Calling all TNs

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  • 6feetover
    6feetover Member Posts: 97
    edited January 2016

    all: Here's to a happy, stress-free, and "Big C"-free 2016! We SO deserve it!!! I'm so grateful to have found all of you; I'd probably have lost my mind without your love, insight, and support!

    HugHeart

  • littleblueflowers
    littleblueflowers Member Posts: 391
    edited January 2016

    Happy New Year, my sisters. Here's to health and happieness in 2016!

  • meadow
    meadow Member Posts: 998
    edited January 2016

    Yes, Happy New Year!


  • greenae
    greenae Member Posts: 246
    edited January 2016

    Happy New Year!

    Thank you all for being here!

  • lookingforward66
    lookingforward66 Member Posts: 148
    edited January 2016

    Happy New Year!!!!🎉🎉🎉🎉🎉🎉🎊🎊🎊🎊💥💥💥💥

    May we all have a happy & healthy new year.


    Marsha

  • SA8PG
    SA8PG Member Posts: 280
    edited January 2016

    Happy New Year everyone!!!!! May 2016 be a year of expectation & hope for every person represented here and those they love.

    Xoxoxo

    G

  • Mikie1956
    Mikie1956 Member Posts: 17
    edited January 2016

    hi, just found this forum. Triple neg, AC for four rounds 2 weeks apart, finished round 1 on dec 23, using PCC to minimize hair loss, afterAC will do 12 weekly rounds of Taxol. Meds for nausea, resulting constipation, neupogen shots for 9'days after chemo..keeping up with work and exercise which really helps with a positive attitude. Husband is a source of laughter so that helps.

    Happy to,have found this forum Nd the comments hAvebeen fantastic...thanks.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 526
    edited January 2016

    Happy New Year from Seattle (almost).

    image

  • cassylou
    cassylou Member Posts: 40
    edited January 2016

    sending love to everyone on this New Year's Day. I congratulate everyone on their strength and resilience so far and wish everyone a bright and hopeful 2016. X

  • Shopgal2
    Shopgal2 Member Posts: 594
    edited January 2016

    happy new year my new TN sisters. Thanks for the warm welcome in 2015. You all are pretty awesome. 🎉🎉🎉

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited January 2016

    Happy New Year everyone!!

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited January 2016

    Wishing all here a HAPPY and HEALTHY 2016!!

    With hugs and so much appreciation for your friendship and support!!

  • slv58
    slv58 Member Posts: 486
    edited January 2016

    Wishing my beautiful TN sisters a New Years filled with love, support, optimism and good health! 

  • bluedog
    bluedog Member Posts: 147
    edited January 2016
    Welcome, Mikie, although sorry, of course, that you have reason to be here. Our stats are similar, and I had the same neoadjuvant chemo regimen. It's certainly no fun but hopefully you'll get through it without horrible side effects. Exercise and laughter help!!!
  • Lou53
    Lou53 Member Posts: 30
    edited January 2016

    Hello all,

    I was wondering who has had radiation to the lymph nodes and if you experienced any problems. I just started chemo which has been rough for me but I don't see a lot of ladies with lymph node involvement and I am getting a little scared.

  • littleblueflowers
    littleblueflowers Member Posts: 391
    edited January 2016

    I had radiation to my lymph nodes. Axcilliary, supraclavicular, chest wall, 25 plus 5 boosts. It's way easier than chemo! I was in the grey area for needing it, but decided to go for it because of my age. If you decide to get it, there are some great threads here that will tell you all about it.

  • Lou53
    Lou53 Member Posts: 30
    edited January 2016

    Little, I really don't have a choice. I am a scheduled for 30 rads after chemo. They want to do under my collarbone as well as breast and lymph nodes. Worried about lymph node issues and chest. I don't want it near my lung. Did you have any problems

  • kayak2
    kayak2 Member Posts: 9,028
    edited January 2016

    Lou, ask if your radiology center offers rads in the prone position, which many places do now, and which minimizes exposure to the lungs and heart. Even if they do, not sure if the location of the lymph nodes would be problematic, but certainly worth asking about. Good luck to you.

  • littleblueflowers
    littleblueflowers Member Posts: 391
    edited January 2016

    I only finished up Oct 9, but no problems yet, knock on wood. My left side was radiated, so in order to avoid my heart, I expanded my lungs. My RO said your lungs can handle a lot more damage than your heart.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2016

    Happy New Year to all our ladies plus all our new ladies. Glad you found us but so sorry you needed to.

    Lou53 I had cancer in four nodes. When you go for your simulation appointment which is when they measure where the radiation is going to go they will do everything they can to make sure the heart and lung are not affected by the radiation. The radiologists are extremely experienced and know exactly what to do so you need have no worries at all. Also radiation for me was literally a walk in the park. I had no problems whatsoever other than a little bit of pinkness. It only takes about 15 minutes and that includes one minute for the treatment and getting undressed and dressed again. I was dreading it but it was really easy for me. Just remember to really layer on the cream afterwards, especially at night, to help your skin but don't put it on before a treatment as you will burn otherwise. Hope all goes well for you.

