Calling all TNs
Comments
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Nettie, even though I only had two treatments my "smeller" is a mess. Yes, I get that every now & then. It is almost like I smell my own sinuses or something strange but BAD. I figure I am just screwed up now so I figure ok. Something else different.
Lisaj, I was told by my MO that chemo accelerates some conditions in some people. Arthritis is one of those. My MO told me after bone scan that my aches were arthritis & degenerating bone disease. What you described is what I have every day now. Yes exercise helps, but too long on the feet after a bit your walking like over 100!
So ladies your not alone. Our bodies will never be the "same". We now get to find our new normal.
Fun times!!
Marsha
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yes Lisa, after sitting or in the morning I walk like I am 100 years old. I agree, chemo has helped save my life no doubt. but left its mark for sure. But I will take whatever LIFE gives me lol!
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At last.....an article about TNBC that doesn't sound like it's the "bad" kind of breast cancer. This was posted in the American Cancer Society website. TNBC worse or just different? I actually felt more hopeful after reading this.
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Thanks Simple for the great article
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Yes indeed, Simple. Nice article. Always make me feel good when I read about all the research that is going on for all cancer. and esecially Breast cancer. And a big Thank You to all of those who participate in study trials.
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Fantastic, current, article, Simple!!! I think we will be seeing more and more positive insight in the coming years thanks to so many great tails going on. It's very encouraging!
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Hi Ladies. Just wanted to report that my wonderful bride Kathy had her regularly scheduled MO appt. today. Doc says bloodwork, "Couldn't be much better!". He says all of her counts, etc. are "dead center in the normal range". Newly diagnosed and those going through treatment now, please persevere and know that there is life on the other side of the tunnel and it will soon enough appear in your rear view mirror instead of your windshield! I remember sitting holding my wife's hand on the day the doc gave us the news that she had BC, then drilled down further to TNBC. We were both scared stiff. 14 months later she's doing great! This is a great place to come for advice, encouragement, information and understanding along the road! You may ask why I am on here instead of my wife. She's simply NOT a computer person. We made a deal at diagnosis that I would do all of the "looking things up" and I would take care of the administrative end of this battle while she focused solely on healing! I must say we make a great team! There's hope ladies! There's definitely hope! God bless and take care!
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scan is scheduled for Wednesday at noon. we are headed to DC thursday so that will be a wonderful distraction. now i ponder to hear the results before we go or wait until we get back on monday.
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LADIES I AM IN REMISSION!!! I can't thank GOD enough!!!!!! Sorry I haven't updated lately, I have been to busy trying to enjoy life through treatment, managing a family; all while working. I asked the Dr., should I start counting all over since this reoccurance?? What stage does this local reoccurence make me?? His words, "count your self lucky and keep on keeping on!" So I have officially stop counting; YEAH RIGHT! I am just going to focus on living, but I still can't shake the feeling of what's next. But I am glad to be out of chemo just in time for the summer...
Sending wishes to us all!
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Congratulations Fighter!
JenJen...wishing you the best on your scan results.
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fighter - that is awesome news!! Just live life to its very fullest - and enjoy and embrace every minute. So glad you made it through chemo - look after yourself well!!
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That is great news, Fighter! So very happy for you! Have a great summer!
To everyone going through treatment or waiting on results of tests, good luck and hang in there, there is light at the end of the tunnel.
Doreen
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Fighter nothing makes my day go better than reading or hearing the words "Remission". Wonderful news. You just keep on going girl and forget about the counting. You've made it and you will keep on making it. Yes God was watching over you.
Jenjen hope all turns out ok for you too. Keep fighting.
Cat how are you doing. Ok I hope.
Bak what lovely dogs you have. Your story was so gorgeous. It's not very often another dog will do that.
Big HI to Linda, Titan, Mags, Jan, Navy and all the other "old timers".
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Congrats Fighter- love to hear the word remission!! I hope you have a wonderful, healthy summer!!ALHusband- great news about Kathy!! So happy she is doing well!
Had another appt. with my breast surgeon today for what I call the "feel me up" exam. Everything was fine until I asked her to look at a crusty spot on my back. She said to have it removed and biopsied right away! I started to freak out a bit, then she said it's not a metastasis, but probably a squamous cell skin cancer which is taken care of simply by removing it. I feel better, but really hate the thought of having to see yet another doctor to have this taken care of. Damn cancer.
