Calling all TNs
Comments
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lookingforw yes I have just finished treatment for my second battle. I have a new spot that I did not realize could not be felt while laying down and my MO laid me down to examine me and I am going to have my RO check it out next week. I am hoping that it is just scar tissue from the radiation0 -
While I no longer post as often as I used to, I read the posts every night and respond to any that I feel I may add some benefit to. Coming on the site this evening, I was so saddened to hear of Naan's passing. I wish for her family the strength to endure this horrid tragedy, and, in time, to be embraced warmly at all times with all the abundant love she left behind for each of them.
Soar high, Julie, free of pain and fear. You fought a very valiant fight.0 -
Good evening to all. For some reason today is a bad day. So tired.
Stupidboob. From reading your previous posts I give you major cudos on holding together so valiantly. I will be keeping good thoughts & prayers for a good report.
I try to be strong but sometimes just can't seem to manage. I know we're supposed to take one day at a time but some days I get overwhelmed.
My darling husband of over 40 years (almost 12 years older than me) tries but doesn't get it. I need a major shot of backbone lately. I think I am afraid because I couldn't finish my chemo. Like I failed. I have to get my head out of this pitty party. Not long ago (right before I found my lump) my best friend/sister-in-law died from lung cancer. After a 11 year remission it came back with a vengeance. We were each others rock. Knew each other since high school. I miss her a lot.
I am going to push myself if still tired to go to my yoga class tomorrow. It usually boosts my spirits & calms me at the same time.
Sorry for my bummer post. I want SUGAR & of course can't have any. I wasn't a sweets eater before but now that I can't have it I want some. Am I crazy?
This is a roller coaster of emotions for me & I was the calm one in a crisis. Weird how this disease affects our minds as well as our bodies.
Enough of my rambling. Best to all. Keep up the fight. I am trying.0 -
lookingforw no you are not crazy.............we are human and we all want what we can not have. I tell myself all the time you have to give up sugar.........but do I. NOPE!!! I feel like a failure because I always said if the doctors told me to do something I would.......with that being said I have not been told by a doctor to give it up but I have been told to lose weight and I still have not. I actually gained back what little I did lose. Losing your friend only adds to the thought that it could be you, and that only adds to the pity-party, but hey you lost a friend you have a right to have a little party of your own. I do not think there is one person on here who has not had our own party. You are ahead of it though because you are recognizing that there is a problem and you are going to try to go to yoga.....hats off to you. I am struggling in my thought process right now, but I am trying. Stinkin' Thinkin' I like to say. I just keep telling myself I am still here and I want to be here and I try to go on and then I have days that I am like why bother, I am going to lose in the end. Then I think well it might not even be cancer that takes me. I am trying so hard not to go there but every new little thing that hits me and I am back to OH NO what if it is the cancer coming back. I always feared it but when they found it I was not thinking that I had it again. The only thing that I knew was that something was not right.
Hang in there and you try to get to that yoga class if you can.
Sometimes we just have to let that backbone rest................;)0 -
Stupidboob - Wow. You've summed it up perfectly.
I found this post from Julie on the August Chemo 2013 thread where she explained her screen name and thought I'd share it with you: "Meaning of my ID naan1004, naan in Korean means, "I am", 1004 or sounded out, "Chun sa" means angel, so put it together and I'm an angel, or so I like to think of myself, heehee."0 -
In trying to catch up with the news about Naan, I came across a post where someone said that "breast cancer isn't really curable".
I disagree with that post. There are countless articles on the internet that said many people, including breast cancer patients have been cured for cancer. While there may not be a specific cure, as in a targeted cure, there are countless articles and literature that reinforce the message that breast cancer is curable, but more often in the earliest stages.
“Approximately 200,000 American women are diagnosed with the disease each year,” says Port, “The majority of these cases are treatable and curable, and much of that treatability and curability depends on early detection.”
The quote is from this article.
