Calling all TNs
Comments
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mags - what a relief!!! Now simply relax and embrace LIFE!0 -
Good stuff Mags xox0 -
ha ha MAGGIE...F** U CANCER....(sorry to swear..but not really)0 -
Ban, a very warm welcome to the forum. I like how you have such a great head on your shoulder and have an action plan in place. You can do this!!
Since others might come across this post, I just want to clarify what you wrote. The fact is that actually the majority of TNBC women will not have a recurrence. Of those that do recur, data shows that about half happen between 3 mo and 12 months and the other half about 2 - 3 years, and it might have a higher risk of mets over other types of bc, because TNBC can recur either locally, local regional, or a distant part. However after 3 years, survival stats increase significantly. However, remember, that the majority will not occur. And a recurrence doesn't mean it will be systemic, it could be a local recurrence. I know someone who had a local recurrence 6 months after original, and she is now 5 years cancer free. But in the first 5 years there is not a high risk of mets. There is a high chance that you will not have a recurrence. However, if a recurrence does occur, it can be a higher risk of mets over other types of bc, but the key here is that the majority of women will not have a recurrence.
I have a PDF from the TNBC foundation that states the majority of TNBC women will not have a recurrence. If you PM me your e-mail address, I'd be happy to e-mail it to you, and I do this quite often for anyone who wants it.
The thing to remember is that the majority of TNBC will not recur.
Also, this article references something about survival rate at 10 years they think is very high, and if you had a tumor smaller than 1.0 cm. With yours being so close to that size, you might find comfort and strength with these stats and this information:
Another important thing is diet and exercise, so I'm including a link for you as well.
http://nosurrenderbreastcancerhelp.org/page93/page100/page100.html
What a lot of TNBC women do is concentrate as well on reducing sugar and fat grams. Fat grams to about 20-30 day max. So eating healthy, but should still avoid too much fat, even too much of the good fat, such as nuts and avocado, but it's okay to have some of course.
If you e-mail me I'll send you a nutrition information from a BC nutritionist who specializes in TNBC diets. Another forum member went to this specialty bc nutritionist and she shared the information with us.
We are all here for you - holding your hand and please tell us how we can help you!0 -
MAGGIE!!!!!!! I'm thrilled with your news!
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Hello Ladies
I received the results of my biopsy, and it was fat necrosis, what a relief.
Mags, congrats on the good news.
Naan, I am thinking of you, and I hope that you will be home with your family very soon.
Kathy, thank you for speaking for all of us. I feel I have a lot in common with Michelle. My middle name is Michelle and we plan to travel in our RV when my hubby retires, just like Michelle said she and her husband were planning.
Inspired by D, thank you for your note a few weeks ago when I had my mammogram and ultrasound, resulting in the need for a core biopsy.0 -
Happy dance for mags and Ka-cey!!!
Hows things going, Naan?
Guilty pleasures today...made homemade chocolate chip cookies. Ate 4 of them.
Navyson coming home tomorrow. The cookies are for him, but couldn't I help myself!0 -
Ka-cey - so wonderful to hear your news!!!!!!
This is the way to rock the forums ladies - keep posting with all your fabulous news. Our group needed to hear all of this! Wonderful.0 -
I just wanted to say hi to everyone..............:)
I am sorry for all the sad and selfishly that is why I stay away. I can't deal......:(
Hubby and I are sick with something and that has my emotions all over everywhere and just dealing with the "new" after radiation and the pain. I am hurting where the tumor was but hoping it is still from the radiation.
My thoughts and prayers are with EACH person on this group...........I am only sorry that I can not be here like I would like to be to offer support but when you are a mess yourself, you can't be of much help....(well I feel like I can't)
God Bless you all0 -
Kathy- thank you!! Not good news at all. Hope all is well with everyone else. Definitely not good news to receive.0 -
Stupidboob - how thoughtful of you to check in, even when dealing with your own personal items! You have been a great source of support to me and I'm sure the forum. I have found - while it may sound cliche', that at my lowest points in the process, reaching out and helping others did two things - it provided an opportunity for me to help others and it also took the focus off of myself. Of course, I'm not talking about personal health and care, but the mental part of getting through each day. When I was falling apart, what saved me was reaching out and helping others. You have so much compassion and support to share, that I bet it would also help you as well.
I'm also thinking of you and look forward to your posts, whenever you find the time is right.
How are you eating right now? Are you spoiling yourself a little or does treatment change the way things taste?
I also find that sometimes when I get emotional, that a good nap helps. A nap where you turn off the phones and the tvs, and make it impossible for anyone to locate you! Then when you wake up, sip on some hot green tea, curl up in your favorite blanket on the couch and indulge in a good movie that is on, or a favorite show. If something is on your mind, jot it down on a piece of paper and stick it by the computer, and that way you'll get to it at some point in time, but you don't have to keep it in your memory while you are giving yourself some time alone for healing. You can tackle it after you take care of yourself first!
xoxo0 -
Yay Maggie....................I am so HAPPY for you
Debra I know what you are saying is true.........I try but still struggle..........:)0 -
Hi Stupidboob - well I think you are doing a great job managing with all that you've had to go through recently! I hope you feel better soon!0 -
Hello All - I haven't been on here for awhile, as I'm currently on the chemo bored, but I've been following as I can with some of your posts. Writing down any info. I can get!
