Calling all TNs
Comments
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Cocker I totally get what you are saying and that is your right as with anyone else but some of the post do scare people and we are to just look over that fact because as many have said on this board you say what you want.....ok but then when we say something about a post that frightens us all of a sudden we are judged and not really allowed to have our feelings.............that is ok.........it is what it is and I feel this is just a subject that has run its course because as stated many times everyone is entitled to their opinion on things and I guess it is a subject that has to be agreed to be disagreed on..........like jenjen said we all have one thing in common....and that is the bottom like to it all. Things are also taken differently according to the mood of the person reading it and responding to it on the day it is taking place..................it is all good.
jenjen congrats on your year
NavyMom I am thankful to still be here and also that my little dog fighting Lymphoma is still here too.0 -
I'm grateful my hubby will never buy radishes again hahhaha
Oh and I'm grateful that today my little boy has a playmate round and they are having a great time and not asking me for anything.0 -
Today and every day I'm grateful for my husband and my children and their families.
Today I'm grateful for modern medicine for treating cancer.
Tomorrow and every day after, I'll be happy when the cure for cancer is found.
Life is good even with a flat chest. Lots of joy to all of you. Jan
Thank you Navy Mom0 -
I am grateful for each and every day that I can get myself out of bed - to enjoy a healthy breakfast and then take my dog for a nice long walk rain or shine.0 -
I am so thankful that I had my children young and now have two beautiful grandchildren that I can enjoy and spoil and still be young enough to have them come and have sleep overs with us every second weekend - I want them to love and remember me like my children remember my mom and mother in law.0 -
I am grateful for this site, I love reading the posts and even though I don't comment often it helps me to know others understand what I may be going thru.
Happy Halloween everyone, don't eat too much candy
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Hi to everyone, I don't tend to write much but I'm always reading and listening. So I would say one of the things I can be thankful for is for each and every one of you. I thank you each for every inspiring thought or deep hearted feeling you have shared even if it was something from sad and difficult to funny and touching. All of you have pulled me through when I've felt down and have given me info when I least expected or have managed to put a smile on my face. Knowing that you're here and I have a place I can come to makes all the difference. I'm also thankful breathing and being alive and smiling and for having all the masses they took out come out non cancerous. Was just told I have to have hysterectomy. I'm Ok even though I'm 38. Keep smiling ladies and gent. Have a wonderful trick or treat day..
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I has my port put in and SNB on 30th. I had 3 lymph nodes removed. Wait for the final repirt next week.
I used EMLA cream as suggest by the lady on the board. The experience of injection was not bad at all, better than getting an I'VE on the hand actually.
Thank you everybody who encouraged me, and I am really grateful!
J0 -
Jianchi- EMLA is awesome! Glad things are getting started for you (the sooner you start, the sooner you finish!!). Sorry you have to wait so long for the final path report, but whatever it may say- we are here to help you through it! Hope you and your son have a Happy Halloween!
I am grateful for "meeting" so many wonderful women here.
Navymom- thanks for getting us back on track!0 -
I am thankful for faith, family and friends - including all my "Breastbook friends"! (I still chuckle at that!) I'll also be thankful to hopefully finish my treatments by Christmas - I'm waiting for my rad onc consult apptmt - hoping to start rads early to mid November! Happy halloween fellow TN survivors!0 -
TifJ,
I will never forget the help you gave me. The conversation with you was so useful both emotionally and physically for me. Women like you who had been though all the things we are, living a great life now and still come to the forum are the ones I admire the most. You give us HOPE!
Hugs!
J0 -
Aww...thanks J! Your post brought a tear to my eye. Helping the new ladies is emotionally rewarding for those of us finished with treatment simply because we understand the tremendous fear you all have and want you to have the same great support that we found from the wonderful women who preceded us in this nightmare.
Hugs to you!0 -
Definitely TifJ. There are a lot of nice people offer to help, however, I feel how can they really understand my emotions, fears, ups and downs? Only women who have been through the same thing can truly understand. Thank you for staying on the forum and I am so grateful that I found you, and a couple other ladies who had been there and won the battle.
I wish you all the best life ahead of you, and hoping I can be as strong and lucky so I can join you later!
J0 -
Today, I am thankful for the crisp snap of fall air, the stunning colour of our country's beloved maple trees... and the noise and excitement of neighbourhood kids on Hallowe'en.0 -
I am thankful for all the gifts God has given me and thankful that today my vacation starts and I will be out of the office until after Veterans day. Woot Woot!
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Prosthesis Size 9 Brand new.................size did not work for me. If interested we can talk details0 -
Ladies I am eternally grateful for the gut splitting laughter my wife and I shared this morning. I don't even know (can't remember) what we were laughing about. I remember it wasn't that long ago (diagnosis and early treatment) that we just weren't laughing. I am grateful that we live in a country where we have such awesome medical technology and expertise...and it's pretty much right outside our door. We don't live in a third world country where to even see a doctor is a rare event. I am grateful that I can communicate with, and learn, from all of you, in order to be informed to best help my wife. Thank you to Almighty God, and to all of you, for all of our blessings. Let's not take even the smallest gifts for granted.l0 -
Alhusband, I totally agree with your words! I am grateful for all the wonderful medical care I am receiving. All the loving family, friends, and people around me. I am grateful that my husband and son loves me as much as he could no matter what. I am grateful that I am still alive, today!0 -
today as always..........thankful to be here.
