Calling all TNs
Comments
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Hello my friends - I'm back from a wonderful vacation with my hubby to st. martin. it was glorius! tomorrow i go see my MO about the neck gland and pain on the right side so hopefully nothing but whatever it is it is.
Welcome new girls.
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Lookingfw I too have days, more now than the other sort, where I forget about the big C. I think we have to think that way or we will never look forward.
Nettie no offence at all from me but it is so right. Worrying doesn't help at all and just makes us miserable and more afraid.
Jenjen glad you had a great time and could forget for a while. In your pocket for tomorrow and keeping fingers crossed all is well.
Cat and Fighter hope things are going ok for you both as well. Keep us posted. Cat did you get into the trial.
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TifJ and Nettie - I too have pains in odd places and don't know what they are. I do know the two week rule and try to live by that. I just had a physical with my regular nurse practitioner (she had no idea what I went through last year) so immediately ordered an xray for my right rib section. When she was poking around it was very tender in a certain spot and she got worried. I think she is overly sensitive with me because it is my second time around with BC. I haven't gone to get the xray yet but will. She says the chemo does a job on your bones and it just may be my bones are weak there or they could have used some type of tool during the surgery because I had tram flap reconstruction thus making that area sensitive. Who knows the body takes a beating!!!
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Under this link............I hope it works because I read from Facebook................A lot of long term survivors writing in the comments
on this ladies page. Gives us all hope0 -
Thanks Stupidboob,
On the FB link, one of the last comments is a gal celebrating one year today! Very active status update! Lol
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errrr...my follow from US was today. The radiologist is recommending a biopsy even though the report says little suspicion for malignancy. Onc says let's be safe rather than sorry. I hate this! Last biopsy was so painful. This spot is in between the two NEW GIRLS near the sternum. Hope they do not mess anything up!! Will post when I know when it's gonna happen and what is up. Only 2 weeks ago I thought I was in the clear.
Maggie
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well the oncologist is ordering a cat scan to check the liver
I had my surgery January 2014 with wonderful results. I had stage 2 in May and stage 3 scheduled for July. My doctor put some disolvable mesh in my tummy vs wearing a binder. about 6 weeks ago I started having pain on the right side above my insion closer to the ribs. I just watched it, it would come and go and now im more aware of it. i thought that maybe it was the disolvable mesh disolving but would have thought it would be the same on both sides. my MO ordered a scan but doesn't want to schedule it until i see my surgon to see if it's normal or not. I have a bad feeling the same feeling i had after my biopsy. when i had my scan prior to the DIEP (the abdominal scan) there wasn't anything but we all know how that goes.
scared and hopeful.
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Mags, I am praying for you that the biopsy is a simple, pain free procedures and that results are clear!
Jenjen, you are also in my prayers. I hope the pain is just from the mesh and the CT is clear!
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Sorry it won't let me resize and have several pics that I think you ladies will get a laugh from!
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Nettie, thanks for the great pics! I just love cats and smile every time I see them.
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maggie and jenjen, hope all is worry for nothing.
Is anyone taking raloxifene? (Evista)
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I just saw the article about Evista, obviously it is not something that is widely known yet or I just live in an area that is behind, because no one here has mentioned it! But it is something I will ask about when I see my MO in August! (That is...if I remember)0 -
I've been a lurker for awhile but wanted to post! I am 34 years old, and completed neoadjuvant chemo for TN cancer in April. Also found out I am BCRA1. My cancer was extremely fast growing with a ki-67 of 90%. Mammogram and US measured tumor at 2cm and biopsy confirmed a positive lymph node. However, the MRI showed whole other story. It showed tumor to be 7cm! Basically my whole upper outer quadrant. I had surgery last week and got path report today. It stated that I had a 95% reduction, going from 7cm to 5mm. They took out 5 sentinel lymph nodes. One of them was a micro-met because it had greater then 200 cells. The others had isolated tumor cells but the surgeon said that's still considered negative. She went ahead and did a partial axillary dissection and took out 6 more, and a few of them also had the isolated cells. She said that basically, all those nodes were probably cancerous before chemo and got melted away. I am going to have radiation, but I feel like instead of being happy, I am focusing on these cells that survived and wondering where else in my body they are hiding. Anyone with similar pathology?
~Andrea
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Andrea, I think many of us can relate. But a wise person once told me, no matter how much you worry or fret, it won't change the outcome or your specific areas of concern. It just causes extra stress. I know easy to say "don't worry be happy" than to live it. I am a supreme worrier! It sounds like your team is taking good care of you and your being monitored well. Good luck with radiation. Many people find it the easiest part of treatment. Try to think of any worrisome cells getting zapped by radiation.
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Just saw this article posted on the TNBC foundation website regarding promising new Mayo Clinic research using immunotherapy for triple negative.
