Australian Sisters
Comments
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Karen, you just stop worrying now you hear me?! Losing that much weight is not good so eat up. In all seriousness, I know you desperately want to be here for a long time but worrying over it is not going to help achieve it.......staying as healthy as possible is and losing that amount of weight on a small frame is drastic.......not good!
I saw your Jag on FB.........Wow!!! That's some car! Enjoy every minute that you are in it.
Keeping my fingers and everything else crossed that your scans are good.
I'm improving slowly, still walking into walls, cupboards, doors and people but managing to cook a meal now so that's good and not so much nausea which is even better. The deafness is not easing up and I'm finding if I sleep on the other side at night I can no longer hear DH's snoring.........now that is a bonus I never expected!......lol.
Love n hugs. Chrissy0 -
Karen, you will be fine and i know we are not going thru what you are, but try not to worry, eat up a storm and enjoy the new car. what colour is it. we will be holding your cyber hand with all our fingers crossed.
Chrissy, your symptoms sound alot like what used to get with my meneires , could only sleep on left side as i would throw up. deafness, could not walk without holding onto ther walls. The docs told me that stress does cause it, but can trigger it off, i was just thinking that yr DD wedding and the months you spent getting things done, would of been enough to set me off,t he stress would be.not the wedding, but the determination to get everything done and perfect, the feeling of i must have this done and finished by then and then itd the next job., not the job it self, but the inner panic, if you get my drift. would really trigger an attack of meneires off. i used to take travel sick pills, when the feeling of vertigo came on and it would clear my head in 30 mins. i would take two at the on set and then one six houry, they are hard on the guts, so would use them sparingly. Just a though,t you may want to google it. it just sounded so familar.
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Annette thanks for that! I never thought of Menieres but I will certainly check it out. My doc has prescribed Stemetil for the nausea which is pretty good. Each day that nausea is getting better it's only when I move or turn too fast that I'm likely to fall.....lol.......so guess what? yeah, I don't do that.......hahahaha!
Love n hugs. Chrissy0 -
Chrissy, that was one i got, stemitil and marzine,which helped me and the problem with the dam thing, you would be fine one minute and then it would come on, but i wised up and took the pills with the hint of that fullness on my left side ear, was about to get to something and it would kill it and i used to have to reduce my salt as i ended up at a ent specalist and he said, the sallt helps to retain the fluid which is a build up in the ear too.
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I use very little salt as well as I'm on fluid pills for my BP so fluid build up is not really a great problem. I have got a hellish sore neck and there is a couple of nodes up but I'm going with virus that is causing this. As you say I was a bit stressed to get everything done and perfect......I am a perfectionist to my own detriment sometimes......and I think I just got really run down as I really didn't rest much.......bad girl!......so I guess I'm making up for it now as it is enforced rest. At least the symptoms are starting to lift and that is a very good thing!
Love n hugs. Chrissy0 -
thats good Chrissy, am glad you are. I will be glad to get rid of cough, i have been going the nickers as i keep wetting them. going to do washing tommorrow. you get a bad coughing bout and everything wants to go, cafarting as well. (cafarting= coughing and farting same time) lol. sometimes i cough that much, just about loose insides. anyway, dishes and floor wash time.
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Lol Annette.......I can totally relate to the cafarting! Thank goodness there is a good supply of knickers in the drawer!0 -
All the best Kazzie61-praying for you!!! Enjoy your jag and your grandson. Day 5 of tx#2 and trying to remember to hydrate...
Hoping for the best news for you...
Viji0 -
Viji I hope your treatments are being reasonably kind to you and yes........hydrate, hydrate, hydrate........even if it's a sip at a time just keep sipping......you will be amazed at just how much water you can take in that way.
Love n hugs. Chrissy0 -
Thank you very much Chrissyb, had a rest today and the fog is clearing a bit.
All the best to you too.
Viji0 -
Karen...fingers crossed and (((hugs)))....0 -
Hi all
Annette your so funny, carfarting , I know exactly what you mean.
