Calling all TNs
Comments
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Oh, no Allydp, you didn't trigger anything! I've been noticing that for a while and I've read some studies on it! I just have to learn to trust that I was given the best treatment for me at the time!But thanks for the reply!
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Oh good, I'm glad to hear that.
I have doubts about my treatment, as well. I often wonder if I'm overdoing it. With all the blood count issues I'm having, it actually makes me second guess the Carbo. My onc nurses have made mention more than once that they're surprised I'm on it. I think they think it's overkill. Same thing with radiation. My nodes were negative, but my LVI was indeterminate. Some of my docs say no way to radiation, others say it's better to be safe than sorry. Rad onc said to do it, so I've decided to go for it, but again, I worry fear is causing me to go overboard. At the end of the day, all we can do is throw our hands up in the air and say, "I did everything the docs told me! The rest is up to you, God!"0 -
Allydp I don't think you're overdoing it at all. I think TNBC calls for firing all the cannons and ammunition available.
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Allydp, I totally agree! TN calls for the big guns. Felgreat about your treatment plan .
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Thank you ALHusband and MomMom. I really appreciate that.
I have a question for those of you who did neoadjuvant chemo. I just got my surgery date and it's 6 weeks from my last chemo. My BS has told me all along that it would be 4 weeks out. She and my PS are on vacation and their schedules are conflicting, so they've pushed me out the extra 2 weeks. This makes me nervous. Can my tumor start to grow back in that time? Should I make a stink and tell them I don't want to wait the extra 2 weeks? Sorry if this is a reactive question, it just took me off guard when they gave me the date just now. Thanks in advance.
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Allydp I'm sure you will be ok. There is a window of 6 to 8 weeks between treatment. In my case I had to wait for three months. I'm sure things will be ok for you.
Mags how did things go for you, ok I hope.
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Cocker - thank you so much. I didn't realize there was that big of a window. I was thinking it was 4 weeks or less and was wondering why they'd push me out to 6. Glad to know that's the norm anyway.
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Allydp - I actually had my last chemo on Dec 30 and had my surgery on Jan 8, so is there a possibility they could do it before their vacations? I do recall you mentioning your counts were off though and maybe that's why they want to wait. Just a thought if it's bothering you to wait 6 weeks.
Hugs,
Kathy
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the radiologist at the center did an ultrasound and says she believes it is just scar tissue or necrosis from the recon. She did not biopsy but suggested that we do an MRI and get a better look at it before we do anything invasive. SO HAPPY
Maggie
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Mags so happy for you too. Great news is always welcome. It they were unsure they would have done that biopsy. Keep well and happy.
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So happy for you Mags! Sleep well tonight.
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Yay Mags! Yay Fighter!
saw the onc and bs today....everything ok...going to ONCE A YEAR NOW....or actually the bs in 6 months..the onc in ONE YEAR....then alternating back and forth so someone sees me every 6 months...I'm to call with any concerns during this time..wow..didn't think I would see this day...they asked me if it was ok..and I said yes.....I know that I will never be let go completely...which I don't want to be anyway...but yes...you CAN survive tnbc,...at least for now........and hopefully for a long long time
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Great news Mags!!
Ally-I had my last chemo on Feb 21 and had my surgery March 14, so I think everyone is different, maybe see if they will do it earlier. They really want your blood counts to recover from the chemo before surgery. So if you are having issues with your blood counts they may want you to wait.
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Titan - Excellent - good for you!!! Thanks for posting.
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A huge woo hoo to you Titan. Great news. Your on your way to six years now. Keep it up Girl. xx
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Hi All,
Just a quick post. I'm actually on my first vacation since being diagnosed and finishing treatment last month. We went to Wisconsin to a wedding (hubby was best man) and now we are in Ohio for a couple days right next to a super flat paved bicycle trail. My goal is to get back on my bicycle and build up a tad of strength. Hopefully, the weather will hold out for us. There are supposed to be thunderstorms off and on the next couple days....so I'm thinking we will need to bike between the rain drops!
Wishing everyone a good weekend.
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Sounds like fun simple! Enjoy the ride...even if it's a wet one!