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Just had to stop by to share a very sweet moment between my dogs! I gave my Chihuahua, Harley, and my border collie, Petey, a small piece of bread with peanut butter on it. Well, Harley's piece bounced and wound up in between Petey's legs. Petey gently pushed it out so Harley could have his piece! I have never seen a dog do this! Usually they would just snap it up for himself!I will stop back later to catch up on posts!
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Well I got some good news today! My bone scan and CT of chest, abdomen and pelvis was clear!!
Still waiting on the oncologist appointment for next steps.
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Island mama - Congrats!!!! What a huge relief. Good for you!
Bak94 - So sweet. Makes me want to run right out and get another dog. Lost our sweetie cocker/Golden mix several years ago. Been thinking about what a huge comfort a sweet dog would be to me now.
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yeah Islandmama!!! hugs all around!
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congrats island mama! That's great news.
Back, that's unreal, love that story-dogs are such incredible spirits!
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Mags,
Might just be a simple needle biopsy if it's right on the sternum! You might get to avoid the core biopsy!
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Welcome Andrea!
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Congrats IslandMamma!
Bak,that is a cute story. Dogs rarely share.
Mommom, hope immunotherapy happens soon!
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Hi All,
Bak that is a really cute story about the dogs. I'm glad you shared it.
Islandmamma....so glad your tests came back clear. I know what a relief that is in the beginning to get some good news and to get a better idea of where you stand in terms of staging. That's wonderful. I agree with what other people say to about feeling better once you start treatment and actually doing things to get rid of the cancer cells. It's actually an empowering feeling....scary the first time for chemo, but it will all work out and you will be glad to have each step behind you when you complete them.
I'm looking for some feedback on what it's like after treatment ends in terms of how long it takes to get your strenght back and feel somewhat normal. I'm slowly getting back strength and stamina after finishing treatment about 3 weeks ago. At first, I would alternate between having one good day and then a day I was so tired I spent the day in bed. This week, for the first time, I had 3 good days in a row before I collapsed and needed to spend a day resting. Is that how it was for others? My "good" days really aren't that strenous either. On the good days, I go to a pretty easy aerobics class and do some light gardening or light housekeeping for an hour or so. I'm 61 years old and I was in really good shape when I got diagnosed. I'm really trying to develop a consistent exercise routine because I know how important it is in terms of overall health and the evidence indicates that the chances of recurrence are lower in women who do 30-60 minutes of aerobics 5-7 days a week. It's a great motivator for me, but this darn fatigue still has it's grips on me. I'm just curious......what was it like for others after treatment ended in terms of how long the fatigue hung around and getting into an exercise routine?
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Simplelife-The first time I had cancer it took me about a year to recover. Part of that for me was thyroid was off after treatment and it took awhile for them to discover it. It was like you described, my good days before a bad day started to increase, and then pretty soon the bad days were just once in awhile. I strongly believe when you have a bad day it is best to rest, rather than push through it. Your exercising is great! That will definitely help you recover!Wooo hoooo island mama! Great news!
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Simplelife: Your energy will gradually return. I think it took almost 6 months just for my joints to stop hurting and I could even get out of a chair without looking and feeling like I was 100 years old. I know you will not want to hear this, but, I don't think I even came close to feeling like my self for about a year or even 18 months after my last treatment. I sometimes have days of still feeling low energy and just plain blah....BUT you will feel better as time goes by. And for me, exercising and staying active in general is good for mind, body and soul. And you are correct in the current information regarding the 30 to 60 minutes 5 to 7 days a week. My Onc tells me the same thing everytime I see her. So rest when you need to and get moving when you can. Listen to your body. You'll get there I promise!
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Yes Simple, I agree with Navy mom and Bak94, I finished rads just a few weeks before you did, April 7th, and I feel good, more like my old self but I have days, and I mean a few in a row together, where my energy level is low. Navy mom, I have 'the old grandma getting out of a chair thing' going on now. My feet still are giving me fits from taxol. It is good to know I am in good company.
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meadow, I think you're the only one that I've heard that says that your feet hurt. Mine do too. Not my legs. Just mostly my feet, ankles, toes etc especially when I get up after sitting for a while or in the morning, ooph. I finished taxol on 4/21 and just started rad 6/4.
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Ok, I'm going to ask a question that is probably going to make everyone think I'm weird! And just so you won't have to read the bottom, I finished chemo August 2013, rads Oct 4 2013!
Just wondering if anyone else has had a weird sense of smell? It's like sometimes, out of nowhere, I smell these awful smells, but when I "try" to find where it's coming from, I can't! It's like it's coming from inside. It will be there for just a second and then it's gone!
I'm posting this on multiple sites in hopes to have someone reply!
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what I meant is that my feet hurt only. No where else and it's not neuropathy. Neuropathy is usually tingling and numbness and it's not that, just aching, like arthritis. Standing still or sitting is the worse or in the morning, feet and toes only.Walking does make them feel better. It's weird
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