Calling all TNs
Comments
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I have been away from the boards for a couple of weeks. So sad to hear we lost 2 BC sisters.
Thinking of all you wonderful ladies...
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Tazzy - So glad you are doing well!
Inmate - So sorry for the drain and trauma. Totally sucks after all you've already been through...... You are a fighter all the way.
Lovely - So hope your eyesight is better soon. Is it from the BC treatment?
Karen - 67 is really young......she is lucky to have a loving friend like you to help. My mom is 82 and I couldn't imagine her going through all this cr@p.
Hope60 - Great news from the RO! Stay strong
Cocker - I'm not sure what the 50/50 thing is, but I know that this reality check is teaching me how to LIVE differently. More family time and less work....Hope the cafe is doing well!
Kathrnn - Good move on the abbreviations. It took me several weeks to figure out the lingo, and didn't know what RO or MO was until you posted it! Don't forget DH ( dear Hubby, right!?).
I'm having a wonderful time with my sister! I didn't realize how much I needed her until she arrived. We've spent hours and hours reliving the past and talking about the future. Laughing, crying, and then laughing some more. Going to miss her when she leaves on Sunday, then it's just me and the pups again. So appreciative for every moment... I told her about you gals, and she wanted me to say "thank you" for being here. All of you have made a difference in several peoples lives, I know you impacted mine.....
Hugs to all!
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Jazzy.......very lucky to have such a relationship with your sis. Enjoy every minute!
love to you............dawn
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Thanks, Dawn......you rock!
Back attcha Baby!0 -
An elderly woman was looking for a pet to be a good companion and not much trouble.
The pet store owner suggested a parrot, showed it to her and guaranteed her it would be a wonderful companion.
The woman asked if it would behave if she took it to church with her on Sundays.
The owner said it shouldn't be a problem and that she could put him on her shoulder and he would stay there.
She bought the parrot and for the next week spent time getting to know him.
Assured that he spoke properly and was well behaved, she put him on her shoulder and went off to church.
Just as everyone quieted down and the sermon began, the parrot looked around, squawked and said, "It's goddamned cold in here!"
Everyone turned to look at her and she ran out of the church in total embarrassment! All the next week, she talked to the parrot explaining the necessity to remain quiet during church.
The parrot understood so she put him on her shoulder and went to church the following Sunday.
Once again, just as everything got quiet and the sermon began, the parrot squawked, looked around and loudly proclaimed, "It's goddamned cold in here!!"
And again the woman ran from the church. The next day she returned to the pet store and explained the embarrassing situation to the owner.
Since she didn't want to get rid of the parrot, the owner offered the following solution:
If the parrot does that again, grab him by the legs and swing him around 5 or 6 times and return him to your shoulder." "That'll work?" asked the woman. "Guaranteed!" exclaimed the owner.
So, the next Sunday she took the parrot to church and, sure enough, just as the sermon started, the parrot squawked, "It's goddamned cold in here!!" Without any hesitation, the woman grabbed his legs, swung him around 5 or 6 times and placed him back on her shoulder.
The parrot shook his head, ruffled his feathers and said, "Pretty fuckin' windy, too!"0 -
BernieEllen - thank you that was just what I needed.
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To all of you wonderful ladies with my love
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Cocker - Thank you. A warm Hug is just what I needed.... :-)
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A college class had to write a short story in as few words as possible and include religion, sexuality and mystery. This story earned the only A+: "Good God, I'm pregnant, I wonder who did it?"
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Hello Ladies;
Just a quick check in. Week out past my first treatment. Got my Neulasta shot on Friday. Took the Claritin (yes not the D) but felt like I was hit by a truck on Saturday. Had to take my bra off because it was hurting my shoulders. Slept LOTS. Maybe just giving myself the right to do that. All else is well.
Sending out warm and genlte hugs to all the women who are keeping me sane. And for those we have lost is heaven's gain.
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Well seeing as how I have now seen the F-word unleashed here, I would like to share a quick story with you ladies. Please keep in mind that I live in an Islamic country in the Middle East where you don't ever hear this word in public, and flipping the bird will get you sent to jail and then deported.
