Calling all TNs
Comments
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Radiation planning done. Annie, you were right, nothing to worry about at all. Worst part was trying to find a parking place at the hospital. Can't wait to shake the chemo funk so I can get started with my month long celebration before starting the rads in January. And I was told that I mustn't lose any weight between now and then, so I will consider all those festive goodies (in between the flax, blueberries and broccoli etc., of course) as being for my health!
5thSib, I got some pretty horrible headaches too when I was on FEC that often lingered for a few days. I didn't get them with the Taxotere.
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5thSib - I get headaches from chemo. Tell your oncologist. It may be from the steroids or nausea meds. They may try to rule that out, by eliminating or changing drugs. You might also as for a script for Ultram. If you can, be still, dark room, no noise with an ice -pack. If you can't manage that - hit yourself in the big toe with a hammer - you'll forget the headache
Hope you are feeling better in a day or two.EnglisgRose - Enjoy your time off!
Luv - Can't wait to see your photos. I use to have a friend in Charlottesville with a hot air balloon - Magical.
I'm off to our local charity shop, to look for tacky Christmas sweaters, for our silly Christmas card photo.
Wishing everyone a great day!
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5thsib: I had headaches the first round of chemo and then I asked them to pump more saline into me before and after my chemo infusion.....that really helped and had minimal headaches after that. I hope you can find comfort soon and yes PLEASE call your MO today and just check it out.
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5thsib: Cytoxin is known to cause head-aches. Probably just a SE but mention it to your onc - they may have a suggestion. Be sure to drink lots of water - day before, day of, and 2 days after infusions.
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Hugs BAK! So glad you have a supportive husband!
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Hi Ladies,
I have a quick question I meant to ask my Dr yesterday. I am TN but my grade is a 2. I have noticed most are 3. I was just wondering why? It seems that with TN everyone is very similar.
My surgery is getting closer by the day nervous but I want it done. Decorated the tree, now on my way down to my oldest daughters for dinner all my kids are here and it is wonderful..
Everyone have a great night,
Carla
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Thanks everyone for all the comments on headaches. I called and the nurse said heaches could be either from one of the nausea meds (Aloxi) or the Neulasta (never mentioned the Cytoxan or steroid). They said they would adjust the nausea med next time and they gave me a prescription for Loritab. I doubt I will take it because it always makes me feel nauseated and dizzy. The headache is better tonight, but I still just generally have that "yucky" feeling you have after a stomach virus.
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Just had to share these pretty parachutes with you!!
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Luv, just looked at those photos and read about your trip. What a fun time you had! And what a nice finish to have champagne and a snack after that balloon ride. And I know what you mean when you say that the strip really beat you up. I went to Vegas a few weeks ago for 3 nights and we walked from the Wynn to NYNY and my feet and my legs and my back....hell, I guess just about every bone in my body was sore! All I could think about was how my Grandma could walk the strip when it was a bit smaller....she wore pump shoes and was 80 years old the final time she visited Vegas. Makes me feel like a whiner! Thank so much for sharing your trip with us.
OBXK, thanks for making me laugh. You are a real Pip!
Carla, I have seen a few TNs that are grade 2. But I think that most of us are grade 3. But treatment would be the same either way. When is surgery?
5thSib, glad that you called the Onc. Keep hydrating. And get rest and more rest.
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I know that we have discussed our experiences with memory problems in previous pages. I am having serious issues with losing things. Or I put something in a special place so it won't get lost or thrown away and then I can't find where I put it. This has happened over and over again. I get so pissed at myself. And then I get scared because it is usually something important and that is why I put it in a special place to begin with. Ooy! DH will see me stomping and cursing around the house.....he knows that I have lost something again. He shrugs his shoulders and just tells me that he has no idea how to help me.
Anybody else doing this?
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I found an excellent book written by a college professor who has TNBC. She did a lot of research on the subject and the book is excellent. It is called Suriving Triple-Negative Breast Cancer by Patricia Prijatel. You can order it from Amazon. They have a Kindle version also. I found it to be a very helpful resource.
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Navy mom: I am doing the exact same thing. I put things in a special place so they won't get lost and then I can't find them. So frustrating that I too am running around cussing up a storm, looking everywhere for it. My DH just sits back and laughs which makes me laugh. Now, I have a special drawer just for me and I put my things in there.
