Calling all TNs
Comments
-
jen
So happy for you and your 3 year milestone! Great News!
High Five!
Arlene
0 -
Yes Jenjen! So happy!
0 -
BanR...I have had 4 lumps since my mastectomy and they have all turned out to be fat necrosis. I was afraid for the first two times, but after that, it was just something my body kept producing. They have me on an every 6 month ultrasound to see if there is no change. My PS and BS don't to continue "cutting" on me, so they will watch.
Hoping for fatty necrosis for you.
0 -
BanR
Lots of love, hugs & prayers for your MRI on Thursday. Fat Necrosis no tumor!!!!
Hugs
G
0 -
BanR it aint nuthin but a bump. Nuthin but a bump. Fat necrosis all the way. Prayers and positive thoughts your way!
0 -
I had fat necrosis on my prophylactic side. US didn't definitively show what it way, so I had my BS cut it out. That was while I was still getting radiation on the other side. So it does happen. All the time. Try to breath.
0 -
Hi guys! Need to vent! We have moved into our rent house and the neighbor came and met me and took me to her house to give some brownies she made for us. She told me to sit down. We chatted a long time and she asked why we moved and are just renting so I told her we were going to have a house built. Told her it wasn't my idea and she looked at me like huh? I told her we were building further away from where I want to really be and I wanted to stay closer to the Doberman rescue and my doctor's. She had the strange look so I told her about having cancer, which was maybe a bad move. She said she had breast cancer also then she asked me what kind I had. When I told her TN she had the you poor thing look on her face and goes oh that's awful, and you're soooo young! Then she said she was lucky because she was older when she was diagnosed and got to be on Arimadex. I know she did not mean any harm but it sort of made me feel like the black cloud of TN is just hanging around still! You know?? She was very nice otherwise and I probably read too much into it, but I let it get to me anyway. I was kind of having one of those days to begin with. I know I just need to let it go, but still...Anyway, thanks for listening! XOXO!!
0 -
LUV- your post totally hit home with me! Very simlair situation just happened to me! It's so frustrating.. When people give you the pity look and say "your so young" ugh it's awful! It's like yeah.. Wish I was older too! Getting cancer at 30 wasn't my game plan and getting "the worst kind" wasn't either! Thanks for reminding me!
I try to just brush it off but it's easier said then done... Some woman tried to tell me a story about her friend who died of BC... When I told her she upset me she said "why, she had hormone positive not TN" I just looked at her with a blank face... People are soft! Hug the pups! That always helps me 💛
BanR- I had a BMX and I still feel lumpy in my chest... It's scary but hopefully it's nothing! You will feel better getting it checked out and then you can move past it! Good luck to you!
0 -
LUV and LillieRose - I can relate. You'd think docs of all people should have a poker face, but immediately after I was diagnosed (which was my most vulnerable time) I was at a pre-planned yearly exam with my OBGYN. When I was updating her with my medical history, she winced when I told her I was diagnosed with TN. Certainly didn't give me much confidence. I think I've started to become desensitized to all the negativity associated with a TN diagnosis. Just about everything you read about triple negative has the word 'poor' in there somewhere. Despite that and the curveballs that have been thrown at me throughout my journey, I choose to look at the positives. Otherwise I'd go nuts!0
-
Went for my appt today and my MO said he is moving. Sad to see him leave - we finally just figured out how to work with each other. I am not happy to start over but hopeful this change will be good and maybe just maybe I will find a MO that aligns more closely with my surveillance plans. He did order a chest CT for the pain i am having under righty. I am sure it's just scar tissue but i'd rather confirm it.
0 -
Finally went for my yearly mammo yesterday. I was a little hesitant this time for some reason but probably as I am coming up four years on the 23rd of this month and wondering if my luck was still holding. Radiologist read it and said looks ok but it has to go for a double check and the results from my double check were in my Manage My Health last night and all is fine, thank goodness. Hopefully won't have that for another year now.
BanR thinking of you my friend and hoping and praying for fat necrosis. In your pocket and sending love.
LUV some people just don't know what to do or say but most of them mean well. I think a lot of people also doesn't realise just what TN is, I know I hadn't heard of it before I was diagnosed. Breast cancer was all the same to me then and I had never read about TN either so it was quite a shock.
jenjenl hoping for scar tissue for you and also in your pocket as well. Shame that you have to find a new MO after finally beginning to understand each other. Big hugs and lots of prayers being sent.
