Calling all TNs

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  • ksmatthews
    ksmatthews Member Posts: 743
    edited August 2012

    Kim thank you so much for sharing even though the tears are flowing.  She was such an inspiration and missed so much!  I don't think anyone can understand the bond us TN sisters have.  They are family!

  • monisch
    monisch Member Posts: 43
    edited August 2012

    any of the ladies here involved in a support group ?? if so, what do you do to keep the attention, make the meetings fun .... we dont always want to talk about cancer and we dont want to just a be a coffee  klatch group.  I would appreicat any new ideas !!  thanks

    Hope everyone is doing fine and hope yal had a great weekend.... 

  • onvacation
    onvacation Member Posts: 521
    edited August 2012

    Kim, I did not know Suze, I think she passed when I first joined the board, but I was moved by all the support and love for her and all the other wonderful ladies here. Thank you so much for sharing.

  • Luah
    Luah Member Posts: 626
    edited August 2012

    Kim: Thanks for reaching out - your words mean a lot. It's funny, a fellow TNer (Sugar77) and I were just talking about Suze this afternoon. She had such an impact on all of us here, and still does. Not forgotten, fondly remembered. Sympathies to you and Suze's family.  

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited August 2012

    Oh Kim thank  so much for posting about Suze even though my tears are flowing freely.  We all miss her so much just as you must do.  She was a wonderful,  helpful,  kind lady who only thought of others. I will treasure your words and make sure I am here always for all our friends on here as Suze was for us. Thank you.  Annie    

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited August 2012
  • TifJ
    TifJ Member Posts: 804
    edited August 2012

    Kim- Thank you so much for sharing your loving thoughts of Susan with us. We miss Suze, LJ and MBJ more than we can put into words. She was blessed to have you as a friend.

  • sugar77
    sugar77 Member Posts: 1,328
    edited August 2012

    Kim, as Luah said above, we were at a luncheon today and were talking about Suze. I was commenting on how Suze sent me a Private Message last summer when my family was going to Boston. She told me all of the spots to visit and said to have pizza at Regina's and cannolis at Mike's in the northend. We took all of her suggestions. Next week my family's going on a cruise and one of the stops is Boston. Top on our list is having lunch at Regina's and I will be thinking of Suze. Your words are beautiful and I thank you for sharing with us. 

  • mags20487
    mags20487 Member Posts: 1,092
    edited August 2012

    that was so beautiful Kim...thank you. 

    Back from a great weekend with friends in Tampa.  So fun to finally have a little weekend away.  All we did was eat..me so fat!

    Looking toward my DIEP in November and getting just a little nervous.  i know it is what I want for sure.  Just may wait til Fed depending on my ridiculous insurance.

    Luv...glad you got into that trial. 

    Inmate...still hugging you darling.

    Cocker...let us know when you hear anything about your daughter

    TifJ...still waiting for my period to appear too.  Been gone since last October.  Hope it stays away but always wondering if it will.  MO is doing blood work when I go back in Oct for followup.  Hot flashes have diminished quite a bit too but still get some doozies..they are just fewer. Hate worrying about getting pregnant when not sure if it is even possible.

    Mags

  • Babs37
    Babs37 Member Posts: 320
    edited August 2012

    Thank you so much Kim for sharing your beautiful words about Susan with us. Susan's passing really hit me hard. Susan's was one of the 1rst on here to reach out to me, when a was affraid because my nodes didn't shrink on chemo. She was going through the same thing. So we encouraged each other throughout our treatments, SE and shared about our kids too. I really miss her. She was such a special lady. 

  • lrm216
    lrm216 Member Posts: 534
    edited August 2012

    Kim:

    I am attempting to post this through my tears.  What a beautiful post you wrote and all the love and admiration- and then, the loss, that you have felt and still feel for Suze is so evident in every word you typed.  What a very dear and precious friend you are and I know that Suze is smiling down upon you, so proud to have shared her life with you.

    Suze, LJ and MBJ were so very dear to all of us - I know we all were terribly shaken by the loss of these three most beautiful young women.  We all started out just about on the same page, and to have to watch three of our most beloved sisters begin to suffer and fall to this beast of a disease is something etched upon each of our hearts forever.  These are three horrendous losses that not a one of us will forever forget - they meant that much to us.  While Suze and LJ began to fell they might be fighting against the odds, they each remained so vivacious, optimistic, and endearing, oftentimes comforting us!  None of us, not even Mary, knew just how far downhill she was going, while not even under active treatment.  She was so busy and excited about planning her new life in Kentucky.  In retrospect, I honestly believe that Mary thought all the pain she was suffering in her shoulder was from the frozen shoulder she had suffered shortly after her surgery.  Obviously, by the time she was seen, it was found to be cancer, spreading like a wild vine and then, within such a short period of time, shutting down her liver.  These were most assuredly three very tragic losses, for their families, friends and for all of us.  Each of them had so much more living and loving to do and give.  I will mourn them always.

    Thank you so much for thinking of us and your above post.  May life always be gentle with you,

    Linda

  • TifJ
    TifJ Member Posts: 804
    edited August 2012

    Sugar and Mags- I saw just a trace of blood today. I really. really don't want it to come back. I honestly thought that at 46 it wouldn't. My husband had a vasectomy 7 years ago, so getting pregnant is a remote possibility. Shoot, I had my last one at 39- I don't need one now!!

