Calling all TNs
Comments
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Oh Julie I wish you the best! Is the chemo going to be at same place as before? How close is it to your home?
What chemo treatment are you doing and for how many cycles? I think of you often and pray for everyone on these boards everyday. I pre-medicated with a Percoset each time. Hope you are resting now for your big day tomorrow. What days are your radiation treatment on?
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Debra, chemo is at a completely different place, seems like a nicer place and I love my new medical team. A little further away than before but worth the drive since it's a cancer center that has my radiation onc on 1st floor, CT/x-ray place on 1st floor and chemo onc on 5th floor, pharmacy next building over, so convenient, but about 45min-1hr commute with traffic.
Onc wants me to try weekly for 2 months Carboplatin low dose and see how I do, since I will also be having daily brain radiation with it. If my body tolerates it, he wants to dense dose me every 3 wks. I did well with Taxol weekly low dose, so hoping I'll do welll with this one too! Thanks for the prayers, I pray for all my sisters here too!0 -
Oh Julie this sounds like a great facility! How wonderful that you got into such a great place, and they will have the most recent state-of-the-art treatment plans and protocols!
) Your plan sounds great --- start slowly and then build up. Please let us know how it went today! 0 -
Well ladies, all went smoothly today, took a nice nap and I was done. Only took about 2 hrs, short compared to my past experience. I will be doing weekly Carboplatin for 3 wks, then 1 wk off for 2cycles. Was and will be a breeze! Feel so good I want to go Labor Day shopping early with my girls! Thanks for all the cheering! Wooparoo wooparoo!
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Wooparoo wooparoo, indeed!
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yeah naan!!! go pop some tags!
Maggie
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Naan - I haven't been posting lately, but your story caught my eye. I'm so glad that treatment looks like it will be a breeze. I'm in central California, but go to UCLA for treatment for macular degeneration and thyroid issues. All of my TNBC care has been in Fresno. I see you live in Granada Hills. May I ask where you get your TNBC treatment? My tumor markers are starting to show some activity and I want to go to UCLA if the TMs really act up. Have a wonderful weekend shopping with your daughters. Jan
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Julie, you have a fantastic attitude. So glad it went smoothly at chemo. Praying all the rest goes as well and sounds like your family rocks!
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Jan, I go to the LA Cancer Center 500 S Virgil Ave ste 502, LA, CA 90020. My onc is Dr Clan Hahn 213-388-0908. My radiation onc is Dr Hanjoo Kim, same building Ste 101, 213-739-5090. If u have a chance you should ck out this hospital, the building across the way is my daughter's orthodontist and 1st has a pharmacy as well. Talk about all inclusive. The onc building also has a CT/x-ray off ice on 1st floor too. I love it there, everyone is so nice and helpful and treats you like family not another patient!
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Julie - so glad you like your center. Have fun shopping!
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Julie - so glad you like your center. Have fun shopping!
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Thanks ladies, so what are your plans for this Labor Day weekend? My girls will go to their Godmother's house Sat for a fun beach day sleepover so I can rest. Then on Sunday I'm having 3 families join us for a pool party BBQ, with friends and family, can't wait! Hope all of u have a wonderful/restful holiday weekend and will return to post after Mon!
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Shout out to Kathryn and LuvRving....miss you ladies....
Labor Day weekend...betcha you don't have the day off in NZ do you Cocker..well...we will think of you working while the rest of us hang out, drinking wine and eating burgers...lol
trying to get ready for a 5K on September 15 in Columbus...so excited..will run with my son...well..at least for the first 30 seconds...
any college football fans out there? excited for football season..best time of the year if you ask me tho no one did.
do know there is a Steeler Fan on this board.....I'm a Browns fan..yes..really....we like to suffer alot...ha ha
Hang in there Julie..hoping for the best for you....
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Hi Everyone,
Wishing you all a great holiday too! We happen to finally have plans and my hubby is off this weekend! I know about SteelerFan - she is 5 years out and doing great!
Oh a 5K run is impressive. I can exercise 12 miles on the EFX, but can't run outside. I start wheezing and such, within minutes.
Julie, glad to see that you are feeling amazing and will be enjoying the festivities at your place!
