Calling all TNs
Comments
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NavyMom you are never far from my thoughts. I'm proud of your boy too for doing what he can for his country but most of all for trying to make it a safe place for his mum and dad and his little family. May god bless him and keep his loving guiding hand on him always.
Morwenna you will never intrude. You are most welcome to join all the fabulous ladies on here and if you have any worries, fears or just feel like a cry we are all here for you and you are right we WILL spend 'years' getting to know you.
Slowloris we all have our downs but we come on here and the girls help us up again and support us through it. We have so many 'if' times but they will pass until the next time. I also believe laughter is the key, not at people but with people except I too giggled at Gilly's "Lush" just as she will.
Titan where have you been, I've been missing you. There is only one thing better than having a kitty (and its not a little shit) it's having two kitty's. They will keep each other company and be really good pals. Their antics make me laugh so much, they are just so much fun with what they both get up to. Love his name, Angus, very posh.
Sweetpickle talk to Karen, OBXK, she was the one who put me on the straight and narrow (though sometimes I fall off) about the thought of "what if it comes back".
Hi Dormac
Hi Linda. Hope you both are doing well.
Kathy how is that tree doing now in the middle of your roof!! You have the martini I'll have a smoke. I don't think I will ever give it up now. Got no determination at the moment.
Hugs and prayers sent to Inmate tonight and I hope she is free of pain and with her loving family.
Have a peaceful and happy night Ladies. Lie in tomorrow yay but not for long got lots to catch up on. xx
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I forgot to say Chloe has been a really good girl lately. Do you think it's because I threatend her with the dogs home or just because I shut all the doors, put everything up before I go to work and give her a bone thats bigger than her to chew on. Me thinks it might be the latter.
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Goldie - After I finished chemo and radiation, I developed a sound of rushing fluid in one ear whenever I changed the position of my head. Had my hearing tested (my PCP ordered that test), and sure enough, there was hearing loss. Over time, the sound sensation diminished and, at the last hearing test, that ear was back to normal. SEs do come (I had most of them during chemo) but they eventually fade.
My MO used to declare that some effects I was having were due to age or other issues. (My legs swelling, for example) And I didn't bother to argue with him, but almost all of them have subsided, and I look forward to seeing him for a checkup in August and saying, "SEE! I'm still old, but these effects you said were due to age are gone. They WERE chemo related."
He's a nice person, and always presents a positive attitude to me, but my PCP mentioned that the MO's report to him was that my prognosis was "fair". I try not to worry about that. But I do.
Karen, I send hugs and good thoughts your way for the decisions you have made and the times ahead.
Nat
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*Hides behind Annie...with a Martini AND a cigarette...stifling giggles at Gilly*. Yes Annie, I still have a hole through my roof. (Hence the Martini). Gotta get my care decided and in place before I tackle that battle. Actually right now I'm on the train heading to Sloan in NYC.
*paces anxiously waiting for Karen's results*0 -
Hi All - I'm new here, too. I've been lurking though. I am American-Canadian (living in Ontario). 43, soon-to-be 44, married with three kids (identical twin girls who are 6 and a boy who is 9). I was diagnosed on October 2 last year. I am Stage IIa [3cm tumour; node negative], Grade 3. Since then, I've had a successful lumpectomy, chemo (4 dose dense rounds of AC and then 4 rounds of T) which wasn't too hard on me - although now I think I have some post-chemo aftereffects like stiff joints in the AM, and then almost 12 weeks ago I had a bilateral mastectomy with DIEP flap reconstruction. I've done very well post-surgery and am happy with my results. I'm back to my typical routine and working out again.
To try to get my mind off of this horrible disease, I have poured myself into healthy lifestyle changes. I try to eat at least 5 servings of fruit and veggies a day, take supplements, and exercise. I have also started to get my house back in order and I spend a lot of time with my kids and husband. Oh and I have an 18 year-old cat who has been my constant companion during this entire ordeal.
I am doing everything I possibly can as best as I can to keep this beast at bay. But it is hard when your mind sneaks up on you and you hear "what if?" At my lowest moment in this, my DH gave me a stern lecture where he told me I had to "fight" and fight with everything I had. But sometimes it feels like I'm just doing nothing. I mean really can healthy eating, exercise, supplements and prayer keep me alive?
I sound crazy don't I?
Sorry for the rambling.
