Calling all TNs
Comments
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BernieEllen.....Funny! I'm a catholic, ( when i want to be) went to catholic schools with the nuns so I can really appreciate that!
Thanks for the laugh!0 -
I did promise to post a photo of my dog in his costume. Here are my two babies: a bumble bee and a frog. Happy Halloween everyone!
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Morning Ladies.
Hi adagio - I did drink during chemo but not the first two - to three days after - too hard on the live apparently. I don't think at this stage my liver would have actually noticed. The taste of red wine was yuk so I drank Rose - very refreshing.
What I did find strange - i don't eat chocolate but for three days after chemo I craved chocolate cake with cream. DH thought it was funny until I sent him shopping at 7am one morning.
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txjunebug: I don't know about that particular study, so I'm not sure how helpful this will be but the standard, first line aggressive chemo regimen here in the UK is FEC-T: Fluorocil, Epirubicin, Cyclohasphamide, Taxotere (Docetaxel). My Oncologist told me that Epirubicin is used since it is thought to be equally as effective as Adriamycin, but easier on the heart. He also said that there is a big clinical trial over here to look at whether Docetaxel is better specifically than Taxol for TN--the thinking is that it might be.
Wide awake at 4:30 a.m. and wired on steroids. It seems fundamentally wrong to be up before the kids! Bernie, what are you up for at this ungodly hour?! Not looking forward to the weekend's aches and pains from the Taxotere. Still, one more to go now--roll on November 21st! Looking forward to getting my PICC line out finally too.
Karen: Hope you feel good today.
Sugar77: What a lovely picture. Your daughter is very beautiful.
Hopex3: I post on the September chemo group and there are loads of ladies about where you are right now moving from AC to Taxol and lots of good advice on side effects and what you can do to lessen them. It's a really supportive group so I'd suggest you check it out.
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Hi Rose, I don't need steroids I'm manic bipolar. Haha
when I had A/C chemo last year with the steroids I was wired to the moon. Cleanest my cottage, garden, field and animals had ever been. DH said i was like a demented duracell bunny.
I spent many years in England, grew up in Harpenden, Herts.
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Having a sleepless night, so I thought I would pop on and see who else is awake!
5thsib: I started chemo 6 weeks after BMX/ALD. And had a port put in 1 week before chemo started.
FunnyGirl: Congrats on surgery being done. You sound great.
TXjunebug: Sorry I can't help with the clinical trial advise but as far as your DH goes, there is a book written just for men that have wives with BC. I am not sure of the title. But I did get from the library when I was DX and my DH and I read it and it was very helpful for him. Maybe one of the other girls will know what the title is and chime in.
Velciraptor: Sending hugs to you and your Mom. Wishing you both strength to meet each day.
HopeX3: I love your attitude...Keep on keepin on!
Sugar: great pix. Beautiful daughter and cute pup.
I went to the DMV last week. Was time to renew my dirver's license. Last time I had to go in was 8 yrs ago. I had to tell the guy that I can longer be an organ donor....got angry all over again at BC.
Feeling crabby and blue lately. DS is preparing for deployment at the end of the month. I made a deal with God that I would like to stay NED until after DS left so that he could leave seeing me healthy and strong.
Saw my MO on Monday for 6 mo check up and I reported that I have some hip pain and a strange pain near my clavicle at the port site.... going for a PET scan next week. MO was not overly concerned but symptoms cannot be ignored either. So, here I sit on the worry train again.
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Txjunebug: The book title is Breast Cancer Husband: How to help your Wife(and youself) during Diagnosis, Treatment and Beyond. Author is Marc Silver.
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Morning ya'll..haven't posted in awhile..doing good..am thru with treatment!!!chemo was finally done..out of 6 every 3 weeks ..4 times had to be postponed because of blood counts..after #4 had two units of blood..delayed for 2 weeks..and funny thing is I felt fine..didn't know how low it was..am sooo glad to be thru..last was 10/24..see mo 11/21 to check blood then get port out..wahoo...don't get me wrong..really was glad of the port during chemo..but MO must be purty confident to suggest removal..thought I'd have that thing for at least a year..for all you newbies dreading chemo..it is doable..and the fear is way worse than the actual ..i want to Thank all on the board..you have been a real help for me during this..I come in and read every morn..Hugs to all me sisters..
