Calling all TNs
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Found this on Pinterest & had to share. I hope the link works! Lana
when you feel like giving up...
http://pinterest.com/pin/274860383481444687/0 -
Dolce..thanks for the link...I think I have most of the vitamins cover...lol..
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Can you post what you take? Maybe we should all share what we are on? I'll go first:
In smoothie: 1/2 multivitamin, 2 tablespoons flaxseed, 1 probiotic 90 billion (so it's 30 billion for 1) -- the reason for the half multivitamin is I read that A over 2,500 i.u. could increase bc risk, so since in the pill is A at 5,000 and I didn't want to throw the pills away, I decided to open the capsule and only use half the powder each day.
Then throughout the day: Combo pill: B6/B12/FolicAcid, D3@6,000 i.u. and Metformin x 2
I haven't added in calcium yet, my BS said D3 when he mentioned drugs robbing bones of their calcium,he didn't mention to replenish calcium but to make sure to have a D supplement. Maybe the D helps keep the calcium?
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Naan my heart is breaking for you. Oh , how I wish had a magic wand. There is really no way of knowing anything until things persist. We are here if you need us. Get rest and be easy with yourself. (((HUGS)))
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Bugger. Don't yer just hate Mondays.
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Inspired by D. I truly believe that I was being cared for by God. After over a year of being denied by my ins co to have a breast MRI (they said that that was all I needed because I was 10 years out, I met someone new at my church. She said, at least in NJ, insurance companies are required to pay for Breast MRI's for Triple Neg women. She had been involved in pushing the legislation through and was also Triple Neg. When I saw my MO a couple of weeks later, he ordered one. The results were that I either had tissue necrosis from a site where I had had fluid aspirated from a cyst 2 years prior or it was a small new BC. My MO had never had someone have BC return in the same breast after having a mastectomy so I didn't really rush (I waited about 6 weeks) for the diagnostic ultrasound and needle biopsy which of course was BC. The MD who did the ultrasound and needle biopsy said that my tumor would not have shown in a mammo (which I did not have because I had 9 year old saline implants with a usual life expectancy of 7 years). My reaching out to a new member at my church saved my life.
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I have been concerned about LuvRving for a while now. What do you all think of doing a "card shower" for her? I have her address- if you would like to send her a card, please PM me.
Tiffany
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Great idea, TifJ. Please PM me the address.
I've been a bit quiet for posting but have been reading daily.
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Found this about Michelle: Aug 22, 2013 10:42pm Laurie08 wrote: On facebook her daughter posted that she is doing ok but busy with her move.
Tif: Can you confirm that's her new address?
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This group needs something positive to read! http://hormonenegative.blogspot.com/
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I did not know she was moving! The address I have is from Jan. 2013. I imagine anything we send will be forwarded by the post office. If anyone has her newest address, please let me know!
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Got pathology back from my recon surgery last Wed. Surgeon removed a spot of what looked like necrotic tissue. ALL CLEAR! Woo to the hoo
Maggie0 -
Wonderful news Maggie!! Woo Hoo is right!!
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Great news,Maggie!!
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Maggie, so excited to see your news! Woo to the hoo, indeed!
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awesome news Maggie.....what a relief,,,have a good week.
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Yay, Maggie!
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Maggie - great news!
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OK. My wife has now had Stage 4 Hodgkin's Lymphoma in 1998 and Stage 1 TNBC in 2013. While getting chemo for her TNBC, she was sent to the Dermatologist, who diagnosed a small spot of in situ Squamous Cell Carcinoma on the skin just below her nose. Now another "bump" just popped up on her hand, which is Basal Cell Carcinoma. She is BRCA2 positive, which supposedly is not related to the skin cancers or the Hodgkin's. ENOUGH ALREADY WITH THE CANCERS!!!!!!
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ALhusband..I am sorry you must endure this. I had one removed a yr ago on my back and really need to go back to be checked again...just keep putting it off. You supportive hubbies are the best!