To read more: http://www.nydailynews.com/life-style/health/breast-cancer-cases-curable-mammograms-article-1.449003#ixzz2hlTMQ8s8
Obviously in the word 'majority' they are lumping together treatable and curable, but clearly there is documentation that bc can be cured in some individuals, and has been.
Also, I know of someone who was Stage 3 TNBC 11/13 nodes positive and her team has also declared her cured. She was dx'd over 10 years ago.
What each of us chooses to believe is a by-product of several factors, and there is no right or wrong belief, but for me, I do 100% think bc is and will continue to be cured in some individuals. Even though there is not a specific cure able to be administered collectively to the population right now, I don't doubt the merit of some of these findings.0 -
Dear Julie,
I will forever remember your good nature, free spirit, sheer determination and sense of humor. You shined in so many ways and no matter what was going on with you, you never stopped helping the rest of us. You are truly amazing. Words can't describe how empty the forum will be without you and your updates. Sending you and your family a big hug. You will be missed and always remembered. xoxo0 -
thanks for sharing that info. rachelvk...................interesting...........I think we are all angels......:) : )
I guess Naan is just up there cheering for us all as a real angel now though0 -
We all need our angels. I feel my sister-in-law all the time. I talk to her & ask for strength. I can just hear her in my head saying you can do this. Just one day at a time.
Yesterday was my down day. Today I woke up feeling energized & not tired. Went to my yoga class & did a very good work out. Left calm & centered. My avatar is me doing yoga 5 months after stopping chemo. My arms are not as flexible as they were but getting better slowly. Baby steps. Strength returning slowly. Hardest I have found is balancing after chemo.
Thank you, Stupidboob, for the pep talk. It was so appreciated & needed. So good to know I am not alone & that we all have a down time now & then.
God bless our Angels.
Just thought of great book that helps me. I read it often.
Heaven is for real: A Little Boy's Astounding Story of his Trip to Heaven and Back. (A true story)
My sister gave it to me as a friend of hers recommended it as it helped her friend during a cancer battle.
It is up lifting & soothing. Yet a fighting spirit. I have recommended it to some of my yoga friends. Amazon has it in paperback & kindle edition. Has anyone else read this? I think it well worth the $$ even though not really expensive.
May we all have a blessed day!0 -
Just thought of great book that helps me. I read it often.
Heaven is for real: A Little Boy's Astounding Story of his Trip to Heaven and Back. (A true story)
My sister gave it to me as a friend of hers recommended it as it helped her friend during a cancer battle.
It is up lifting & soothing. Yet a fighting spirit. I have recommended it to some of my yoga friends. Amazon has it in paperback & kindle edition. Has anyone else read this? I think it well worth the $$ even though not really expensive.
May we all have a blessed day!0 -
LookingForward - we all have our down days but it's important to come back with up days as well. You'll receive lots of love and support on here - sending you good vibes and well wishes!
So sad about Naan - I really enjoyed her posts. Here's hoping she's watching over her family and all of us0 -
I have never done Yoga, but my Onc asked me to reduce my miles each week. I dropped to 65 miles a week and he still was not completely thrilled with me. We agreed to 60 miles, and then we started talking about Yoga! I asked about the benefits of it, and he said it would be an EXCELLENT activity to try. Also, the lady that I've talked about who is a 10 year survivor of stage 3 TNBC, she does Yoga as part of her regimen and her husband even does it now a couple of times a week.
Yoga classes around here are expensive! I'm going to start with a CD. We have 2 cats though ... and every time I get on the carpet, they come over and start purring and rubbing against me, and pawing at my hair. They think I'm a big cat. LOL I don't know how this will work out trying to do Yoga with 2 cats around, but I'm giving it a try. I think in addition to the physical benefits of it the soothing / calming quality of it will be helpful.
And did I tell you all that at the breast center a few weeks ago they had literature that music is supposed to be very effective at boosting the immune system!
