Calling all TNs
Comments
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onvacation - i finished chemo on 4/30 and still have neuropathy in my feet and hands. I am like Christina in that I almost fall over in the morning or after I sit awhile. My feet and legs are so stiff and sore. I have started Yoga and it does help. Unfortunately, for some people, the numbness never goes away. My sister had chemo 5 years ago and she still has neuropathy in her feet and she has to take pills for it and lymphadema.0
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Hi ladies
You know on reflection 50% is not too bad cause really it's still a - might or might not situation (recurrence). If they said I had a 70% chance it is still only a - might or might not situation. There is only One who can decide when my time is up and it aint no doctor so I am going to do everything I want to do and see what happens.
So sorry to hear about Blondelawyer. Very very sad for her family.
NavyMom - lucky girl. You enjoy that week with your grandson it is one of the best things that can happen to you.
Onvacation/Jan69- I still have the tingling and numbness in my hands. Just cant seem to get rid of it so i hope it eventually goes.
Titan - you just put that book down. We don't want you getting pregnant lol. If you can't sleep all night now you won't then.
Naan - great news no more chemo yay.
Christina - thank you for that article it was great news. Michael J Fox was very wise and very right to say that.
Thinking of you Tazzy and hoping all is well. Thinking of Hope and Inmate. Hope you are both having a good day.
Have a good day ladies. Kick up your heels if you can and have a ball. Annie
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Hello bak94
I was so sorry to hear about all the sadness in your life at the moment. I am so sorry to hear about the death of blondelawyer at such a young age. It is a tragedy, especially in someone who had all her life in front of her.
I do hope that your sister with your help and the rest of the family will be able to get things sorted out. Unemployment is high here and I know it is the same in the US. It is very difficult to find work, especially for those 50 and up.
I hope you will get your scan as you seem to want it. We do not have regular scans in the UK. There are pros and cons for them. They may show up problems, but they do expose us to radiation, which is itself a cause of cancer.
I hope you are taking care of yourself. You will always be special to me. Try to focus on all the women who are surviving.
Hello to all of you on this thread and best wishes from the UK. Titan, you are doing a great job.
Thinking of you all.
Sylvia
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Sorry to intrude but wanted to let you know that Jenn3 passed away on Sunday. I got a message from her best friend via facebook late last night.
I am so sorry.
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Onvacation: I finished chemo on April 5th and still have numbness (more heaviness) in my hands. I can't open ziplock bags easliy and fine motor things. I was told that there will be some nerve damage from the Taxol and it's anyone's guess if that feeling would come back totally or not. Hang in there!
Everyminute: Thank you for letting us know about Jenn3. SO sad. She reached out to me when I first joined this site. There have been WAY to many sisters lost lately. SO sad.
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Thanks everyminute for the update on Jenn. My deepeest condolences to Jenn's family and friends.
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Thanks Kathy- I had not had any lungscans, other than xrays way back when when I had the flu. I did have an breast MRI, but that was it. I believe they are going to wait 3 months and rescan to see if any changes. Got my second tat yesterday-first stage of a lengthly tat.. will be adding flowers through it down onto my foot.. Love it
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Thanks for the update on Jenn3. I had the privilege of meeting her in person when on vacation with my family in New Orleans last year. She was lovely and went out of her way to help us nagivate our way around her city....even bringing Saints mardi gras beads to our hotel for my 12-year-old. This is indeed sad. RIP Jenn.
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Wow. First Blonde and now Jenn3. My heart hurts. My sincere sympathy to both ladies family and friends.
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This thread seems to get hit hard when ever it gets hit. I did not communicate much with Jenn but remember her well. She seemed like such a nice person. She was dealt a horrible hand with this disease but always stayed positive and true to herself. I was worried about her since she had not been around lately, but am still shocked and very very sad.
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So sad about Jenn, I always enjoyed her posts, she had such a positive fighting spirit in her, always generous and upbeat. She was just a bit ahead of me in diagnosis and initial treatment. Condolences to her family and friends.
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So sad about Jenn. Another star in the sky.
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errrrr....so sad to hear of another one of our sisters losing this fight. Why does it always happen like this with several in a row. My heart is broken for their families.
Mags
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Man cancer really sucks. So sad for the loss of these ladies.
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I truly hate hearing about yet another sister losing her battle.. Breaks my heart- prayers for their families. When I hear of these losses I just want to curl up in a ball a cry.. I thank God everyday for each day I am given.. F*@# Cancer!!!!!!!!!!!!!!!!
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Oh no! Two dear sisters are gone. I'm just so sad for their families. I'm hugging everyone I see today; life is so precious and sometimes so fragile. I also feel for the newbies; these deaths must really impact them.
My US went well today! Radiologist couldn't find anything but cysts!!!!!
Cocker - Your 50-50% survival rattled me off my comfortable perch. No one has ever given me any statistics, but I guess I've never asked.
These past few days have been hard for me - too much sadness. I'm 70, and want to live another 15 or 20 years. I'm sure our sisters wanted to live to a ripe old age, too. Then, on Saturday, I'm to talk at my dear friend's celebration of her life. Next week I hope to visit my daughter and her little ones in Southern California. That should help my heart heal.
