Calling all TNs
Comments
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Congrats to you and your Old Feller Annie...47 years is amazing!!
Mags0 -
tumornamedclyde,
I understand exactly how you feel... I will see my MO again after my SNB and port put in next week. He already told me it will be Dose Dense AC+T. I went to my hair stylist yesterday to have my hair cut short before chemo. My stylist charged me nothing. He told me I would be fine and he wants to support me in the way he can. I am so touched as I have only been to him once. People like this really warm your heart and make you want to live and be there for others when you are all well.
Good luck to you!
J0 -
Good morning all,
Clyde, its normal to have the emotions you are experiencing. You will find a lot of strength and courage on this site.
Cocker Spaniel, congratulations and Happy Anniversay, hope you are doing something great!
Titan, thank you so much for speaking on support by family and friends. I was very selective in the people I told about me having cancer...just my family and best friend. To my surprise they are not as supportive as I thought they would be. I feel as though I chose the wrong people to share and felt if I told others they would have been more supportive. Been feeling down about it all week.
Well on a lighter note my birthday is Monday...the big 50! Nothing big planned just small dinner with my kids and going to see a broadway show in NY with hubby. I took today and Monday off to do whatever I want.
Hugs and kisses to all.0 -
happy early birthday candi07.
Jianchi, good luck with port placement. I used to help out in the chemo dept at our local hospital, and having that port is a GOD send!
Looking foreword, I will defly tell my MO! There actually are some documented cases of this stuff working. It was concocted by native Americans and a nurse from Canada tried to market it, but was shut down by the powers that be, Google Rene Caisse.
Mags~happy anniversary!0 -
Worrywart my wife has a "friend" who, not long after her Mastectomy, came over to "help out" and wound up sitting drinking coffee while my wife was on her hands and knees, grimacing in pain, while washing the kitchen floor. I was mad at my wife for attempting it in the first place while I was at work (I would have GLADLY done it for her) but I was even more furious to hear that this "ass-hat" sat there and watched her! Some people need to try using their head as more than a hat rack once in a while.0 -
HAH! "ASS-HAT" Never heard that one before....love it and will be using it...often. Pitiful how some peolpe act. So Clueless.Hang in there all you new ladies. Find your voice and let people in your world know what you want and need. And that includes Doctors, nurses, family and friends. Love and hugs to all of you.
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ALHusband, OMG that is awful, its like why was she even there. People are unbelievable. That tops my family coming over sitting and staring at me and talking to me in that you got cancer voice...hate that and quickly put a stop to it. If you are not here to help me then what's the point!0 -
Clyde..haven't heard of the tea..but I have heard of ativan...ask your onc for it...there is nothing wrong with taking this at a time like this...it will calm you and help you sleep...go for it girl
and Happy Anniversary Annie to you and the old feller...!0 -
wow...was it something I said...lol....we all haven't talked for 21 hours....hope every one is out having fun....watching my buckeyes play penn state..just checking in0 -
Candi, Happy Birthday, enjoy the show!! Do you live in NY?? I'm in Orange County!!
AlHusband - I too love asshat, will be using it as well.
Hope everyone has a great weekend.0 -
This was a team my daughter and her friend started "The fighting Angels" We walked on Sunday in Woodbury Commons, NY and raised a lot of money. Last time I looked we were team no 11 out of like 600 teams. It was a great day.0 -
tumornamedclyde, thank you for your kinds words. Are you going to have a SNB?0 -
worrywart9390, nice pic!0 -
To TumorNamedClyde:
The first thing you have to remember is that the majority of TNBC women will not have a recurrence. I have literature, if you would like to PM me your e-mail address, I will forward that on to you - it's a PDF and I can't attach that here. The literature is from the Triple Negative Foundation and in it on page 33 it states that the majority of TNBC women will not have a recurrence.
Side note: I would like to ask all of us to please reread our posts before we hit submit - to help provide more encouragement, hope and inspiration, that we all need.
Clyde - PM me and I'm going to give you some literature that will make you feel very hopeful. Remember everyone, that the majority of women will not have a recurrence, and I urge all of you to focus on this.
I know and understand when we have setbacks as a group it is hard and challenges us - but let's also remember to celebrate the triumphs and the milestones.
I encourage everyone to remember all their blessings, stay positive and motivated, and look to a long-term survivor for additional strength and support. If you can align your thoughts to think of that long-term survivor, it might help you with moving forward a bit or at the very least making the day so that you can enjoy it more with less fear.
Clyde, I was 43 at dx and yes the thought of dying had immediately entered my mind. But only until I met my breast surgeon. Once he walked through the door, and I saw his face, I immediately felt different. It's a tough long process and thoughts do come and go, but the main thing is to remember that the majority of TNBC women will not have a recurrence.0 -
This weekend I am driving myself crazy. I have this lower rib pain starting on Friday night. I am so afraid of mets, and my MRI report says: enlarged low right axillary node is concerning for metastatic disease...0 -
Oh Jianchi, I just read your post. The waiting is so hard to do. Have you started treatment? Where are you with everything? When will you get to speak to someone about your MRI report?
StupidBoob - you're right! I went back through my PMs and nothing there. Well, know that my heart was heavy with your news and that I wished you lots of happy days and many more with Skittles. We were told we had about 2 months with our cat (skin cancer of the nose) and we got 9 months. We also consulted with a cancer medical team for him and they formulated a special compound to give him (liquid) every 72 hours to keep things stabilized as long as possible.