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NavyMom -Thank you so much for the book info!! I'm going to see if I can find it or order from Amazon.
EnglishRose - thanks for your input on the study. I'm trying to learn as much as possible about all the chemo options before this process begins.
Hopex - I love your attitude!!! Good to see others who are doing well with the chemo. All most people who haven't gone thru this hear is all the bad so hearing post like yours helps me find hope that I can do well on it too. Thank you!
Bernie -- Where did you get that picture of me with PMS???? LOL!! I love it!
Sugar77 - beautiful daughter and a cute picture of her with your 4 legged baby!!!
I find myself worrying more about the DH and kids than myself. Kind of wishing I could put off chemo until after the holidays but that doesn't appear to be possible. I love Christmas!! Love it Love it Love it. Told DH and kids that we're decorating before 1st chemo treatment. Don't care if it's not Thanksgiving yet. I always go all out at this time of year. 5 Christmas trees in the house each with a different theme and every room in the house is decorated. DH and kids (24 and 23) help every year with the process. Just don't want the holidays interrupted because of chemo.
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A group of third, fourth and fifth graders accompanied by two female
teachers went on a field trip to the local racetrack to learn about
thoroughbred horses and the supporting industry.
During the tour some of the children wanted to go to the toilet so it
was decided that the girls would go with one teacher and the boys
would go with the other.
As the teacher assigned to the boys waited outside the men's toilet,
one of the boys came out and told her that he couldn't reach the
urinal. Having no choice, the teacher went inside and began hoisting
the little boys up by their armpits, one by one.
As she lifted one up by the armpits, she couldn't help but notice that
he was unusually well-endowed for an elementary school child. "I guess
you must be in the fifth," she said.
"No ma'am," he replied, "I'm in the seventh, riding Silver Arrow.
Thanks for the lift anyhow."0 -
NavyMom my heart goes out to you. I can feel how much you love that wonderful young man of yours. I too made a deal wth God when my girl had a breast lump and he heard every word and will hear yours too. He will be home again before you know it. You will have to stay NED for when he comes home again so hopefully your pain will turn out to be nothing. Keep going girl and stay strong and healthy. We can do this.
I will take my lap top to the conference so I can keep up with you all.
I am a donor too. Can you not be one if you have had cancer?
Hope so pleased to hear from you and to hear that you are doing well. Half way through yay.
Sugar beatiful daughter, beautiful dog. You lucky lady.
Now for some bonding time with my Mandy.
Have a good day ladies. Keep well. Keep away from side effects if you can. Big hugs. Annie
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txjunbug-I hear you about the holidays. I just had my last chemo today, Yea me! Surgery (total bmx with reconstruction) on November 19th(the Monday before Thanksgiving), I always do that holiday therefore, we are having our Thanksgiving on Sunday the 18th a little earlier but way more special. I just can't wear my wig while I make the turkey, haha. And yes my husband read a book (for husbands) that seemed to really help him, not sure of the name. But my cancer center has a free library inside and they are very helpful so they directed us to the correct spot. If your center has one I suggest you check it out.
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Thanks for the encouragement. I need to hear that it is doable.
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How many of you lovely ladies have had or are having neupogen or neulasta during your treatment. My oncologist has suggested dose dense AC/Taxol - 4 rounds of each 2 weeks apart and I have to give myself neupogen shots for 5 days of each round. Any input/comments would be appreciated!
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I haven't posted in a while. Last chemo was 8/28. My how the time has flown. NOT! I just had #11 of 33 radiation tx. I am 6 weeks out from a re-excision for wider, clear margins. Earlier this week, had swelling start in R breast. RO examined, said is most likely a seroma, and nothing related to rads. TX earlier today, now is pretty pink, bordering on redness, very swollen, and hurts. RO and LE OT, both suggested that Drs could drain it, but would probably return. Anyone else suffer with the seroma, and how much should I endure, before going back to BS , ask them to drain it. Of course, the situation is trying to worsen on Friday, the craziest day at doctors' office. Advice?