Hi Arlene, Ally, Shorfi, Meadow and Jan and anybody else I have missed out.
So glad you had a great nice long holiday Simple. That's the sort of holiday that helps you get back into normal life and enjoying life again.
0 -
Second chance. I know what you mean. Went to surgeon, told him BC mets to lung and tripleN he said of I am so sorry , same responcse from my family dr when I told him and now when I went to the pharmacist yesterday, she too said the same thing. "I am so sorry" and quess what So am I. !
Rosieo
0 -
Hello Cocker_Spaniel,
I just wanted to say congratulations on coming up clear after four years out since diagnosis. Keep up the good work.
I also wanted to send best wishes from the UK to all of you that are going through treatment, with all its ups and downs.
Do not take any notice of negative comments about breast cancer with triple negative receptors.
I am ten years and nearly five months since diagnosis and I was told that the prognosis was poor, because tamoxifen was no good to me because was not hormonal. The term TNBC was not even mentioned back 2005.
You can do this.
Best wishes.
Sylvia
0 -
Thanks for posting, Sylvia. Congratulations on 10 years!!! And congratulations to you, too, Cocker, for 4 years! I think it's so important to keep in mind the many long-term survivors of TNBC.
0 -
thanks Sylvia, perfect! We all want to be there at 10+ yrs post.
Anyone want to weigh in on this...Have to have a thyroid biopsy. Had chest ct scan August to follow up on mild pneumonitis thought to be from radiation (although the radiologist doesn't agree it's from rad, it is getting better though either way). And this time a low density lesion seen on r thyroid lobe. Last ct scan didn't show the thyroid. So had us to check further and found "minimal nodule on right measuring 1.8cm..clinical significance of this 1.8cm nodule is indeterminate" . had tsh and t4 free blood test which were normal, so saw endocrinologist who recommend biopsy for any nodule large than 1 cm with normal thyroid blood tests. I did not have radiation anywhere near thyroid gland and no node involvement. I assuming it's just a nodule and nothing more. I know thyroid nodules are common. Anyone else have a thyroid biopsy ever and your thoughts on this? And of course I googled breast cancer and thyroid cancer, had to as you know where the mind goes. I'm feeling well otherwise.
0 -
Lisj - a couple of years ago my then-MO felt a nodule in my neck and ordered US. What he felt was "nothing" but US found nodule on other side. It was so deep the doctors couldn't determine if it was thyroid or parathyroid. Two biopsies in nearby "big town" couldn't get enough tissue determine what they were seeing. So off I went to UCLA for their endocrine specialist. More USs, 2 more biopsies, not enough tissue! Four good stabs over several months and still don't know what it is. Was told to try again in 6 months, but I think that was about a year ago. Guess I should make an appointment, but I probably won't. I've been told thyroid cancer is an easy fix, but not sure what to think since it my might be parathyroid. I just don't want to deal with this and UCLA is a hard 4 or 5 hour drive from home. Best wishes as you work your way thru this. And keep us posted.
0 -
Lisaj, I had my thyroid light up in my staging for stage II TNBC, and had a finding of more than one nodule. It took 2 tries for the needle biopsy to get enough tissue, but I understand this is common. Biopsy came back benign, so they will just monitor from time to time. Apparently it is extremely common for anyone over 50 to have some thyroid nodules. My oncology team has characterized it as simply an incidental finding.
I've been lurking on this thread for a while, but have been home recovering from a "prophylactic" mx on my left side turned out to be full of DCIS and LCIS, but it's er/pr positive, so this year, I've had a 4.5 cm IDC, triple negative, 8 cm DCIS, also TN (on the right side), and 6.3 cm DCIS/LCIS, ER/PR+ on the left side. Changed my NED date, and might add to the treatment plan going forward. I'm still processing it all, but I think my treatment and recurrence risk is dominated by the TNBC
Best wishes on the thyroid issue.
0 -
I had really hoped to get my scan results friday but now i am patiently waiting to hear. They are online but in pending status.
I had the stone procedure done on friday, passed some stone flakes and a smaller stone but there is a lot more in there. After all the procedures i've had done that was one of the more weird ones.