I LOVE FALL and today has been my favorite type of day. Overcast and leaves falling. BEAUTIFUL0 -
I'm a great aunt again...! this time a little boy who is adorable....grateful for ALL of you ladies....and guy...lol....
am taking a day of vacation on Friday...back at you Annie...ha ha...
going to the onc on Tuesday...not grateful for that..ugh..but that is part of it all..and like you said al...we should be grateful for the health care we have...so I will be..I guess....doesn't mean I have to like it...I have "white coat" disease....0 -
Jianchi, I am doing neoadjuvant chemo, they haven't mentioned SNB as of right now. I am not sure I want to know if there are any nodes involved right now. I had my power port placed 10-30, and I start DD AC in AM (11-1-2013). I am scared crapless, hoping that the chemo does its job and gets rid of Clyde. When do you start chemo?0 -
Just an quick pick me up....I have spoken with two former co-workers that have/had TNBC. I had known they had BC, but had never known it was TNBC. One was Dx in 1993, she's doing great. The other was dx three years ago and she is fine. Just thought I'd share.
Also, had my port yesterday, ouch! First dose AC in AM at 1045....
Bottoms up!0 -
Hope all goes well tomorrow Clyde!!0 -
Today I'm greatful for Skype so I can see my little grandkids as they head out to trick or treat. Would much rather be there in person, but....... j0 -
I am grateful hat I was well enough to fly (although the flight down to the South Island was hair raising as Wellington is the capital of NZ and its nearly always windy) with my youngest daughter Mandy for the cake conference and that I haven't got to go back to work until next Tuesday. (back at you again Titan lol). We are getting some sun, then showers of rain and some wind but in my eyes it's a beautiful day.
Titan I have white coat hypertension whenever its time to get my BP done again. Happens every time. Congratulations Aunty Titan. Babies are simply gorgeous until they grow up!!
Clyde thinking of you are hoping all goes well. I just know the chemo will do it job.0 -
Hi all! I have been very busy lately and haven't been on the boards for a few weeks. was shocked to hear about naan and Michelle. I also see some newbies, welcome. Cleaning out my MIL's house to sell was exhausting, taking all of my time. It's funny how things work out, as if God does have a plan. I decided to stop working and apply for disability retirement before my MIL's house sold (she passed in march). Since my husband took off so much in the past year, he was unable to take anymore days, which left me being the one to clear out the house once we got the agreement of sale. If I was still working, it would not have been done. and since it could take 3-12 mo's to get approved for disability, the timing of receiving the estate money was fortunate for us.
I am applying for retirement because of my recurrence. Good news is that the suspicious enlarged node in my neck came back noncancerous from the biopsy. Bad news, the 2-3 tumors I have in my breast skin seem to be a little bit bigger despite of being on Xeloda. So... Having surgery on Dec 2. Modified radical mx AGAIN. Both breast. Both were already done with skin sparing mx, This time very wide excision of skin , muscle, and nodes if involved. Planning for a free flap recon. Any insights to this??? Recon is not a priority, but since i will need a skin graft anyway,all Dr.'s involved said for just a few more minutes of surgery, I should get it done.
This is my only shot for a possible "cure", so wish me luck. If it fails and the beast returns, I will most likely have to manage this for the rest of my life with Chemo. Depending on path report at surgery, I most likely will be put on CMF after surgery. I had AC/T and tolerated it very well. Anyone else have CMF?
For those who are new, I understand your fears. I have battled my demons, but it does get better. A good friend of mine was recently killed in a car accident. It made me realize that none of us knows how much time we have left. embrace each day as a gift, think of the song by Tim McGraw..Live like you were dying. When that time comes (hopefully many years from now) I hope to be able to say I lived my life well despite of the fear and didn't waste my remaining days worrying and not enjoying life.
I am grateful for every day I have with my family, That I am able to tell them I love them, and that they are being taught the lesson that even with adversity, life is wonderful.
God bless you all.
Lori0 -
Hi everyone,
NavyMom how wise you are. Every now & then we can run amuck.
I am very grateful for my family, especially my grandson. He is just past 4 years old. I want to be here long enough for him to remember his Mimi (my gramma nickname he gave me). I truly appreciate my yoga seniors group. They encourage me to keep going. I appreciate each day I wake to greet the day.
Praying we all have a blessed day!0 -
Clyde, I had my power port placed on the same day you did! Ouch, the port site pain is OK, but the vein on my neck is bothering me more. I will have it checked today. I also had SNB on the same day so chemo will not start right away. I was told about two weeks away from my surgery. I am meeting my MO next Monday so will know more detailed chemo starting date then. I am doing DD AC+T as well, every 2 weeks for times.
Good to hear that your former co-workers who had TN and are both doing fine. That is encouraging.
Good luck on your first chemo! Hugs.0 -
Jianchi and Clyde. Speaking for my wife, you'll be glad you endured whatever discomfort having the port put in caused you. The amount of discomfort it saves you at each treatment will be well worth it. My wife has been through chemo twice, 16 years apart, and had a port both times. BTW...she swore by the lidocaine ointment they gave her. She globbed it on the port site a couple of hours before treatment, covered it with plastic wrap, and off to treatment. By the time they "stuck" her...no feeling at the port site! So don't forget to ask for lidocaine ointment!0 -
Hi Alhusband, thank you. Is the ointment EMLA? I have one that my doctor got me for the nodes biopsy. Will take your good advice. Thank you. How is your wife doing now? 16 years apart... It is never easy. Wish her all the best!0
