Calling all TNs
Comments
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Ally, is the pain kind of right by where you would think your bronchial tubes go off into your lungs? Because if it is, I had that, and weirdly enough it turned out to be tight chest muscles! Fingers and toes crossed for you!
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Ally I am so glad you posted. I've been thinking about you a lot. I will continue to pray and send you lots of love accross the miles. I hate that your hurting.
(((Stay strong & try to think positive thoughts. Praying it's nothing!!!!!
Much love.
G
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Thanks, Littleblue and G!
Little blue - yes it's right around that area on both sides right on top of rib bones. I can't really tell if it's bone or lung pain though. Sometimes it even radiates into my armpits. Part of me has always wondered if I have some unknown neuropathy type pain from chemo in my bones...like a pain syndrome of sorts. Maybe I'm grasping at straws, but with all these unexplained pains who knows. I desperately need to start exercising on a regular basis.
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Ally
Hi! I am thinking of you, too! Yes! Go back to exercising. I swear an hour on a Spin bike and some weights make me feel like my old self. Your pain description does sound like muscle/nerve pain, and part of these strange feelings we get after what we've been through. I am sending you healing Hugs!
Tomorrow is one year since my lousy mammo. One down, two to go. Healthy futures for all of us!
Love,
Arlene
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Ally, I was thinking lung mets. I had a feeling like I needed to cough all the time, but it was a dry cough. I was an inch from calling my MO. Then, I got a massage and it went away. Not even kidding.
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been following all posts, ally could it be a form of costochondritis? No exact symptoms but then again our/your chest anatomy is not typical. Inflammation of the cartilage between ribs and sternum and can be accompanied by inflammation in other associated areas
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Ally, I wish I was a medical person, so I could help put your fears at ease with all my smarts. But as it is, I am not. But I do agree with Lisa, I am thinking some kind of inflammation, or like you mentioned before, some chemo related neuropathy might be happening. It literally makes me sick at my stomach to know you are hurting, I want comfort and peace of mind for you so badly. Thinking of you with warm hugs.
Peggy, your post was so lovely., thank you.
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Ally, I'm thinking of you and hope you get answers soon. Inflammation sounds like a good possibility and I think very common with everything we go through. It's so easy to think the worst but it also gets tiring, we all need to remember that sometimes it's just a simple explanation- I know how hard this can be but as my daughter keeps reminding me, worry is a useless emotion. She is right, it doesn't solve anything. I just had my first 4 month post chemo check up and complained that when I take a very deep breath I feel a kind of rawness that almost makes me feel like I want to cough and my oncologist said that is pretty common after having rads. No scans needed. It made me feel much better and somewhat mad that I had been secretly worrying about it for awhile. I hope that you get a similar explanation. Hugs hon- we are all with you!
Shari
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Ally, I'm so sorry you're still hurting! I am praying for you and that you get some answers soon! Norco is awesome stuff. Can you get a refill? Or ask for some Hydrocodone? Hang in! We're waiting with you! (((((HUGS))))
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Ally....fingers and toes crossed for you. Hoping you get good news. ((hugs))
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Good morning Ladies & Gents.
A little while ago I was celebrating 3 years free!!!
Well now I am "shaking in my boots". Have been to see PCP & have ultrasound of abdomen scheduled for tomorrow. Stomach is sore & a lot of gas & heartburn. Lower tract fluctuating between constipation & diarrhea, also with gas. Both areas are sore to the touch. Having headaches also. Am going to the "what ifs" in my head. The not knowing is the worst.
Anyone have any similar symptoms? Please keep me in your thoughts.
Marsha
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Ugh Marsha! In my thoughts and prayers. Hoping you just overindulged during the holidays and it is nothing to be worried about.....
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Marsha, - sounds like irritable bowel syndrome. I, too, had sono a few months ago for similar issues. I also just had a colonoscopy, and the dr suggested some peppermint oil pills, - will send the name to you when I dig them out.
Ally, - these aches and pains come from so much of what we have been through, - chemo, surgery, rads, etc. Dont think the worst!!
Cocker, - I, too, second that nomination!
Shari, Luv, Meadow, Arlene, Lisa, Alhusband, and everyone else, - I look forward to your posts, even though I haven't written much lately. I hope that your holiday season has been happy, and that 2016 brings joy and GOOD HEALTH to you and yours!!
