Calling all TNs
Comments
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Julie - I am so sorry! I know you must be in shock. It just freaking sucks. We're in your pocket - I'll be handing out the Merlot and Ativan.
Wishing you a good night's rest.0 -
Lauren - for your own peace of mind, make an appt. with your MO.
Keep us posted.0 -
Julie-I just wanted to say I'm sorry you're going through this.
Lori1020-I was diagnosed a day after you were & my surgery & chemo start date are same as yours. The past six months have been quite a crazy ride. Wishing you well on your last chemo tomorrow.0 -
Julie....so very sorry to hear what you're going through (((hugs)))
Are you saying that a CT wouldn't necessarily show up brain mets? I've had a few symptoms & had a brain CT which was clear but reading your post makes me think I need an MRI or PET......
Lauren15.... My mets were diagnosed 14 months after treatment finished for my primary but I know they were there at least a few months before....
My symptoms were sore lower back, getting up or down was painful as were such things as lifting the laundry basket. I also had pain in my left rib which gradually got worse & hurt to breath. I don't mean to scare you, but I would definitely be getting your symptoms checked out. Good luck & hoping its not bad news (((hugs)))....
Karen xx0 -
Kazzie 61, MRI of head was what was given to me and made it clear it was there, not sure if it's the best method, but they found it using it so I would guess yes.
I found out today from my surgeon, I'm stage 4, don't know what type of cancer yet but due to mets I know the stage. Had biopsy, went well took whole thing out, was a size of a pea from my neck, felt like chicken bone cartilage, hard, white. Tomorrow, Monday morning starting radiation in brain first, then after that is under control, will hit other areas. Wish me luck and please pray for me.0 -
I read often but rarely post anymore.
Sending out big Hugz to my namesake Julie. Not much to say but we are here for you to let loose with your emotions. What ever they may be, when ever you need!!! Julee0 -
Julie, so sorry you are dealing with this. I will be thinking of you and hoping all goes well with your new treatment.
Tiffany
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Julie, I agree with Lori. How truly sweet of you to take the time to help us all try and stay healthy while you are in the hospital and handling your new set of worries. I'm shocked to hear your news ... when I read your post on Friday, I felt the concern that you had, but really was thinking it would be pneumonia. It's so hard to understand. We are all here for you. I'm glad your treatment has already been scheduled. Sending you many prayers. Let us know what we can do for you. xoxo
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Today is a particular tough day for us as a family, seeing the news that Julie has posted. I wanted to post something here to help all of you remain hopeful, and with a proposed action plan. I'm attaching this article in case you can incorporate any of the information into your routine. It might help you feel in control and more hopeful, at a time when we feel helpless.
http://nosurrenderbreastcancerhelp.org/page93/page100/page100.html
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great article, thank you Debra!!
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Julie - good luck. Will be sending good vibes and wishing you the best!
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Grace-
How are you doing? Wow that is cool, I hope with both do well with our journey, and our crazy ride gets easier. My sister who I am really close to is Grace. She has been my main source of comfort. My chemo went well, slept most of the afternoon, sooo tired. Going to make a pie here shortly.
Debra-
Thanks for posting the site....we are all affected by Julies news....and Julie, we don't know each other, but please know you are in my heart and thoughts......thanks again for being so kind to us and sharing your news, and allowing us to be a part of your journey.Lori
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Lauren, did you ever have BRCA testing done?
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My awesome friend from middle school and high school set up a blog for me to post updates cause it's getting hard posting texts, emails, Facebook, ...so wanted one central place to leave my updates, please visit and leave me an encouraging or funny message, I need all the laughter I can get right now. www.caringbridge.org/visit/juliekim
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Great news! My tumors in my brain r all so small that 4wks of radiation will kill them all, so no need for more radiation according to my radiation oncologist!
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Julie, I'm so sorry to hear of your mets. Try to stay strong.. It sounds like you are already a strong woman.
Tomorrow I am scheduled for a PET scan to seee if the Xeloda has stoppped any progression of my recurrence. Anxiety is starting to set in. Have to eat only protein for the scan, so the family went out for a seafood dinner...I ate 2 lobster tails!!! I thought "this is either a celebratory dinner, or my "last supper". If the PET is good, bs wants to do major surgery again, and bc of the amount of tissue I may have removed, implants won't be an option, so a flap surgery may be what I get if I decide to continue with recon.
Of course, if the news is not so great, I know I can count on my sisters here to help me get through it. You are alll a great group of support, and the humor really makes my day.
fingers crossed, and prayers for a good scan.
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Lori1020-I'm glad your chemo went well. I started radiation yesterday. Two down, 31 to go.
