Calling all TNs
Comments
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5owens...I had an lx..and I'm doing fine....of course...there is this little niggling voice in my head saying that maybe I should have had a MX..I dunno..it's a tough choice...I was diagnosed on a Weds...had the lx 2 days later...they got me in that quickly..would not have been able to do that with a MX...I had it on a Friday and was back to work on Monday...stupid..maybe..but that is what I did...I had mammos every 6 mos for a couple of years..now once a year...the thing with Tn..is that is often doesn't come back in the breast but moves on to other parts of the body...I guess I don't worry about my breast so much as other things...
Ah well..it is your choice...but either way..you will be glad to have the sucker OUT OF THERE...that gives you a little peace of mind...it sure did me.
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My, you ladies are chatty!
On my iPod, makes it hard to remember what everyone wrote.
My memory is so bad, I can't even remember if I put conditioner on, in the shower.
Annie - I hope Mandy gets good news, so that you can all rest easy.
Inmate - wishing you all the best!
Hugs all around!
I am happy to be home!!!0 -
bornto survive so happy for your great news!
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Thanks everyone!! I really trust my surgeon so after all test results are back and after speaking with her I will make my decision. It helps hearing all of your personal experiences has helped me too!! Thanks for always listening and guiding!!
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the5owens: Here is an interesting study, albeit with limitations (it is retrospective) that suggests Lx with rads may have better outcomes in TN than Mx (without rads). http://jco.ascopubs.org/content/early/2011/06/29/JCO.2010.33.4714.abstract?elq=4fb8490e0ed5444ab6225f74da463b8f
On the other hand, there is a recent thread on this board with a study showing 3X risk of local recurrence with Lx over Mx - though the actual risk level is not stated (it could be quite low, who knows?). You might want to do a search to locate that discussion here.
There is also this discussion from the Ask the Experts section of BCO.org, so you can hear the medical point of view: http://www.breastcancer.org/symptoms/diagnosis/ask_expert/2008_07/#q20
One thing I would like to clarify is that local recurrence is possible even with Mx... there is some tissue that remains... though it is uncommon. Unfortunately this disease brings no guarantees.
In the end your surgical choice is a personal decision. For me (and my BS who I loved and trusted), Mx seemed like an overkill intervention. If the path report showed dirty margins, I'd opt for a Mx then. I did have a close 1 mm margin but that was against the chest wall and a Mx wouldn't have made any difference anyway. I did radiation of course. I didn't know my TN status until path report, and at that point, I was more keen to get on with chemo because, as my surgeon said, no one dies of cancer in the breast. And Titan is right - TN is more likely than ER+ tumours to recur somewhere distant.
That was my logic, but this decision can also be emotionally charged, and you need to listen to your heart as well as your head.
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Kathrynn....welcome back. girl, you crack me up.
the 5owens.....i, like Luv had both done. and well, it came back. Looking back, I think I would have done it the same way. It appears with TN anything is possible. I should say the first recurrence was in the same breast so taking them both would not have mattered.
cocker.....what's the word with Mandy?
well ladies, the results are back. No, it is not what we had hoped for, but I must admit I was not at all surprised. In fact I took the news very calmly. Must have been the ativan. The little bugger has set up home just where I thought. I have a tumor in the center of my chest that extends into my right lung. Swollen gland (?) in my very puffy right armpit and something about a tumor on my adrenal glands. That one I had never even heard of. All of this makes my very fine Dr. nervous and concerned. I will go see him next week and we will decide if this chemo is working or we will move on to another option, my 12th Abraxane. The trial is still out there s well. I'll keep you all posted. Cancer fucking sucks!
Luv..... am currently on Ixempra and yes, it is a real ass-kicker. Doable, but not at all fun. Keep us updated on your next steps.
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Inmate - Cancer does suck! Your recent test results are distressing but let's hope they find the right cocktail for you! Sending you strength and attitude - kick cancer's ass!
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Karen.....how did camping and the MIL end up treating you?