Apparently I created a small spectacle coming out of surgery. It seemed a gargantuan effort to form words and speak them, and I wasn't sure if I dreamed it or not, but my DH reports that the !st thing I said was I love you, before blurting out FUCK CANCER!! Repeatedly. He says the nurses remained deadpan and politely pretended not to hear.
These, of course, were the very same 2 sentiments running through my head like a mantra on the way into surgery.
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Well seeing as how I have now seen the F-word unleashed here, I would like to share a quick story with you ladies. Please keep in mind that I live in an Islamic country in the Middle East where you don't ever hear this word in public, and flipping the bird will get you sent to jail and then deported.
Apparently I created a small spectacle coming out of surgery. It seemed a gargantuan effort to form words and speak them, and I wasn't sure if I dreamed it or not, but my DH reports that the !st thing I said was I love you, before blurting out FUCK CANCER!! Repeatedly. He says the nurses remained deadpan and politely pretended not to hear.
These, of course, were the very same 2 sentiments running through my head like a mantra on the way into surgery.
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Hi all, Melissa here, just want to start by saying THANK YOU! Thank you for sharing your stories, ups and downs, positives and negatives. You all give hope to others with TNBC. I do not have BC but my mom was recently diagnosed and is awaiting surgery, then chemotherapy. She will be seeing a plastic surgeon tomorrow regaurding tram flap reconstruction. She is 56 tnbc, brca1 & 2 (-) unstaged at this point. Praying for a good outcome from surgery. I have been reading all your posts for the last week and it is helping me through this scary time....the unknown is awful. I will continue to think of you all often, even as a registered nurse and being exposed to the many crazy things that can happen to your body, nothing prepared me for this....Thoughts and prayers are often with you all!!
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DesertMama - So proud of you! Let it out, scream it out, let the world know just how you feel! How are you doing? Keep in touch. We care.
Cocker - Still holding your hand and sharing your worry.
Inmate - Holding your hand and sharing your worry, too. You are going to beat it this time for good.
Dormac and Bernie - Thanks for the laughs. I think we all needed a reason to chuckle.
I found a huge zucchini this morning. I've been on internet for healthiest recipe to use it up. Most need to turn on the oven, but that seems crazy when it is so hot here.
A cheerful hello to all you sisters, Jan
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Desertmama... love it - oh! to have seen their faces
mdt1980 - glad you found this site. I am still fairly new to this, but I can tell you now that the ladies here will embrace you and offer any advice for you or just a shoulder to cry on. Sending you hugs.
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Hi Ladies,
I am 32 and new to this site! Newly diagnosed with TNBC (7 wks ago), Stage III with lymph node occurance (don't know how many nodes). Have my third treatment on Friday, I think I am getting AC dose now and after my 4th bout will be heading for surgery, then 12 wks of Taxols & 6 wks Radiotherapy. More testing to be done but cannot at the moment because at the time of diagnosis I was 20 wks pregnant with my first baby, am now 27 wks. Thank God I can receive treatment while pregnant and so far our little gift from God is doing really well. We might be looking at an early delivery around 37 wk mark but baby will be pretty much fully developed by then. It is such a rollercoaster! What I find difficult is what is normal aches and pains and what isn't. I am getting AC doses every 3 wks and find that my breast is quite tender in the second week after treatment. Did anybody else find this? Immediately after treatment my ribs/muscles under said breast can be sore, just find I have sleepless nights over the aches & pains. Any advice on this is welcome. Thank you all so much for such positive stories, they are just golden.
Much love x
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Mumtobe: Hi again, I replied to you on the other thread, and glad you found your way over here too. Aches and pains are not at all unusual with chemo (and long afterwards) - though most women find taxol to be the harder one on that front than AC. That said, if you have pain that is affecting your sleep, I would check in with your docs on it. If it's nothing, you put your mind at ease and, if not, you get a head start on dealing with whatever it is.