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Fighter that's fantastic news. So happy for you. Remission is a great word! The good Lord was watching over you.
Al Husband so glad for you & Kathy.
Keep on ladies.
Three cheers for our good news!!
Marsha
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Congrats fighter! Good luck on not counting, but do enjoy life anyway! Very happy for you!
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So happy for you Al and Fighter!
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Annie - A big HI back to you. How are you doing? Do you have any lymphedema symptoms? I've been sent to the sidelines with some nasty lymphedema caused by cutting, sewing, etc my 50 donation quilts. So now I sit in my recliner and pout. A bit of good news for me is the DEXA I had last week shows some improvement from the one two years ago.
And hugs and HI 5s to you all. Seems like things are looking up for many of you. Yippee!
Jan
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Hi Jan good to hear from you. Yep like you I have lymphoedema in my left arm. Doesn't stop me typing but does get a bit achy sometimes. I'm doing ok but still scared of recurrence as everybody is so just try to make the most of each day. Great news on the DEXA. Nothing brightens our day more than good news. Keep up the good work girl, you are doing great. Get a good book to read in that recliner.
Hi to everybody and hope your days are going good.
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biopsy is thursday....holding my breath! Report from US says lesion is 9.2 x 6.5 mm lobular and thinly marginated with complex central heterogenous appearance with no color flow....whatever all that means! Fingers crossed that it will just be more necrosis in the new girls. What is really worrisome to me is that sometimes when I breathe in it radiates pain from that spot through both sides of my chest....UGH!
Maggie
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hope it all is benign
What are they doing a biopsy on?
So much surgery , hopefully necrosis and scar tissue
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there is a spot that has come up in between my "new girls"
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Great news Fighter
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Mags thinking of you tomorrow, keep us posted
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Mags - thinking of you..keep us posted!
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Mags...my best wished to you in what you are going through. It's always such a worry! Nat
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good luck Mags!
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ALHusband - wonderful news!!
Jenjen - thinking of you and sending prayers for a clear scan. Stay strong and keep fighting!
Fighter - that is awesome!! Have a wonderful summer!
TifJ - I'm so sorry you have to deal with the suspicious spot on your back. I'm very faired skinned and burned myself silly numerous times in my teens and early 20's. I'm 33 now and have already had a few spots removed. It's not a fun thing to keep up with. I hope you can get in fairly quickly and get it over with!
Mags - wishing you all the very best and sending prayers for a benign report. Thinking of you.
Just a little update on me - I pretty much breezed through AC, but I'm having a tough go with Carbo/Taxol. My blood counts are being very stubborn. My onc started Neupogen 3 x week and I recently had a blood transfusion. Despite all that, I've still had to postpone treatment one week and now yesterday I found out she's reducing my dose dense Carbo from 850 mg to 590 mg (every 3 weeks). She said she'd rather decrease the Carbo than risk missing another week of Taxol. I agree, but I'm a little bummed. I was determined to muscle through anything, but I suppose I can't muscle through low counts. My platelets haven't been over 80 in weeks, hemoglobin dips under 8 once in a while and my neutrophils hover around 1.4 consistently. I guess this was finally the tipping point for her. Hopefully the reduction helps! On a better note, I only have 6 weeks of chemo left, with only one of those being a Carbo week, so yay for that! And I should be getting a surgery date any day now, too. Eek!
Hope everyone is enjoying this blooming summer!
Alicia
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I see a lot of the chemo regimens lately including carboplatin, makes me wonder if I should have had that? Just one more thing to worry about! Especially when I see dx that don't appear is grim as mine and yet they are getting more chemo than I got! Scary to think about!0 -
Nettie - when I first asked my onc about adding Carbo, she said no. She felt it added too much toxicity and not enough benefit. However, when I was dx BRCA2, she changed her tune. She said with the Carbo being a platin based drug, it would possibly target DNA repair. So in my case it was only because of being BRCA2+ that she added it in. I'm so sorry if my post triggered worry for you. This happens to me all the time on the boards and I hate to think I was a contributor for someone else.
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