Calling all TNs
Comments
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I fell off the wagon yesterday, and ate so bad! I had at least 7 pieces of Snickers, and made my husband take the rest of the bad to his work today. He has a hiding place in the kitchen (which I don't know the location of) and sometimes, at my request, he will hide the treats from me. On top of that, I had 3 taco shells last night, and the list goes on! And so far today I haven't done my 90 minute work out yet, and it's almost 2:00 PM. I'm finishing up a writing project and hope to get out the door soon. If I skip today's exercise, and go instead tomorrow morning at 6AM, will that be okay? It's only 16 hours from now.
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Titan, what was your hair doing before your BC diagnosis? I noticed mine was falling out more and attributed it to being so long, but then in Dec I was diagnosed.
Bernie, how much stress is a factor in recurrence risk? Are we not allowed to have any? How is it classified and what type of stress is acceptable? I'm learning now that it does not matter if the drinks in the fridge are not all facing the same direction, but I'm still obsessive about the carpet needing to be vacuumed fluffy each day. Is this the type of stress that is damaging, or more like the stress one feels opening up another medical bill? Or the stress that comes with a PITA client?
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Dolcie..my hair was just limp and gross...people tell me NOW that I just didn't look very good...weird thing is..my sil was diagnosed with BC in summer of 09...I had a mammo in August of 09 and even though it came back ok..I really didn't believe it...I guess that is the intuition we talk about..
Oh and Dolcie..nothing wrong with having a snickers now and then..I have had 3 today (little ones)...and ate a couple before I ran my 5k last Sunday...I think a little chocolate and peanuts are good for energy..
I don't know what studies there are about stress and cancer...Luah..you out there?? but that is the one thing I feel may contribute to it...stress triggers alot of things in our body..why not cancer cells?
Wow Ruth...guess it is good they can't find any cancer...but dang...it's gotta be something that can be fixed....hopefully soon for you lady!
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Bernie..thanks for giving us news of Inmate...!
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Hi Everyone,
Titan ... thank you! Your post makes me feel much better. You have a long way to go to catch up to me on the Snicker's count though. lol
NavyMom .... I will be thinking of you on Tuesday! BTW, My Mom and I both used to watch I Love Lucy. I have the entire series, and actually keep it on during the day when I'm working from my home office. I think it's the comfort of an easier lifestyle that draws me to it.
Sometimes MadMen or Boston Legal competes with I Love Lucy though.Ruth ... could it be a bad pillow causing your neck problem, and extending that up to your jaw? I will be looking for your update to see how you are doing ... wishing you good news on your appointment next week as well.
Have a nice evening everyone - treat yourself to something you like and don't forget to put yourself first for once.
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Bak.....i don't know what happened but i would be very sad to see you go. i know i've been gone from the board for awhile, but i think of you daily.
my love.......d
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Bak, I agree with Inmate, I don't know what happened as I don't post much and try to limit my time on the boards for my anxiety level but I don't think you should go. I've always enjoyed your posts.
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Dawn, it is so very good to hear from you, girl. We have missed you. Thanks for posting, hoping you are doing well.
TNBCRuth - I am so sorry to hear that you are in pain. I have no idea what it could be. A long shot - I use therabreath oral solution whenever I feel a sore throat coming or if I have any pain in my gums/teeth. It is the only thing I know which kills bacteria in your mouth, throat, tonsils area. It is just a mouthwash, but I feel it is just wonderul at killing bacteria, really killing it to give you clean breath, as well as medically killing bacteria to keep you free of disease. Just in case you have a bacterial infection, get this from Walmart and try it. They also have therabreath toothpaste. I haven't gone to the dentist in years, this stuff also keeps your teeth white, love this stuff. I get bonus deals from their website. As I said before, this is a long shot. Your problem sounds pretty serious, though, not sure what else it could be if it is not TMJ.
Everyone else - Ladies, wishing everyone a wonderful Sunday.
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Hallowe'en candy has been my weakness this year for some reason?! We had a TON of fun trick or treating with the kids. They loved every second of it. My 4 year old actually sat down on a neighbours porch chair for a rest at one point. She was laughing at him needing a rest. It's hard work to trick or treat when you're 4 and 2.
Update on my teammate and the bald hallowe'en costume - I tried to talk with her but she refused. So my manager pulled her and I into his office in hopes that she'd answer some of my questions and talk but she refused and stormed out slamming his door. She claims that she did nothing wrong and she didn't understand why I would be upset. I did manage to ask her why she felt it was appropriate to be bald and she replied, "Well how else are people to know we're cancer survivors if we are not bald?!" I told her that bald (to me) meant sick, chemo, fighting for your life, cancer patient; not a survivor. So, I have accepted that she is ignorant and I have moved on. She's not worth my time or my stress.
