Australian Sisters
Comments
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Hi girls! I had a great lunch with Suzieq and her DD with loads of conversation! It was really lovely to see her again. Her grandson is an absolutely gorgeous little boy with the biggest smile! When we went to pick him up from day care he was still sleeping.......even though he was woken, he still had big smiles for everyone......so cute!
Mandy we'll all have to organise a get together one day while you are in Gawler. Give it a few weeks and we'll sort a day out.
Annette, I sure hope your mail arrives........there is nothing worse than knowing something is due to arrive and never does. Oops! Just went back and reread and notice that it has. Hope your mouth is healing well.
Aussie, so glad your fill went well and there is no pain just a little discomfort. Good luck on your return to work!
Aly I hope your chest is feeling a bit better after using the nebuliser and loosening up that rubbish. I can imagine whatnot looked like but it's a good thing that you got it loosened up and got rid of some. Take it easy and get better soon.
Melp congrats on the job interview.......hope it works out for you and you are happy with it.
Kylie so glad you are happy with your new onc and he's prepared to address all concerns........now that's got to make you feel good. Hope your DS mends quickly so the toddler can grow up again........lol
Trish hope you are feeling better and getting some energy to start the packing process.
Well, I now have a clear idea of what to do for the crocheted part of the dress........finally. Did a couple of trial pieces to show her and after some discussion on a few changes to what I had done we decided.........yay!
Take care all, I may not get a chance to pop in to or row but will definitely do so on Sunday.
Love n hugs. Chrissy0 -
Hi all
Mandymoo the drinks are Moccona 8 packs (sorry not 10 packs) "Frappe Latte" in a green box and "Frappe Mocha" in a purple packet, the packet says use water but I use milk. Very yummy. Woolworths have them half price at the moment.
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Melp27, it is always a big decision changing jobs and you need to listen to your instincts, good luck with the decision.
Great to hear that Jenn and Kylie are happy with their oncologists. This is such an important relationship to our on-going care and peace of mind.
Chrissy, I am always in awe of people who are make beautiful things like your dress, please pot some photos when appropriate...0 -
... Oops, that should have been "post" some photos lol!
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Suzieq, Maybe we will meet in Sydney??? Brisbane is such a long way from South Australia xoxox
Well I am on round 7 of Xeloda and first round of Gemzar. The previous 5 rounds of Xeloda, I have had abdominal cramping and diarrhoea. This round Is the same as the first round..... constipation even with Movicol. I went to the podiatrist yesterday and bought a pair of Ugg Boots on her advice. I will also have sheepskin under my feet in bed to try to preserve the skin on my feet. The podiatrist was happy with the creams that I use for my feet, so here goes, as the skin is starting to split and blister and peel, yuk. It is best to stay off the feet, but I need to keep moving to improve my DVT in my leg. Oh, I also need to keep moving so that my bones don't break????? especially my left hip and my right shoulder.
The side effects are tolerable and laughable, I think, and as long as the drugs are doing their job, that is the main thing.
"Don't give in to the disease" Dr Phil McGraw
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Aussie, I am going to Woolworths today and I will use water, reluctantly, coz I am taking notice of the latest research regarding whole milk including yoghurt. I am Dutch and I love my milk products and I have stopped most milk products in the past couple of weeks. Having severe withdrawal symptoms, but, if that keeps the monster at bay, then so be it. xxx
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Is anyone running in the Mother's Day Classic on May 12? I've signed up for the 4K run in Sydney.
I've never been a runner but I started following the "Couch to 5K" app about 6 weeks ago, on the day after I finished my rads, and so far so good. As I'll be fund raising for breast cancer research I thought this would be a good goal.
I just hope I don't get emotional on the day of the run! I'm usually a very calm, rational person (a bit boring really!) but now I'm on Tamoxifen anything could happen
I started tearing-up the other day just reading about "Field of Women 2013"!0 -
Tammy, wow!!! You go girl!!!! I would love to do it, maybe next year when the bone mets settle down. I used to jog until I came down with cancer back in 2006, but still walk a lot. I will be thinking of you on that day and thank you, for participating in the run, it will mean so much for us!!!! I hope you raise lots of funds too. xoxox
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Mandymoo, some time ago I saw some foam wedges that you can use under the calves while in bed to keep heels off the bed completely. Maybe something like that could be useful?
Can you tell us more about the whole milk research? Thanks0 -
Tammy, thank you. That's a thought. I will get hubby to organise that. I used to work in Aged care until last November, so I know what you mean. Chemo brain stops me from remembering these things.
