Calling all TNs

19599609629649651191

Comments

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited December 2015

    AL great news!!! WooHoo! Happy dancing for your wife

  • SA8PG
    SA8PG Member Posts: 280
    edited December 2015

    Al thank goodness. So happy for you guys. Thank you for sharing your praise reports. God bless :)

    G

  • slv58
    slv58 Member Posts: 486
    edited December 2015

    Great news Al, now enjoy Christmas!!

  • jlstacey
    jlstacey Member Posts: 117
    edited December 2015

    Wonderful news ALHusband!! I will be in your great state this weekend. We are driving to Fairhope to see family for a week!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited December 2015

    Ladies and Mike, just want to say thank you all for being there for me this past year and for becoming my friend even though we have never met. I couldn't have got through this year without you all. I wish you a very merry Christmas and a safe, happy and healthy New Year.


  • ALHusband
    ALHusband Member Posts: 342
    edited December 2015

    Cocker if anyone in this group is a voice and a heart that helps get people through things...it's you. In fact I nominate you for positive force of the year! Anyone want to second the nomination? I hope you have a GREAT Christmas and a happy, healthy, stress free new year!

  • slv58
    slv58 Member Posts: 486
    edited December 2015

    I second it! Wishing everyone here a wonderful Christmas, Hannuka or holiday season and a most fabulous New Years- I pray all of us have an easier year. Much love  for everyone's contributions to this thread- it is the most welcoming and comforting because of everyone here. 

    Hugs everyone, Shari

  • StefLove
    StefLove Member Posts: 201
    edited December 2015

    i second the nomination! :) And so glad to hear the good news Al!

    Wishing you all an amazing Christmas and New Year. And lets all hope and pray that 2016 is a lot better than 2015!

  • breastcancerhusband
    breastcancerhusband Member Posts: 69
    edited December 2015

    Al,

    So pleased to hear your wife is okay. You must be very relieved. Here is a MASSIVE man hug from me to you.

    Tom

    xx

  • greenae
    greenae Member Posts: 246
    edited December 2015

    hi all!

    I third that nomination!

    So happy to hear good news, please keep it coming!

    Happy Holidays, Merry Christmas and a Happy, Healthy New Year! I am hoping it gets colder in New York next week because I am burning my 2015 calendar in the fireplace. Here's to bright futures for all of us!

    Thank you So much for being here...I know your support, encouragement and information has helped So Much!

    Hugs!

    Arlene

  • 6feetover
    6feetover Member Posts: 97
    edited December 2015

    All: dunno what to say, other than THANK YOU for being here (where none of us ever wanted to be) - you've helped me more than you'll ever know, and more than I can ever express. Here's to happy and relaxing holidays for us all, and a healthier, happier, brighter (and cancer-free) 2016!!!

    Hug

    Heart

  • SA8PG
    SA8PG Member Posts: 280
    edited December 2015

    Completely agree. Cocker what would we all do without you!!!!

    Many happy memories for everyone on here this holiday season. May each day bring you renewed strength, may you find joy in the beauty of life & may 2016 be blessed with good health & praise from our lips for all the little things that we enjoy called life!

    Much love to all.

    G

    John 3:16/Merry Christmas!

  • lookingforward66
    lookingforward66 Member Posts: 148
    edited December 2015

    Cocker,

    I totally agree with Alhusband. You are the calming influence, stress relief, comic relief & information dissemination help. We all here one way or the other thank you & each other for support throughout this year. So, thank you Cocker & all you ladies & gents for having each other's back.

    May your Holidays be all we wish & more.

    Praying for a great 2016!!!!!!

    Marsha

  • BanR
    BanR Member Posts: 238
    edited December 2015

    al...so happy to hear that the doctors are not worried about her lump. If you remember , even I found a lump but far away from the site of surgery..my BS then remarked that had it been right next to the surgery, It would have in all likelihood been a scar tissue. Hope the ultrasound comes all clear.

    I agree with Al and everyone...cocker has been a huge support just like many others here...we have been talking since the past 2 years and more...few were regular earlier and now we see more new faces. I am sure all are doing well wherever they are.

