Calling all TNs
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Jen, would love to know also. Glad you found us!
I have three more rads to go: finish next Wednesday.
Simple, prayers and loving thoughts: keep us posted
Kath
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Shorfi, I'm sorry you're in so much pain! Tomorrow can't come soon enough for you I'm sure
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Thank you for the welcome, ladies!
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Hello all, I was diagnosed with IDC one week ago and today I found out it is TNBC. I'm terrified. I don't yet have anything scheduled, as I meet with the MO next week, then on to plans for mastectomy. I really felt deflated when I learned the pathology today, so I'm very grateful to find such positivity here.
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Welcome Pavlovsbell, we are so glad you are here with us! But we hate the reason....so sorry about your recent diagnosis. After you get a treatment plan in place you will feel much better. Please know we are here with you. We get how scary it is, but do not get caught up in all the neg stuff you read.Tripleneg cancers are very responsive to chemo, and thats great. You can do this
You are so welcome LittleBlueFlowers! You got this!
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Pavlovsbell: I know how you feel but please try to take one step a time. I always tell myself: the stress only distracts me when I need ALL the strength and focus I have.
TN is not as notorious as the old statistics showed.
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Thanks for all the well wishes, everyone!!
Luvmydobies; Glad you got that "thing" removed and spoke honestly to your PCP. Hoping that you find the right care toot sweet!
Awwwe...my Sweet friend Cocker: Thank so much for always thinking of my son. He is currently on deployment (located closer to your country than my own). But I have his wife and my 2, yes, TWO grandsons here at home. We have been having a fantastic time playing and visiting. Navyson is about to re-enlist for another 4 years. When he gets back to the USA he and his family will be relocated to the west coast. So instead of a 2 hr flight, it will be a 4 hr flight to reach him. UGH!!
Good Night Ladies.
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Shorfi so sorry to hear you have spinal stenosis but hopefully the epidural will sort that out for you. You may have to have another down the track though and in NZ we are only able to have three altogether so keeping my fingers crossed this works for you.
pavlosbell a warm welcome to you. We all understand on here how terrified you feel but once you have that plan made and everything sorted you will feel a little better. Treelilac is right tripple neg is not so notorious as it used to be. Chemo and radiation works well for us and coupled with surgery means we have a good fighting chance. Look at NavyMom 6 years out. Titan and Linda and Gillyone are all the same, I'm 3½ years out and Mags, Teka and Jan69 are all up there as well as other ladies. Plus we don't have all the side effects that Arimidex or Tamoxifen will give you for five years or more like the ladies who are not TN. You can do this so try to relax as much as possible and come on and we will answer any problems that you may have.
Navy you have been keeping that one quiet. Two, you lucky lady. So glad you are having a fantastic time with them. Yes it's about time navy son sailed into NZ waters so I can check he's ok for you but sad that you will have an extra two hours to fly to him though that won't phase you, I know you will still go to see him. So glad you are keeping well and (Living). Don't stay away too long next time.
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Hi all,
Welcome to this thread Littleblueflowers and pavlovsbell...great ladies here, and so much comfort and info. Luv, I am glad you saw your doc, and will seek a different more comfortable treatment, Hell no to the pessary!
Good luck to you shorfi...I hope that epidural does the trick.
Thinking and praying for you Anothernycgirl!
Teka...Good results headed your way...I am sending goodvibes
Tobycc...you're almost done...yay!
I hope I didn't forget anyone...HUGS to All!
I am Decadroned out tonight...they accidentally doubled my IV dose today at my FINAL CHEMO INFUSION! OOORAH...I have finished TC! Am I a Survivor? Recon surgery in July. I will be a Warrior for the next 5 years...praying to join navymom and Teka.
Today was a breeze and exciting and emotional...now some SEs, and in 3 weeks I will try for some normal? Thank you all for the encouragement and wisdom!
Love, arlene
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Great pic greenae. Yep I reckon you are a survivor and a brave one at that. Hair looks gorgeous. So glad this part of treatment over.
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YEA Arlene! Congrats on finishing, hope your going to do something fun to celebrate.
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Arlene= You look amazing!!!!
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Ladies, (& gentlemen),
I want to share what I just read. Sounds interesting. I am a converted natural lady now. Very few chemicals are used in home or on body. Daughter makes my face & body wash, tooth cleaner, deodorant, shampoo, etc. cleaning products have changed too.
So I found this scientific research article interesting.
http://www.collective-evolution.com/2014/03/26/thi...
Especially since it is being investigated for future clinical trials
I read frequently & pray for us all. May we continue for NEDs.
Cocker, your level headedness is appreciated. Any of you scientific types, let me know what you think of this.
Love to all,
Namaste,
Marsha
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Thank you, Cocker, Shari, Eileen and Teka! I couldn't have made it this far with most of my sanity intact, without all of you! 😃💗😘
Love, arlene
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Congrats Arlene!!! WooHoo!!! You look amazing! Yes you are a survivor! XOXOXO!!!
Simple, NYCgirl, thinking of you gals! If I missed anyone, I apologize. Praying for everyone though!
Welcome pavlov! We understand the fear you have! You will be okay! Hang with us and we will help guide you. HUGS!!! Everyone here is wonderful and we will be holding your hand and that's a promise!