Robin
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Hi Robin,
No you dont sound crazy, congrats on being on the other side! I too have identical twin boys that are twelve, so fun being a twin mom! Glad you found this board, I know it has been a life saver for me. Im just four weeks postDIEP and look forward to being where you are at.0 -
Heather - thanks! Twins are wild, aren't they? My two pretty much cause a sensation wherever we go. Their poor brother.
Hang in there on the DIEP recovery. It takes time but after I reached 6 weeks, I started working out again. Slowly and gently. Some days are easier than others. The chemo and the surgery really can take it out of you. Today I finally did 35 minutes on the elliptical trainer.
I've been NED since November 8, 2012. They did a bone scan and abdomenal CT scan on me right after my lumpectomy. Both scans were clear. I need to focus on that fact and that I have a great life and stop worrying about this crazy diagnosis!
Thanks for the post!
Robin
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Robin- I hear ya and I need to do the same. :-)
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Oh Dearest Dawn, I wish I could talk to you just one last time or read your post, oh dear, I am so sad, tears
. You moved me with your strength and courage. I loved your pics so much that I saved it on my computer to remind me how to have courage, how to deal with stuff. What a beautiful woman you are, inside out. I will pray that you have some beautiful, peaceful days before you transition to your real home, which we will all do some day, some will go earlier, others will go later. At least there will be no more pain and struggle. Love you always!0 -
Oh my goodness. Thankyou all for your warm welcomes. Reading and crying now. I've felt fine all day, so thanks for that! *takes a swig of Martini*
Today I've mostly sat with my feet up, watching the men's semifinals at Wimbledon. "Go Murray!!!" It's good, I can be British or Canadian at will now! We came over in 2005, and became citizens 3 years ago. Now I get to sing "Oh Canada" when other New Canadians get their citizenship!
My feet have appreciated being up anyway. I spent yesterday at the hospital with an infection in my arm, which is a poo, and my ankles were so swollen from not being able elevate them all day!On antibiotics now, so I'm sure I'll feel better in a day or two.
Feeling sad today also, for Irish singer Bernie Nolan who has just succumbed to BC. Awful as it is, I'm thinking that the death of a celebrity will do more to raise the public profile of metastatic BC than any amount of "awareness days".
I had a happy afternoon meeting my son's new gecko, "Ike" ... A girl apparently, so its pronounced "Ika", and playing with the crickets we have to feed her with. Seems to me the crickets are more fuss to keep alive than the lizard!!
Anyway, cracking thunderstorm underway just now, must go check all the windows are closed!! Oh yes, its the first day of the Stampede, so thunderstorms are traditional!
Have a peaceful weekend, ladies,
Rose xxx0 -
Hi Annie: I think Bryanna is holding up through all this college mayhem stuff much better than I am! I tooooooooo old for all this. Did it all 25 years ago and my husband was still alive so he took on much of the finances, getting her settled, etc. To be doing it all at 66 and working full time is sometimes exhausting. Money, money everytime I turn around, but it's all for a great cause. She's certainly worth it all and then some. Hope all is well with you (and Chloe) and I too agree with you regarding Titan's kitty - she really does need two. I have always found (and in fact have two myself right now) that two cats were always easier than just having one. Be well, and I shall touch base again as soon as I can come up for air!
Love,
Linda
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Oh..I have 2 cats...my girl cat died at 13 years old in April...her name was Carmella...we have a 5 year old male named Eddy...he came to us the summer I was going through chemo...I always felt he was sent to me for a reason...we adopted Angus 2 weeks ago...
Robin....you are doing all you can.....so go with that and let's hope for the best...we are all a little crazy here so you fit in here very well...
Luah...ah..know the college stuff well...right now we are dealing with the loans..yikes...atrocious how much a college education costs...and trying to find a job afterward........and good luck with that
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We have 2 cats, and for us, it appears to be Double Trouble! LOL
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I have just met Karen, OBXK, by skype. She is is one switched on lady, so much fun. I felt very boring up against her.
Linda you are a rock. I don't know how you do it. I have a nearly sixteen year old granddaughter and at times she drives me insane. I am hoping she will grow up one day, finally.
Titan next time I get a cat (my old tabby probably won't last too many more years) I am going to get you to name it because you pick such neat names.
Inspired yep double the trouble but double the fun. I just love to see them tumbling over each other.