0 -
jenjen have you got gallstones jen. I hope not that is very very painful.
0 -
cocker, kidney stones.
0 -
Oh JenJen, I am so sorry. Kidney stones are really bad. They going to try & break them up? Even passing small ones is excruciating.
They broke mine up. They hurt.
Keeping you in my prayers.
Marsha
0 -
Lisa, I have Hashimoto's disease--genetic. I have nodules that are biopsied every two years . So far so good (I had one 2 years out). I just have to take a small amount of synthroid daily. A lot of people have thyroid abnormalities that are in no way linked to BC. In fact in the 3 years I've been on this site I have never read anyone whose thyroid issues were linked to BC.
Hugs, Peggy
0 -
Cocker...Congrats on a clean report and that you are still dancing with NED.0 -
Cocker...GREAT news! I wish you 4 times 40 more of those "all clears"!!! Be sure and do something nice for yourself to celebrate!
0 -
Thank you everyone for the wishes...Thursday MRI results came back as inconclusive. Apparently it is displaying mixed features and hence they are not able to detect what it actually is.The next step is biopsy, which is due this Thursday again... That means I wait for another week!! I wonder what can it be, which couldn't get detected by a test as sensitive as an MRI. I will keep you posted.
Cocker...wishing u many more years of NED
Sylvia...congrats on completion of 10 years! There is a thread which I started the time my treatment was on, calling all the wonderful long term survivors of TNBC. I was so happy to see so many women reply back with their stories!!! You may write yours too there, will be an inspiration..... I look forward to everyone here completing many many years healthily post diagnosis!!
Thank you all ..again
0 -
Hello BanR,
I just wanted to say that I hope you will have good results from the biopsy and that I am thinking of you. I do not know all the details of what has been happening to you, but I am thinking of you and wish you all the best.
Thank you for your congratulations about my 10 years since diagnosis.
I did write my story of my cancer journey at the invitation of the moderators and you can see it by clicking on Survivor stories from around the world. I did mine as a survivor from the UK. It is a very good forum. Please tell me the name of the thread you created so that I can have a look.
I often view this thread but it is so busy that I find it hard to keep up.
Sending you and all the great women on this thread best wishes from the UK.
Sylvia
0 -
Thanks Sylvia!! I will surely read your story today!
Also u mentioned that you went through neo adjuvant chemo in 2005. Can u share the tumor status post that? As in ten years ago, did they measure whether the tumor completely responded to the chemo or not....which is called the PCR these days.
Keep posting and keep inspiring us...
0 -
Jenjen/Marsha you both have my complete sympathy. My hubby gets kidney stones and they are so painful. They liken it to labour pains (so it has to be awful!!). They can be lasered but my hubby was just put on a drip for several days and he eventually passed them. He felt awful though because the pain made him vomit as well.
PeggySull Non-Hodgkin's thyroid disease can increase a breast cancer risk and also for leukaemia and other conditions but hopefully it's not common for us.
Shorfi thank you for your comments. Another year down so hopefully that will continue.
Mike thank you. I doubt very much whether I will get 4 x 40 but I am very relieved that the mammo came back normal. To celebrate I am going Christmas shopping. I always enjoy buying crissy presents for my family.
BanR that inconclusive word is a real bugger. My BRAC came back as inconclusive which leaves you up in the air and very unsure of the result. Hope the biopsy goes ok and all is well. Waiting or results for another week sux. In your pocket and staying there.
Sylvia you are an inspiration to us ladies and Mike on here. Ten years is awesome. Hope your winter weather in the UK is kind to you this year. We have Charles and Camilla in NZ at the moment.
0 -
Cocker, I'm so happy you got good results!! Congrats!
Sylvia, congrats on ten years as well, and thanks for posting here!!
Jen, kidney stones suck!! I've had them twice and they hurt so bad that I vomited. I thought I was dying before they told me what was happening. The said they were small and if small ones hurt that bad I don't want to know what a bigger one feels like!
BanR, like the other's, I am so sorry you have to wait for a biopsy and results. I will also be staying in your pocket, holding your hand. Saying lots of prayers for you dear! HUGS!!!
0 -
Wonderful news Cocker
Avmom we are glad to have you here with us
0
