Calling all TNs
Comments
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Shari
Thank you! I agree, I was so prepared for the hair loss, it has been the least of my issues. My wigs look better than my real hair did, and I am looking forward to not having to dye it brown every 4 weeks ever again. But my real hair was thinning, so I guess I am afraid the Taxotere may have made that issue worse? I have read some rotten things about re-growth troubles after Taxotere, and am hoping my hair could maybe come back thicker? I will wait and see. Just happy to be here, and can't wait for recon to be over, and life starting again! Thanks so much for your words and support!
Love, arlene
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Arlene I came back from docetaxol with the hair I always wanted! I loved the color when it came in- a silver grey, I decided to wait and see how it looked before dying it and am happy I did! As time went on it lost the silver :-( but took on an ash blonde (?) as in pic. I don't dye it and it is much healthier and shiny. It has come in a bit thicker and definitely straighter! I don't know if it helped but I used nioxin shampoo and conditioner as well as taking biotin and B6.
I must admit the first year of hair growth seemed very slow but has since picked up and now have my pre chemo length- actually longer! Hugs hon! 😃
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Arlene= Here I am with my BF on my post cancer trip. Six months since chemo. I had brown hair to my bottom of my jaw line. This is my new color and the new me.
Everyone says I look great and yes "YOUNGER"
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Thanks, Eileen and Shari!
You both look Great! I will be patient and hope for hair as nice as yours!
I will ask my MO about the vitamins/supplements when I see her . My PS won't let me take anything until after my recon sx.
Hugs!
Arlene
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YAYYYY LISA!! So happy to read your update!!
Everyone looks wonderful in their photos!!
My hair was soooooo slow to look like real hair, but it is, indeed, happening! My dermo and onc drs said to try biotin, which I was taking until last week's lat flap procedure. Maybe it helped, not sure, but will go back on it in a few days. I am very salt and pepper colored, more so than pre-chemo.
Arlene, my eyelashes and brows fell out a few weeks pfc. They were quick to return though!
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Lisa - So, so happy to hear your great news!!! You were in my thoughts & prayers.Simple, praying for an equally good outcome for you next week.
Eileen, you & your beau look marvelous!!! You are in Paris - right? Good for you!!
Everyone looks great.
Paula
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hi anothernycgirl!
Hoping ur recovery has been smooth !
Oh boy... Ya think this last round will knock out my lashes and brows? I am 10 days PFC. Omg! That's the first time i used PFC! Actually, PFI... Final infusion, but who's counting? Lol
Beautiful day in the 5 boros...Enjoy!
Love, arlene
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You guys are SO inspiring! I'm known for my long auburn hair, so I'm extremely anxious about the impending hair loss. It's stinking hot and humid here in KY and I really dread the idea of covering up. Unless I have a really malformed head shape, I think I may go for it!
Pavlovsbell
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I got my biopsy results last night....FAT NECROSIS!!! Best news ever and I'm glad I didn't have to wait out the entire weekend for it. Thank you for everyone's kind words and support. I really appreciate it.
Now I feel like I can get back to my "regularly scheduled programming!!"
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Simple= For the first time in my life I love the word"FAT" Congratulations.
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Simple who would have thought we would be ecstatic to have fat necrosis but we sure are. Wonderful news. Now you can stop worrying. Some retail therapy in order perhaps??
Eileen you look absolutely wonderful and the young man with you is a "bit of all-right" too. You don't look younger, you look young.
On the subject of hair. I never could wear my wig it was so uncomfortable and I thought it looked false so I wore hats (as it was winter) and then tied on pretty scarves as the weather got warmer. I was very naturally auburn pre chemo with wavy hair but mine came back in thinner, grey with silver tips and straight as it could get. I don't miss the red but I do miss the wave. A lot of people on chemo come back in with really curly hair but alas mine didn't.
You ladies on here are all looking so fantastic. Would re-born be the word.
Pavlosbell one of the ladies here in Taupo didn't want anything on her head winter or summer and just went natural. Her head got a nice tan and she looked wonderful. I always wished I had her courage. If your weather is so hot just go au naturale.