BTW--for those that saw my post several weeks ago RE: thyroid biopsy: had it done on Monday. Procedure was way less than anticipated. Still have minor throat swelling, and bruising. Results were benign. Yay! To quote my DH: ' I love that word!'
Hope everyone is looking forward to a weekend, and praying for healing and minimal SE for all. Thankful I found these threads to rant, glean info from, and just generally feel a community. Sometimes hard for friends and family to deal with my negative thoughts, isn't it?0 -
Adagio - re: Neulasta injections – I had 1 neulasta shot 24 - 48 hours after each chemo treatment (CT x 4). We have visiting nurses that will come and teach you how to do the shots. I thought they would actually do them for me but apparently I could only have 3 teaching sessions - I required 4 shots. So, for the 2nd shot, I figured I might as well do it myself as I was going to have to do shot 4. With the nurse watching, I gave myself the shot in the stomach. It was no big deal really. So I also gave myself shots 3 and 4. However, 5 days in a row for 4 times is certainly a lot more. But, I guess if you can do one, you will be all right for the others. Do you give the neupogen shots in the stomach? If so, I don't know about you but I can "pinch a few inches" of stomach and really didn't feel a thing.
luvBngGma – first of all, congrats on the benign thyroid biopsy! As for the seroma, I had it after my Mx, but I did not have Rads so hopefully someone else will chime in, too. After the Mx, the visiting nurse removed a lot of the padding the surgeon had put on but I think that was to keep the fluid buildup down. I wasn’t going to get it drained but it got so bad, I had trouble putting my arm down by the side without irritating the skin. Also, when I moved, the fluid would slosh around and started to make me a bit nauseous. At the time that the BS drained it, my chest was still numb so I really didn’t feel anything (unlike you, since you are sore from the rads). I did have to get it drained a second time (much less fluid) but that was all.
Doreen
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Titan - I agree with you. I feel the flow of conversation and companionship last couple of days. Annie, have fun with Mandy. It should be a wonderful time to reconnect. Navy Mom, holding your son in my heart too. Adigio, I had to go back to cancer center day after tx to get Neulasta shots.
I ask the question, too: can we not be donors after CA or Chemo? I never thought of that.
Thnking of all of you who are going through yet another set of chemo. Wish we could hear from Inmate.
My drain tube feels like it wants to come out. I don't see surgeon again until next Tuesday. Yes, Friday afternoon is no time to try to see a doctor.
I'm trying to clear out my stash of fabric by making lap quilts for a kids camp. However, pulling out all that fabric makes such a mess that it looks like my stash is growning rather than shrinking. (what a tiny problem this is)
Jan
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Short video of my husband carving pumpkins. Very cool.....
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Susan - That is one cool video! I love it. Does he do other carving the rest of the year? You both have impressive talent. Thanks for sharing. Jan
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I know that we can't donate blood...makes sense we can't donate organs either..but you would think maybe some organs..like eyes? ah well..that is probably off limits also...
I had neulasta in the arm after each chemo...caused me some flu like symptoms 24 hours later..didn't like that shot but my WBC was always perfect so I guess it did its job
Saw the bs and the onc's PA today so i got felt up 3 times...everything went well..ask for the vitamin Blood test so had that done also. Actually the PA was pretty knowledgeble about tn...asked about the ovarian-tn connection...really didn't get any firm answers...I told her that I really didn't want to have to have the ovaries removed unless necessary. she said that the jury is still out on the connection..so many types of BC...she did say though that the ovarian cancer/breast cancer connection was for all breast cancers not just for tn's...it get's so confusing sometimes.
Navy...thinking of you and your upcoming test and your son being deployed...rough time for you lady...hoping everything works out ok.
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Susan - great video! Wish I was that talented!!
