Calling all TNs

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Comments

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited October 2013


    Wishing you all well and happy ladies

  • sugar77
    sugar77 Member Posts: 1,328
    edited October 2013


    So sorry to hear about Luv. I pray she is comfortable.

  • Angstapp
    Angstapp Member Posts: 81
    edited October 2013


    Such sad news, I wish her much peace and comfort.

  • kathyrnn
    kathyrnn Member Posts: 366
    edited October 2013


    TifJ - thank you for the update on Luv and I'd like to add one. I spoke with Luv's husband Rich tonight. He told me how ill Michelle is and that it is a struggle for her to speak. I hope you all won't mind, but I relayed a message from all of us. He told me she wasn't able to keep up with the blogs. I told him that we realize that but that we want her to know she is being held in all of our thoughts. I asked him to please give her a kiss and hug and to tell her that it was from all of us to our Warrior Woman. I asked him to give her our thanks for all she has shared with us.


    I hope no one minds that I spoke for the group? I knew you all would want her to know how much she is in our thoughts and prayers.

  • DorMac
    DorMac Member Posts: 153
    edited October 2013


    kathrynn - Thank you so much for speaking on our behalf to Michelle's husband. You expressed all of our thoughts very well - we do all send her hugs and kisses and many thanks for her kind and helpful advice on this journey we have shared. I pray that she and her family are comfortable and at peace.


    Doreen

  • adagio
    adagio Member Posts: 713
    edited October 2013


    So sorry to hear about LuvRving - she was such an inspiration to me when I first was diagnosed - her positive outlook and cheerful spirit has been amazing. Prayers and thoughts to Michelle and may she feel surrounded by love and be free from any pain.

  • naan1004
    naan1004 Member Posts: 278
    edited October 2013


    Just to update all of u, I'm in the hospital cause I have not had a lot if energy, am nauseous, have low appetite, difficulty getting around without shortness of breath and coughing. I came into the ER per my onc and family request. Dr thinks I might have pneumonia. What next?

  • TifJ
    TifJ Member Posts: 804
    edited October 2013


    Kathy, Thanks so much for relaying our collective thought to Michelle's husband. You couldn't have said it better. She truly is a warrior and I wish her peace and comfort.


    Naan- So sorry you are going through so much. I hope this clears up quickly and you get to feeling better.


    On a lighter note- I am thankful to be celebrating another birthday today! Birthday's seem to mean so much more now than they use to. Having lunch with my best friend and playing with my gift from my husband- an I-Phone 5!! I have had a flip phone for the past 12 years- so glad I have finally come into the 21st century and can text now!!

  • Titan
    Titan Member Posts: 1,313
    edited October 2013
    Kathy..thanks for the info and giving our message to Luv's husband...really appreciate that...I think you told him exactly what we all feel here for Michelle...
  • mags20487
    mags20487 Member Posts: 1,092
    edited October 2013


    Naan....so sorry you are in the hospital. You are such warrior! Hope you get better soon and back with your kids. HUGS


    thank you kathryn for passing on our love to our LUV!


    Maggie

  • PeggySull
    PeggySull Member Posts: 368
    edited October 2013


    oh naan,


    So hoping that they care gently for you and that they fix you up quick in the hospital so you can get on with things. Sending you hope.


    Hugs,


    Peggy

  • DorMac
    DorMac Member Posts: 153
    edited October 2013


    naan - so very sorry to hear of yet another bump in the road - enough already! Hoping this can be dealt with quickly and you can return home to your family soon. {{HUGS}}


    Doreen

  • Angstapp
    Angstapp Member Posts: 81
    edited October 2013


    Oh Naan, this is just a speed hump hunny, rest up and get better, sending lots of love and healing to you xoxoxoxo

  • kathyrnn
    kathyrnn Member Posts: 366
    edited October 2013


    Naan-I hope that by the time you read this you will be well on the way to feeling better.


    TifJ - HAPPY BIRTHDAY!!!

  • navymom
    navymom Member Posts: 842
    edited October 2013
    Oh Naan. So sorry to hear of yet another thing to make you feel bad. Wish I lived closer....I'd come to visit and bring some juicy cheeseburgers! Get better soon and get home.
  • navymom
    navymom Member Posts: 842
    edited October 2013
    Happy Birthday, Tifj. Celebrate, celebrate and celebrate some more.
  • Titan
    Titan Member Posts: 1,313
    edited October 2013


    Naan..thinking of of you lady!


    Mags..thinking of you too,,,,for your Thursday appt.....

  • TifJ
    TifJ Member Posts: 804
    edited October 2013


    Thanks for the birthday wishes! It has been a very nice day!


    Sending good thoughts and hugs to all!

  • bak94
    bak94 Member Posts: 652
    edited October 2013


    Kathy-Thank you for speaking up for us.


    Happy Bday Tif! I used to hate bdays now I really appreciate them!


    Any news mags?


    I think I am losing my mind. I made 3 mortgage payments this month and overdrew my account over a thousand dollars! It's a long story, I won't bore everyone, but it is going to take a few days for the bank to correct, meanwhile account is overdrawn and I haven't told hubby. Hope he doesn't need to go buy anything.