Someone might be able to help me with my problem, only a small one but my fingernails keep splitting and breaking all the time even though there short. I'm not sure what could be causing it, I take Tamoxifen, not sure if it's that or not.
Hope you all have a good weekend.
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Sheila, I hope you are ok, such a blow to have progression, am thinking of you and hope you do well with the infusions. Karen, I wish you all the very best with your scans, it's worrying at this stage in the game. Chrissy, gosh you must be so run down after the wedding preparations, it's making everything linger. I was a bit stressed as have not long finished abraxane and started afinitor for the last 35 odd days and my tumor markers have doubled as well as kidney test risen. having a ct in the next 3 weeks to see what's going on and onc said if progression I will be straight back on chemo. Was really worried till a kind lady on the forum told me she had the same treatment and was a tumor flare and things were actually healing, so I'm holding onto that thought so I can sleep at night lol. I feel really contented tonight, I went to opera in the park tonight with a girlfriend and it was wonderful. Full moon, wine and cheese and fabulous music, that's when life is wonderful. Now watching dirty dancing in bed, what more could a single woman want but to check out Patrick Swazys body, yummy!!! Love to all Gail0 -
Gail, I have heard quite a few times where markers have risen markedly when a change of treatment occurs and yes, it is usually what they call tumor flare.......it comes from the release of a lot of dead tumor cells and the blood test can't tell the difference......it just recognizes a lot more cells in the blood.
I love that movie! Oh yeah he was one hot, hot man! Oh yeah!!!.....hey! I'm old not dead!
Enjoy! and let us know the outcome of your scans should they be required.
Love n hugs. Chrissy0 -
Karen, ((((hugs)))) of course you are desperate to be around as long as possible, that's so normal to feel like that. I know too that we are the only ones that you can talk to about your fears and worries. You don't want to burden your family with your terror. We are hear to listen to you, but Chrissy is right, worrying about it won't change anything. Live your life to the fullest and make memories for your family, enjoy yourself like there's no tomorrow, you have complete freedom to do that, in fact you have the licence to do that.
You won't be able to stop the fear, no-one would be able to do that, but when it happens, acknowledge it, give it a nod, then put it in a box. Your family want to remember the joyful, happy you. We are here to support you through the crappy times and feelings and help you go back out and enjoy your family.
Life gives us some pretty tough things to deal with, but nothing we do will change what's out of our hands, unfortunately, we have to learn to move on to the next thing.
You have my love and admiration - you are one amazing lady.
Trish
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Gail, keeping you in my thoughts too. I'm hoping everything going on with you is just dead tumour cells to (((hugs)))
Chrissy, you poor thing, at least it sounds like things are starting to ease for you. Take your time and rest and get better ((((hugs))))
Annette - cafarting lol. I must admit that's not my problem, I'll have to add to the vocabulary - caweeing!! I cough (or sneeze) and wet myself, too many times :-)
Well yesterday was a biggie for me, two weddings in one day. The first was a very small morning garden wedding for a couple who are my age, and the second a large Italian wedding. I was on the go from 9.30am to 9.00pm. I thought I wouldn't be able to move this morning, but I haven't pulled up too bad. Around 5.00 yesterday afternoon my back felt like it was about to break in two, but there's almost no pain in it at all today, go figure!
So now there's lots of processing to do and cleaning the house. Baby Finn was not happy about being left alone for so long(DH was the videographer) so the back deck looks like the garden has been transplanted onto it lol.
Trish
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Great advice ladies, thank you for being such a caring lot...I really gain so much from being part of this group. Take care everyone.
Viji0 -
Wow....a lot of posting since yesterday after such a quiet time.
Thanks girls for all your kind wishes & 'motherly' advice!! I know worrying doesn't help but not worrying is easier said than done.... I will go in to radiation tomorrow afternoon - scans are in the morning - & get a copy of the report.....I just can't stand not knowing, even if it's bad news & there's no way I can wait til Thursday for the report!!!
