Calling all TNs
Comments
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Girls I have a question. How long do we have pain in our cancer side breast? I am 14 months out from lx and almost a year out from radiation. The past 3 or 4 days I keep having pain on my cancer side. Sometimes it feels like it could be the bone? I had a ct scan, bone scan, and mammo recently and all was clear. So wondering if this is normal or if I should call MO next week. When I push on the bone it feels bruised. I have not said anything to anyone, cause I just don't want to go there. Any advice or info would help thanks!
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Dawn, you are so strong, an inspiration. I think of you often and know so many others are too. Still sending you positive healing thoughts...you deserve to enjoy every day!!
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ksmatthews - I'll be watching for others to chime in on your question. I, too, have a very sore spot (on the bone?) under my mx. I'm about a year and a half post mx, and almost a year post rads.
Dawn - So glad to hear from you. Wishing you the comfort of knowing you have many sisters here who are pulling for you. I'm working on your idea of wearing "special" clothes for no special reason. What am I saving the good dishes, shoes, clothes for anyway?! Thanks for posting.
Wishing everyone a joyful day. Jan
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KSmatthews - I too am having (mild) discomfort on my lx side and recently asked my MO why NOW, after 15 months since surgery and 7 months after ending radiation, when I never had this before. He said it is perfectly normal and part of the healing process, and for many women, it can last for years. Since I too recently had a clean mammo, I will accept his explanation.
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I am 21 months PFC and I still have sore spots. I just had a 3 month check up on Thursday and my MO squeezes my ribs with the palms of his hands and it doesn't hurt, but there are small spots all over that are tender to the touch. Like if someone pokes or tickles me, it hurts. I also have pain beneath my MX area. Dr. says it is all normal and may last for many years.
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Dawn, I have no words but to say that you are such an inpiration for me, have been ever since I first came to know you. Your pictures were absolutely stunning, in beauty and strength. I wish and pray to God that you have many more wonderful days and nights to spend with your DH and enjoy all your wonderful clothes and things you enjoy. You are very fortunate to have your partner next to you, taking care of you, he must be an angel. Sending you tons of hugs and love, and praying God to give you a lot of strength to recover from this disease. Don't you ever think that a miracle is still not possible, everything is possible with God.
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you Dawn...you are the best inspiration for all of us. Maggie
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I will be walking tomorrow in the Run for the Cure with my team of friends and family. I will be walking for ALL of you and will be thinking of you all tomorrow. xoxoxo
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I am walking in the CIBC Run/Walk for a Cure in Ottawa tomorrow. We formed a team 6 years ago in memory of my younger sister, Donna, who lost her fight with TNBC at 53. We have 22 team members this year and have raised about $1600. This year (and many years in the future), I will proudly wear the pink survivor t-shirt. We will be walking for all our "sisters" (and "brothers") who have fought, are fighting or will fight this terrible disease! Will be thinking of ALL of you tomorrow!
Doreen
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Thanks to you walkers and runners who are participating in Run/Walk for a Cure. Yes, thanks from the bottom of my heart. Jan
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Good luck to everyone doing their walks and runs! good good stuff!
Inmate..dang I wish I could just hold you for a second or two...I'm a great hugger...your hubby is a keeper...but of course how could he not love you???
I just signed up for a run in Columbus, Ohio for the Stephanie Speilman Foundation...She had tn..diagnosed while pregnant when she was 30. My son and I are going to run in it..it is going to be a very emotional run for me...meanwhile...my son will kick my **sss...but that's ok...he should
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((((((inmate))))))
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Warm thoughts to all doing the runs and walks.
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Inmate, positive vibes in your direction from across the pond.
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Inmate-Love your post and so glad to hear from you. Happy to know that your hubby is taking good care of you, you deserve the best! I agree, every day is a special occasion.
To those with pain, I had pain for years after my first lumpectomy and radiation on my rib. Sometimes, even still, when I laugh really hard my rib will pop, or something like that, and I get the worst cramping feeling, hurts like crazy and then goes away. I really think it has to do with radiation.