My beloved friend Linda. I could hardly believe it has been six years. Must be the same for Titan and Gillyone now. So wonderful to hear from you. Yep my sense of humour has not abated although not so much on here as we used to have. Remember when we used to laugh the whole day through, so much better for us than any chemicals. The vinegar only comes out at the same time that the word recurrence comes out and I think always will. Just hate that word and nobody needs to hear it unless necessary. Hope your gorgeous girls are well and happy. Keep in touch my friend with all that you are doing. We need 'old timers' like you. xxooxx
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Simple, - WONDERFUL NEWS!!
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yayYAYYAYAY!!!!! Simple---so glad to hear!
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Kay, Yahoooooooo! And Yepeeeeeee! Fat necrosis is wonderful! Let's celebrate ladies
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Kay, Wonderful news!!! I'm at the beach and didn't think it could be any better but you've made my day with your fantastic news!!
Paula
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Simple...fat necrosis is absolutely wonderful news. Went through that myself four times and it's music to your ears when you here it. So happy for you
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simple, that's great! So glad and relieved for you! We've had some good news here. Let's keep it goin
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Lisa and Simple, so happy to hear your good news!!!!! WooooooHoooooo!!!!!
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Cisplatin is the chemo that I'm doing and it's working, 3 out of 4 infusions and my tumor has shrunk so much they couldn't measure it last time. It's bitter sweet, hate the side effects and permenant damage, but if it's kicking cancers butt, I'll take it!
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Oddswinner what side effects are you getting but so glad its working for you
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Oddswinner that is GREAT to hear that Cisplatin is working. Especially great for me because that's what my wife had. However, we never really knew if it did anything at all because it was post lumpectomy (adjuvant). My wife couldn't have Adriamycin because she had had stage 4 Lymphoma 17 years prior to her BC, which they treated with Adriamycin, and Adriamycin has a "lifetime limit". That said, they gave my wife Cisplatin and Taxol. You'll see that it says "carboplatin" under "Chemotherapy" in her profile...but that's actually not true. It's just that Cisplatin is not an option when you're checking the boxes to create a profile, so we picked the closest thing to it. Well she had her two year "cancerversary" this past April and all is well so I guess Cisplatin was a good choice!
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Oh. And THREE CHEERS FOR FAT NECROSIS !!!!!!!
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Chemotherapy in multiple doses.
At times it caused tingling in some of your toes's.
When it was over, some of you got roses
Biut there's no sweeter gift than fat necrosis.
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Chemotherapy in multiple doses
At times it caused tingling in some of your toes's
When it was over, many got roses
But there's no sweeter gift than fat necrosis.
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Love it! Thanks for the smile Al!
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Love you AL and congratulations on your wife's 2 years out. Keep the years rolling!
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Howdy ladies! This is day 6 after AC2 and I'm starting to feel more energy and brain power today. Hair loss is well under way. Took a shower and pulled a handful of hair out of the drain. Going to shave it off Friday. Does the tender scalp lessen once you cut the hair super short?
Starting to get the appetite back, but still taking nausea meds.
So glad to have gotten the portable air conditioner for my bed room. The temps have been in the 80's and that is more than this chemo body can take.
The best news of all is that my son who is in the Navy in Virginia will be taking leave to see me. He arrives on the 13th. The American Red Cross was wonderful to help communicate with his ships command to get the leave arranged. If any of you have children in the military, contact the ARC to facilitate leave so they can be with you.
Here's to all of us keeping our (clean) chins up and fight this fight each day!
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t100angel thanks for the info about the ARC. My son just graduated from high school last week and leaves for basic training the end of this month. Although I only have 6 mor treatments to go this information gave me some peace. My goal is to be back to my new normal by September to go to his Graduation from basic.
Glad to hear your appetite is coming back.
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Angel - my tender scalp was gone when I had my head shaved. I didn't bother with the pixie cut as I had very curly hair.
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ALHusband, awesome! Seems to be shrinking my tumor, I guess surgery will tell all. Good luck to you both. Glad you're on board with your wife healing. A lot of husbands aren't can't handle it. Mine finally came on board this last time when he saw how sick I was from the chemo, only took 3 months LOL. Nevertheless, he's got me now. All is good, as long as we fight the good fight and keep on being good warriors!
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