Calling all TNs
Comments
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Tiffany,3 years!!! Wow that is wonderful..
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How come when you mix water and flour together you get Glue ?
And then you add Eggs...
And Sugar...
And you get Cake ?
Where did the Glue go ?
NEED AN ANSWER ?
You know darned well where it went !
That's what makes the cake Stick to your bum and hips !
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Bernie - keep the jokes coming. I so look forward to them!
Born - congrats on your negative BRCA results!
Luv, Lory, Lynn, Inspired and anyone I forgot - I completely agree with knowing vs. not knowing, especially when there's the possibility that mets may give no symptoms until they're "bad." I like what Inspired wrote: "the unknown is worse that the known." Hopefully, I'll be able to convince my MO of that...
Painting - YAY on your normal MRI, CA15-3 and CEA results! I hope you're still celebrating!
the5owens - I'll be thinking of you on the 1st. You can and will get through it! ((((hugs))))
Tiffany - thanks for the encouragement. As I'm sure you know, we all need it more often than we admit.
Cocker - I totally agree with you when you said that you feel like you'll never be free of cancer...waiting for the other shoe to drop. That's been my constant outlook since this journey started. At the oddest moments, I break down. I finally decided I needed some help and went to my PCP yesterday. She prescribed Zoloft and Xanax after telling me I had acute depression. She assured me that I would start thinking positively (like I used to) and would be able resume a life that isn't consumed with cancer and all the changes it has made to my life. I sure hope she's right. I HATE CANCER AND WHAT IT HAS DONE TO MY LIFE. I just want to go back to the normal worries like paying bills, making home repairs, etc. I'm tired of being so down and having to put on a happy face when I don't want to!
Love and Hugs to all, Lisa
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Just stopping by to say hi to everyone!
Glad to hear good news.
Has anyone heard from inmate or hope? We are thinking of you! Would love to see a quick note from you gals when you feel up to it!
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Need your hugs ....picked up my pet scan report. See the ONC on Tuesday for the results officially but on it says there is a nodule on the left lung. That is the side that I had rads so I am really hoping that is what it is. Says that it shows no signs of hypermetabolic activity and should be checked again in 3 months. Blah...It is going to be a long weekend til I see her on Tuesday and get her opinion. I hate this stupid disease so much. It has turned me into a hypocondriac! I am going to try to stay calm til I here different but man this is tough!
Maggie
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HUGS Maggie - hope it is just the rads like you said!
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Maggie - I feel your fear and sending you warm, gentle hugs filled with understanding. Jan
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Hello Everyone
Know I haven't been in for the past few days-week. First congrats to everyone on their progress and prayers to all that are still treading the chemo/rad/tests/surgery waters. Did that make sense? haha Sincere prayers and congrats. Hope that made better sense
Made it through my first 2 of 3 tests. Mammo on Monday. Not too many track marks left from 6 attempts to find a vein in my poor arm. Yikes I tried to trade in my port but it doesn't return so they couldn't use it. I am proud of me for not first, cursing, LoL and second passing out. I had one of my sisters with me and she almost got sick from watching. I TOLD HER NOT TO!!! LoL No results back yet but I expect great errrr good ones. Positive vibes kicking in there. I get total results and feedback on Wednesday. I am begging and requesting still more prayers.
Tazzy rads aren't bad just time consuming, at least for me. I only still have one problem from it and that is I get real tired two or three times a day so I have doubled my caffeine intake. I am trying as of today to cut back on my coffee consumption BUT I am rationalizing that there aren't too many things I enjoy in life. I want for not much at all, a paint brush, canvas, WINE, sewing machine, tons of art supplies and fabric. HaHa Oh yeah and to enjoy this FALL season, My most favorite time of year. Last year I hugged the bed, this year so far I have put pumpkins, witches and deoc's in my yard already in anticipation that I should not be so fortunate to enjoy the holiday seasons this year. It is HE$# to have to wait and worry.
Whew made up for the time not being here!! I do sincerely pray for the day that NO ONE has to go through all of this and that we can at least have the comfort in knowing through all that we are going through that we are helping to end or ease those who may follow.
Have an AWESOME LIFE EVERYONE!! Pray we all have a GREAT HOLIDAY season and may all our treatments and test get us that much closer to KICKING CANCER IN DA BLEEP!!
Prayers
Karen
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Hugs and thoughts Mags.
Thanks kareybeth... everyone says rads are a walk in the park compared to chemo... so hoping for a nice stroll for five weeks.