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Robin, (aka hhcats) - if you will post your diagnosis and treatments in your profile, we can refer to them as we communicate. Sometimes that helps to understand where someone is coming from. (If you don't mind making them public.
)Welcome to this board, and welcome to all the other newcomers. I've found it a good one, both for inspiration and for a source of worries!
Nat
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Hey..cocker..would love to skype with you..are you on Facebook?
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Titan yep I am. Would love to skype with you too. Can you send me your skype name.
Mine is annie.lanham1
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I hope you can see my profile information now. I just realized how to switch it to public. Duh! Thank you all for your kindness. Tomorrow I will be 12 weeks out from my DIEP surgery so officially off the recovery clock. I am going to celebrate it by climbing a local set of "stairs" 300+. Weather permitting. We too have been getting clocked with rain although we spent most of yesterday outside in the pool.
I used to have two cats. Hannah (age 17) went downhill (kidney disease) the week before my lumpectomy - so we lost her then. I always felt like she took one for the team knowing that I was sick. Hobbes is 18. He's still bright-eyed and bushy tailed. He's half Maine Coon and huge. It's like snuggling a mini bobcat!
Today I am putting the family to work cleaning. We lost focus during chemo and my DIEP surgery and our house looks like it. I don't expect miracles but I do expect to see the floor!
I'm going to post this so I can see if my switches to pubic worked.
Robin
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Congratulations HHCat, you are a week or two ahead of me but I had direct to implant, an easier surgery. I am now putting exercise (an hour a day, 6 days a week) to help prevent recurrence but I doubt I could do 300 stairs! Wow, you are doing great!
Peggy0 -
Hi Peggy
I haven't done them yet! Stay tuned! My trainer suggested "we" try them (he'll have no problem) and I feel like a wus if I don't at least try. Good for you on the exercise, too. I wanted to go direct to implant but here in Canada we get one shot at surgery and my doctor was worried the results wouldn't be "perfect" (he's a perfectionist) and then he couldn't fix them - I was in good shape and had just enough meat on my bones to get the DIEP and some smaller boobs! I'm glad he talked me into this - but it is strange to see this new body I have!
P.S. We have 7 sets of public "steps" and some have close to 500.
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Another weekend quickly over but I am off sick today with a heavy cold. Wonder how long I can make it last!!
Has anyone heard how Dawn is doing. Hope she is peaceful and free from pain.
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Skype is an excellent idea! Is there a way we can do a group Skype? Like we can plan for a time / date when everyone can join in. What a fun idea! You ladies are awesome!
My hair is now colored (I had worn the wig for over a year and it's been 15 months post chemo, and now it is almost to my shoulders). I have 2 little pony tails on top of my head - one on each side. I'm wearing it like this out later today, and nobody can stop me!
- Looking for great wigs that are very reasonably priced - try Vogue Wigs
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I know we can skype from Facebook...I call my son all the time...just when I miss him and want to see and hear him
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*peers around empty room*. It's so quiet in here!
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I'm a bit husky voiced with a cold but I'm here Kath. Relatively noisy as usual. I had Monday off sick should have taken the next week. Feel bleeding awful and it would have been so nice to stay at home!!
Inspired I don't know if we can group skype. This is the first time I have done it but it was so nice connecting with OBX and now shortly Titan. I bet I don't sound like she thinks I do lol. I'm just itching to see her face and get to know her.
You go girl with the hair. If people don't like it they can go whistle. My granddaughter has little pony tails all over her head at times so I bet you look cute. I didn't like the wig at all and only wore it once so can't imagine wearing it in hot weather. Mind you it might keep me warm at the moment.
Hope OBXK is enjoying her trip to Chicargo. How far away would that be to the Outer Banks, anybody know.
No word on Dawn so I hope she is pain free and peaceful.
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So very very special.
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Omg, cutest puppies ever!
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*waves HI to Pickle and Cocker*
Annie I can't give you an exact answer, but it's approximately 900 to 1000 miles to Chicago for her. Maybe when I finally drag my computer down here, I'll be able to Skype with y'all. Maybe that will give me the incentive to get that task done. *grumblesfreakingtechnologygrumbles*0 -
Just saw on FB that our beloved Dawn (inmate) has passed away. Rest in peace to our beloved sister. You were a courageous fighter and inspired many
Maggie
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Maggie,
Thank you for letting us know. I am so incredibly sad. She was such an amazing woman with such spirit and zest for living. Rest in peace, dear Dawn.
C
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