Hug those you love, Jan
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I am sorry to hear about Jenn. I'm still in pain over the loss of Lisa.
Jan - I'm glad it was only a cyst!0 -
Jenn and I were august 2009 chemo buddies. I am so terribly sad for her loss. Here I sit crying again for yet another sister who was lost to this dreadful disease. I hate cancer.
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Yes, it's been a sad week indeed...with Blondelawyer and Jenn3, as well as Dreamwriter (real name Regina), a fellow Canadian whom I met at a few get togethers around Toronto area. "Dream" wasn't TN but was well known on the Canadian thread.
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So very sorry to hear about Jenn. Her kindness to me and her inner stength and humour will never be forgotten. I feel so sad for what her family are going through at this time.
Safe in the arms of Jesus and free'd from cancer. RIP Jenn.
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Thinking of you all.
Going away for the weekend.
Lots of love.
Bernie
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Hi Everyone. I am a 45 year old Canadian expat living in the Middle East. I am married and have 2 young daughters, ages 6 and 9. This is my first post.
I was diagnosed 2 months ago, grade 3 TN, had a wide excision for a 2.1cm tumor in my right breast, and axillary dissection to remove 17 lymph nodes, 3 irregular and one of which had a 1.3 cm tumor.
I have completed 2 out of 4 dose dense AC treatments, and after that I will have 12 or 16 weekly chemo treatments of some other drug. Following that is something like 45 radiation treatments. It seems endless and I am only at the beginning.
I felt really strong through the diagnosis and surgery stages. I made jokes, comforted everyone else, and tried to act like superwoman all the time. Then I started chemo 3.5 weeks ago, and have been depressed ever since. The chemo is trashing me. The first treatment triggered a latent infection and I was sick right through until the 2nd one. The thought of doing it again in a few days makes me tremble and weep.
All my family and closest friends are on the other side of the planet. I am lonely and I am scared and I am so very embarrassed that I can't pull it together any better than this.
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Oh Dear Desertmama..... You came to the right place. We are all in different parts of the world, but a strong sisterhood is here. I joined this wonderful group of woman early June when I too was just starting the journey. Last week, I finished the 4 A/C and am now on my way to the next phase of 12 Taxol. It sucks..... But with the spirit and support on this board, you will get through it. We are a caring and open group of woman who will virtually hold your hand every step of the way. Hang in there, and read on. Many wonderful posts are about to come your way....... (((Hugs)))
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I agree with JazzyJ DesertMama. You have come to the right place. We are a cybershould to cry on. I 2 was just diagnosed a couple of months ago and they have been a huge place support. I know the feeling of need to be strong for everyone. My own son is 7 years old. But this is your time. If you need to cry, vent, throw things do it. This disease SUCKS. From one Canadian to another. Love ya eh!
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Desertmama: We're all here for you and pulling for you. Your treatment sounds like the same regime I was on; it sucks but you will get through it, promise! Often the first chemo is the worst. Talk to your onc about how you can lessen risk of infection; drink lots of water right before and after your treatment, take anti-nausea meds as directed, rest up when you need to, but get out and walk or be active if you can, it helps. Those are my best tips. It's hard when you're so far away from family, but we can provide some support here. Finally, please don't feel embarassed that you can't pull it together any better.... chemo are strong drugs, after all, they kill cancer cells... only natural that you feel effects of it all. Time to give yourself a break.
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Desertmama - glad you found us. You'll get a lot of support form the wonderful ladies on this thread. You are not alone. This group is from the far-flug corners of the world. Stick with us!!
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Question about Neulasta and Claritin. I got my first shot this morning and have bought the Claritin. When should I take the Claritin. The MO said yes there was evidence it helped with the bone pain but didn't tell me how to take it. Any suggestions?
Thanks
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Hi tookybum..only had the shot this go round..no bone pain at all..I took the generic claritin about an hour before the shot..and for about 3 days after..good luck..hope it works for you..
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Desertmama - So sorry you have this nasty disease and to be so far from your loved ones. Please accept all of us as your sisters and let us hug you and hold your hand as you go on this journey. My concern is for your infection. My WBC went way down to a dangerous level after my first chemo infusions. The oncologist ordered an antibiotic each time. I was also told to avoid crowds and other things to keep the chance of infection down. Perhaps you could discuss this with your oncologist. I think we all have had chemo and we have each reacted to it differently. You will find your strength to fight and win. Hug your daughters and let them share in caring for you. That way they'll feel they have value and will learn from the experiences how to be helpful. Wishing you a good day, a good week, and I know you can do this. Jan
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Tooky - I took the Claritin the morning I was going to get the Neulasta shot. I hope you got the 24-hr regular Claritin, not claritin-D. I first started taking it for 3 days after the shot but found that wasn't long enough as I started get bad bone pain if I quit taking the Claritin. So, after that, I took the Claritin the day (morning) of the shot and for a week after. I never got bone pain from the Neulasta after that. Other people said they only needed to take it for 3 days so whatever works for you. Since it wasn't a big deal taking Claritin for a week, I just took it that long to be on the safe side. I also bought the generic form of Claritin as it was cheaper and it worked fine.0