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My abdominal scan came back clear (yay!) but it did catch a little uptake in the lumbar area. I'm hoping it's just a false positive, apparently it happens since CT scans are so sensative. I don't have any pain there so I'm hoping thats a good thing. They are going to compare the scans (had them at different hospitals) from last year to see. It's so small its unmeasurable. But I won't lie I'm worried bc I know it wasn't there last year. Still hopeful!
Has anyone else had false postiives from a scan?
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JenJen, I so hope it turns out to be a false positive for you. Keeping my fingers and toes crossed for you.
Well, I did my first long bicycle ride today since being diagnosed last July. We went 38 miles on FLAT paved trails and I felt like I was in heaven. It poured down rain for about 6 miles of the ride, but it didn't dampen my joy of being outside and back on my bike. It was a wonderful day and the best day I've had since this journey began. I am tearing up as I write this because it just feels so good to feel good again. I don't know what the future holds, but I am so grateful to have gotten to enjoy even a single day of feeling somewhat "normal" again.
Wishing everyone a good evening.
Hugs,
Kay
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Thanks everyone for the feedback on my surgery date. My BS said they schedule 4-6 weeks out. I'm at 5 weeks (I was mistaken with the 6), so I'm right in the middle. Phew.
Titan - congratulations!
Mags - wonderful news! So thrilled for you!
Simple - I'm smiling ear to ear for you! I've been really struggling lately with feeling crappy from chemo and reading your post reminds me that this is all temporary.
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Mags, Simplelife, JenJen - I love hearing of all the goods news! Keep strong and enjoy it whenever you can!!!
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Hi everyone I am not usually one to post on here but have been around for 2 years following posts .
I was wondering if anyone has had problems after chemo with their eyebrows and/or thining of the top of your hair it. Has been a year since my last chemo and kinda worried .
Has anyone had a similar experience and if so what are some things to help ?
Thanks
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Ally, I'm glad my post about biking was encouraging for you. Chemo wiped me out completely and after it ended, I was discouraged about how long it was taking me to build up any strength or stamina, but it does come back with gradual increases in exercise. I still have a long way to go, but I can see huge improvement from where I was. You will too.....it just takes time. I'm one month out from the end of rads and had my first three month checkup with my MO last week. I told her that fatigue was still my number one issue. She said that is normal. She said I will really start to feel less fatigued about two months post rads. In the meantime, I just lie down when I need to rest. You will feel better!
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Hey Ladies, I wanted to share this news with you. Yesterday I went for a checkup with my Sloan Kettering Oncologist and she gave me a big hug and said " Congratulations, I never want to see you again".
I'll still go for mammograms and breast ultrasounds (because I have dense breasts), but no more check ups with the Doc.
I still get teary eyed when I remember the start of this journey and how frightened I was four years ago. I'm wishing all of you this kind of celebration down the road.
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Hello mitymuffin
I just wanted to say congratulations on your four year survival and also on the fact that you do not have to go for any more check ups. I do remember you from sometime ago when Titan first started her thread. I used to post back then and in fact I still view the TNS regularly and am amazed at the camaraderie among the women on this thread. I do not recognise a lot of the names now, but I do remember you clearly.
Wishing you every happiness from the UK.
Sylvia xxxx
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Congratulations Mitymuffin! These are words we all want to hear down the road. Thank you for posting!
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Mitymuffin: Congratulations, so happy for you. We share similar stats and I remember your posts well. Glad to hear all is well.
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Luah and Sylvia, I remember you too and hope you are healthy and happy.
Mommom, Good wishes to you!
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Yay, mitymuffin!! I go in to see my onc next month, but will be a couple months short of 4 years since diagnosis. I'm wondering if he'll say the same thing to me? So happy for you and for everyone else's good news. For those in active treatment, just keep putting one foot in front of the other. You will get through it and one day be able to not have breast cancer occupy every waking moment of your life. While not a day goes by that it doesn't cross my mind somehow, I'm not as quick to go to that dark place with every ache and pain.
My husband and I leave next Monday on a 2-week vacation (for only the 2nd time in our lives) to celebrate 28 years of marriage. We are both so thankful for each other. That is definitely one of the silver linings that we received from this "journey". We don't take for granted the fact that we have a strong, loving marriage anymore. Any chance to celebrate each other, we do it! Feeling blessed . . .
Hugs to all,
Kathy
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