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Does anyone use DIM - estrogen metabolism formula? I couldn't take it anymore, the lethargy, the hair thinning, the hot flashes, the moods. I am so very scared though but I am taking this, two pills a day starting last Sunday. My Onc. had told me that even though TN is not fueled by hormones directly, they still think that hormones play a big part in TN. I just want to balance my hormones. I know I have very low level of blood ER. It says on the pill box "promotes healthy estrogen metabolism". The endocronologist told me he can't do anything for me, he doesn't advise any hormones or anything. Well, Dim is not a hormone. I think it is more like it supports the activity of enzymes that improve estrogen metabolism.
I am having pains in my uterus where I am having difficulty walking with these pills. I have never had this in my life. I never even knew where exactly our uterus is located, I mean not being able to pinpoint with my finger. Now I know. I am wondering if I should stop taking this.
Do you guys think it is dangerous for me to try this. I am very scared, but I have got to do something about wanting to feel better. I read somewhere that it just lets the good estrogen stay and the bad ones are eliminated. Doesn't the bad estrogen (xenoestrogen) cause breast cancer?
Any knoweldge about DIM or your experience with it, would be very appreciated. Thanks.
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Saw the Oncologist (sweet man) today, 7 days past first chemotherapy - white blood cells were 16,200 - thanks Neulasta . . . after a full week, I can honestly say "I can do this" . . . I was so very petrified fearing the worst, now the first week has come and gone and the doc says it is unlikely to get worse for the next three sessions . . . YIPEE YIPEE YIPEE . . . picked up the EXPENSIVE wig on the way home - it's actually quite nice, hubby says he thinks he likes its color better than my color (of course, who would really know what my "real" color is - I haven't let it be au naturale for 100 years) . . . so, GOOD LUCK TO YOU ALL, I am a very happy camper today. I agree with INMATE - we have to choose to be positive and choose to FIGHT LIKE GIRLS against this nasty beast.
INMATE - you are an inspiration of hope - - may God in his mercy wrap his big loving arms around you and STOP THE MADNESS that your body is experiencing . . . I pray for you PEACE to sleep, STRENGTH to walk and sit, DESIRE to eat and drink, and REMISSION/CURE for the nasty cancer . . . . THANKS A BUNCH FOR YOUR INSPIRATION.
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Desertmama- great story!
Hope everyone in treatment is having a "good" day.
I'm off to New England for the week.0 -
Have a great trip Karen!!
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Desertmama!...Love your story...oh yeah..the f word is definitely a part of our vocabulary here...unleash here girl...and nowhere else....we don't want anything to happen to you....
Inmate...you truly are the heart of this thread...thank you so much....
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Titan - Let's not forget the wonderful and supportive gal who started this thread..... Yes, that was "YOU"! I agree that Dawn is the heart of this thread and believe you are the soul. Look at how many lives have been touched..... Thank you for creating this safe haven. With tons of respect and love to both of you. xoxoxox
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JAN69-So where exactly did you find that huge zucchini?
mumtobe-Congrats on your pregnancy! Sorry you have to go through this crap during such a joyous time in your life.
Inmate-Ugh, sorry you have been not feeling well. It always amazes me how much you do!
Painting-I absolutely love your work! Remember I am the one that asked you about a tattoo, but I am chicken, so maybe I should have a chicken tattoo! I also love chickens, I have 17 and 2 roos!
Lovelyface-I don't even know what DIM is! My doc also thinks that hormones have a roe in triple neg. cancer. So sorry you are not feeling well.
So my insurance denied my pet scan! Says there are other tests available. My doc is gonna be mad! Just got my tumor marker test ressults, higher again at 31. So they have been 57, 61, 38, 27, 29, 24 now 31. Doc said should not worry. The 24 number was while I was on aromasin, but I quit taking it because it made me miserable. Now he put me on tamoxifen, maybe that will make the numbers go down also without side effects. I just don't know how worth it is to take these drugs with only 3 % er pos. Oh the worrying does not stop does it. Oh, had to cancel my bone scan because insurance is also dragging their feet on approving that! What is up with my insurance co? They used to approve everything no problem.
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Hi ladies. Glad to hear good news from those of you who recently started chemo. You will make it through sooner than you think!
DesertMama - so very funny!!!
