Ladies in their 30s
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Yeah ksmatthews!!! Best. News. Ever!
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Congrats ksmatthews! I hope you are celebrating!!!
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Thank you ladies so much! My hubby had to work so I spent the afternoon with some great friends and last night we went for a drive, just singing and laughing with the windows down. Fun, fun!!
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Hi girls,
Although I never thought I'd be here....I'm glad I found you. Everyonr here is si positive, but I'm still struggling with all the life changes happening all at once. I'm 34 and single. A few weeks ago I was getting ready for my European vacation. Now I'm trying to decide if I want to preserve eggs in case I want children someday. So over whelmed. Still doing a lot of crying. But I think it gets better. I hope
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Tpolychron, so sorry you have to be here, but glad you found the BCO website for support. It IS hard - all of it. There's the shock and devastation from the diagnosis, and the decisions that must be made regarding treatment and our future... I was diagnosed in March and still have moments of breaking down. For me, I try and rely on God's strength and love to pull me through those dark times. Oh, and a good anti-anxiety can help too! (do you have one? Now is the time to ask your onco for a prescription.)
I am married and just finished fertility preservation (we now have eight frozen embryos). We made this choice because for us, we did not ever want to have any regrets. And I am SO glad we did this. Going through fertility treatment during cancer treatment was tough, but it is done and that brings me great peace.
I don't mean to be presumptuous, but have you looked into seeing a therapist? I see one and honestly, I don't know what I would do without it. I encourage you to find one who treats cancer patients - you can ask you medical team for a reference.
Now is the time to ask yourself what is really important to you - for the long haul. And be patient with yourself. You are allowed to be devastated, to cry and fall apart. That is normal. Just make sure you are doing the things hat will pull you through the dark times. Hugs and love to you.0 -
Thank you Esmeralda. I have decided to preserve my eggs. It's going to delay my chemo one week, but it's a risk I feel I need to take. I know God has a plan for me, it's just clear to me yet.
I lost my dad to cancer six months ago and started seeing a counselor then. Thankfully I've built that relationship so I plan on continuing with him.
Also going to get my long curly hair cut short so I don't have to wake up to clumps on my pillow or in the shower.
It's like I'm trying to control everything I can, in a totally uncontrollable situation. I really am thankful I found this thread though. I don't feel so alone.0 -
I haven't really been around a lot...
Radioactivegirl, yes, I'm doing chemo first so I'll be able to have a lumpectomy instead of mastectomy. My MO told me she would recommend exactly the same chemo regimen if I decided to have mastectomy then chemo, so I figured doing chemo first couldn't hurt. It also makes me confident to feel like it's actually WORKING instead of just guessing.
For whatever reason, mastectomy scares me far more than radiation treatment does.
ksmatthews..... Congrats!
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I am new to this... I wish I found this months ago.
I was actually diagnosed while pregnant in October and had another toddler at home. I am very blessed to have an amazing support system but it was hard not being able to talk to someone that was in the same situation. I did chemo first as well Cottontail, it shrunk my tumor a lot and made surgery much easier!! I just finished radiation and am starting hormone therapy today.
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Welcome Emily. I hope hormone therapy goes smoothly for you...I will be starting that part of the journey in August. Let us know how it goes.
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Hello ladies... I just finished ACT dose dense chemo 3 weeks ago. For the past 4 days I have what I can describe as menstrual cramps. But my anxiety since my diagnosis leads me to believe other terrible things are brewing in my body. I have not had my period since April, so I dont think its menstrual cramps. Anyone experience anything similar to this?
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Hi Jennifer
I had that and still do sometimes. For me after chemo is was my body just being effected by the chemo. Keep in mind that all your cells are killed and have to regrow. I am now having them because I am taking metformin and it can help to bring your period back. So I get them every so often. My general rule of thumb is that if it bothers me for 2 weeks then I make an appointment and get it checked out. Keep in mind your body has been through hell and needs to rebuild. If you're really anxious about it then call and see if you can get an appointment. Could you be constipated? Are you having an GI issues?
Wish I had the magic answer. Hang in there.
Meredith
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Thanks Meredith... I'm def not constipated (actually more regular than I've ever been. I have my herceptin appt on Friday and I had so much anxiety over this today that I called numerous times, so they set up a pelvic sonogram for me on Friday too. I guess its normal to think any pain is a possible cancer... (or am I nuts?!?!?) What is metformin?? Thanks for reaching out:-)
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No you're not nuts! I have called my team for the craziest things and every time I get a head ache or back ache or something my mind immediatly thinks "oh God, it's back". I hate that my mind goes there right away. I am glad you're getting it checked out. It will help put your mind at ease. Keep me posted on what you find out.
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Thanks for the support... I'll keep you posted
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Hi ladies!
I'm new to this forum and wish I would of found it sooner. I finished my chemo on April 1st and in 15 days going for my reconstruction. It's great to have others to talk to that know what we are facing.
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Jennifer, good that you are getting it checked out. It's probably nothing, just like Meredith said. The important thing is to try and keep breathing through the wait time.
Meredith, are you part of the Metformin clinical trial? I don't qualify, but I'm considering talking to my PCP about taking it for any possible BC advantage.0 -
Jen: Yes I am part of the clinical trial. I live in Canada so maybe the trial is a bit different then the one that you have there.
DC: I finished chemo on April 5th. I see my PS on August 13th. I don't know if I am ready to have reconstruction yet but I wanted to go and hear what they have to say.