Maggie & Kaycie - I did see your posts & am over thrilled for you that everything is good!! Awesome!!!
Inspired - Thank you for all the information, I am hanging on to it!!
I shared this with my other bored to encourage everyone today so here it goes: In my devotionals this morning I am reading about the Israelites who are finally going to take over the land that God has promised to them. The words that hit me over the last few chapters are the words God constantly speaks to them - He says "Do not be afraid, Do not be Terrified - for I am with you & I will help you!!" How awesome that today His words are still true to us - I know HE loves EACH one of You very much & He is Always there for us!!! Have a great weekend!!!0 -
Thursday I went to have my annual mammogram on my remaining real breast. After the test, the nurse comes to my little dressing room and says, "the radiologist suggests you get an MRI.", my eyes instantly filled with tears and I began shaking all over. She quickly says. "oh no, the mammo is clear, B9, the radiologist is merely suggesting the MRI based on your history and that fact that you have dense tissue." Well, good Lord! Couldn't she have said that before just blurting out I should have an MRI? I just mumbled, "I'll talk to my doctor about it" and basically slammed the door in her face, got dressed and ran out of there! Stupid nurse!!0 -
Tifj,What a cruel way to tell you something !! I too have dense tissue. Had my first annual check up last Monday and asked the surgeon chances of it coming back in other boob ? The same as other cancers he says. I explain that I have dense tissue and worry that Mammogram won't see it. It detects changes in the breast anyway he says.Had the feeling I was being fobed off.Hope I am wrong, next mammogram is a year off. Still check for lumps and follow up with anything that feels strange.Have a second lump near site of first one, after mammogram and ultra sound they said it was caused by rads. What a relief.Like living on the edge of a cliff.
Naan, hope you home soon, well and happy.
Didn't know Michelle but so sorry to hear about her, thoughts are with her and her family.
Inspired, your info is a lifeline, thanks.
Stupidboob, hope you pick up soon too.
Blessings to you all.0 -
I know the feeling Tif. After my mammo last march, the tech came back to tell me the doctor wanted me to do another mammo right away because of a new spot deep near the muscle. I got so scared! This time she squeezed my boob so much in the machine, to get the most tissue in that she could, I thought my boob was going to explose! OMG did it hurt. After, she made me wait in the little room to get a US and while I was waiting for the doctor, I was crying, thinking of how I was going to tell my little boy that mommy's BC came back and thinking of how I was going to do the chemo with him in school and all... I was freaking out when the doctor came in. She told me not to cry and to not go there. Easy for her to say. I told her that it was impossible for me not to go there after what I've been through. It just does. Finally, it was a new dense spot but nothing was hiding under it. PHEW! What a relief when that was over. I felt like the world was lifted off my shoulders. They should know we get very susceptible about our boobs now...0 -
Babs- sometimes I think all medical personnel, from doctors to techs should have first hand experience with cancer so that they may truly understand our fears and concerns. On the other hand, I would never wish what we have been through on anyone. Kind of a double edged sword! My onc, who recently retired, was diagnosed with colon cancer - he understood and I was grateful for that.0 -
I haven't posted here in a while, but I wanted to pass on the news that Naan passed away last night. I know she checked in here from time to time. Please keep her in your prayers. And keep up the fighting attitude. I was glad to see the recent posts citing the positive statistics. It's easy to expect the worst when you're TN, and we need the reassurance.0 -
I am sorry to hear about Naan passing0 -
every passing I hear scares the hell out of me......................almost makes you feel...............why bother it can not be beat0 -
What?? Naan? I am in shock. I knew she was in the hospital, but didn't expect this. My sincere condolences to her family and friends. Thank you Rachelvk for letting us know. My heart is heavy.0 -
I don't know the details - last I heard the drs thought she might have pneumonia. Not sure if there were complications because of her treatment. I'll pass on anything else I hear.
Stupidboob - I know. That's sort of why I don't visit this site as often as I used to, because I'm afraid I'll come across something that knocks the hope out of me. But I also enjoy hearing from the long-time survivors and their kick-butt attitude. Hang in there.0 -
I don't post often but read this thread every day! Shocked about Naan,my condolences to her family and friends!0 -
Rachel - I know there are several other threads she participated in. Have you posted in them? Do you know of anyone she was close to that would like to start an "angel" thread for her? I did not "know" her very well as I don't post all that often anymore either.0 -
rachelvk glad you understand ..................when I get my nerve to come read, it seems someone else passes and I like you need to just visit once in awhile I guess0 -
OMG, I am so very sorry to hear about naan - I knew she had a lot going on but didn't expect to hear such terrible news. She just posted here on the 9th. I am sending hugs and prayers to her family and friends at this most sorrowful time. RIP, Julie.
Doreen0 -
I am speechless. This news is so sad. I will miss you naan. You were such a fighter. Dammit. I hate cancer.0
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I remember seeing Angel threads when I was on more regularly, but I can't find them - can someone tell me what category they're in?0 -
Commemorating Loved Ones
I believe that celia 088 started an angels thread0