Has anyone tried those Suja drinks? They are 100% organic pressed fruits and vegetables. A bc member on here told me about them recently. Well, the price is not for the faint of heart, but they are on sale right now for $6 at Whole Foods (that is for 12 ounces which is 2 servings), and the Suja rep was handing out buy 5 get 1 free coupon. I got few varieties, and just had this one called Spark. It is actually pretty good, but it has cayenne pepper in it. LOL I feel the heat! There is one called Supreme Green. That is the one that tastes identical to lawn mower clippings, but when you read what's in it, you power through it. It helps if you are watching tv or on the computer and kind of not paying attention to what you are drinking, when you drink that one!
Enjoy your day everyone - hugs.0 -
I've been doing yoga for about 6 years. It is an "acquired" taste for us gals that are used to hitting hard as far as exercise goes. Took me a year or two to really enjoy yoga and appreciate the benefits of it. I go to my local park district once a week for yoga class. I also found a living social deal this summer for 4 classes for $25. A good bargain and nice to see a new place and new faces. You really should shop around, Inspired. Try it! I think you'll like it. Good for mind, body and soul!0
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That is such terrible news about poor Naan. I feel so sad for her wee girls and her family. Many prayers have been sent to Heaven for her and those little girls.
Welcome to all of the newbies (ladies and gents ). This is a supportive and loving thread and these ladies are nothing but pearl's of wisdom.
I am just ticking away never taking any day for granted. I have been through all what you ladies go through the doubt, fear, anxiety, depression and you name it and none of it helped me at all. So now I try to laugh more, don't sweat the small stuff, take each day as it comes because you just never know what is around the corner just like poor Naan. So do your yoga (Navy), exercise and running (Titan) and drink your grass clippings (Inspired) and do whatever makes you happy because you aint never gonna pass this way again. I know it's hard but as Karen OBXK said once 'don't let it take the joy out of your day'.0 -
Oh and by the way Kathy I felt that pinch on my arse!!!0 -
So very surprised and saddened to hear about Naan -- just doesn't seem right or fair. I will miss her posts, and will keep her family in my thoughts.
On a personal (and brighter) note, I am celebrating 4 years out from my surgery today, and hopeful of many more years of NED to come, touch wood. I don't post much anymore, but read this, my favourite thread, all the time. It was a wonderful support for me during treatment, and a lovely way to connect ever since. Thanks ladies...0 -
Luah that certainly is a brighter note, four precious years from surgery. That is just wonderful for you and your family. I hope you will celebrate up large with all of your favourite 'tiples' and may be even some chocolate. We will touch wood for you too every single day.0 -
Well Cocker..My husband would just love it if I would touch "wood" everyday o_o! just kidding...and being naughty.
Luah....woo hoooooooooooo on 4 yrs....this is happy news...thank you for sharing
Maggie0 -
Mages I think my old feller 'wood' enjoy that too lol.
I don't think much of this moving house lark. My God I didn't realize I had so many dinner sets. My daughter would say 'you are so anal' mum cause every piece has to be washed and shining before I can place it back in my cabinets so it almost takes me years to finish it. It's spring (although you wouldn't know that) cause its windy, cold and raining but I've got a roaring log fire going and some great music on so I am happy. I've got three days off making it five with the weekend woo hoo and it's almost lunch time yay. I can't prise the bloody dogs away from the fire but they seem happy with the new house.0 -
you guys crack me up..touching wood indeed...my dh would like that too! lol0 -
lookingforw I am so glad I could help. I am happy you made it to yoga and that you are doing better. I have never read that book but I do think that Love, Medicine and Miracles by Bernie Segal is a great book. I need to read it again myself0 -
Congrats Luah0 -
Luah - Congratulations. Wishing you many, many more such milestones.
I had Celia add Naan to the Angels list.