Good for you all doing walks and runs and raising money! I did a 5k a couple of months ago and didn't think I was going finish! I miss running and hope to get back to it.
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((((Inmate))))) sending healing vibes your way. I love that every day is a special occasion! That is the way to do it!
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Thanks girls for the words. I was told I could have pain for years, but I didn't realize it could hurt in my bone. Ugh!! Luckily it isn't a constant pain just comes and goes.
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Thank you and warm wishes to all who are doing a run/walk. I have 3 different runners wearing my name on their shirts in Canada- 2 in Vancouver and the other in Mississauga. I find it rather surreal that someone is running for MY cure. I get misty or just downright weepy when I think about it.
Wishing courage and strength to all the women here, and some extra hugs for Inmate. I haven't been on this board very long, but I noticed right away how you shine extra brightly.
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Thanks borntosurvive
, Doreen, Titan & a BIG Thanks to all walkers/runners.Dawn continued {{{{{ Hugs & Prayers}}}}}
TifJ & Kayak2 {{{PRAYERS}}} your pains will ease and cease. Boy the way our bodies talk to us sometimes huh?
ksmatthews I too have that sore spot pain in my cancer side breast and below it (ribs), was told it would or maybe would because of radiation ??? I think the doctors go by others complaints and turns it into a personal statistics guideline for them!!
I just had my bone/ct scan last week and mammo tomorrow and my Onc on Wednesday, think I will mention it too just to see what he says. I just want a all clear for the past year I have had!! Prayers asked for that!!
Continued Prayers ALL
Karen
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Hi all, had a busy week and am finally getting caught up. Mom came home Friday night.
Mags - ((HUG)) not hyper metabolic is good!
Born - congrats on good genetic results. Want to tell you that I did gradual increases on the Metformin and had horrible GI symptoms for about 6 weeks, but they did go away.
Melissa - glad to hear that treatment went better than you expected.
Tazzy - wishes for you to fly right through!
Painting - yeah on the good test results.
The5Owens - Go Girl Go!!!!
OBXK - hope your results come back perfect.
Kareybeth - prayers sent.
Titan, Born and Dormac - thank you for walking/running for our sisters and brothers.
Inmate - so good to hear from you. You wear anything and buy anything that makes you feel happy!
Luv - crossing my fingers for 10/5, and thanks for the tumor markers info, needed it.
Cocker - I did sneak off to the casino twice while Mom was in the hospital. Kicked my ass, because I have to pretend I hadn't been up for 24 hrs plus and hide the sleep deprevation!
Titan - thanks for some comments you made because they especially pertained to my current situation. I went for my appt with my MO Friday, to meet with a NP I had never met before. (I'm with you Titan, I believe I have a right to be pre informed about changes like that. ) She was very sweet, but I also looked for the big wheel trike she must have rode in on!! It was clear from several things that she had no familiarity with my record. ( "when are you scheduled for your follow up mammogram?". "ummm, I had it 3 months ago")
One of the things I wanted to discuss with my MO, was the fatigue and unexplained weight loss. (thanks Titan - these were the exact symptoms I had when I was first diagnosed. Dropped 30 pounds in about 2 mo). She told me she didn't feel these were indicative signs of the cancer returning. She did decide to order tumor markers. (this is where I worked very hard to not bust out laughing. I asked my MO about following tumor markers in the beginning, and was told that they were not reliable and not "their standard of care"). The NP didn't feel my symptoms warranted follow up scans. She also suggested checking my Vit D levels, and I had to tell her that DF had never bothered mentioning them, and did nothing when I told them I had a low pre-diagnosis level, and that my PCP had also taken care of the problem and was monitoring them.
I'm sure I now have another care provider that hates me , lol. I told her my primary has already ordered the scans, but we were just waiting to see what DF would do.
For right now, I've decided not to knee jerk. I'll wait and see what the tumor markers show and wait and see if the weight loss continues. (haven't lost anymore the last two weeks, but I've been eating like a PIG!!!! No one should be able to eat 3 Dove bars a day and not gain weight!!!!!)
