Calling all TNs

18198208228248251190

Comments

  • simplelife4real
    simplelife4real Member Posts: 341
    edited May 2014

    Hooray NavyMom!!!   Happy Happy Day!!!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited May 2014

    NavyMom wonderful wonderful news.  Congratulations.   You enjoy that wine (have another glass) and your favourite meal.  This just makes my day to hear this.  Your son is a very brave man but he also has a very brave mum.  So very glad you enjoyed your visit with him.  

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited May 2014

    So true

    "Learn from the past, set vivid, detailed goals for the future, and live in the only moment of time over which you have any control: NOW." - Denis Waitley

  • Radical2Squared
    Radical2Squared Member Posts: 350
    edited May 2014

    Too funny..."while dh cooks dinner and has no idea what today is..." lmao

  • slv58
    slv58 Member Posts: 486
    edited May 2014

    NavyMom, congratulations, what a wonderful day!! I'm so happy for you and thankful that you shared this, gives us all something positive to grasp. 

    Grateful for your son and everyone else who serves, you must be so proud!

  • lilyrose53
    lilyrose53 Member Posts: 120
    edited May 2014

    Congratulations Navy Mom!  I love hearing great news like yours!  Gives me hope.  I am a Navy Mom too, my son is currently three months into a nine month deployment.  I am grateful to your son for serving.

    Wishing you many more years With NED!

    Hugs,  lilyrose

  • bak94
    bak94 Member Posts: 652
    edited May 2014


    Thank you all for all of your kind words! So sorry for all those who have gone through the same thing with their sweet dogs. We had adopted Jewels and Romi together, the pond said they had been found together, so we just had to take both! Romi is the dog in my avatar. I knew large breeds don't live much longer than 15 years, but it is still hard to lose one. Our dear Romi seems a bit confused, always looking towards the back, like he is waiting for her to come around the corner. He is still enjoying his walks and plays with the younger two dogs. Our 3 ducks have become very ornery. They like to preen Romi and give him a lot of attention. They used to sleep with Jewels (Jules). Yesterday the ducks saw a dog running down the street with his owners and they went running to the dog! Of course the dog was very curious and started to run towards our ducks. Our ducks came back running down the driveway and actually took flight! About a foot off the ground! Many say this type of ducks do not fly, due to their small wings, but these ones certainly do!

    On the medical situation, my nurse practioner called me after I had canceled my appointment and said she had no idea that they had done that, but I was just too upset to go back. I still have another appointment I need to cancel. I feel it is time for a change anyways. This does not affect my oncologist or surgeon, they are with a different group. My primary doctor quit and I had only seen my new primary once and really didn't like her. The back doc helped some off and on, but I still have severe pain sometimes. so I need to see a different doc for another opinion anyways. I hope to find  docs where I don't have to travel as far and where I don't have to pay for parking.

    I appreciate all the advice:) I am going to write a letter to the clinic and tell them how I feel. I just needed to calm down a bit before I did it. Oh, they actually sent the letter to my house AND sent a certified letter I had to sign for. I feel like they really wanted to get rid of me! I will never go back there. My husband will not go there either, he had the same primary doc. I admire those of you that continued to see your doctors after the book keepers did that to you. I just take things so personally and really need to learn to not take things as an attack on me. It's business, not personal!

    Navymom-Congrats on the 5 years!!!

    SummeRose-Welcome! This is a great place for info and support. Stop by often!

  • jenjenl
    jenjenl Member Posts: 409
    edited May 2014

    loving the update NavyMom...congrats!!! xo

  • Leealice
    Leealice Member Posts: 7
    edited May 2014

    Thanks for the update Navymom and congrats. I also had 6 rounds of TAC so I'm happy to see someone 5 years out doing well

  • TifJ
    TifJ Member Posts: 804
    edited May 2014


    Congrats NavyMom!! What a wonderful milestone!! I wish you many, many more years of health and happiness!

  • MomMom
    MomMom Member Posts: 334
    edited May 2014

    Congrats NavyMom!!!!

  • lookingforward66
    lookingforward66 Member Posts: 148
    edited May 2014

    Congrats NavyMom!!  So nice to have good news. We all strive for the 5 year mark & of course feel relief as odds of recurrence are real slim. So happy for you. 

    Proud of your son & all of our sons & daughters that serve.  Thank him for us!!

    Great day for good news!

  • LanaM
    LanaM Member Posts: 41
    edited May 2014

    congrats navy mom! 

  • navymom
    navymom Member Posts: 842
    edited May 2014

    Thanks for all the kind posts.  Today I rec'd a beautiful flower arrangement from my gal pals who saw me through a ton of shit in my life.  What a sweet surprise.  We are going out Friday night to celebrate.  I am so grateful for all the people who have walked with me during the this journey called cancer.  And that includes everyone on this thread.....As horrible as BC is, having met so many wonderful people here on the boards has been a blessing.  Thanks to all of you.