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Glad to report that my pelvic sonogram came back clear, so my oncologist thinks my ovaries are waking up. I feel better, but still think crazy things in the back of my mind. I'm very thankful for the good news
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Hi ladies, just found this thread, I was so concentrated on researching on treatments, now that I've found it, I'm glad I found you ladies. I'm 35 years old, married to my DH for 11 years in Sept and no kids, found IDC (below is my stat.) in Apr and went through NXBMX with 1 -step to implants in beginning of May and finally decided after weeks of research and soul searching, I've decided to do Tamoxifen, ovaries suppression by monthly injection and Herceptin without chemo with the blessing of my MO. I'm not from the US, I live in a small Caribbean country called Trinidad, so don't need to be in a trial for doing herceptin alone. Both my MO and Oncoplastic Surgeon believe strongly that herceptin will benefit me without chemo, I've changed my diet and eat mostly organic and cut down a lot on meat and started juicing and wheatgrass shots. Eating more alkaline rather acidic. Great to be here and I'll try to read the whole thread in a bit!
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Hi Ladies,
Just found this thread. So sorry to see so many of us on here at such a young age. I was diagnosed with Triple Neg BC 2 months ago at 32 years of age. I was also 20 weeks pregnant at the time. Will be 28 weeks on Monday. So far so good on the baby front. I am on 3 weekly doses of AC, had my third dose yesterday. Thankfully I haven't been sick on these and they are positive that I am responding well to the treatment. Once my 4th bout is done, I will meet my oncologist. Then I am looking at early delivery of baby (around wk 36-38), then onto 12 wks of Taxols (with surgery either before or during that) with 6 weeks rads and I am so hoping that in the New Year I will be told the news I pray for every single day, that this nightmare will be over and please God never return to me. I did smile when I read earlier posts about the looks of sympathy from older people in treatment with you, I get double that because I have a big 7 month pregnant belly that I can no longer hide. Hopefully those sympathetic looks come with a prayer to Our Lord.
much love to you all xxx
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Oh, mumtobe! So sorry you are here, but glad you found this thread. There are other threads too that you might want to check into like the triple negative thread.
It does seem especially unjust that anyone with young children, let alone pregnant, suffer through this difficult journey. I can only imagine the looks of sad sympathy you get with that big belly - when all you should be getting are joyful smiles! (Older women survivors are always sharing with me how "bad" they feel for me - and this makes me crazy! I know they mean well but really!)
It sounds like you are in great care and are well into treatment. Be good to yourself, patient and gentle with all the numerous emotions - its all normal. My prayers are with you and your baby for a complete recovery. ((((hugs))))0 -
Mumtobe...praying for you and the baby. Congrats and YOU WILL GET THROUGH THIS
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Hi Everyone :-),
I was diagnosed february 2011, my daughter is just about 9 months old the time of my diagnosis. I felt the lump when I pregnant, I consulted my family doctor and was assured it was nothing and could be related to pregnancy, I had to make sure so I can talked to my OBGY and she said yes your family dr. could be right. It was too late to prove that both of them are wrong. I was diagnosed stage 4 right away last year at the age of 32, cancer has spread to my liver and bones, innumerable tumors. I started the treatment right away, FEC for 6 rounds, went stable and had tamoxifen for few months, tumor is so aggressive I had to get treatment again. I had 6 rounds of Taxotere and I finished it last July. In one year I had to go through treatment twice, now I am waiting for the scan. I still work full time all through out this difficulties, I have stayed positive and will remain positive. It breaks my heart to know that there is so many of us young ladies having to go through this, hang on there, we need to fight this and be strong.
Sweetangel
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I'm so sorry you have to endure all of this...it's just not fair... None of it makes sense. Stay strong
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Sweetangel: Good luck with your next scan. You're right, it's hard to see so many of us young women here. I am glad we have each other though. Hang in there!!!
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Born...sorry to hear you are going through so much. I keep feeling sorry for myself and went to a support class yesterday and there was a twenty something there. So sad we have to go through this. Will be thinking and praying for you, and all of us. We can do this ladies.
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Thank you Born and Jen, yes glad that we have each other, Ive always felt hesitated to join a group as I always feel like I dont belong to any, the stage IV group mostly were not at my age, and some group are on early stage. I kind of not wanting to say anything to scare anyone because of me being young and at stage 4, its been so hard for me. I most of the time spent time browsing and reading but not writing. But I thought Id share mine so I can help someone who is going through this and they may realize that what they had is not bad at all compared to what I am going through.......all of us at one point will have to go through difficulties and pain, and we need to hold on and be strong...
prayers for all of us....
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sweetangel - you have touched me so; you sound so strong and postive - and inspirational. I hope through all of this, you have been able to enjoy good times with your daughter. Battling cancer while having little ones is so very hard. I have a 2 year old and a 4 year old, and also work full time (I'm 37 btw). While my diagnosis is different than yours for certain - I understand the struggles of juggling all these things. I see you have IDC. Have you checked out the IDC 2012 sisters thread? Granted I haven't seen any stage IV diagnoses on there - but there are some stage III and mets. And some women don't list theirs, so who knows - they could be stage IV. Whatever the case - it is a wonderful thread with wonderful women, and daily activity and postings. There is real communication and support there. If you haven't checked it out yet - maybe give it a try. Sending you all the best thoughts and prayers. Thank you for posting your story.
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Hi gals,
I am 35 and new to this thread.
Sweetangel: I have tears when I read your story... just like you said :hang on there, stay strong and positive. You will be fine!
We can win this battle girls!
xoxoxo
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Well I had another echo done last week and met with my oncologist yesterday. My ejection fraction is improving, but still below normal range so re-starting Herceptin is out of the question. I can only hope that I received enough to be effective. On a positive note, I can get my alien probe (aka chemo port) removed anytime now. I'll see my surgeon next month to schedule. Yay! Since I've had a bilateral mastectomy and cannot have mammo's my oncologist feels we should keep an eye on my tumor marker levels although we don't have a baseline to go by and the markers are controversial. I suppose its better than nothing, right?!
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