My girlfriend suggested it may be time to find a new MO, but I think I'm OK because I have a proactive PCP who will make sure I get what I need.0 -
Inmate...Huge hugs and more hugs...my heart is aching...thanks so much for filling us in....I wish you wonderful days and cool and comfy outfits always. Your husband sounds like a sweetie. My cousin has brain mets and rads also made her feel crazy half the time. She is in Nova Scotia.
Kcmatthews...I was told that I would have pain maybe forever. It does feel like the bone to me but the onc said it was the muscle tissue scarred by rads that attaches to the ribs and sent me to PT which I havne't started.
Kathyrnn...are you going to Dana Farber? IS that what DF stands for...sound liek a very unsatisfying appointment...so sorry about that.
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Here I am at today's CIBC Run for the Cure in Mississauga. In the box where participants put who they are running for, I wrote: "The Triple Negative Angels: Suze, Jenn, LauraJane, Mary, Blonde Lawyer, etc."
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You look lovely Sugar!! I think it is awesome you ran for our beautiful angels!! Hope all of those that ran today are not too pooped!! I know I would be-in fact I wouldn't make it all!!
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sugar...I really wish there was a LIKE button here cuz i really like your post! I am sure you made them proud
Maggie
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Inmate - we really need a photo of that chair, perhaps with you lounging in a ball gown? Glad the rads are over! Perhaps a "return to owner c/o" placard until your brain recovers?
Ksmatthews - radiation is the gift that keeps on giving! I have rib pain from 8 years ago!
Kathy - I hope you are able to be scanned soon, to put your mind at rest. In the mean time - enjoy those Dove bars!
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Great job, Sugar. I was thinking of Jenn just today. Her favorite team, the Saints were playing my favorite team, the Packers. Just felt so sad. I hate cancer soooo much.
Thanks to all who are walking and running this month. I have decided to participate in a Zumbathon later this month. The money raised is going to Komen. I would rather it all go to research, but that is out of my control. I really believe in this day and age with all the technology, anybody over the age of 14 knows that breast cancer exists. Enough of the awareness.....we need to find treatments that work, especially to help our stage IV sisters.
Hugs to all.
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Kathrynn...glad you got some casino time... I like going cause it can be just fun..and you can escape from the real world for awhile.....I seem to have a very active appetite lately also...though I haven't lost any weight or gained any either.. maybe our metabolism is coming back after being slowed down by chemo (if it does)...
Navymom..I watched that game..it was a good game but the "real refs" were horrible! didn't take long did it???? I think of Jenn alot too...her Saints and my Browns are both 0 and 4. I'm used to it but I'm sure the Saints fans are not. I like the Saints...have some good OSU Buckeye players on the team...
Good for you Sherri in remembering our special ladies....
Have a good week everyone..thinking of you Inmate and Hope...
I think we have some Nebraska Cornhusker fans out there somewhere don't we? OSU plays them on Saturday night and I will be at the game...watch for me on TV..ha ha...
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Inmate: Lovely to hear from you. Wish I was there in person to give you a gentle hug. Be kind to yourself, hon.
Sugar: Awesome that you ran for our shining TN angels. Even the sun shone for them.
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Sugar, thank you for running for our TN sisters
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Dawn, Sending you lots of hugs and positive thoughts. I'm picturing a kind of concrete chaise lounge kind of chair? It does sound like a great place to sit outside and watch the kitties. I'm glad your husband is very supportive.
Sugar, thanks for participating and doing it for our angels. I miss them all, and felt closest to Suze as I corresponded with her several times. She found the eribulin study for me and sent it to me in a message.
Best thing that happened to me today was going to my good friend's wedding on a small island on the lakeshore. It was a great time, casual, with nice people and very relaxed. Her pit bull with a big bow was part of the ceremony (he is also a certified therapy dog and her favorite dog). The trees here are just starting to change and the temperature this afternoon was around 65-70.
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