    Simple: the back pain has shown slight improvement...not with the oral muscle relaxant but with rest and the topical muscle relaxants avl over the counter. Thanks for remembering :)

    ally: keeping fingers crossed and waiting for positive results from your side. You got PCR ...it should not be cancer again.

    Thanks also for the information about the TNBC vaccine trial!


    Tomm Santa is supposed to come and I am packing all the gifts now ...My 7 year old is very excited. One of her wishes was that Mom should not get cancer and Dad should be safe during his travels. I was touched. She specifically instructed me not to put on the fire in the fieplace since Santa enters houses from there and might get burn injuries if the fire is on. Some photo sessions with Santa at a nearby mall happened...A rare Christmas morning today, in T shirts and spring jackets...no chill at all..forget the snow. Man polluted the planet and now by n by affects are showing up in various ways.


    Wishing you all good health and happiness


  • Mamiya
    Mamiya Member Posts: 151
    edited December 2015

    BanR, glad your little one got to see santa. It is so weird that you are writing about Christmas morning when it is barely Christmas eve here in the states!

    Wishing everyone a wonderful week, holidays as they apply, and good cheer all around!

  • JJ62
    JJ62 Member Posts: 36
    edited December 2015

    image

    Seasons Greetings! Best Wishes to All!


  • Gohan1983
    Gohan1983 Member Posts: 34
    edited December 2015

    Best wishes to all triple negative ladies. Remember, TNBC is only descriptive term, no prognostic meaningThumbsUp

    Merry Christmas and Happy New YearSmile

  • meadow
    meadow Member Posts: 998
    edited December 2015

    Yes, We love Cocker Spaniel! And Merry Merry Christmas to all, Sylvia in the UK and everyone of my friends here all over the world.

    Al, happiness.

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited December 2015

    Merry Christmas everyone! You all are like family to me and help me more than you know! God bless you all! Love you so much!

  • Angtee15
    Angtee15 Member Posts: 72
    edited December 2015

    Hello there!

    I was hoping to get some feedback. I have #4 of weekly (neoadjuvant) Taxol on Monday and will see my MO for the first time since kicking off chemo on 12/7. I had asked her how she will assess my tumor's response as I go through Taxol/Carboplatin and then AC with surgery to follow. She said she would do physical exams throughout but I expected to hear her say an ultrasound at least. Should I ask for one?

    Also, as I know this is a judgement free zone I can share that I was unable to have a breast MRI because I literally couldn't fit in the machine (I am a size 18 and 44D). I am in Chicago at major regional medical center and was shocked at this. Anyone ever hear of this problem? I guess open MRIs do not work for breast imaging. The team told me not to worry and said some patients can't have MRIs for a variety of reasons, including claustrophobia which frankly would have done me in even if I was a size two lol.

    Anyway just let me know what you think! Feel free to PM me. Hope y'all are having a good holiday season.

  • kayak2
    kayak2 Member Posts: 9,028
    edited December 2015

    Angtee, since AC and surgery are the next part of your treatment plan, it is unlikely that whatever an ultrasound does or doesn't reveal, would change the planned treatment. All the best to you!

  • Mamiya
    Mamiya Member Posts: 151
    edited December 2015

    Angtee,

    The physical exam every three weeks is standard procedure. I had a second MRI after the carbo/taxol but that was because I saw a specialist and he wanted it, my regular onc had no issue doing it but it wasn't planned.

  • Angtee15
    Angtee15 Member Posts: 72
    edited December 2015

    Thanks Kayak and Notdoneyet! I appreciate it:)

  • Mamiya
    Mamiya Member Posts: 151
    edited December 2015

    Angtee, I also wanted to say that I am not sure how necessary the MRI is for non-IBC cases. There is such thing as an "open MRI" that isn't the little tube thingy, maybe at a different location or facility you could be sent out to, but I have no idea if they can do the breast MRI in that or if that part of the machine would be a certain fixed size so would still not accommodate a larger patient... Worth asking I think though. Oh, If you would make your diagnosis and treatment "public" on your profile we would be able to see that and it may make it easier to understand what you are dealing with and allow more informed comments.