Cheers
Mandy
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Mandy - I won't be coming to Sydney - hopefully I'll be winging my way to NZ then. Uncle and Aunt 60th wedding anniversary.
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Tammy, sorry I didnt see your question about high fat milk and their products. It is under the forum for day to day matters, clinical trials, research etc dated 19 March and also under "Breaking News" a couple of weeks ago. Let me know if you have any problems accessing this information as I can PM you and send you the links.
Suzie, wow, you certainly get around. Enjoy NZ, I am sure that we will meet another time.
Cheers
Mandy xoxox
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Tammy, I have a surgery on May 8, so no jogging for me for a while :-)
I am signing up for the Field of Women though so maybe we can organise to meet up for that!
Jenn0 -
im supposed to make a decision on this tommorow. Im thinking of saying a trial period of three days per week for two months to see how it all goes. if he's not willing to do that im turning it down. I need to know i can handle the workload and that i can work well with the manager and other staff. I really want to stay on some sort of part benefit to keep my healthcare card so i dont have to pay full price for my medications.
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Sounds like a great plan Melp27. I agree that your healthcare card is important for your medications amongst other things as well. Good luck
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yeah i will say i have had health issues so thats why i would like to trial the position for that time and then see how him and i feel after the time has passed. if hes not willing to do that then hes not the kind of boss i would like to work with.
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Melp27, good luck with the negotiation tomorrow!
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Mandymoo, I found the article on full fat milk... thanks
Jenn, I would have loved to catch up at Field of Women but I hope to be enjoying the sunshine in Italy at that time....0 -
Thinking of you today, Melp27.
Your health is most important. xoxox0 -
Hi Girls, well i am exhausticated. well at least my feet are very sore, but better than last night, we spent the day shearing the Alpacas and four Lama's. they look like deer when they shawn. one of them gave birth about ten mins after she was shawn, we did not know she was pregnant, see this little crea laying down the track.she white, but bub is dark brown. they very cute little alpacas.
One of the alpacas decided to get snakey as hubby had hold of it and he dragged hubby a long the ground, and pinned him down with alpaca on top of him. i wondering if hubby was going be with me, it was very frightening actually, i had my phone out to call the ambulance, he had very sore shoulders and big grazes and is mainly sore under arm on right side. I got one of the boys to pull it off and then the other turned up as they were taking these other two down for shearing. we employed two students from university to help, and they were good, more one than the other, one was young and would stand off and let the other one do it, but hey he was ok too and we would of been still there doing them. well would of been a two day job instead of the one day. the fleece of alpaca is soft, the llama is abit more corser. very different to sheep and worth a heap, we put each alppacas fleece into its own black bag actually rubbish bags and it should be worth alot, some had two bags, some not. I felt sorry for them as it turned out to be cold nigh and today its fine rain, so we were lucky to get them done.
Melp i hope it all goes well about the job and it works out even better than you expect., well i need to clean up and do the dishes as we had fish nchips last night and went to bed, both of us were feeling the whole day. Gosh i don't know how i do it, i think its determination from within me, as physically i would not be able to carry on, as hubby says, brute force and ignorance. you gotta do it, so you do it. anyway i will go and clean my house. clean birds water, i dont know why they poo in the drinking water and it stinks. little pigs. catch you later.
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rang the manager and left a message on his messagebank as he didnt answer the phone. apparently the tavern is open late tonight...
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I hope it goes well Mel. x
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Midnight, I am amazed at what you do!!!! I just get tired thinking about what you do and I certainly dont know where you get your energy from. I hope your hubby is Ok and not too sore and happy that the 2 students did a good job. What wonderful news about a baby Alpaca, especially seeing you didnt even know that she was pregnant. I hope they are both doing well. Your stories are priceless!!!!
Melp, I hope you have heard about your job by now, otherwise, it was not meant to be.
Cheers
Mandy xxx
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Hi Girls, Hubby is still feeling the affects from being dragged a long the ground by that alpaca, he is sore in chest and today has to a truck run as the one normally doing it is sick. he was in a snot all week as they put him on a shorter run due to the fact he had been off all week before with an injured knee and went out in a huff on friday as hubby could not tell him whether he was going to be on same run, he wants to go back to his other one, so he stormed out in a big huff,was very snappy all week, so he is not doing any favours for him self with the attitude and wanting his own way, it was to give his knee time to heal as the boys did not want him driving a long way in a huge truck, they wanted him around base, so if it did play up, he would be close to his doctor, he can't see that, the run is less money, but was only tempory.