I have my 1 year follow up mammo tomorrow - same day as I had my biopsy last year. So my DH is taking the morning off to come with me. I hope it's quick and they find nothing. After a BMX, I'm really curious to see how this goes.
Wishing you all a wonderful Sunday xoxo
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Hi my friends...I am recovering from my bilat Diep on thursday. Day 3 post op and walking as much as possible. Surgery took over 10 hours...hardest case my doc had seen so had to think out of the box. Glad I chose to come here or it may not have happened. My new girls look pretty good so far. amazing feeling quite tired so off to nap
Maggie
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Thanks for the update Maggie. Glad to hear you're recovering after what sounds like a long and involved surgery. Rest and be kind to yourself. Sending you gentle hugs xo
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Born - Good luck with mammo. Let me know how that goes, I'm a flat top, too. Can't quite picture how they'll squeeze.
Oh Mags - Best wishes for a speedy, painless recovery.
NavyMom - Thinking of you and son now and especially Tuesday.
Inmate - Nice to hear your "voice." Please check in again soon.
Wishing all a beautiful restfull Sunday. Jan
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Ruth so good to hear from you but so sorry to hear you are going through this pain. I wonder if you have a condition called trigeminal neuraglia which is a very painful condition that affects the face and jaw. If you look it up on Google it will explain more fully. Hope this helps in some way. Annie
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ok ladies here's one to think about....
i remarked to my sister yesterday that "you don't dream on chemo". we both laughed and thought it sounded like an Erma Bomback novel from the 70's.
seriously, i do not dream anymore. i don't know if it's the chemo or all the other fun drugs but i think i miss them.
what about you ladies? do you dream on chemo?
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Hi Inmate, I've had four treatments of AC now, waiting to start Taxol in a week and Yes, I have been dreaming. Not every night as I really don' t sleep that well. But I have had a few of them.
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Hi Inmate, glad to see you post. I have had very vivid dreams/nightmares my entire life. I honestly can't remember if I dreamt or not during chemo....Maybe I didn't, since I felt like I never slept well thanks to the steroids.
Inmate, do you miss dreaming? My usual dream theme is that of disasters.....tornados, cruise ship sinking, large bridges collapsing and the like. Not sure why...might not wanna know!!
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navymom.......yours sound more like nightmares than dreams. i do miss dreaming. it's like a little escape. i used to dream that i could fly. the dreams were always so peaceful and exhilarating. i do miss those ones for sure!
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Hello ladies,
Chemo sucks!!!!!!!!! still in the mental adjustment phase. I have to go back Wed.
Tomorrow #1 son turns 18. I hope to see him for 10 minutes - seems he's always on the move.
Inmate - I still dream. I'd be so sorry if I didn't. I love my dream world. I'm also a lucid dreamer - which is just magical.0 -
(((OBXK))) hang in there, girl. Happy Bday to your young man. I remember those days when it seemed they only came home to eat and sleep!
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Our story begins at the Olympics, specifically the wrestling event. It
is narrowed down to the Russian or the American for the gold medal.
Before the final match, the American wrestler's trainer came to him
and said, "Now don't forget all the research we've done on this
Russian. He's never lost a match because of this "pretzel" hold he
has. Whatever you do, don't let him get you in this hold! If he does,
you're finished!"
The wrestler nodded in agreement. Now, to the match: The American and
the Russian circled each other several times looking for an opening.
All of a sudden the Russian lunged forward, grabbing the American and
wrapping him up in the dreaded pretzel hold!
A sigh of disappointment went up from the crowd, and the trainer
buried his face in his hands for he knew all was lost. He couldn't
watch the ending.
Suddenly there was a horrible scream, and a resounding cheer from the
crowd. The trainer raised his eye just in time to see the Russian
flying up in the air. The Russian's back hit the mat with a thud, and
the American weakly collapsed on top of him, getting the pin and
winning the match.
The trainer was astounded! When he finally got the American wrestler
alone, he asks, "How did you ever get out of that hold? No one has
ever done it before!"
The wrestler answered, "Well, I was ready to give up when he got me in
that hold, but at the last moment, I opened my eyes and saw this pair
of balls right in front of my face. I thought I had nothing to lose,
so with my last ounce of strength I stretched out my neck and bit
those babies just as hard as I could. You'd be amazed how strong you
get when you bite your own balls!"0 -
Ruth-Annie might be right. My MIL had trigeminal neuralgia and the pain was just debilitating. Does it get worse for you when in cold windy weather? Hers was controlled with tegretol (carbamezapine). Hope this helps.