I hope everyone gets to enjoy the day and has a break from their worries today.0 -
Debra, thank you for asking. I have talked to my MO about my MRI report. I am having my SNB next week. I am hoping for the best. I am really having a down week. Lot of negative thoughts and fear that need to get them out of me. My rib pain is making me even more worried. I think I should stop researching and get out of the house.0 -
jianchi,
During my waiting periods the only thing that helped were distractions--a movie, shopping, mall walking, playing games on the computer...whatever can get you distracted until you get more definitive info. Research before that info will probably only lead to darker places you don't need to be. Easier said than done, I know.
Your feelings in this case seem perfectly normal, though very hard to deal with. I think all of us would have our own versions of the same reactions in your shoes.
I don't know you but would like to know how things go for you when you know. In the meantime,
Hugs,
Peggy0 -
Inspired - what exactly are you getting at? That we shouldn't post anything that sounds negative? That we should only post when we have something to say that will provide encouragement, hope or inspiration to others? While it is nice to do that, there are hundreds of other reasons to post. So saying, this does not give us carte blanche to say unkind things, or be mean. One of the great things about these discussion boards is that we can say almost anything we want. It is generally a safe place to do that.0 -
I agree with Gilly- I have come in here to rant, share my tears and fears. We can't sugar coat how we are feeling. Having been a part of this board for a little over 2 years (since diagnosis), I have come to know what caring and sharing is about. This place has been my go to when I am terrified, and in a dark place. I know for myself, I am here for each and every gal that has and is a part of this board. I don't mean to come of aggressive, but, cancer does not have a filter, and neither do I.0 -
WOW Annie, 47 years!!! That's as long as I have been on this earth!! God Bless you both!0 -
Agree with you Lory....say what you will on this thread please...that is why we are here.0 -
Hi Everyone,
I actually signed on to delete my post - as I reread the original post that I was referring to.
The original post I that I wrote about was of a post that I read on this forum about telling a newly diagnosed person that we aren't going to die immediately and possibly not for a long time. My post was in making sure our words, when we type them, don't accidentally convey a different message. In the post I'm referring to, it made it sound like death was imminent (although not immediate) and that there is a possibility that we wouldn't die for a long time (versus unlikely we wouldn't die for a long time). It was more about in syntax of the writing.
So I edited my post to just ask us all to be careful when we post, because what I think is that the message the person who posted was trying to convey was not the message that came across to me. But then I realized maybe I'm the only one who read it differently or that way, so that's when I signed on to delete my post.
Sorry everyone for the upset! My apologies!!
Just so you know, I love you all and wish everyone only the best and by all means, I support you saying whatever you want 100%!0 -
I agree with Gilly and Lory. We can encourage and sympathize and write about similar things that have happened to us and how we deal/dealt with them and offer advice, subject to our doctors ok, and we are all here for the people that are feeling down but we can't sugar coat anything. We have the right to say what we are feeling at the time without censor and of course without malice. I have also ranted and cried in the past as have many but these ladies have listened regardless of how they are feeling at the time and made me feel better. We also used to laugh ourselves silly and I am a great believer of that because it has helped me so many times.
Lory you lucky sod lol I now feel positively ancient!!.
Titan hope you didn't work too hard today lol It's back to work for me tomorrow until Thursday and then I am flying to the South Island for this years cake conference with Mandy. Those ladies are so wonderfully clever and its a delight to see what cakes are on show each year.
Have a great day ladies.0 -
Cocker are you referring to cake cake, like yummy cakes? On the news the other night, they are now recommending when people have birthday cakes to not put candles on it and blow them out - due to all the germs and bacteria they say is in the one blow! I never thought about it, but wow ... how did anyone ever make it to 100 before knowing how dangerous blowing candles out on a cake could be?! lol0 -
Jianchi, what day is your SNB next week? Could your rib pain be from something, such as over vacuuming, laying in bed the wrong way or lifting something without using the leg muscles properly? I'll be thinking of you on your SNB day -- let me know what day it is! PS - I agree with what you said on the research. Take a break for a while and sit outside and enjoy some fresh air. Until you have all the information in from the SNB you might be reading things that won't or don't apply to you ... so until you find out more about your exact case, maybe just keep the research to a minimum. Also some sites out there on the internet may have some older material, so consider the sites also when you read information. Please post your update when you find out more!0 -
Inspired we make and decorate wedding cakes, birthday cakes etc but I have never heard of anyway keeling over with blowing out candles. You could probably catch more germs going around the supermarket lol. All of the ladies at the cake conference make such beautifully decorated cakes, they are just superb so my daughter Mandy and I are going to see some really special ones because they get better every year. All the cake decorating shops in NZ and some from Aussie bring their almost entire shops which are all set up in a great hall and everybody's schedules that we are given have different times allocated to go to the shop and buy. I just can't wait to see what all the new products are like. Also we get to watch demonstrators from all over the country and Aussie and its wonderful to see their work. Usually there are about 500-600 of us there so its quite a show. It's a four day program and its very special if you are into making wedding cakes etc.0 -
Three year mammo today, Grateful to be having it, but boy the mind just doesn't shut off at times of testing. Just wondering if anyone had any additional scans at this time? Hope you are all having a great day!0 -
MsJag - Best wishes today! My Onc although I'm not at the 3 year mark yet today, has briefed me on what the protocol would be for the first 5 years, and he said no scans unless something were to show a suspicion, such as pain or elevated blood work. My protocol now is quarterly labs, ultrasound yearly and MRI yearly, with those being alternated at 6-month intervals.
Cocker - I watched the Cupcake Wars working out this weekend! Those bakers are so creative! There used to be a version where the teams created a cake for a potential client, but I haven't seen that one come on again.0 -
Jianchi I just want to say that my wife initially had pain in the rib area. It turned out to be from the biopsy (of her lump)! It was nothing. I hope the same or similar for you and will be praying.0