My car is a deep red & I can't post pics from my IPad.....so, if lovely Chrissy would get them off Facebook & post them on here I cold show it off to you all....lol. Thanks in anticipation Chrissy xx
Viji....yes, hydration is very important. My chemo (Xeloda) has me constantly dehydrated & I have to have a drink with my 100% of the time.....some nights I can drink 3 water bottles when I should be asleep,
Gail....good luck with your scans too, hopefully your friend is right & all will be good! The longer you can stay off the chemo train the better.....obviously!! (((Hugs)))
Annette....as always you make me laugh
I do hope you're better very soon. How is hubby?
Chrissy....it does sound like you possibly did run yourself into the ground with all the running around & organising you've been doing. Time to take your own advice & take it easy....:) (((hugs)))
Trish....thanks for your lovely words xx Sounds like your photography business is really taking off....great news. Be sure to give baby Finn lots of attention & cuddles today.
Aussie....my chemo causes awful hand & foot problems & I find regular mani & pedi's to be helpful. I look out for specials around the place & take advantage of them. In fact, I'm having a half price mani & pedi on Wednesday!!
Well nice to hear from everyone again.....I missed you all. Enjoy the rest of the weekend.
(((Hugs)))
Karen xxx0 -
For Karen
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WOOHOO, Karen, what a little number ur car is, she is a stunner. bet you enjoy driving her too. she is a beauty.
Hubby had scan thursday for down below, the left side of the scrotum is very firm with the fhid and there is also some on the right side, they kept talking about mesuring it, do they measure the fluid or are they talking about something there that should not be that they are measuring, like a tumou.r. they used to be able to shine a torch to it and they would see the fluid. now they cant as it is quite dark. they talk among themselves about you or hubby as it was and we dont know what the hell they are talking about, you ask them and all you get told is the report will be ready in three weeks.. then its the wait......
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Oh Annette that is so worrying! Do you know if they took a sample of the fluid for testing? It's awful when you get test then have to wait for results from the doc.......a real nerve racking time. Keeping my fingers crossed that what ever it is it is something not dangerous.
Trish your back ache from yesterday could have been from tension......sometimes when we are busy doing things we are as tense as a bow string but don''t realize it until later....glad you have pulled up ok today. Sounds like your Photography business is starting to fly.....yay!!!!
I'm taking it easy girls, I really am........DH has been bringing me some boxes of old paperwork that needs to be gone through and I just sit and sort. It is mainly old business records that can now be burnt but there are a few personal things amoungst it so that is the reason I need to sort. The virtigo is lessening each day and for that I'm very happy.......the nausea is finally gone unless I turn too quick or too many times. I still float but it's not nearly as bad as it was but the deafness has not lifted at all. The last time this happened was when I had my knee replaced last year and then it took a good couple of months before it came back......but not totally. I'm hoping this little lot will not leave me with more damage......sigh! I will admit though that sleeping with deaf ear up lends itself to a very peaceful, uninterupted sleep as I can't even hear DH snore.........lol.
Have a good afternoon all!
Love n hugs. Chrissy0 -
Annette, sorry to hear you and your DH have more worries....hoping all goes well.....
Karen, love the car...deep red is my favourite car colour....
Best wishes to everyone else...0 -
thanks girls. no Chrissy they did not take a sample of the fluid, i thought they should of, it was an ultra sound scan, maybe if they think there is some reason to do a biopsy, they will do one after the results are through. he will be going in to have it operated on and the fluid drained off. so what ever happens after that. don't know. he will feel better and less self consious, esp with summer. its quite embarrassing for him to wear shorts. will be glad for him. he was slowly coming to the idea that he should be getting it checked,but when he burnt down there, the choice was made for him, they jumped almost into action but could not do much til burns healed,.he will be on bed rest for some time til that is healed, its a one day admittance, then home, hoping its after trucks finished as it will be alot easier, if BIL only got one to handle and no drivers to worry over. so DH can rest better. anyway have a good night girls.