  • FierceBluebird
    FierceBluebird Member Posts: 463
    edited May 2014

    And one more congratulations NavyMom!  Celebrate!

  • allydp
    allydp Member Posts: 361
    edited May 2014

    Simplelife and others who have finished rads, congrats!! What an awesome milestone...and just in time for summer!!!

    NavyMom, another congrats from me as well!!

    Bak, I am so, so sorry for the loss of your sweet dog. Sending you lots of love. 

  • Luah
    Luah Member Posts: 626
    edited May 2014

    Navymom:  Big cheers for your 5-year milestone! Have enjoyed your posts over the years.

  • lrm216
    lrm216 Member Posts: 534
    edited May 2014

    Navy Mom: 

    Make sure you have one for us Friday night!  We'll be there with you in spirit!

  • simplelife4real
    simplelife4real Member Posts: 341
    edited May 2014

    Thanks for the article Sadie!

  • lookingforward66
    lookingforward66 Member Posts: 148
    edited May 2014

    Thanks Sadie,

    Let's all hope this is a breakthrough. Wouldn't it be a big step forward. 

    Marsha

  • navymom
    navymom Member Posts: 842
    edited May 2014

    Thanks for the article, stupidboob.  I never stop praying for a break through.  And I am so grateful for those who participate in research studies.

  • Nettie1964
    Nettie1964 Member Posts: 627
    edited May 2014

    It seems that I never fully understand these articles. Can someone translate?

  • Islandmama2
    Islandmama2 Member Posts: 103
    edited May 2014

    I'm 35. I had a 4.7cm tumour. I had lumpectomy with SNB. 1 node had few cancer cells on immunostain but was otherwise negative. 

    I am awaiting my MO and RO consult. 

    I know I will get chemo and rads just not sure when.

  • simplelife4real
    simplelife4real Member Posts: 341
    edited May 2014

    Welcome Islandmama.   I'm sorry you have TNBC but I'm glad you found us so quickly.  We are here to support you through treatment and beyond.  I finished treatment just 2 days after you were diagnosed.  Wishing you the best with chemo and rads.  Be sure to join the chemo thread for the month you start chemo.  I found the Sept. 2013 chemo thread (the month I started chemo) to be a huge help during chemo.

  • Islandmama2
    Islandmama2 Member Posts: 103
    edited May 2014

    simplelife

    Thank you! I look forward to being able to support other ladies one day. For now, I need the help!

    When my friends ask about TNBC I explain that it is all bad but this one is slightly worse but has some advantages over the hormone receptive types LOL

    I am thinking I will receive ACT chemo but not 100%? I just want to know if I am likely to lose my hair! I think I will and it's ok, but just want to know how short to cut my hair tomorrow! Going to buy some cool scarves!

    Trying to stay positive and carry on

  • simplelife4real
    simplelife4real Member Posts: 341
    edited May 2014

    Islandmamma, most people lose their hair about two or three weeks after starting either AC or ACT.  It's the AC part that really causes the hair loss.   I did 12 weekly taxol first and then 4 dose dense AC every other week.  I was able to keep most of my hair during the taxol and didn't shave it until after my second AC infusion.  I had a short pixie-type haircut before the taxol started and the "shedding" wasn't too bad during the taxol.   Since you are waiting for your consult with your MO, it may be a few weeks before your hair actually starts falling out.  Most people do the AC part first and become bald rather quickly (I'm an oddball since I did taxol first). Depending on when you start chemo and when you start the AC part,  you might be able to get by with one more regular haircut before you get it cut short.  It depends on what you want to do too.  If you have long hair, it will be a lot easier to get a short haircut first before it starts to fall out.  Hope that makes some sense.

  • Islandmama2
    Islandmama2 Member Posts: 103
    edited May 2014

    thanks simplelife! Very helpful!

    My hair isn't quite to my shoulders so I'm going to go short!

  • MomMom
    MomMom Member Posts: 334
    edited May 2014

    Islandmama,  What a wonderful positive attitude! It will serve you well. I've had AC and the 5th of my 12 weekly Taxol, to be followed by rads. So far it has been very tolerable. Yes you will lose your hair from the AC, but it grows back. I got a buzz cut 2 weeks from the first AC, but hair loss a week later.  You will find great support and encouragement here.  Experiences vary with treatment, but it's all good because we are all doing whatever we gotta do to be cancer free!  Hang in there.  You will feel more in control when your treatment plan is in place.

  • MomMom
    MomMom Member Posts: 334
    edited May 2014

    Islandmama,  What a wonderful positive attitude! It will serve you well. I've had AC and the 5th of my 12 weekly Taxol, to be followed by rads. So far it has been very tolerable. Yes you will lose your hair from the AC, but it grows back. I got a buzz cut 2 weeks from the first AC, but hair loss a week later.  You will find great support and encouragement here.  Experiences vary with treatment, but it's all good because we are all doing whatever we gotta do to be cancer free!  Hang in there.  You will feel more in control when your treatment plan is in place.