Love & hugs from NYC
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hi all, I don't post much but here is something I think every triple neg bc patient should be aware of . I am not sure my dx show on my profile, I am 33, I was dx this January at 32 with TNBC. I was recently married to a wonderful husband and we were trying for a baby when all that happened.
still hopefully my period will return. I had surgery first with left Mx then finished 6 months of long chemo, and was done with radiation by oct. I work in banking and very type A,one of my copping method is do a lot research. I found this promising vaccine trial at the mayo clinic back in February, I want to share the news http://finance.yahoo.com/news/tapimmunes-phase-ii-trials-breast-141500052.html
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Arlene, Lisa, Meadow, Shari, Luv, Simple, NYC - you ladies are amazing. Thank you all so very much for your support. I don't know how I'd manage without it...truly! My husband called my onc's office this morning and learned that both my onc and her nurse are our the entire week! No one told us this minor little tidbit of news and they had plenty of opportunity during the many phone calls we've put in and both of us explaining how we didn't want to have to go through the holidays waiting. He spoke to a nurse of another onc in the practice who was helpful. She said my scan was seen by my onc, but she has yet to sign off in order to send it over to radiology. So radiology doesn't even have it like we were previously told. I'm beyond frustrated, but I have to think they wouldn't back burner this if they saw something concerning. I've gone to my onc and breast surgeon with a lot of pains over the course of my treatment and post treatment. I'm sure I'm "that" patient by now and probably should start calling my PCP for this kind of thing. They're giving me another week or norco and we're waiting for a call back about a possible echo. But as of now I'm done worrying. It's nothing until it's something!
Marsha - I am so very sorry you're going through such a scare. I agree it sounds like irritable bowel. My SIL has it and it presents just as you describe. It always flares for her around the holidays. I'm so glad your PCP is checking it out though and I know how hard it is not to worry when new things arise. Please keep us posted and I'll be sending you lots of good thoughts.
NYinshock - my heart goes out to you. My husband and I were also trying for a baby prior to being diagnosed and now trying with a surrogate. I also work in banking and do a lot of research as a way to cope. We have too much in common.
Thanks for posting the link to the vaccine trial. It seems there's so much research for us on the brink of breaking through. I hope something comes out of it very, very, very soon. 0 -
ally, why a surrogate? my mo gave me okay for a baby after a year post chemo. I am in touch with the vaccine coordinator, they are very close to open the trial up...
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Nyinshock
I'm sorry you are here but welcome to our great group. Your period should return. You are still young at 33. Mine has returned and I just turned 40. I was in chemopause for 7 months during treatment.
Hugs & prayers as you wait on a precious baby for your family.
G
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Marsha, I have very similar symptoms off and on. I have gastritis, GERD, and IBS. Sometimes it's very painful and the anxiety from it shakes me to the core! I have had IBS for as long as I can remember but ever since finishing treatment it's been worse. I will tell you anxiety only makes it worse! I've had to increase my Zantac because it seems like everything I eat lately causes bad heartburn. Again anxiety makes it worse! Gastritis can cause pain, bloating, nausea, heartburn, filling full after meals even small meals. Sometimes I can eat something and ten minutes later I'm on the toilet with diarrhea. Sometimes it doesn't hit until the next day. PM me if you want to know anything else. I'll pray for you! In your pocket tomorrow and waiting with you.Keep us posted. XOXOXO!!!
AnotherNYCgirl, thanks for checking in! Good to hear from you!
Ally, keep on hanging in there. Try not to worry. We're right there with you. Don't forget!
HUGS and prayers everyone!!
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NYinshock - I'm BRCA+ and had my ovaries and uterus removed after chemo and surgery. However this will be our sixth year trying to conceive. We're using donor embryos and our friend has offered to carry for us, so we're praying this our year. I hope your period returns soon and wish you all the very best in your journey to start a family.
Luv and everyone else, thanks again. I woke up feeling the worry wash over but after reading all of your posts I'm starting to really trust this is probably another random pain from chemo or surgery.