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Arlene, so happy for you and yes you are a Warrior!
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All my lovely friends, I am going to take a little break from BCO, didnt want you to worry. Going on vacation soon, to Gulf Shores Alabama. Everyone stay happy and strong while I am gone! Love you all
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Arlene, THRILLED FOR YOU!!! You GO girlfriend! Baby/ pamper yourself nowHugs
Kath
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Congratulations, Arlene! 🎉🎉🎉. I am so happy for you. Now, for all the junk to wear off :-).
I am a week ahead of you. Had my 1 week post LAST chemo yesterday and got a good report. :-). I don't have to go back for a month...they wanted 3 weeks but the appointment date didn't work out so I get a month off.... :-)
I celebrated by buying the long wanted bag of Cheetos and had a couple drinks last night...Cheetos ended up being better than the drinks...
Here's to you having your celebration! 🎉🎊🎊🎉
Welcome to all that are new. Sorry you are here but glad there is a forum for us. It has certainly helped me through and I am sure it will you also.
I still don't post much as my dang gone brain just won't keep facts about everyone's post long enough to remember anything but the last ones I have read...I hope that goes away soon!
Meadow, have a wonderful, restful trip.
I do wish this forum was more like a yahoo group that we could have a database of the members , where we all lived etc. it would be nice...
Wishing everyone a nice day free of SE.
Kathi
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Thank you so much, Luv, Meadow, Sizzle and Toby! Meadow, Have a Wonderful vacay!
My heartburn and lousy mouth and fatigue have landed...but I know this is the last time...so I Will Deal..and be happy...next stop...July 7 surgery. Be nice to have 2 boobs the same size, again...and 3 D's smaller...Woohooo!
Love and Hugs!
arlene
Anothernycgirl...thinking of you!
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Meadow, have a safe, fun and relaxing vacation!!
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Update from MO is that my first treatment was way better then most people do. No nausea, only hot sweats from the steroid, and they will be doing a half dose on the 2nd. No major (hair) fallout at this point. My mother said she didn't notice hair loss until her second treatment. I'm hoping it comes soon as this hot weather (in Seattle area) has me sweating all the time. I'm thinking a short buzz may be happening soon if there isn't hairless with this next infusion.
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Lookingforw I will come on later and read your link but I must catch up with Meadow before she goes.
Meadow not sure I like you not being on here for a while but you have a good long rest, lots of fun and relaxation and plenty of wine. As Bert would say "don't stay away too long (Mary)" Meadow.
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Meadow, we will miss you but hope you have a great vacation!
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Lookingforw I found your article very interesting. The Chinese herb Artemisinin (or Wormwood) can be found here in NZ in the Chinese herbal shops. As far as I know, because I haven't tried it, it tastes like bitter tea. It would be wonderful if a different compound to chemo could be found as an alternative to cancer killing properties as I am beginning to wonder if this is an outdated method of treatment now especially for TN's. It was also interesting to note that iron played a big part in the article. Have you ever noticed in the holistic medicine shops that women's vitamins contain iron but the men's don't. Obviously women need iron for menstruation and other health reasons but men don't seem to need that iron content. I know that the Chinese don't eat dairy products at all and over 70% of the world's population are intolerant to milk and dairy containing products. In 1989 yogurt was implicated in ovarian cancer and apparently the link between dairy products and cancer is similar to smoking and lung cancer. With the Chinese's very low incident of breast cancer maybe we should be adopting more of their diet methods by using Chinese herbs and less iron and dairy. If Artemisinin reacts with iron to form free radicals that kills cancer cells I hope that they investigate this further as a potential cure for us. Thank you for posting the interesting article Lookingforw. What were your thoughts on the article.
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Welcome Jen and pavlovsbell. I'm sorry to hear about your recent diagnosis, but you have come to a good place for support during treatment and beyond. Pavlovsbell, where are you going for treatment? I go to Vanderbilt and there are a lot of people from KY there. I'm glad you have an appointment set up with the MO already. Many times, chemo is given before surgery, particularly with triple negative. Don't be surprised if they want to do that.
Arlene, congratulations on being done with chemo!! That is a huge milestone. You look great in your pictures.
I had my checkup with my breast surgeon on Friday. There is a lump on my non-cancer side that they want to biopsy. I'm concerned, but not freaking out. I figure, worst case scenario, it's a brand new cancer and not a recurrence since it's on my non-cancer side. I don't have the date yet for the biopsy because the scheduler had left for the day before they decided I needed a biopsy. I'm guessing it will be sometime next week (it better be!) and it will be three days after that before I have the results. I'll post here as soon as I know anything.
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Sending Prayers and good thoughts for you, Simple. So sorry this is happening.
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Oh Simple! I'm sorry to hear this. We are here for you and let's all hope and pray it's nothing! I'll be praying for you for benign results! Hang in there. (((((HUGS)))))!!!!!!!
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Simple, sending calming positive thoughts. Your in my thoughts and prayers
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Simple so sorry you have this added worry after all that you have been through but hopefully its a benign adenoma. Sucks that you have to wait for results but hoping and praying that it turns out to be nothing but benign. Sending heaps of hugs to help you hang in there.
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