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Just finished my last round of AC...moving on to Taxol. These steroids give me such a high, I hope I can get some sleep tonight. My oncologist was quite happy with my blood counts and feels my tumor is shrinking. Maybe I am on a high from that news and not the steroids.
BernieEllen: thanks for the laughs. I too was craving chocolate cake bad! I am not a real sweet fan so that was strange for me.
Txjunebug: I too was thinking how am I going to celebrate Christmas when I am going through Chemo. Well, I am going to do it up big. Haven't told the DH yet. Ha ha
Navy mom : I have son's too, ages 23 and 27 but they are not in the service. I feel for you. But you can get through this. We are here for you!
English Rose: thanks for the tip on the Sept. site. I will check it out!
Sugar 77: cute pictures of your babies!
Cyber hugs to you all!0 -
BernieEllen - where do you come up with all these stories? They are great. Thanks. We all need to laugh.
Finally got with with my surgeon. He apologized for scaring me with his message. He actually had some good news. The oncologist had called him and told him about new studies that showed I really did not need to have the surgery to remove the remaining lymph nodes. She said studies showed that since it was a very small cancer (5mm) in the auxilary node that chemo and radiation could take care of it. I am supposed to call her tomorrow to discuss with her.
I got a new haircut today -- a good bit shorter than I usually wear it. I guess trying to get prepared. But, I'd been wanting to try a shorter haircut, just worried I wouldn't like it. Figured I might as well try it -- what did I have to lose? I do like it. Speaking of losing -- how many chemo treatments before hair starts to fall out?
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Hello 5th Sib - So glad the surgeon's news was good news. With AC, my hair started falling out after the second infusion. I was actually relieved when it all fell-out as it actually hurt a bit while it was falling out - It reminded me of the way my head felt when my mom would braid my wet hair at night and then take the braid out next day.
Best wishes
Sherry
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Reality - thanks for the info. I was thinking that was what I had heard before. My beautician said that when it started coming out I might just want to go ahead and shave it all off. Anyone do that?
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Sib - lots of us shaved our heads when our hair started falling out. I think it is usually about 16 days from first infusion. I remember my head got all tingly one night, and DH didn't believe me when I said it was going to start falling out - and it did, the next day. After a few days of mess DH just shaved the rest off. I think a lot of us feel good about having control of when it happens. It was nowhere near as traumatic event as I expeced it to be.
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5thSib,
My hair started to fall out at the second infusion. Had it cut into a pixie which I kinda liked. But within a week, it was coming out too. You get tired of all the hair all,over the place. S we shaved it real close to my head. My kids said I looked like Demi Moore when she did that movie. (Forget the name) just had fourth infusion and its time to shave it all. Will do that this weekend. It's so hard cause when I look in the mirror, I see a cancer victim! But I tell myself it's temporary!
Good news on your surgery. Keep,us posted!0 -
In the Amazon rain forest, three explorers were walking. One was
Irish, another English, and the last American. Soon, they came across
a tribe, and the leader of the tribe told them that if they wanted to
pass through this territory, they had to pass the three caves test.
The explorers agreed and asked what the three cave test was.
The leader of the tribe took them to the caves, where he said, "Inside
the first, there are three bottles of rum, each 100 years old and said
to be toxic. You have to drink one each. In the second is a lion with
a thorn in his foot. You must remove the thorn. In the third is a
woman who has never been satisfied, and she must be satisfied."
The three men were hesitant but could not back out, so the American
went into the first cave, drank the bottle, and died soon afterward.
The Englishman was second. He went into the first cave, drank the
bottle, then went into the second cave. There was a lot of commotion
and roaring. No one emerged from the cave.
Lastly, the Irish man went into the first cave and drank the bottle.
He went into the second cave. At first, there was a lot of commotion,
and then there was a soft purring sound. Then he entered the last
cave. Two minutes later, he came out puzzled and asked, "Where's the
thorn in the woman's foot?"0 -
Good morning Ladies. Message from Inmate -
She asked me to say that she is thinking of you all and will be back posting soon.
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