Calling all TNs
Comments
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I've had a rough night! I've had a bad headache off and on since yesterday and my mind is going to brain mets. I woke up at 4:00 yesterday morning and took two extra strength Tylenol and took two more yesterday afternoon and it felt better last night. Well I got up just now (5:00) and it's hurting again. I got really hot, like too hot a couple of times at Myrtle beach last week on vacation. It is awfully hot and humid and I've been getting night sweats. My stomach has been rumbly/gassy too so I'm hoping it's all from heat and stress but I'm scared! Do you guys know if it always means something bad waking up at night with a headache?? I've done it before and didn't give it a second thought but it's worrying me now. I've had allergies and have sinus pressure. At least I hope the pressure is from allergies. Sorry for whining so much but my husband is gone and I'm alone. XOXO
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Al, So very happy for your great news!!!
Paula
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Luvmydobies I don't know your personal situation or if this even applies...but I can tell you my wife went through this as well...headaches...night sweats. In fact, she continues with night sweats now and again. Sometimes they are so bad she actually has to get up and change her clothes. Headaches have subsided and pretty much gone away. Her mind went to the same place yours did...mets. When we asked MO about this he attributed it to menopause and hormone changes associated with her prophylactic ovary removal. Bottom line is it passed as time passed. Certainly important to let your MO know...but this is one example where similar symptoms were NOT mets.
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Al, so happy to hear your good news!
Luv, please stay positive but let your MO know just as you would any new unexplained issue. I know I get headaches a lot but attribute it to steroids. Night sweats are a normal nightly thing for me after going through chemo pause 2.5 years ago. Let us know how your doing
Xx
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Thanks AL and Shari! I forgot to mention I am in chemopause also! Sorry! I'm 39 by the way. I know it's warmer in the house at night and early morning because that's when the humidity spikes in NC where we are. I've mentioned the headaches before and my Onc said he didn't think it was Mets. He did a basic neurological exam in his office when I saw him in February. He also said night sweats aren't uncommon after chemo if it stops menstruation. I don't get drenching sweats. I just don't tolerate heat well and it pisses me off!! The headache feels better right now. I fell back to sleep at 7:00 and woke up at 9:00. I slept sound and now feel more groggy. I should've just got up when I first posted this morning and taken a nap later. Oh well. I guess I needed sleep. Haha. I've had headaches a lot even before cancer but it's just after cancer that I worry so much. My husband is mad at me because I don't want to move to Myrtle Beach so I'm sure the stress from that isn't helping the situation. I'd rather move to Alaska! Myrtle beach is too crowded and too hot!!
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Al I am soooooo happy for the good news!!!! What a relief
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YAYYYYYYYYY Al!!
Luv, - I also have had headaches that scare me, - but I bet it's stress! ( and heat and humidity surely don't help!) I agree, - Alaska sounds wonderful!
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You asked for more good news and I can deliver. Xray shows degenerative changes (old at 36 - chemo and hysterectomy clearly were contributors) and a kidney stone!!! I'm shocked about the kidney stone, I only drink water and probably more than 8 cups a day. Told me to go to my PCP....can do!
Now I'm off to work on my cannon ball with my almost 8 yr old
PS - I don't get why all my treatment stuff isn't coming up anymore.
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Jen...Wonderful news!!! Now go and enjoy the rest of your day with your 8 year old
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Jen, - sorry about the kidney stone pain, - but so glad that's the cause!
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WooHoo Jen!!!!! So thankful it's not cancer! I've had kidney stones twice though, and that was a new kind of hurt!!!
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I think its just an incidental finding bc I'm not in pain near my kidney, just lower right hip and back. When she said kidney stone I said "come again?" - I wasn't expecting that to be part of the xray or a finding.
I have to say this is the 1st time that I had pain that I didn't automatically think it was cancer, I thought 30% chance it could be. I am proud of the progress I've made mentally to get to this point.
Thanks for all the support as usual!
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Jen, I'll do the happy dance for you. As long as no one is looking. Jan
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Jen, I never had pain near my kidney either. I hurt in the front lower right side. I thought it was my appendix at first, and then it moved to my groin and lower back area. I had to use a heating pad to help and I took Advil. It didn't take too long to pass if I remember correctly. I haven't given up soda completely but I have cut way down and drink a ton of water throughout the day. I drink between 64-75 oz of water a day. It's been over 15 years since I've had the stones, knock on wood!
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Yay for the kidney stone and degenerative changes, Jen!!! Only in our world are those a good thing!
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hello all,
Great news ALH. So happy for you, Kathy & family.
Glad all seem to be doing good.
I got the results of my X-ray of left hip-femur-knee. And my PET scan.
All NED but welcome to osteoarthritis! And all the pain with it. Hip, leg, low back, & knee pain. The arthritis is doing just fine. Sad to say. I do the usual, exercise,water, glucosamine, etc. I take calcium & D3. So I just dealing with it.
About a year ago I was having continuous headaches. Was sent to A neurologist. She did brain scan, fluoroscope. All ok. She told me to take magnesium L-Threonate. 300 mg a day. I have been & much better now. Magnesium is hard to test in our bodies, but we are normally very low in it as we age. She said the chemotherapy may have done some things to it also. Has even helped my allergies. Why I don't know but not as bad this year.
