.
Tomorrow I am half way there. My 6th taxol. Me old fellar is making some cakes for us to take in for morning tea to celebrate. If it was the last one I could understand it but I've still got six more to go. Still he likes to do things like that. Feeding people up gives him pleasure. And, I have put on 1.6kg. My onco said that was good. Whats good about putting on weight? I'm sure it was the new hat I brought.
Titan - your back. Have you been running. Not long until your race.
Kathrynn - Psssst Chloe has already been shipped to Karen complete with baggage with no return address!
Have a good day ladies. Tomorrow night after Dexamethasone I will be sitting here all night again. Love yer to bits. Annie
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She was standing in the kitchen
Preparing to boil eggs for breakfast,
wearing only the 'T' shirt that she normally slept in.
As I walked in almost awake,
She turned and said softly,
'You've got to make love to me this very moment.'
My eyes lit up and I thought,
'I am either still dreaming or
this is going to be my lucky day.'
Not wanting to lose the moment,
I embraced her and then gave it my all;
right there on the kitchen table.
Afterwards she said,
'Thanks,'
and returned to the stove, her 'T' shirt
still around her neck.
A little puzzled, I asked,
'What was that all about?'
She explained. .
'The egg timer is broken'0 -
BernieEllen - You crack me up! You and CS could go on tour together as a comedy duo! Thanks for starting my day with a laugh!
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CS - MO stands for medical oncologist, as opposed to the radiation oncologist, the gyno oncologist, etc.
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Hello ladies, I'm hoping to hear some good advice from some of you again. My mom is having a horrible, horrible time with her side effects. It seems like after her last AC, it hit her the hardest. She is having a hard time with her breathing, really out of breath. She can hardly walk through the house without being totally out of breath. I don't know how she's going to finish her treatment if she doesn't get better. In the beginning, she'd start feeling better right before she had to go back for her next treatment, but lately she's been down the entire time, she hasn't been able to do anything at all. Her oncologist's office doesn't really seem to be much help. We asked about it at her taxol treatment last Thursday, and her onc. said she was anemic and had a little bit of a cold, so she gave her a shot, can't remember the name of it, and my mom was on antibiotics, which did help a lot with her cough. She has had pretty bad asthma her entire life, so I'm sure that is not helping either. Did any of you experience this? What did your onc. recommend? My mom still has three taxol's to go, and I'm worried she will give up if she doesn't start feeling better, at least for a few days at a time.
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