So far it's working.0 -
The following letter was forwarded by someone who teaches at a small high school in country NSW (Australia). The letter was sent to the principal's office after the school had sponsored a luncheon for the elderly.
Dear School,
God bless you for the beautiful radio I won at your recent senior citizen's luncheon. I'm 94 years old and live at the local County Home for the Aged.
My family has long since passed away and I rarely have visitors. As a result, I have very limited contact with the outside world. This makes your gift especially welcome My roommate, Maggie Cook, has had her own radio for as long as I've known her. She listens to it all the time, though usually with an earplug or with the volume so low, I can't hear it. For some reason, she has never wanted to share it.
Last Sunday morning, while listening to her morning gospel programs, she accidentally knocked her radio off its shelf. It smashed into many pieces, and caused her to cry. It was so sad.
Fortunately, I had my new radio. Knowing this, Maggie asked if she could listen to mine.
I told her to f**k off.
Bless you.
Sincerely,
Edna Johnson0 -
At ta girl! Luv your input Bernie.
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LOL, rolling around in the aisles, Annie and Bernie. Hilarious!
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I have not posted in a while, had a lot going on, sorry to read of some of the se and issues everyone is having. I had my bmx on Monday the 19th with spacers put in, you know the drive by kind, kicked out of hospital on the 20th only to return a couple of days later with a blood clot in my chest. That was the most pain I have ever had in my life. Stayed overnight, feeling much better now, however, I look worse with the bruising showing up mainly on my cancerous breast it is almost completely black and with all the swelling I still have a nice size chest. Hope everyone has a great weekend with little se's and no break downs! Omg I almost forgot to tell you the best news, the lab results from surgery showed NO CANCER, the chemo I had done first work 100%, now lets just hope it was enough for a life time.
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I have given up the hope of having a better past......all we have is here and now ladies, lets put our best foot forward and march on.
Have a wonderful weekend
Hugs Kymn
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cograts on the no cancer, Browler!
Well, I'm about to dump on you ladies, because no one else wants to hear it, but I know you'll understand.
This Tuesday the 4th will be my 4 year cancerversary.
My 1st year cancerversay saw me filled with terror and almost debilitated with PTSD. I started seeing a psychiatrist and a therapist around this time because I couldn't go on.
My 2nd year cancerversary was a little better. Fear still there, but gaining a bit of confidence back. Trying to have fun again.
3rd year canserversary... I allowed myself to think I might, just might have beat it. I was almost back to the old me, at least superficially. But inside I was irreperably changed and trying to find myself.
And then came 2012, a black nightmare of a year. My marriage, already strained by cancer, exploded on me. My husband got involved in many emotional affairs because I was "too busy" trying to find myself. He wanted permission to sleep with people outside the marriage because my sex drive was so low, even though I made my best efforts. Hell no, and in the middle of divorce talks, I found The Lump. Same place, same size...evil wicked deja vu. It was confirmed cancer in the middle of May. I was forced into a CAT/PT that I knew would find SOMETHING - but it didn't. I so clearly remember the day I saw the BS - mammo, US, biopsy. The repeat of misery I never though I'd go through again. I went to the car and started screaming, thrashing, crying, vomiting. Husband said not a word, just stood by and gave me a bag to throw up in.
When we found out it was cancer again, my two boys laid on me in the bed and sobbed. My husband laid there and sobbed, and said my name over and over. I didn't cry. I felt numb as stone.
Surgery took out the cancer. Then I did radiation for a month. I was too wiped for work and took most of the summer as STD. It was actually relaxing, minus the morning rads appt. I'd nap most of the afternoon and than hang at the pool with the kids.
After going back to work end of summer, it all went downhill. No compassion or sympathy from bosses. Work piled on, major stress. Feeling lots of pain in surgery/rads area. Then I took a second job one night a week for more $$$ and this had its own set of unique stresses. My husband and I ignored the elephant in the room, I even thought the cancer might have woken him up to step out of his selfishness. So I asked him about it the other night and he says he's still not happy, and not sure if he wants to stick around. I need a man I can depend on! Or maybe I don't. Maybe I should just forge ahead on my own. But if I get sick again, there's no one. My mom and dad are useless, my sister busy with her own life.
So not the cancerversary I would have liked. I got out so so far, and then wham, it came back. My life is still spend moving from one sh!tstorm to the next. If I didn't have ativan, cymbalta, oxycodone, and ambien I'd have jumped off a bridge ages ago.