I look forward to this time of year as well! But then again, I look forward to any new season, once we've been in one for a while, it's nice to get a change of things.
Football season is fun!
Take care everyone and talk to you soon!
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Well now Titan you are wrong for once!! Yep we have labour day off but its not until October. Isn't that funny that its not the same everywhere. Our mother and father days are different to you aswell. This Sunday is fathers day in NZ and the old feller reckons he's going to get some special treatment. Yea right. Oh ok his favourite meat is pork so I might make him a pork roast on Sunday. We also have Christmas before you, so there Titan. I will get my pressies before you lol. Gisborne a town in NZ is the first town in the world to see sun up. So another feather in our cap. Don't you just wish you lived here girl (I wish you did) You could have a martina and I'll have a fag.
Wishing all you girls and (AL husbands wife) on active treatment all the very best. I've been taking a break which has done me good. Now have my second cold in two months so must be a bit run down or my immunity is compromised. Oh well, I'm still here annoying our athlete Titan. Don't forget Titan need you here by 6th March 2014 for the Ironman. Flag is all but ready for flying.
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Oh geeze I'm not supposed to say fag to you Americans am I. (Meant ciggie). lol
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Hi,
I was diagnosed at 36, have had a mastectomy and trans flap reconstruction, having chemo number 4 next week - what a struggle that's been. Have a 6 and 4 year old.
Have been struggling with the TN diagnoses this week, don't know why it hadn't bothered me up to now. I keep freaking out about getting to 5 years without a reocurrance, maybe because I had 2 tumors..
Arghh.
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Angstapp, don't freak out cause there are more of us who don't have recurrences, but your best bet are scans demand them PET/CR/MRI so u can be assured!
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Julie - Thanks for your information about your cancer center. I hope I never have to use more ca doctors. Enjoy the weekend with lots of family and friends gathering around you. J
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Titan - I hope you have a wonderful holiday. We'll all be waving our pom poms for you on the big race day!
Annie - hope your cold leaves you very soon. I'm making a big pot of soup. Sending you a cyber bowl.
I'm taking my 18 year old son to my hideaway in Charlottesville this weekend. It will be nice to have some time alone with him.
Wishing everyone a safe and happy holiday.0 -
Angstepp: Try not to worry. I too had two tumours (2.5 cm and 1.5 cm)... doing fine (touch wood) 4 years later.
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Angstepp- I too had 2 tumors 1cm and .9cm with extensive DCIS. I am 3 years from diagnosis today!
Happy 3 years to my diagnosis buddy Fighter_34!
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wocka wocka wocka Tif J...that is fantastic news! 3 yrs is HUGE...so happy for you and your family.
OBXK enjoy your weekend away with your little darling. Why do they grow up so fast?
Have a great weekend everyone.
Maggie
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Thanks Maggie! My onc says I'm not 3 years until Dec. 30 when I finished chemo. I like diagnosis better- gets me to the anniversary quicker I guess!
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Hey girlies and husband ~
I read your posts every day and am so encouraged by the friendships and information on this site. I've written to several of you privately and am so thankful for your encouragement and hope.
I haven't posted public in awhile ~ was busy trying not to think about BC and dealing with my recovery from reconstruction surgery in latter part of May. (took out expanders and put in implants)
2 weeks ago today I had to have my radiated breast implant taken out due to the tissue not healing and the breast retaining fluid. Radiation had hurt the vascular support needed. BUMMED. Since I had a double MX with expanders (Sept 2012) and radiation all done and finished by last December I was hoping the healing would be enough for the implants to "take" and I wouldn't have to go through any more surgeries. Now I have one good breast and one caved in gnarly looking one! 😣
My husband calls them Pancho and Lefty and says "Pancho ran off and left Lefty"! So now to decide whether to do the DIEP flap or the latissimus (back) flap OR just forget it and wear a prothesis. Any stories out there that you girls can offer me to help decide would be appreciated.
I am so glad I found this site and ALL YOU COURAGEOUS LADIES AND HUSBAND!
