Calling all TNs
Comments
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This is for Inmate. It's by Bill Staines. I met him through a friend of mine and became a fan. I hired for my friend's 50th birthday party as a surprise. It's one of the best surprise gifts I've ever thought up. This is to celebrate your Zoo day.
http://www.youtube.com/watch?v=rKmITHkwc_w&feature=youtube_gdata_player0 -
Inmate, honey, I love you! You are my rock, girl!!!! I hope you have lots of fun at the Zoo today! You are a very beautiful woman, inside out, and you give us all a lot of hope. I Loved your Avatar from day 1 and then I saw your bold beautiful pics you posted, which were full of strength and beauty. You keep on the fight, Girl, something's gotta work. You will not stop the fight, I know that. Sending you hugs today!
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I ditto what Lovely said.. could not have said it better. Your profile pic tells the story we all know. Fight like Hell girl!!
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Inmate...Damn!!!
Keep up the fight, girl - we have your back.
As far as the "t-shirt" goes...I'll pass and keep just the memory...and knowing that I made you all laugh for a little while! As to your comment about "sick humor"...I worked with pathologists for over 8 years...doesn't get much stranger than that! Humor away, Dawn!
Lory - I was in Meridian today. Where are the foothills? Just this dirty, smokey curtain hanging over the valley, foothills and mountains. Accckkk!
~ Shar
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Inmate- Son of a B*tch!! I hope you get a "magic potion" soon!! Glad you blew off work to have a fun day!!
Lory- sending good thoughts that your spot is nothing!
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Inmate, That really sucks. I got on here to check on you and wanted to hear better news - I hope the next chemo will kill the beast - this stuff is so unpredictable and if you get the right chemo it can pack a good wallop.
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F&*K Cancer!
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Lory - hope all is well, and that the spot is nothing.
Inmate - damn girl! Wish there was something I could do to help. Sure wish they had gotten that teleporting thing going by now, we'd all be in your living room, slugging back the fake beer with you. Hope you enjoyed your day at the zoo.
I ended up at a motel, the weather was not camper friendly. MIL was okay, but I did get into it with a SIL. I think I told her she was mentally ill and a big fat liar. Ritalin makes me a little aggressive :0
Wishing everyone a good night's rest.0 -
Today I learned that my Uncle has cancer and my DH's Aunt has cancer. What the hell?! Is it an epidemic?
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YES born, it is
Inmate...hugs to you , you still have plenty of fight and we all are here for you
fuck cancer
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Inmate...I hope you had fun at the zoo..fuck work and fuck cancer! and that's all I'm gonna say about that
Born..yes..it is a f'ing epidemic.
Dang..I wish we could all go back to the pic of inmate and her sister and BIL...just pure fun in that pic.... I want to have that innocence back...for all of us..damn it.
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Inmate - damn sorry to hear the latest. Sending all the positive energy that I can that this treatment kicks the FC to the curb once and for all! {{{HUGS}}}
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(((((Inmate)))))
FUCK CANCER!!! Sorry, I had to join the chorus...
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Shar, the fires up in Pine and Featherville are creating this horrible smokey air. I woke this morning with no voice and the sorest swollen throat from the air quality here. I feel so bad for the homeowners up there (many friends). Being told to evacuate- just sad!
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Inmate...Sending Big Hug to you.. I read your posts and I saw your inner beauty. Wishing a beautiful mind like you the best for treatment!
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lory-glad your friend's lump wan't anything bad, and I hope your spot turns out ok. yes, those fires are scary, hope everyone gets out ok and that the fires miss their homes. Just such devistation.
Inmate-hope you had fun at the zoo! much too hot for me to do anything like that! do you like this hot weather? I am happy that there is sunshine!
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Inmate - I don't often post but have been following your posts for months. The spirit you share is so undeniably special. Your pictures let us into your private world and gave others the courage to post thoughts and pictures of their own private hell. Your strength and courage amaze me and give me strength. I think of you daily with love and concern. You will fight like hell because we need you in our lives, as does your family and friends. So give it all you've got and keep that beautiful smile shining bright. From a huge admirer xoxoxxo
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Inmate - I'm sending my warmest hugs as you tackle the crappy hand you have been dealt. Our jails are full of no-good people and then very good people get cancer. I just don't understand! But I've rolled up my sleeves and am ready to fight with and for you. Watch out F'n BC!
That black puppy is just about the cutest thing on 4 feet. I'm not a big dog person but I can see how people can go bananas for such a cute critter. Inmate, good luck with hubby. Perhaps one of those cuties could "follow you home." I'm sure he (puppy) would be a comforting companion and along with him (husband).
Blessings to all, Jan
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Inmate - I'm just so angry you have been handed more. I too will join in the chorus...FUCK CANCER!!! I just know someone with your spunk, strength & tenacity can best this sneaky bitch! Here for you always, just as you are always there for everyone else. Blessings...
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I'll echo the cancer sucks mantra. Inmate, I hope the chemo knocks it back. You deserve better!