    It always seems odd to me that here in NZ we have Christmas before you and see the New Year in first. If I timed it right whilst on an airplane I could have two Christmas days. Would that mean double the pressies.

    Ally this is the year when all my prayers come true and you hold that wee babe in your arms. 2016 is going to be a good year for us all with no, dare I say that hateful word, recurrences. LUV you will get the house of your dreams and won't have to move again. Jan will not have any more fires in her beautiful mountain home, Mikes Kathy will have no problems and everyone else will do well. We gotta keep the faith ladies to help us through. Luv you all. xx

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited January 2016

    Cocker, we all love you sweet lady!! XOXOXO!!

  • Lou53
    Lou53 Member Posts: 30
    edited January 2016

    Thanks everyone! This stuff is so scary.

  • Shopgal2
    Shopgal2 Member Posts: 594
    edited January 2016

    Good to hear the info about left sided rads. I go for my sim Tuesday and will have whole breast on my left side. For the sim & rads will it be ok to wear yoga pants in the room? I am afraid of being freezing with my poor bald head. NowI get really cold when my body is cold. That is when I'm not hot flashing :))

  • meadow
    meadow Member Posts: 998
    edited January 2016

    Welcome Mikie! Hang in there Lou!

    And Happy New year!

    Shopgal, I always was cold in there...but they offer warm towels and blankets...I always took two. Yoga pants should be great, comfy,

  • littleblueflowers
    littleblueflowers Member Posts: 391
    edited January 2016

    Yoga pants are fine 😊They should offer you warm blankets, if not, ask.

    Cocker, THANK YOU for being you!

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 526
    edited January 2016

    I'm getting my port on Tuesday, with "conscious sedation". Regular anesthesia makes me nauseous, so I had the scopolamine patch with my surgery and did great. Do any of you react the same way, and did the port procedure make you sick? I'm wondering if I should take a Dramamine pill before I go in.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2016

    Shopgal2 when you go to simulation you are not in there very long. You can wear whatever you want on the bottom half but will have to undress the top half. They will put a couple of little tattoos on you which are so minute you can hardly see them and you will just feel a slight scratch. This is so they can line you up each time correctly. If the cancer was in your nodes you have to lay with your arm up but once you get into position its quite comfortable and as I said rads is only for a few minutes at the most. The bed you lay on is very narrow but as I say you are not there long. Mine took half hour at the most. My radiation centre is so different to most of you girls. We have a facility which is two hours away and radiation is only done there at the hospital which is close by. These centres are in other towns but my nearest was two hours away. I had to go on Monday mornings and then had to live there all week and come home on Fridays after rads for five weeks. Apart from being away from home which I missed for the first week!!! it is just like an exclusive holiday resort. Huge, modern and beautiful. All meals were made for us by chefs and you could have physio, massage, get your nails done and more. There was a library, games room and television lounges or you could sit and read in one of the quiet rooms. My room was large and so was my ensuite and rooms were cleaned each day by maids. There are registered nurses on duty day and night in case of any problems. One lady with bowel cancer had some vomiting one night. It is called the Daffodil Lodge because daffodils represent cancer in NZ. This was all free and we didn't have to pay for anything except our big pots of cream that they recommended. The lodge was for other cancers as well as breast and I met some great friends there and we laughed almost all day long. There were shuttles to take us to the hospital, five mins away, and to bring us back. Out treatment only took half hour each day and the rest of the time we went to the casino, shopping, to the lake with a packed lunch made for us and we had to be back by 10pm cause that's when the gates closed. It was just like a holiday and we all loved it there. Only one lady had some burning from the rads and she had a very fair complexion but didn't bother to put on any cream. So for me my rads treatment was wonderful and went without a hitch. I wish you all had a facility like it in your country.

  • Angtee15
    Angtee15 Member Posts: 72
    edited January 2016

    Cocker Spaniel-that is what I call healthcare! I am moving to New ZealandHappy

  • Shopgal2
    Shopgal2 Member Posts: 594
    edited January 2016

    thanks meadow and littleblue. I am getting nervous about tomorrow. Cocker you write so beautifully and know just what to say to make me feel better. I am getting whole breast, no nodes as they were negative. Your lodging facility sounds wonderful. I would love that. I know in pa there is a hope lodge. I live about 45 min from my hospital so I will commute into the city. If it snows I can stay with my one sister, who lives in a condo across the street from the hospital. And I like that daffodils represent cancer in n

  • Ag23
    Ag23 Member Posts: 28
    edited January 2016

    Are there any TNs out there that also have weakly positive PR receptors? My PR+ receptors are estimated at 40%. My MO said this was a little unusual...