Hugs, gwen0 -
Gwenie56 - sorry to hear about your problems - reconstr or not is certainly an individual decision and one only you can make. Don't let others influence your decision, but do be informed and hearing from others can be helpful. As for me I am 51 and quite large breasted. I had a single mx. I choose not to do recon - just a personal decision for me for a variety of reasons - didn't want a longer surgery (mult surgeries really), longer recovery time, and I had heard of many having problems. I actually just got my prosthesis last week and so far I really like it - the girls are finally back together and getting along well. Ultimately do what is best for you and what you are most comfortable with! Lana
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Hi Gwenie....be sure to research about lat flap and increased risk of lymphedema. I chose diep flap through the Center for Breast Reconstruction and St Charles Surgical hospital in New Orleans. That is all those doctors do these is rebuild women who have endured BC or are at risk for BC They work with you if you are out of network with your insurance. They really are experts in the field. There is also a hope lodge nearby that you can stay at free while recovering after surgery. A good option to look into if you still want to go for recon. These are tough choices to make both emotionally, physically and financially. just look into all the options before making the decision. Wishing you all the best
Maggie
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Gwenie, why don't you go to the forum where women who went through the flap procedure are posting and see what they have to say - so you get firsthand experience from many women who went through it? You'll likely be able to learn from their different experiences. From the women that I have talked to who went from implant to flap, they have been ecstatic, but I don't know what type of flap they each had. I don't know the name of the forum, but if you search for NOLO (where some of them have it done) you'll be able to find the forum.
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Hi Ladies! Do you have room for another TN? I've been posting mostly in the starting chemo July 2013 thread. But would like to post here too.
I'm 46. Diagnosed with BC . Found lump in right breast myself while on vacation but didn't think it was anything to worry about since it was time to start my period and it hurt. But made the appointment when I got home, which sent me through many more test. Finally a biospy on June 24. BC confirmed the following day. Two masses 2.5 cm at 9oclcok in right breast. Just enought tissue between them to call them two masses and not one big one...don't think that really makes much difference.
Spoke to bs on July 2nd. He recommended chemo first for TN. Was really disppointed, I wanted that darn thing out yesterday. But folllowed his recommendations, had the port put in and met with a MO. MO recommened AC/T protocol. Which scared the hell out of me. Reading all the horror stories about the red devil...yikes! Had my first chemo on July 19th. To my surprise, very mininmal side effects. No nauesa, aches, pains...did have a horrible bout of constipation, but the MO "fixed" it, no problem since. I just finished my last red devil yesterday! I'm really encourged because before my 3rd treatment, BS did an ultra sound on tumor and it has shrank by 90% so I know that the chemo is working...now I'm glad I started there first. Proof in the pudding taste excellent!!
Since the red devil was relatively uneventful, I'm really scared to start Taxol, on Friday the 13 no less, hope that is not an omen. :-) I'll have 4 treatments of that. Then off to surgery. I've decided to do a double though the BS says I don't need it since by brca 1 and 2 were negative, but for my peace of mind, there are both outta here. Then 6 weeks of rads. I have decided on recon yet. It'll be almost a year after rads before I can even get started so I will have plenty of time to make up my mind.
Anyway, that's my story. :-) Hope everyone is having a nice weekend.
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Hi all,
I am not sure if I had posted here or not...its been a long while. I was dx tn stage 3 in Feb. 2013. Did the neoadjuvent chemo ACT and had my double mx with te on the 14th. I worked during the whole chemo process except for my neutropenic days. I am impatient as to the whole healing process. I had opted for the diep but was not a candidate due to the fact that I did not want any muscle touched due to back problems, poor skin quality from my kids ha ha, and not enough stomach fat(who was he kidding I gained a million pounds from chemo and steroids).Now, I am actually glad. I don't think I could have handled the other surgery. I was tough throughout everything else. Chemo did not bother me( I had all the side effects and then some)and I will be getting radiation once the ps clears me. The tumors shrunk and I wound up with only 2 nodes positive. I thought I was prepared but I guess I have a little post surgical depression. Probably because I can't do much yet. I do have a question though those with mx and te how long do you feel like there is a 25 lb weight on your chest does that go away?Is that because I am still pretty sore and not really taking pain killers or is it because I still have some swelling?I hope everyone is well and having a great weekend.
RACHEL
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