I have Hospital apointments this week that hubby wanted to be at, and that maybe not the case unfortuately, the nuerologist, which i can do ok on my own, but the thyroid clinic, would love him to be there, but if he can't, he can't. Actually really pisses me off if that happens. oh well. I think it is abit of reteleation( Exuse the spelling) actually, but could be inocent. I will go and have some brecky i guess. take care.
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Hello girls
I'm still here, and slowly getting better. Today is the first day I've started to feel human again lol. This cold virus has been the pits.
Haven't actually started packing yet, but have been going through paperwork in the filing cabinet. I have over 11 years worth of bank statements, credit card statements and all the crap you can think of. So decided it needed to be cleaned out first - no point in packing up crap that isn't needed lol.
Annette - you amaze me, I don't have the energy to do what you do!
Melp - I'm holding my breath to see if you will have a new job or not :-)
Mandy - I'm in awe of you too - all you girls with stage IV, I'm sure I'd be a blubbering mess and unable to get on with life. My thoughts are with you all.
Aly - hope you are feeling better?
Kylie - keep us posted, thinking of you too xoxo
I guess I'd better go do some work, I've been away so much, there's a lot to catch up on.
Love to you all
Trish
xoxo
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Anything on the job front yet Melp, we are all eagar to find out how you went.
Trish, i don't know how keep going, but i do suffer afterwards. takes me days to recover. But i pushed myself sat to get those Alpacas done and i was only doing the gate after the boys caught them and helped them to bag the fleece up. they did most of running around. every bone in my body ached yesterday and not much better today. But i am getting by.
Well i will go and feed my bunnies now, have a good rest of day ladies.
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Midnight, good luck with your appointments this week. I think it would be nice if hubby could be around, although I know that may not be practible. I still think that you need someone with you as I get the impression, that the medical profession is not looking after you properly. Oh, well, I hope they prove me wrong this time and they can treat you and make you feel better.
Trisha-Anne, nice to hear that you are slowly on the mend, and I know that you will be busy with your packing. My thoughts are with you, because you will need to pace yourself in order to get better. Stress and physical excercise are not good for your cold virus. Try to rest as much as you can (haha, just wishful thinking).
I can only speak for myself, as we are all different, but with being diagnosed with Mets, was initially a shock, but I just said to myself, that I have no symptoms and I feel quite healthy, (except for the side effects from Xeloda but that is tolerable). Having mets, I have found that I have so much inner strength that I never knew that I had before. ( I always thought that I would become a blubbering mess, too). I don't know what it would be like if I had symptoms or felt unwell, but right now, all I want to do is fight because it must be so hard for my husband and others close to me. It is a different feeling from when you have completed all your treatment and you are placed on 6 or 12 monthly checkups. I used to think to myself, "what now?? I am scared that the cancer will come back, how do I know? Shouldnt there be more support after treatment has been completed??? So my thoughts and prayers are with those who have had their operations, finished chemo and radiotherapy and just have to continue with their lives and sit and wait. That period was more stressfull for me. I now see my oncologist every 3 weeks , and I just have to phone the hospital up if anything different pops up and they know immediately who I am and respond immediately. My GP greets me with a hug every time I see her. I now feel like people are looking after me, whereas previously, I felt lost and alone and anxious. My two cents worth.
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Aussie12, I tried the Moccona Frappe Mocha today, and I was DELICIOUS!!! I am converted. I used hot water and just a little bit of milk, Yummy. Thank you for that xoxox. Also, I will be thinking of you this week for your next expander. I hope all goes well.
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Well said Mandy. I agree wholeheartedly.
Hi ladies, I am HOME. I am in a wheelchair and use a walker for short distances. My pain medications could sell for a fortune on the streets, but I am back with my family.
Reading Trish's post, I actually wanted to respond that I am very grateful that we have a group of early stage/recovering/true survivors here, who are happy for stge 4 girls to chat with them. Too often, groups of survivors are run, and stage 4 girls are not made welcome, or specifically excluded. It's true! I can understand. The last thing that women seeking reassurance after a bout of cancer would want, is reminders of what still might be their fate. It probably won't be but they are scared and alone enough. Hence the support group.
I have chatted on other boards, all stage 4, and seek my information there, but this Aussie group gives me support. Even if you don't know it.
So much for me staying away I enjoy reading what everyone is up to, and sharing what is happening to me as and when I need to, to a group of ladies who don't need to have it (stage 4) to "get it".
Husband has cooked fish for dinner so I'm off now.
Cheers
Angela0 -
Angela so pleased you are home, its the best place really.
I believe that we are in this together and most are realistic about the future. Problem with some threads seem to be the non stage 4 girls making very silly comments or judgements.
Had a quiet day, just wish this chest would clear up.
big hugs to all
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