Everyone have a wonderful, joyous weekend.
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Lovely, I have no side affects from Avitan. It doesn't really seem to do anything for me, as Painting described. I still take one now and again when I am having trouble sleeping and it helps some.
I am taking 2 850 mg metformin that my MO gave me based on the trials. I am small too and tolerate it fine but went VERY slow working up to the 2 pills. It took me 6 weeks total by doing 1/2 pill once a day, to 1/2 pill twice a day, to 1 pill AM and 1/2 pm, then up to 1 pill AM and 1 pill PM. I always try to take it with food.
I had my first mammo/ultrasound since treatment ended. All looked well but my anxiety isn't really better because I have no faith in mammos anyway. I have dense breasts and don't expect them to ever find anything small. I feel that I will find anything abnormal if a lump comes up again, just like I did the first time. I am still contemplating asking the MO for one scan just so I can get an all clear and move on. I see him in 3 weeks.
Mags, it sounds like it is nothing. Hang in there. We are holding your hand. Waiting is THE WORST! ((Hugs))
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So much to celebrate ladies, a 3 year anniversary, and a clean bilateral MRI. Ladies, rejoice, good news, I am so happy for both Tiffany and Painting. Bak - don't forget to tell us how the pet/CT goes. Painting - your breast tissues must be really nice and fresh, as MRI's show so many false positives. I have had to do biopsies with MRI's but yours - you got such great news. Thanks to all who told me about their side/effects or experience with Ativan. I am in the same boat, it kind of helps me sleep, but now I am kind of afraid to continue to take it. I have taken 1 mg. since the cancer diagnosis, every other day or so, kind of loosens me and gives me a good night sleep, but I have some weird symptoms always going on, so was just wondering, since it is the only drug I take. I counted and realized I had taken 500 of those 1 mg. by now........ I wonder what it does to your brain.
Someone wrote about scans - I know it is such a personal decision whether to get something checked out or not, but I am so freaked out about scans, as every single time I have one, a few months later, I have something going on in that area. and then running to doctors to sort things out. I had a brain scan in April, 2012. Now I am dealing with eye problems and pain behind the eye...... headaches. I am not going for another scan, even if it is the monster. It doesn't scare me anymore......... come whatever may, but I am staying away from scans. It is a very personal decision.
I am a little worried about Dawn (our Inmate). I hope that sweet, beautiful, woman is feeling okay and having a comfortable time. I am sending prayers to her that she is comfortable. Such a beautiful and brave woman, she is. My hats off to her.
Fighter - good to be here. Love you all so much. You are all my family.
Annie - That was so funny!!!! Those pumpkin bumps!!!!
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I'm worried about Dawn too. She hasn't logged on in 6 days. Hoping she is alright.
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I actually just signed on to check on Dawn.
Dawn I hope you are doing ok ((hugs))
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I've been checking in, too, hoping to hear from Dawn and Hope.
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Maggie
Breath, you know what I bet it is the radiology. I was told that when that happens to let them know just in case they don't read the form I'm sure you filled out stating cancer/radiology duh!! I underlined mine big time so they better check that first before they say something is showing up. Prayers
TiffanyF4 & LOVELYFACE~~~KEEP KICKING BUTT!! So Happy & Proud. Makes me feel a whole lot better when I hear news like that~GIVES ME HOPE!! Congrats!! & Many....Many...Many More!!!!
Titan Agreed !! That is very sad and very sick of that person!!
pray all my tests/scans are good next Wednesday!! Ready to take my first step in moving on!!
Tazzy night and day!! JUST REMEMBER THIS....they will mention a cream to use .....ASK FOR IT THE FIRST DAY!! Tell them you want to stay ahead of any sunburns/burns!! Use it after every treatment and at night because you can't use ita few hours, I think 6 before the treatments
AND if you run out ask for more!!Again Prayers All
Karen
Catwhisperer that is the scan I am scared of too !! It is very hard to wait for scans/tests and then getting the treatment started!!
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(((Mags))) - the important words are "no signs of hypermetabolic activity." Those are reassuring words, so try not to worry too much.
(((Inmate))) - thinking of you and hope you are doing ok with the brain rads and keeping comfy. Much love to you!
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I've missed quite a few days, but I wanted to agree with LuvRVing about finding mets earlier than later. I'm still trying to find a place to keep my mind day-to-day so I'm not obsessing about what-ifs, but there's no question that if I can buy just a little more time of good health and good days, I'd rather find out earlier.