    Congrats on 1 year Mags!!

  • sugar77
    sugar77 Member Posts: 1,328
    edited August 2012

    TifJ - I had a bit of blood myself last November.  My GP told me to let her know asap if I ever have any blood. So, when I had some traces, she sent me for a pelvic ultrasound and all was fine.  Afterwards, my medical oncologist said it was very common having trace blood. Hang in there!

  • TifJ
    TifJ Member Posts: 804
    edited August 2012

    Thanks Sugar! By the way, I meant I had my last kid at 39, not my last period! HA!

  • CatWhispurrer
    CatWhispurrer Member Posts: 193
    edited August 2012

    Kim - thank you for the thoughts you shared with us about Suz.  I had only been on here for a few months before she was gone but she was one of the first to welcome me.  I'll always remember her, especially now through your words.  We are a small, loving family and each loss is great.

  • borntosurvive
    borntosurvive Member Posts: 194
    edited August 2012

    Kim: Thank you for allowing us into your feelings, thoughts and memories of Suz.  I was not fortunate to have "met" her as I think I came on here after she had passed away.  But the way you speak of her, I can feel what an amazing person and friend she was to you and so many others here. 

    I have been SO thankful to have such a supportive and amazing group of sisters in our TN group.  When I have been having a bad day and feeling like giving up it's you ladies I know I can turn to.  Being young it was hard for me to find anyone who understood and truly got what I was feeling.  It's you ladies who "get" me.  Thank you to everyone, I know it has been a rough few months with the passing of our sisters and the return of cancer for some of our other sisters.  But we have each other and we can get through anything.  HUGS to you all ladies xoxo

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited August 2012

    Kim,

    Thank you, that was so beautiful. I don't have words, just, thank you.   

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 221
    edited August 2012

    Kim..your post on Susan is so touching. She was a remarkable woman who I only had the opportunity to lunch with once. She was so practical and resilient-it was hard to imagine her not beating this beast. She supported us so much and was a wealth of information and kindness to us all. We all loved and cared for Susan, LauraJane and Mary and I am still so sad at their loss. I think of these wonderful women often and pray that their families are able to cope with such trememdous loss. Thank you for sharing your story.

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 221
    edited August 2012

    Inmate....I hate f.....ing cancer and I so hope you are able to get into a trial that will work for you. Ativan is a good pal right about now. Big hugs to you and your husband.

  • Lory48
    Lory48 Member Posts: 266
    edited August 2012

    Kim- Thank you for the beautiful words. As with others that have posted here- Just being diagnosed and searching for some advise from these great ladies not more than 10 months ago,meant so much to me. I read your words and wiped tears..Thamk you again for sharing your story with us!

  • kathyrnn
    kathyrnn Member Posts: 366
    edited August 2012

    Kiim - thank you so much for sharing about Suze, and LJ and Mary. It made me cry, but in a good way, to know that they are still in our hearts. You were so lucky to have such a wonderful friend, as was she to have you.

  • Nuan
    Nuan Member Posts: 15
    edited August 2012

    Kim -- Truely appreciated! Your letters makes my eyes wet. Even I haven't met "sisters" in person but I can feel here is home for us, tnbc fighters too.

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited August 2012

    Lovely and so touching - Kim

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 221
    edited August 2012

    I am wondering if anyone has pain in their chest, feels like my ribs going up toward my clavicle. I notice it when I swim and it gets worse the more I swim. I am thinking maybe it is  weakness in the bones from radiation but I wonder if anyone else experiences this. I don't know if I should email the oncologist. It has worsened from swimming I think.

    Thanks all and have a fabulous day.

  • Luah
    Luah Member Posts: 626
    edited August 2012

    born: Beautiful avatar photo.  

  • borntosurvive
    borntosurvive Member Posts: 194
    edited August 2012

    Painting: I am just wondering does it only happen when you're swimming?  If so I would tend to think it was a muscle thing.  I just returned to the gym this week, did a basic yoga class and couldn't walk for a few days.  I never had radiation but did chemo and cannot believe how weak I am.  You can always just air on the side of caution and contact your MO and let her know for your peace of mind. 

    Luah: Thanks!  I had professional pics of my bald head, I wanted to capture the moment in time.  I figure (and hope) I am never bald again!!!  

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited August 2012

    Can some one pass the tissue?? We miss them so dearly and I HATE what CANCER has taken from all of us. I may not post everyday, but my heart is always here and to answer your question YES we are FAMILY!! Maybe not by blood but definitely in spirit.

    RIP LJ, Suze35 and MBJ.....

  • navymom
    navymom Member Posts: 842
    edited August 2012

    Just feel the need to add....Pauldingmom, Jenn3, Blonde lawyer and Beccad.

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited August 2012
  • mags20487
    mags20487 Member Posts: 1,092
    edited August 2012

    painting--- do you have trouble with sleeping on your side too?  it could be inflammation from rads.  i actually had it bad on my side and ribs,  felt like it was bruised for months.  As someone else said it could also be a muscle thing.  i am trying to stretch out the stiffness leftover in my chest from the BMX.  It is going on a yr since it was done and still have trouble.  Hope it clears up for you soon or go see that Doc.

    Maggie