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I'm still a newbie to here but I gotta say you ladies are really awesome with caring And supporting one another. Makes me feel less alone. I have barely finished chemo and still have rads so my path of worry about scans, reoccurrence, and anxiety is still so overwhelming. Does it get a bit better after treatment
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Shopgal, as hard as it is to do, try to relax. Try to trust the process of restoring your health. I believe very strongly that the mind and body are linked, in sickness or in health (lol). But seriously, just as anxiety can give us diarrhea, or something wonderful can make us cry happy tears, worry, stress, anxiety can hinder healing. I wanted to give the powerful drugs I was taking every chance to work their best on my cancer. I did not know how to feel about my cancer early in my diagnosis....should I hate it? fear it? What was the BEST way for me to address something that was a part of my own body trying to kill me? Then, I had a wise, loving person tell me two words that gave me the mindset I needed, that still helps me fight today. She said, "Love heals". That made so much sense to me, it put my mind in a positive place, a more calm place, and yet a place from which I could FIGHT HARD to win, to be healthy again. I have shared before here that I actually visualized the cancer leaving my body, I lay down on my back with my arm over my head, and imagined my cancer leaving my body in a stream. I hope that doesn't sound too whacky, too crazy....I really am a normal person!. I believe that this, plus powerful prayer warriors asking God for help on my behalf, plus great chemo and treatment team, all combined to get me to NED, no evidence of disease. Be a strong part of your treatment plan, by doing what you can to get healthy, don't hinder. To me, this means positive mind, healthy eating, tons of water, sleep/rest, of course no smoking, and some exercise when you feel you can, even if it is just a walk in fresh air. I hope this helps, that is my intention, my desire for you and for everyone.
Another, so good to hear from you!
NY, welcome!
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meadow
that response was perfect! Exactly what a newbie (shop gal) needs to hearMarsha, good luck tomorrow
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thanks meadow and Lisa. I do worry too much and do need to relax a bit as not to over stress. I feel as if I have been on a train since dx in May. Every step forward has brough more anxiety from genetic testing to surgery decision, positive margins, to hearing I really did need chemo to taking a loa from work. Now that chemo is over I am pause mode til rads start in 3 weeks. So I am scared if the chemo really did work to kill the cancer cells or not. I know reading on this board that there are long term survivors and hope to get there too. Thanks ladies you made me feel better tonite.
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hi ladies,
I've been following but not posting much.. Trying to just act "normal" and enjoy the holidays...
Ally- I'm sure your fine! Years out and a PCR are on your side! In glad your not to worried!
NYinshock- welcome
I hate seeing other young woman here and scared. I was 30 at DX with a 4 month old baby. I'm not far out of treatment but my period did come back... About 4 months post chemo. They have been regular and my docs think I will be able to have another baby... They told me to wait 3 years because with TNs it usually comes back fast and if I make it 3 years that is a good prognosis factor... Of course hearing them say that scared the crap out of me. I actually know 2 other young survivors from different groups who did get pregnant after treatment! It is possible! They both had healthy pregnancies and babies! Both ladies were tnbc too! Good luck to you 💛0 -
Marsha, - the dr gave me samples of "IBgard" for irritable bowel symptoms. It is over the counter as far as I can tell. I love my gastro dr, and trust her judgement! Hope you feel better soon!
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Yesterday my bs nurse called me to check how I was after my port removal surgery a week ago. She mentioned that I needed to see the bs in March after rads and get a script for a mammogram. She asked when my last mamo was. I told her oct 2014 for regular, both boobs (which found the left mass that they watched for 6mo), April 2015 for the diagnostic on the left (now cancer side), and an MRI of both breasts in July 2015. She said I was overdue for my mamo, and said the bs may write a script for the right breast to be checked before rads. I said doesn't the MRI check for more than a mamo? I also told her the bs said when he saw me before my port removal that I'd see him in March for mamo script. This nurse made me freak out worrying that there now is something growing in my right boob after just finshing chemo 3 weeks ago. She also said that I may need to have a mamo on the right one and a few months later have a mamo on the left cancer one, then have a mamo on both a few months after to catch both up to my regular mamo schedule. I was totally confused on hearing this.
Did anyone have a mamo on the non cancer side before rads, or before their 3 or 6 month checkup? I see my mo in March for my 3 month, after I finish rads.
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Shopgal, have you checked out the threads here dedicated to lumpectomy? You might pose your questions there and reach more people with more answers. More in this case, is good!
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thanks meadow!
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Happy New Year to all!!0
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Happy new year to all my TN sisters out there!
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