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Spica-Too funny about the drawings on your body!! I think your scar looks great though. When I see other's pictures I realize how tight my skin is pulled! The bs did say he was going to get as much tissue and skin out as possible and I think he certainly did! So when I have swelling or inflammation it is so tight and miserable. Of course now I have lymphedema that goes from my arm to around to my back where I have an old scar from heart surgery when I was 4 (yep, the scar is on my back). I went to pt today and my swelling is worse, both my arms are about 3 cm bigger and my rom is not any better, so she said she is giving me a break. I am to purchase items for wrapping my arms and go back and see her in a couple of weeks to learn how to wrap:(. She said I can wait until the weather cools down, and the heat is probably making my sweling worse right now.
Mags-lymphedema does suck. It alters your life so much, like the cancer does. And my therapist told me how dangerous it is, that an infection can kill and that is why it is so important to keep it under controll. I think she was using scare tactics because I have not been wearing my sleeves!
Inmate-Hope you had a great day and that now you are able to get a good nights rest. If you need to borrow a dog I have 4. Small medium medium or large! (2 mediums). I would recommend the small one, he really likes to snuggle!
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Inmate - adding my voice to the cancer sucks chorus....echoing what Wrenwood has written about you.....and sending a big hug xoxo
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Inmate...so sorry my darling. Hate how unpredictable this disease can be! We will all be with you holding your hand. They will find that cocktail that knocks this crap outta ya!
Today is my 1 yr cancerversary. What a hell of a yr it has been. Heading to the other coast of FL today with friends for a great weekend getaway. So nice to not have to rush back for a treatment this time
Maggie
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Inmate~ your fine Dr will find the right cocktail for that sneaky fucking cancer! Keep up the fight!! Best thing that happened to me yesterday was being able to spend time in my perennial garden.
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Maggie - I hope you have a wonderful weekend.
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Inmate - just saw your update grrr, f*cking cancer. I'm thinking positive thoughts for you and your doctors to come up with a working treatment plan.
I'm back after awhile away. I went on my vacation as planned, and had a great time visiting family, hitting the beach, swimming, all the things I love. The rads burns have healed up very nicely and are for the most part gone, just pink skin there now. The rads also don't seem to have deformed the breast too much, yay, because if my PS tells me I need a tram flap instead of just an implant I am not going quietly.
The main lingering problem I have is fatigue. I get home from work, eat dinner, and pass out. Sometimes even before dinner. I hope this goes away soon, I'm getting nothing done and no time with my kids.
I see the rads onc the 28th, the plastic surgeon the 5th, hopefully all is good so I can start closing this miserable Chapter 2 of my #$!% TNBC. It is a bummer indeed, ladies, to have the beast return when I was finally feeling happy again. But I am trying to just stay in the present. Funny, I keep trying to set up travel opportunities with my family and they say yeah, maybe next year... They just don't get it. I don't know how long I've got and I want to spend it doing fun things NOW with the people I love.
I do have some questions for those with a local recurrence... I heard somewhere this makes me Stage 4. This doesn't seem right, because the PET shows it was local, no mets. Also, do I worry about mets from the old original cancer they removed back in '08, or mets coming out from this new tumor that popped up last May? If I have another recurrence, will it take another 3 years to show like the last? I bet even my oncologists won't hazard a guess...
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Minxie-I have never heard of a local recurrence being referred to as stage 4 as long as it is local. So yours was diagnosed as a recurrence rather than a new primary? I think you are right about the oncologist not guessing on your question about another recurrence, I am sure they do not know the answer to that, but may be able to give you statistics.
Hi Hope! I have been thinking of you.
Inmate-Hope you are doing something fun today and this weekend.
What can we do about this fc? We need a cure NOW.
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Inmate-did you ever do avastin? how about any other triple negs? are they still able to prescribe? it was a strange one for me, i had it with abraxane and had nosebleeds, but not much other se's. at one point my doc said he was going to keep me on it after surgery, but when my results came back he changed his mind.
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mags congrats on your 1 year anniversary!
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Minxie - glad you had a great vacation and you are on the mend from the rads. I agree - you had a local recurrence, that does not make you Stage IV, as it wasn't in your bones or organs. When I had my recurrence last year, I was staged as 3b because my intermammary nodes were involved.
I saw my Dana Farber MO today and I am set to begin a clinical trial using ARQ-197. This trial is specific to metastatic triple negative BC, and I will be one of 26 in the US on this trial.
http://www.clinicaltrials.gov/ct2/show/NCT01542996
http://www.dana-farber.org/research/clinical-trials/clinical-trial.aspx?tid=2726
The drug is administered in three week cycles, and I will take it orally twice a day...for as long as it works. This will work with our trip to Hawaii and so I am extremely happy that Dr. Chen agreed that this was a good one for me. It seems clinical trials are all about timing - showing up at the right time when a trial is opening or about to open and meeting the inclusion criteria. Lots of bloodwork and scans, but I see that as a good thing - someone is keeping very close tabs on this nasty beast. She does a lot of research and I have to think it's good for her career to have a patient who's one of 26. I am feeling very lucky today. The trial should start within two weeks so I will be waiting impatiently for the all-important call from the trial nurse.
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