I did yoga last year through a local breast cancer resource center and really found it helpful. I haven't felt comfortable doing it myself yet (the one time I tried, my knee gave out doing one of the warrior poses...) I haven't been able to go this Fall yet but hope to pick it back up. I'm realizing how bad my breathing habits are, and I'm hoping I can get a grip on that.0 -
My goodness! I was told by my breast surgeon that my cancer is TN and its normL with young woman (i am 34), and my kind will response well to chemo. The more I read about TN the more i feel i have to be worried? Just diagnosed and so out of clue!0 -
Hi Jianchi, PLEASE PLEASE don't be worried. I was told the same as you by my specialist, then started to read more about it and slid into an awful depression. I am 66 so no longer young, and have TN. The information on TN can be quite worrying but there advantages too.I had lumpectomy,chemo,rads. All treatment finished in June I feel great and intend to be around as long as possible. My friend has hormonal BC and is still suffering side effects from the tamoxifen and Heptarin two years later.Try not to dwell on the " negatives " and just start getting well again. Ladies on here are really lovely and supportive.There are lots of ladies out there who are long term survivors but think us TN ladies DO worry more and of course you will find that as people finish treatment and get on with their lives they no longer post as much.((( HUG )))0
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This is so sad... Rest in peace. Our sincerest condolences to Naan's family and friends.
The Mods0 -
Hi Scouser47！
Thank you. I am still learning through testing. Worrying is my nature. I guess it's through my childhood experience. :-(
HUGS back!
J0 -
Hi Lookingforward,
Sorry to hear about your experience. I am a newbie here so not sure I can offer much help on the medical part. I can give out Hugs and encouragement though.
Take care!
J0 -
Jianchi I am sorry you have to go down this journey in life with the rest of us who did not chose this disease. My breast surgeon told me that even though I was TN with a high Ki-67 to try not to worry because they are treating women with Ki-67 of 100. I will not tell you not to worry because that is my nature too but you know what I have come to accept that because that is how we were meant to be (speaking of people who do worry) it is part of our personality and to take that away would be asking us not to be us.....:) Just try like I do to not dwell on it to the point that we can't enjoy the now. I have bad days where I can't seem to get the worrying in control but then I try to read the success stories. I go play my games online and it gets me off myself for a bit and then there are days when I cry off and on all day but then I feel better because crying is a great stress reliever. The biggest thing I struggle with is not feeling useless on my bad days. I see other women going like crazy and I can't get off the couch and I have to remind myself again, I am not them and this is my body and I have to do what my body says not theirs. Incase you do not know this the American Cancer Society is there 24/ 7 to answers questions and just be there. They were great when I first got diagnosed. I had one night where every question that could come to mind came to mind and it was like 1 or 2 am and they stayed on the phone with me for an hour. I felt so much better because they explained what all the terms I was having thrown at me meant. I trusted them more than just learning it from the internet which is not a good place in our case. Although it is getting better with a few good stories thrown out there too. There is a magazine called Cure that gives us a free subscription and you can read online too. 1-800-210-2873 (cure) or http://www.curetoday.com/subscribe
it is a great magazine. There is a good thing like scouser47 said we don't have to deal with the side-effects from the Tamoxifen and etc. My cancer unfortunately came back and I have just finished up my second round of treatments, so it is almost like I am starting all over again in my mind. Therefore, I can not offer a lot of support on the worry part but I can offer support with the whole cancer thing and the feelings that come with it. I hope that some of this helps a little because I feel like I am rambling but I typed it so I am sending it.....:)0 -
Stupidboob. you DIDNT ramble on, I love your posts !! We know it can come back but I have been told that if it does we are now in the system so everything moves faster re treatment. I couldn't get through a day without worrying then thought SOD IT !! My dear old Mum used to say " don't worry until there IS something there to worry about " Try to follow her advice. Hope your scare is rads damage like mine, sure it will be, my new lump appeared two months after rads finished so needless to say went into panic mode. They tested me very quickly and reassured me, so now relaxing a bit.Life is for living and the way the world is NONE of us know what the future holds.My only concern is the exercise part, can't get enthusiasm up to walk for miles especially as British weather dreadful right now. Doing ballroom and latin american dancing just once a week. Hate Yoga, but have Tai Chi DVD#s might try, just wonder how much it affects our future if we just have normal activity ? Also sugar, I am diabetic have been for 25 years so really strict with myself even so many items have hidden sugars !! Rant Over.0