Mags
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Thanks Mags. I made a vow before God to take care of my wife FOREVER...and I intend to keep that vow! She's by far the absolute best thing that has ever happened in my life and she is the strongest, most upbeat, positive person on Earth! That said, being supportive is the least I can do!
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Where is the like button
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Alhusband - you totally just made me cry! What a wonderful supportive husband you are - that kind of love is just beautiful and priceless! My husband has been wonderful as well, but you are amazing! Wishing your wife (and all of us!) a future of no more cancers!! Lana
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Where is the clone button? LOL I have an awesome hubby too, and even then, I can appreciate all the others! You are a good find ALHUSBAND.
So what does the spot look like? Does it have irregular borders, is it tiny, does it look like a freckle?
By the way, there is a skin cancer app available for phones. You take a picture of the area, it analyzes it for certain things, such as borders, shape, size, color (I think) and it compares it to the last photo you took of it to alert you if there are any changes. Of course, not to replace a visit to the dermatologist, but a way to keep tabs on everything.
I'm still waiting for the app to help me turn a 24 hour day into a 36 hour day! LOL
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Alhusband, hang in there for your wife. You are the best thing she can have right now!
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If I could give a husband of the year award, it would go to you Al. You go above and beyond for your wife. She may be a gift to you, but you are a gift to her. It is hard and sometimes lonely to have cancer, because people don't always understand what it's like to be in our shoes. But you seem to relate and understand....so sweet you are....I think I will gently "share" with my husband about you...wonder if he will get the hint....lol Hang in there, her Doc will take good care of your wife. hugs to you
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Al- while my husband has been wonderful through my ordeal- taking care of the kids, housework,meals, etc.- he never once tried to educate himself about what I was going through. Even when we had kids he never read anything about pregnancy or how to care for the baby. He just did what I told him! Hmmm, maybe that was a good thing! LOL! Anyway, kudos to you Al for being your wife's advocate and really trying to understand what she is going through!
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Inspired she has been diagnosed by a Dermatologist. We're not guessing at the basal cell or squamous cell stuff. It's there. Biopsy confirmed it. Topical chemo (Fluororicil I think) has pretty much taken care of the squamous cell cancer under the nose. He'll probably cut out the one on her hand on Friday. BTW...mastectomy is on 9/13. Oophorectomy in November. PS doesn't want the oophorectomy done at the same time as reconstruction for fear of increased risk of infection. BS would have been fine with doing them all at once, but PS poo poo'd the idea. Kathy says she's tired of being "carved up like a thanksgiving turkey" and I don't blame her. She just had major back surgery this past December as well (two titanium rods and 4 screws!). Looking forward to a medically uneventful 2014 and beyond!
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AlHusband: I understand no taking chances! But what I was asking, was what did it look like to you all? Were you suspicious? I'm asking for info so that all of us on here can be more proactive about things like this!
My 11 year old nephew had 2 titanium rods put in his back earlier this summer. He acquired some strange infection, and they are calling it staph, but we wonder if it's one of those you can get from the waterpark or river, as he had been there. He missed an entire year of school, with being sick, and then it deterioated his spine. They say the infection is gone now and he's being home schooled, he did have home school the entire year. He bounced right back from this back surgery. Also, ironically, my cousin also had 2 rods put in her back when she was in her 20s. The surgeries have improved so much, as my nephew was up and walking around extremely fast.
Big thing to help with recovery of BMX is no caffeine. My PS forbid caffeine for 6 months. I think that is why I healed so well and so fast. I had Ginger Ale at the hospital due to his preference. LOL
Sending your wife the best wishes for her upcoming surgery!
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My chemo will start again tomorrow, not looking forward to the SE's but if it's gonna kill all my cancer cell, I'm ready! I was hoping to start after Labor Day, but hey the sooner I get rid of all my tumors the better, right ladies! Hope all of you have little to no SE's and we can all do this together! Wish me luck!
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