One thing I was wondering about some of that new research that came out - would there be any benefit for me to go through another round of chemo with the regimen they now think works better with TN and ovarian cancer? I don't like the idea of chemo again, but if I can wipe out a few more cancer cells, I'm all for it. If anyone hears of any clinical trials, I'd be interested in looking into them. Right now my MO says I'm NED, but as a TN, I don't put much faith in that, having had vascular invasion.
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Hello Ladies........
Just a short note. It has been pretty bleak around here. I find myself sruggling with typing and thoughts. But I miss you all so please interpret as best you can and I can help if it gets way too garbled. I finished full brain radiation last Tuesday. Low and behold my hair fell out yesterday morning. Ugh! Now it's just very grippy 5 o'clock shadow on my head!
This brain cancer shit sucks! I feel like I am going crazy half he time and then I feel normal but find myself doing something crazy and i just makes me sad. My husband has been my rock. I couldn't be more proud to be his wife. He keeps a close eye one me since I am on a full time pain patch.I am still layering all my clothe in an effort to wear everything even my specil occassion stuff. Every day is a special occassion! I have been reverse nesting while making such weird purhases. I think my husband might have to put me on an allowance. Today's purchase, a very large and heavy cement slipper chair for my yard. Boy, we did not need that at all, but I was obsessed and just had to have it. I do have 3 cement pillows to go with it. Big garage sale 12,13,14. I would like to get rid of a few things so my husband doesn't get stuck with so much of my lifelong picking junk. Getting tired. So will check back in a couple days.
Love to you all...........dawn
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((((inmate)))) I do not have any words to describe how I feel for your plight... you are so strong and....an inspiration to us all. I dont know you but love and have nothing but admiration for you... hang in there sister. Your post brought tears to my eyes...sending nothing but love and positive thoughts to you and your DH.
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An unmarried woman is newly pregnant and gets into an auto accident. She suffers a head injury and lapses into a coma for nine months. When she awakens in the hospital, she panics and asks about her baby.
Her doctor is called in and gives her a mild sedative, then he sits down to answer her questions. "I'm so happy to see you recovering", he says. The woman responds, "Thank you doctor, but what about my baby? Is everything all right?" He replies, "Yes, despite your injury, we were able to perform a fairly normal delivery procedure."
"In fact," he goes on, "you've given birth to twins - a boy and a girl."
The woman is very happy and asks when she can see her new babies. The doctor replies, "Right away, but we've already sent the infants home with your brother. We'll call and tell him you're okay. While you were unconscious, your brother took care of everything for you. He even gave the babies names."
At this point, the woman gets upset, "Doctor, my brother is an idiot! What name did he give my little girl?" The doctor answered that her name was Denise. "Oh, Denise, that's not so bad. What name did he give my boy?" The doctor answered, "Denephew".
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(((INMATE)))
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((((Inmate)))) I love that you're making every day a special occassion. I can just see you in fancy party dresses. You're amazing and an inspiration to all of us. Hang in there Hun xoxo
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(((Inmate))) Dawn - yours is a difficult road and we are all here for you. Has there been talk of chemo after you recover from the brain rads? I think there are a few that cross the brain barrier. I know from the Brain Mets Sisters thread that many women do quite well after treatment for brain mets. I am so wishing that you will join that group! Now, a cement chair and cement pillows? I tried to look that up and couldn't find any examples of a concrete chair. I hope it's a comfy thing that you can use to sit in your yard and enjoy the outdoors. And yes, every day is a special gift, so you wear those special occasion clothes to celebrate life! My heart goes out to you and your dear hubby. Your strength and courage have shown no limits. Sending my love special delivery from coast to coast.
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Dawn:
Just wanted to let you know that you are always being thought of, and wished nothing but the best. May every day bring you strength and healing.
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Dawn, thank you for letting us in your life. I was very happy to log on and see your post. Considering what you're going through, you are allowed to do and say crazy things!! Sending you a big hug and healing thoughts.
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for our beautiful Dawn
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(((Hugs))) Dawn. I'm glad to hear you have such a great husband for support. Keep fighting, but finding those things every day to enjoy.
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Dawn - thanks for posting. You are in my thoughts. Every day is a celebration...so true! (((((hugs)))))
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Dawn so great to hear from you. Enjoy your everyday life!
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for our beautiful Dawn