Julie-Good news about needing less radiation than originally expected.
Slowloris-2 lobsters? Yummy! Hoping your anxiety melts away and that your scan results are a reason to celebrate.0 -
graceforme.... Just the tails, and they weren't that big. but still YUMMY!
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Julie, wonderful to hear that you received some good news! We will follow your progress and post funny messages for you there! SlowLoris, you too ... we will try to be funny for you as well, and your meal sounded scrumptious!
) Sending you great vibes for excellent results tomorrow!0 -
Hey Julie! I was treated as triple negative because HER2 was equivocal. Tomorrow I have brain mri. I've been falling or losing my balance quite often and severe pressure headaches. If you have any words of encouragement or wisdom I'll really appreciate it! Glad to hear about your prognosis! Take Care!
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steelerfan, I am treated as a TN also because my HER2 was equivocal.
Carol
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Slowloris, sounds like you ate like a queen. Don't worry too much, will be praying for you and my other sisters here who are having a hard time. Hope u get some great news soon. Like u said at least u have all of us to support u when u need it most, we're all here for u, go Loris go! I'm having my 2nd brain radiation today, in great spirits cause I know that it will kill all those suckers!
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Steelerfan, I had headaches, vomiting, vision issues, memory issues (i thought were from chemo brain), but didn't suspect a thing. My headache i thought was due to my bad cough i had for over a month and also i hit my head on the van door, so..., anyways vision I thought maybe cause i was tired. All these little things that we don't really think about need to be addressed, don't ignore changes in your body, run and tell your drs ASAP. Don't end up like me! I really hope there is nothing going on in your brain, but if there is have hope that it is still early enough to manage the issue at hand, remember the sooner u get tested, treated u have a higher chance for survival and I'm telling u right now, we will all survive and 10, 20, 30, 40, 50, 60, 70yrs from now we'll look back at these moments and say, wow, can't believe we made it, bu we did! People live to over 100yrs old now a days, who says we can't! It's all in our minds, stay hopeful and whatever happens, happens, but I'll pray for the best. God only gives us what we can handle, guess what, we got this!
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Thanks all! Going in for my second radiation treatment and in high spirits cause it's going to kill all those suckers!
Thanks all! Going in for my second radiation treatment and in high spirits cause it's going to kill all those suckers!
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SlowLoris...Im thinking about you my friend...sending you a strong hug.....
Julie...doin the happy dance here in wisconsin over the good news about brain tumors being small....you need some ecouraging news....
boy its hot hot hot here.....picked some beets and cherrie tomatoes... later gators
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Grace....hope radiation goes well....They took all all tissue they could with clean margins, so I didn't need radiation.....seems like it all goes fast doesn't it? I can't believe six months of chemo is done and over with....
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Julie:
I don't post often, but I read the posts very often. Just want you to know that prayers and all good wishes for nothing but the best outcome from you current radiation treatments. You are in my thoughts.
Linda
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Slowloris - wishing you all the best.
Julie - glad you had some good news!
Tomorrow I have scans - sure hope I don't poop my pants! I hate that barium, and I live 40 minutes away. Depends at the ready!0 -
Steelerfan, I sent you a PM. I also read your post, about how 2 weeks before dx, the hand reaching down ... wow, that gave me goose gumps. That's amazing, and I truly love your doctor's protocol - start with prayer. Wonderful!
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Julie: I'm so sorry sweetie. But, way to keep fighting I'm so proud of you. I'll pray for gods healing hand to come to you.
Lauren15: go get it checked out please. I know it's scary as all get out. But, better now than later. We know how aggressive TN can be in our bodies. I'm facing my fears and so can you. If you really want to know your chance of recurrence you should ask your Onco. They aren't going to volunteer that info if they get the impression you're overwhelmed and can't handle it. My chance of recurrence is 1 in 5. If I hadn't done chemo and rads, it would have been 2 in 5. You need to ask your doc. 1 in 5 sucks as far as I'm concerned but it beats 2 in 5. (((Hugs)))
Yes, I'm up late cause I'm scared and worried. I get my biopsy tomorrow. I went and saw my onco last Friday and saw the surgeon yesterday. Biopsy is the morning and then waiting until Tuesday for the results. I despise waiting. And, I get to have even more days where I wasn't allowed to pick up my almost three year old during his lifetime. I guess I should be glad he's a daddy's boy.
By the way sisters , what's the longest anyone's had their periods for? I've set a new personal record. Ugh! I was hoping my chemo pause was permanent. That means I'll have to go through menopause again later. Blech!
Praying for God's healing for all of us sisters. In the meantime, God has given us the gift of each other.
Becky0