    I have been having severe pain in my calf and no one can figure out why. It is really affecting me and I don't know what to do. They did an ultrasound to rule out a clot. I am terrified of having a scan, because it could be something bad pressing on my sciatic, but I can not continue living like this. I told my doc how much pain I was in and she had the ultrasound done and then just said go do some physical therapy! I have to toughen up and just get a scan, my mo appointment is coming up soon so I will tell her again about my pain. Not one doc will give me any pain medicine. I have not had pain medicine since my hysterectomy a year ago and I feel like they think I am addicted. I just want this pain to stop! I can't imagine what others go through with this pain crap. It also could be neuropathy, which I have really bad and it is getting worse. I am so close to be diabetic which probably is making that worse. I feel like I should be appreciative of being alive and I am but I just want to feel good for at least one day. OK I will take a half day! Another rant by me, Im sorry. I am just miserable.

  • BanR
    BanR Member Posts: 238
    edited October 2013


    Hi ladies..


    Firstly, i love this really active thread started by Titan 3 years ago! so so happy to see her still participating.


    I have been recently diagnosed with triple negative, i will turn 35 this month.


    Lumpectomy done, 1.2 cm tumor, margins clear and nodes negative.


    Will begin dose sense FEC (4) follwed by Taxol( 3 weeks, 4 times), then radiation.


    I have heard that there is high chance of recurrence/ metastases in 5 years... and I desperately want the next 5 years to fly fast..I have a 5 year old daughter and its a wrong time to get this.


    no family history of cancer( know of past 5 gens), had baby at 30, breastfed her for really long, never took any hormonal pills, never took cigarrates and alcohol, had my cycles at the right time ( not early).. spent almost my entire life in a pollution free small town, a normal healthy life was what i was living... and still i got it.


    Lets hold each others hands and sail through together.


    all my love!!

  • TifJ
    TifJ Member Posts: 804
    edited October 2013


    Thanks Bak! I'm sorry you are having a rough time right now. If you need meds- I would find another doctor. You shouldn't ever have to be in pain. I hope you get some answers soon and that the pain is nothing serious.


    Welcome BanR. From what I understand the biggest chance of recurrence for TN is in the first 3 years then it rapidly declines. Hormone positive recurrences don't start going down until 5 years. Unfortunately, it can happen with any cancer at any time. Cancer doesn't seem to want to follow any rules. it's a sad fact that we all live with this fear, but it does diminish some as time goes on. I am 3 years past and do still think about it in some way everyday, though I am not fearful for my life, but I also have every ache and pain that lasts longer than 2 weeks checked out. I hope you have an easy time with treatment.

  • lizlori
    lizlori Member Posts: 146
    edited October 2013


    bak94- It frustrates me when I hear Dr.s not listen to their patients about pain. I think some Docs lose their common sense when it comes to pain meds. If pain meds are monitored, there should not be any reason to not have them, providing they do not interact with other meds. If they are so concerned about addiction, you could do whats called a contract, basically you agree to take them as scheduled. Where I use to live, the Doc would do that. My primary wanted to do that, but it pissed me off, and I didn't want to go that route, cuz I didn't feel I was addicted. So I stopped taking the pain med and took over the counter meds...


    As a nurse, I am a stickler about pain issues....Docs just have to be smart about this issue...I encourage you to be persistent with this, cuz you SHOULD NOT be in pain. Again I am sorry you are going through this.

  • adagio
    adagio Member Posts: 713
    edited October 2013


    banR - welcome to the site, but sorry you have to be here. But you will learn so much from the wonderful ladies on here - this site is a life-line for many of us. I hear you when you say you did all the right things and still got cancer - same with me - breast fed all my babies for extended periods, lived a healthy lifestyle, no history of cancer in the family at all and still got it. From going to various groups and reading lots, I am beginning to see a connection between stress and cancer - but who knows?


    Glad you have a treatment plan all lined up - it will be difficult for you some days, but in the main, chemo is do-able - just remember the most important thing is to look after yourself and rest when you need to - this could be a challenge for you with a 5 year old. Accept help when it is offered - do no try to go it alone! When is your first chemo?

  • BanR
    BanR Member Posts: 238
    edited October 2013


    Thanks TifJ and adagio! I am mentally prepared for chemo and i willl take it one step at a time..i have 8 rounds lined up!


    the first one begins probably nov 1st week, supposed to begin october 28th but my stitches have not yet healed and the surgeon asks the onco for more time.


    even i feel stress could be a cause.. i strongly feel in fact.


    hence i have decided to practise some stress management, music, meditation etc during the treatment. but to be honest, the scare for the next 5 to 8 years will be there..but now i have just decided to accept it.

  • mags20487
    mags20487 Member Posts: 1,092
    edited October 2013


    BanR...welcome to the wonderful family here.


    MRI results are in ....it appears to be related to surgery and NOT malignant in nature....woot woot....happy happy dance dance


    Maggie

  • TifJ
    TifJ Member Posts: 804
    edited October 2013


    WOO HOO MAGGIE!!! That is awesome news!! Dancing with you!!

  • jenjenl
    jenjenl Member Posts: 409
    edited October 2013


    Mags - wonderful news....so happy for you!

  • jenjenl
    jenjenl Member Posts: 409
    edited October 2013


    BanR - we are here for you! My kids were the hardest part of my dx.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited October 2013


    On lunch break so not got a lot of time but Mags wonderful, wonderful news. Its raining here and you have just brightened my day. Such Great news. xxoox

  • lizlori
    lizlori Member Posts: 146
    edited October 2013


    So so happy for you mags...such awesome news......