Inmate - you just freakin' rock!
I received an email from my oncologist this morning . She doesn't have the final radiologist report, but her message pretty much summed up what I thought I saw when I looked at the scans. It looks like the lymph node in my axilla is bigger than it was at the last scan. She said she didn't see anything "new" but we would wait for the final report before deciding what's next. She suggested a few other chemos to try, or perhaps we would add one to the Xeloda I'm already taking, assuming there is any sign of improvement anywhere. She will also consult with Dr. Chen at Dana Farber in Boston. I've got the best minds watching over me, but it seems this breast cancer has a mind of its own.
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bak94 - I am so mad to hear that your petscan was denied. How can they deny such an important scan for BC patients?
I just wanted to tell you that whenever I had a breast or thyroid biopsy, my tumor marker, especially CA.27-29 went up, however, never went up higher than 34. It always remained within the normal range, but did jump a lot within the range. So I am sure all these different types of drugs and scans can affect the tumor markers. Except for3, all your numbers are within the normal range. 0 to 34.9 is within the normal range.
You are 3% positive for ER, I was 5% positive with PR. My body absolutely could not tolerate aridimex which I took for 2 months. Initially it was great, I looked great and even lost some weight, but later, it almost disabled me. I wish you all the best on tamox. My Onco. said he would twist my arm if he had to, to make me take the stuff, but I could not handle it.
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bak 94 - Oh how funny! I "found" that zucchini under a leaf of the zucchini plant. I'm embarrasesd at my lack of clarity and amused by your question. So sorry your insurance company is not cooperating with your needs. What a lousy thing to do to you. When you talk about bone scans, do you mean the nuclear bone scan or the bone density test?
Luv - So glad you have the best minds watching over you. They'll find the right potion yet.
Painting - When I grow up I want to be a painter like you. Love your work.
Mumtobe - Welcome. You've found a good home here.
Watching the Olympics wishing I had a tiny portion of their energy. Those athletes are amazing!!!
Jan
Fern - So nice to read your positive post today. So happy for you.
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Desertmama.........my sister and I like to ask occassionally if it is a you, me or off kind of day. You get the picture. Say it loud and say it like you mean it...of course I agree about saying it on here for safety's sake.
mtd1980....welcome. come on in and join the fun! You will find lots of support with big doses of laughter here.
Lovely....I've never heard of that before. I will be interested to hear what the other ladies have to say.
Fern.....yup, you're on a roll now. We expect a pic of this gorgeous new head of hair of yours.
Karen.....have fun. Are you staying in a cabin or risking the tent?
Yeah Jan....spill on the zuchini
Bak.....get the chicken tattoo! It's perfect. side story: I worked at a store, third quarter of 2009, filling in for the owner who was having her first baby, Gus. The store was filled with wonderful locally made jewelry and I fell in love with this one ring, a giant sterling silver chicken. The price tag was such that I just drooled on it daily and apparently went on about it to my husband. My wonderful husband went behind my back and got that ring for me. The best part is that I did not know until our anniversary, July 2nd of the following year. Our 10th, to be exact. That day also happened to be my first day of chemo. I wear that chicken every time I go to chemo. We call it my super chicken. I love my husband so much for the support and thoughtful things he does for me. I am one lucky woman! Oh, and what is up with your insurance? I wish they would just leave the doctoring to the doctors.
Luv......argh! That bites! Which chemos have you done so far?
Ladies, ladies, ladies.....you make me cry with such kind words. Today especially, I appreciate them even more. Every one of us on this board is the heart and soul. We are a village and as a village we will be strong!
Have a wonderful night. Off to take an ativan. This girl had too much coffee today.
Love to you all!
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Hope....how are you doing today?
Cocker...are you out there? Are you locked out again?
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I'm curious about low ER %'s. I'm 1% ER+, which I'm told doesn't change my TN status, but my MO said she wouldn't consider Tamoxifen, and I've also been okayed to go back on birth control if my period comes back, and to use an estrogen cream in the meantime (hoping to get back to a better love life with the BF). Any thoughts from those of you on Tamoxifen or with otherwise low ER #s?
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