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OBXK: My MIL used to call my husband, at age 18, "Roger the Lodger," but he's a very devoted son now - lol. I have 2 sons a little older than yours so I recall those times. #1 has moved out now, and #2 is 3000 km away at school. Miss them both. Enjoy the short, special moments.
Ruth: So sorry to hear about your pain... that sounds awful. Throats are really tricky things and I have heard of several cases where conditions -- and there are so many of them don't assume the worst-- were tough to diagnose. Hope you can hang in there, be persistent and get some answers from a throat specialist.
Moe: Congrats on your milestone. Hope your hip pain is just normal aches and pains and can be alleviated somehow. Xrays see some things, MRIs and bone scans see others. When I had back pain, my GP ordered a bone scan, so you might ask about that if the Xray is inconclusive.
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Reality & Ruth - I just had some scans done about 4 months after end of treatments. Just had to know for sure FC was gone. Have some peace of mind now although insurance came back saying they won't pay for PET, only CT so don't know how I'm going to pay. I also got rid of my port which I had a love/hate relationship. I got a collapsed lung when it was put in when BS nicked my lung - that was horrible having a lung tube put in, but I liked having it during the chemos and blood draws. Ruth, mouth/teeth pain is the worst. I just went through some horrible pain for a week until I had a root canal done. I hope they find the source soon so you get some relief. I agree that you shouldn't assume the worst.
NavyMom - good luck on PET tomorrow!
Titan - I had the same symptoms before diagnosis - lost a lot of weight and hair falling out - and also thought it was peri-menopause symptoms. Also had a lot of stress in my life: lost my good-paying job after 12 years with same co; had hostile takeover (by some new board members) of my president position with the humane society after 9 years and opening a low-cost spay/neuter clinic which took me 2 years to open and ran it for first 3 years on volunteer basis; lost one of my cats to fast growing cancer, and had a new job where the manager would yell at me in front of co-workers and I would HATE going in (and coming home crying).
Born - glad you have moved on from the insensitive co-worker - definitely not worth your time. Let us know about the mammo. I had my first follow-up mammo last month and it was all clear, but I hurt for many days because I had a lumpectomy and it was very painful with all the pulling and squishing of my tiny foob. I would think they would have to do an MRI for yours with BMX.
Mags - WOW, what a long surgery and you are already walking! Glad you like the new look.
Dawn - Thanks for checking in with us. Think of you often. I also have "bad" dreams usually and don't sleep well. I don't remember if I had them during chemo, but wouldn't miss them. I was on so many drugs, I think I usually slept better except the first night when on steriods.
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Hello ladies. This was just posted on the stage IV forum about our friend LuvRving.....
This was just posted in the What's For Dinner thread. Thought everyone here would like to know.
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Hi ladies. My mom isLuvRVing. I know she posts here often and many of you think of her as a friend and BC fighting sister. I wanted to let you know that she's been having some trouble focusing and typing the last few days. She's at Dana Farber right now for testing. Of course they'll be looking for those ugly scary brain mets, but we're fairly confident and hopeful that this is just "chemo brain" caused by the clinical trial drug. Either way, she could use your love, support and good wishes. I'm sure she'd love to see your comments here or on her blog so don't hold back and send your thoughts her way. Thanks ladies! Good luck and love to all of you!
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*susan*
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To all my TNBC sisters; I hope your aches and pains go away. I hope you all have happy dreams (note to self don't watch Walking Dead before I go to sleep). To everyone that has been so supportive of the rants and tears. For all those big shoulders out there...Thank you. I graduate tomorrow! My last (hopefully forever) Taxol. I made it. In no small part to everyone out there. Those who told I could do it. Mostly excited to get my PICC line out so I can use the Saran wrap for food storage and not a shower implement. Oh and my hair has started to grow back. Big stubbly head but its coming!
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bernie,hilarious,thanks for the laugh!
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Babs, thanks for forwarding that post to our TN thread. Please do so again if you should get further updates. Special prayers for friend Luv. Cancer sucks.
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Good for you Tooky! Glad to hear that the dang chemo is over for you...good stuff!!!
Thanks for the info on Luv also Babs...I was wondering why we hadn't heard from her...
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I can't believe I have to post this ladies, but my mom, LuvRVing (Michelle) has brain mets. They are small but theyare numerous. She is starting whole brain radiation tomorrow. I don't know when she'll be able to post again but I know she'll be reading your threads so please wish, hope, pray...whatever you've got. We really need it all.
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LovinMyMom - We love her too! She has always been such a great help and comfort to us here and I am very saddened to hear of her diagnosis. I am sending her great {{{{ BIG HUGS }}}} that the radiation will do it's job completely and that it will be easy on her at the same time. Please give her all my love and best wishes! You will all be in my prayers!
Doreen
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