I want to run away from it all - him, work, stress, home, my family. Well, except my youngest boy, who is always good to me. I want to spend a few months at a cottage in NC just walking up and down the beach, up and down, soothing my troubled spirit with the waves.
I deserve to be happy! Why am I still in such a crappy place? What about me, what I want for my life? Why do things keep getting worse instead of better?
If you've read this, thank you. I obviously need some outside help. You guys rock.
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Hugs to you, Minxie. Keep looking forward, girl. One day at a time. And I think you hit the nail on the head.....You do NOT need a man to get along in life. Your H sounds very selfish. Maybe its time that you think about if YOU want to stay in the marriage. If you do....is it possible that the 2 of you can get into some marriage counseling? I think the stress of just living day to day with the status quo would be horrible. And if you decide that you want to end it, then at least you can be in charge of making some decisions. Remember to treat yourself well. Get enough rest if you can. Vent away here...we get it. probably more than you realize.
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Minxie, my sister........I feel so badly for you. And I totally understand you. Much hugs and love to you. PM me if you need to. Tell hubby he is a weak man and not worthy of your love and then kick him to the curb. You are worth better. We are here for you even if he isn't. You strike me as very strong. I believe that you can survive!
Namaste', Minxie.
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Minxie--yes you DO deserve to be happy. I wish I had something magical to say that could help you to feel better but I am a blank page. All I can offer you is a HUG! Find what makes you happy
Maggie
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(((Minxie))) I hope you get to that cottage on the beach in NC!
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Mixie - damn - I just sold the cottage! I can however, offer you a guest room at my house - the drive down to the is OBX is 45 minutes.
Sorry you find yourself in such a bad place. Forgive your husband and set him free - for yourself. If he died getting hit by a bus, you'd be in the same pickle - why wait, public transportation is so unreliable.0 -
Minxie: I'm so sorry you have to struggle with husband issues while going through
This crappy cancer again. You don't need that added stress on you either. I think you should go alone and have that walk on the beach to sort things out. We are here for you!
Big cyber hug to you!!!!!
Erin0 -
Minxie, look at all you've been through and you were able to face all of it with great strength. You deserve much better from him, and if he can't give it, then he's a drain on your emotional battery because you are having to deal with his unreasonable demands. I'm really sorry you are going through all this crap on top of dealing with the recurrence.
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Minxie - what did I say to you the other day. Dust off those suitcases and get the hell outta there to a place where you long to be and can find peace. Your hubby says he is not happy and doesn't feel he wants to be there so let him go. Yes you do need a man you can depend on, one that will stick around through thick and thin, the good and the bad, as you would do for him, but if he is not like this and he is obviously not dependable, then depend on yourself without a man. If you don't think your marriage can survive then set him free so some other poor bugger gets him. You deserve, want and need better than this. You say you will be on your own but you are on your own now because he is emotionally with other women and not there for you. Take the money you told us about and do something with it for you, find that longed for peace and healing. Karen is right public transport is unreliable (Mind you I would probably be driving the bus) and you can't wait around for something to happen. Make things happen for you because you can't waste your life. You have years ahead of you yet so make the most of them. Big big hugs and lots of love and prayers for this big decision you may make. Annie
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Minxie, take your walk on the beach. We will be with you with every step you take.
Twenty years from now you will be more disappointed by the things that you didn't do than by the ones you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sails. Explore. Dream. Discover.
Mark Twain
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Minxie, I'm so sorry that you're going through such a shitty time. I wish that there were something that we could do to ease your pain.
I think that when we stare our own mortality in the face as we all have done, we realise that there's no point on wasting time or energy on things and people who don't enhance our lives in some way. Similarly, perhaps there are things that we should cherish more and devote more effort to. I sometimes feel sorry for all the people who carry on blinkered, just going through the motions of life and never achieve such clarity of thought. I hope that you can find the time, space and support that you need to figure out your important questions. You do deserve to be happy and you must believe that you will be again, whether that involves mending your existing problems, or accepting that that may not be possible and moving on to new and brighter things.
Take care of yourself, and consider yourself hugged lots of times over by people who totally get what you are saying.
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Hi all, I am relatively new to this. Diagnosed with triple negative and currently going through chemo (T&C). I have read a lot of the bios and it looks like many women started with a lumpectomy and eventually got a mastectomy or went straight for a mastectomy. This makes me rather nervous. Are there long term lumpectomy success stories without recurrence?
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