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(((Inmate))) - so sorry you got such sucky news. You've put up such a good fight and the FC just doesn't play fair! When you're ready, and if you have the energy for additional discussion threads, please join us over on the Metastatic/Stage IV forum. I think there is a thread somewhere dedicated to Ixempra. You've certainly got the right attitude along with courage, and strength.
CS or anyone else - do you know what kind of dog is in that picture? I'm obsessed and I want one just like it. I've been talking about getting a dog for quite a while. And I think the time will be right after we get back from our trip in October. I love small, cuddly dogs and that little girl puppy is irresistable.
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cocker.....it may have worked. my husband did think that was one of the cutest puppies he has seen in a long time.
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Crap, inmate, so wish it had been better news. You and your docs are so good at staying on top of things... I'm hopeful you can get ahead of the little bugger with the right treatment and kick it to the curb.
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Inmate - sorry to hear the news. Fingers crossed the next chemo does the trick. (((((hugs)))))
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ditto sugar's mesage
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âââwww crap......Was hoping the reason I couldn't hear the scream yesterday was because of the fog here...… I'm so sorry for the bad news inmate. I too will have my fingers crossed that the next chemo will be THE GOOD ONE! Big hugs to you. xx
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Inmate - the only words I can think of is just plain f*%k off cancer! I am so sorry that you were right about your symptoms. I hope they can find a combo to kick it's ass! In an odd way, thank you for helping me. When they did my initial scans, one of my adrenals had multiple nodes, but they weren't concerned about it. I'll be having my PCP, rescan that baby!
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Prayers that they get you on the right combo with easy side effects to kick that FC into remission. We are here if you need us! Cyber Hug Honey!!!!
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Like everyone else has stated Inmate, so sorry for the sucky news! Praying they find the right treatment for you soon so you can get off this freak ride! Sending tons of love and warm hugs you way..... FC sucks in a big way!!!
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Well f&ck f@ck f#ckity f%ck! I'm so sorry, inmate. (((hugs)))
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Just don't get this sneaky cancer. Big hugs to you Inmate. And what riley says! I think that little puppy is just what you need, don't know how many times I have cried my eyes out into my doggies.
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((((inmate)))) just want to reiterate what everyone else has said. Thinking of you honey.
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Thanks ladies.......I have made a decision, I am not going to work today, instead I am spending the day at the zoo with my sister and BIL. Oh boy, I can't wait!
Have a great day ladies, I know I will......love to you all!
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Dawn -
Enjoy the zoo - that's a great choice you made. So sorry to hear about the scan results, I was praying it would be a spasm or something related, but not this. As all have said before my post, praying that this next treatment choice will knock the crap out this fucking disease and be gentle on you. Enjoy the day with your sister and bil.
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Hugs to you Inmate. Enjoy your day.
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Goin to the zoo, zoo, zoo!!! Excellent decision!
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Hope you have a great day at the zoo Inmate. Sorry bout your news.
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Awe CRapity crap Inmate-- Praying they find the right chemo to punch the hell out of that FC. Enjoy the zoo sweety.
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Inmate,
I wish I could be there to give you a great big hug. I am so distraught that your news was not good. F...ing Cancer. Hope you had a good time at the zoo.
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Just wanted to let yall know my friend Leanna met with her oncologist.. the lump was nothingmore than muscle.. It was great to hear that good news for my stage 4 friend. On a different note, I have a red spot on my cancer boob that has not gone away and is growing it feelslike a pea under the skin.. Next week will have my surgeon have a look see.
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Inmate: I am screaming F*%K!!!!!!!! NO!!!!!!! Enough is enough already. But if anyone can show this little shit who is boss, it's you. Go get em' girl. Sending you lots of hugs xo0
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This poem was posted on another thread I visit - wanted to share with you.
THE CANCER CHANT, I WILL RANT.
A poem contributed by a visitor of Healing Cancer Naturally
Cancer I did not give you the right,
To invade my body and take a bite.
This is my body and with all my might,
I will prevail with one hell of a fight.
To the cancer inside, I will battle and kill.
For that is my body's God given will.
To my cancer, these words I do send.
YOUR LIFE IS SHORT AND NEAR THE END
J Joens, 10/13/050