Our weather is in the fry zone. They saying below average hurricane season. Ok but please some rain.
Next month have rented cottage on the beach on west coast of Florida. Going for a bit. Some family coming too. Others can't get away. Have done Seaworld Orlando, next Busch Gardens. I going to try & be Energizer Bunny. 69 in a few months. At one time thought that was a fantasy. Now just wanting to tick them off one by one.
Always keeping you all in my prayers. To all of us.......
NED FOREVER!!!!!!!!
Marsha
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WooHoo Marsha!!! All this good news is awesome! All you ladies go and celebrate!
Interesting how the Magnesium has helped your headaches and allergies. I have both also. I may have to check into that
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LOVING all this good news!!! Marsha, going to Sanibel? It is HOT here for sure!
Keep up the good work ladies: we can do this together!!!
Kath
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Hi everyone
Had to say how very happy I am to hear such great news from everyone. Big smiles all around. 😊
I apologize for not posting on the boards for so long (I had you in my prayers & would check periodically on how everyone was doing).
I had my fifth surgery for this crazy infection 4 weeks ago. I've been on Iv antibiotics now going on almost 12 weeks & the oral ones too. Great news is that no new spots are showing up so I think I am climbing over the mountain now. Whew!!
Dr says November at the earliest for DIEP surgery. Honestly looking forward to that day although a bit nervous. This infection from the expanders has me a bit gun shy.
Sending hugs, love & prayers. I'll be posting more now that my strength is returning. Yippie!!!
G
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A big hello to all. Just thought I’d drop in and give some positive news concerning my wife. Yesterday she completed her 2nd DD Taxol treatment and all is well this AM with her. Tomorrow will be the defining day as Saturday is the day it hit her two weeks ago….Lots of bone pain and lasted about a week. She has two more treatments left and I continue to pray that they go well.
With that said, her DD AC portion really did a number on the tumor and node. I was recently reading the BS notes from his 16 June exam and he gave a run-down of the measurements from his physical exams of my wife. In his notes it read t following:
4.8cm, N1 as of April
3.8cm, N1 as of 15 May
1.8cm, N0 as of 16 Jun
So besides the tumor shrinking, the BS and Chemo doc can no longer feel the node in her armpit. My hope is Taxol continues the positive trend. Anyone know if her tumor board will restage her after surgery or will she remain a 2b?
Many thanks to all of you….and may God bless you each and every day.
Vr,
BAT
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Tobycc
Not to Sanibel. Indian Rocks Beach (Pinellas county) is our location. Right on the beach. Not duplex or apt style building. Individual cottage right on the beach, looking out on the Gulf. Lived in the area before married, eons ago. Relatives in the area....so made sense. I am just hoping no storms (hurricanes). Plan on going to Busch Gardens with grandson & daughter. Along with other places in that area. Also like the good seafood restaurants on the beaches up there.
Take care all,
Marsha
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WONDERFUL updates!!
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Hi BAT. Good to see another husband in here. I don't think they ever "re-stage". I could be wrong...but I've never heard of that. Looks like great progress for your wife no matter what they say or do about the stage. Glad to see treatment is working!
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Ok guys, I'm in official panic mode! I was pushing around on myself checking for things last night. I felt something on my right arm near the crease of my elbow. If it's a lymph node it's the supratrochlear lymph node. I don't have an infection on my fingers/hand or the arm. So my mind is going to mets or lymphoma! I mean, how do I tell if it's a node or just muscle tissue?! I will call my doctor Monday but it's the weekend and I'm petrified about this one! I posted in the not diagnosed but concerned about a recurrence because for some reason when I logged in earlier this forum wasn't coming up!
Edit to add: I thought I felt something like on the front part of the upper shoulder too but it may be muscle, I hope! It was not above the clavicle so I hope that's a good sign. Sigh!!
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Luv,
I don't know how to tell the difference either. Hoping someone pops on here over the weekend that can help to give you some peace of mind. I'm sorry you even have to think about this garbage right now.
(((Sending you hugs, prayers & love
G
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Thanks for the reply SA8PG! I know you're having your own issues to deal with right now with all the antibiotics and stuff. I'm so sorry and I'm praying for you as well. XOXOXO!!!
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Great news Jen, Bat and LookingForward.
I can add that magnesium really helped with muscle cramps too. I didn't have them until after treatment. I don't take the magnesium all the time, but I do when the cramps start up. They go away like a charm with the magnesium.
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Luv- Could it be a lipoma? Sorry for your distress, especially over a weekend. Jan
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luv= Don't think we have any lymph nodes near elbow.
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Jan, I guess anything is possible but it doesn't feel like the lipoma's that my older dog has.
Eileen, we do have a few lymph nodes in and around the crease of the front part of the arms. They're called the supratrochlear nodes. The thing I feel is closer to the inside of it but near the bottom of the crease. I have to extent my elbow to really feel it. Ugh! Talk about stress! I'm having a hard time leaving it alone...The thing on my shoulder is scaring me too! I have to really feel for them though.
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