  • Angtee15
    Angtee15 Member Posts: 72
    edited December 2015

    All this time I thought I had my dx and chemo plan public...here you go NotdoneyetSmile


  • meadow
    meadow Member Posts: 998
    edited December 2015

    Ang, don't worry about not having the MRI. You might ask if there are other diagnostic tests that they can do, like the CT with contrast. This uses a different machine, and I have found relating to the claustrophobia, if I put a wash cloth over my eyes (so I cannot see even if I open my eyes) does the trick. I even bring one from home, in my purse, in case there isn't one handy. It WORKS! My best wishes to you.

  • PeggySull
    PeggySull Member Posts: 368
    edited December 2015

    To those newly diagnosed and starting treatment: I started chemo in early December 2012 and by Christmas I had lost most of my hair. I was feeling terrified and so sad. An in-law who had breast cancer a few years earlier than I did, sent a simple note saying that she knew this Christmas would be very hard but by next Christmas I would be amazed at how positively different I would feel. Well that Christmas came last year and she was exactly right. This Christmas I was back to my pre-cancer self, even stronger for surviving treatment.

    I pass this prediction on to you who may be struggling with diagnosis and treatment this holiday season.

    Hugs,

    Peggy

  • allydp
    allydp Member Posts: 361
    edited December 2015

    Thanks so very much everyone. Still no word yet. My husband has taken over communicating with my onc's office as I'm too frustrated with them. All we know is it's in their hands as well as the radiologist's hands and we're waiting for everyone to look at it. They ruled out a clot at the ER but didn't do an echo. My chest still hurts pretty bad. The pain moves around. It's sometimes right in the middle of my chest or on either side above my breasts and radiates to my shoulder blades. It's sudden and sharp and comes and goes throughout the day. Very similar to the rib pain I've had since chemo. I'm not quite sure what to do. I don't have a cardiologist I can call and schedule an appointment. Can't get my onc's office to call back. I suppose I could call my PCP but he doesn't handle any of my cancer stuff so that seems weird. My ER copay is $150 so that doesn't seem like a good idea either, and since I was just there I don't think there's much they will. They gave me a handful of norco that was helping but I'm out.

    I enjoyed Christmas with friends and family, but now that Monday is here and I have nothing to mask the pain, I'm going down the worry hole again, especially with another long holiday weekend approaching. Between my joints, my bones, the pressure in my breast, and now this chest pain, I'm at my wit's end! The few days of norco I had really opened my eyes as to how much pain I live with on a daily basis. It was pure joy to be pain free for a while.

    Anyway, enough of my crabbing! I second you, Cocker! I'm so thankful for all of you and hope you all had a wonderful Christmas with loved ones!

    I'll keep you guys posted. :)

  • Curlyq1974
    Curlyq1974 Member Posts: 87
    edited December 2015

    UGH Ally!!!! I have been waiting and waiting to hear about you... this is not the news I wanted to hear. Sorry but I wanted to hear you have bronchitis or something.... When they initially found my spot on my lungs, I was told it is very common for people to have them. So, don't get crazy in the worry hole. Fingers crossed for bronchitis :)

  • allydp
    allydp Member Posts: 361
    edited December 2015

    Thanks so much, Curly! It does give me a ton of peace of mind knowing how common they are. What sends me in a panic though is that it's new. My last chest CT was in May and it wasn't there. I haven't had any sort of chest cold, bronchitis or anything since then that would explain it. And I'm not sick now. I don't even have a cough, except when this pain comes it does sort of make me feel like I should cough. It's hard to explain.

    I keep trying to think of anything new I've taken or am doing. I switched from Ambien to Excedrin PM and that's the only thing. But I've gone off Ambien lots of times and never had a problem. And I can't see how Excedrin PM would cause chest pain. The only other thing I can think of is maybe my thyroid is off (I take Synthroid). I just had a draw a few months ago but who knows!