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Morning all
Lots of hugs needed obvious. Big hugs Karen we are hear to listen to you. Chrissy pleased things are improving. Annette keep asking what is going on - its your right to know. Trisha hope you can move today. Big hugs to everyone.
Hope you had a good Sunday. Ours had a funny twist. While I was doing the Bible reading in church I saw a man enter, slightly oddly dressed for church. Realised he had blood streaming down his face. Some one went out to see what another person who appeared wanted. Man moved up the front behind where out minister was sitting. We had a video clip being shown at that time. I went and asked minister if he had seen person behind him, he didn't realise about the blood so told me to ask. I went and sat with the man and talked to him. He said he had had a theological difference of opinion with somebody. Do you want me to clean your face I ask. No but could I have some tissues to stop it getting on my shirt. OK I say and go out. Find out from J.. who had gone out earlier told me that the police where on the way because the man had been over at the church across the road and had caused a disturbance in their service. The man had said he was a Scottish Presbyterian and that was why he had come to us, great I had thought you won't like our theology then because we are one of the liberal/progressive parishes of the city. I went outside to see the police appearing over the road. Told J to make sure man doesn't leave and go and meet the police who tell me he had actually assaulted the Bishop - it is an Anglican Church over the road. Man appears. Good morning gentlemen he says holding his hand out to shake the officers hand I am ......... Guess what, I totally missed the sermon and every one was wondering what was going on. Anyway police took him away. I would think the man had some sort of mental illness. We get all sorts coming into our church even during services as we are in the city.
So that's my muddled story of Sunday. Went out for lunch and a drive then home to do some more genealogy - I research, DH writes up.
Had better get dressed as I have to go up the road for a blood test - have a CT scan tomorrow.0 -
Bloody cancer. My great nephew aged 18 has lymphoma.0 -
(I am not an Australian Sister, but my paternal grandfather was born/raised there, and I have relatives there, so just popping in for a second)......
Hi Alyson, Just noticed you post about the intruder in your church who had assaulted the Anglican Bishop at the other church. OMG that had to have been so scary to see him entering your church with blood running down his head...yikes. Was enough of a shocker, then just read that your nephew has lymphoma, and I wanted to let you know how sorry I am to hear that. I will add him to my prayers if that is ok with you. And hugs for you (((Alyson))).
Hi Chrissy and everyone else here! Love your country, didn't read the other posts, just know Alyson from another thread and saw she had posted here. Hope no one is affected by those horrible fires.
Kathy0 -
Alyson, sorry to hear that but I have heard good outcome stories nowadays with modern treatment so all the best.
Wahine, I live in Sydney and it is really smoky this morning even though the fire is about an hour away...lots of houses lost. Sad to watch on t.v. Hope we have some rain soon.
Viji0 -
Vijii, My cousin in Sydney (St. Ives) said that the air has cinder particles in it too, and her eyes were sore.I can only imagine all that smoke you are having!I hate all those homes lost, and they also said a man died trying to save his home. Sad to see all that forest burning up too. Last time we were in Brisbane and Sydney, Brisbane had those awful floods a short time after we left, and Syndey had that red dust (I think it was red dirt?). The pics they showed here of Sydney showed the air all red, and I guess it prolly came into your homes too? You live in a beautiful country!!!0 -
Yes you are right wahine, I love that I live here and call it home for the past 15 years. I think these fires are part of the personality of this country, again and again people fight, cope, rebuild and move on...The weather has been really hot and dry and we have had some very windy days which haven't helped. Brave men and women fighting it out there and we fight on the inside. The heat is so not helping me cope with chemo!
Nice chatting with you about something apart from BC... have a nice day...
Viji0 -
Alyson, sorry to hear about yr nephew. yea bloody cancer is right, hope they do wonders for him. you sure had an eventful sunday alright. you can't choose who is going to come ro church or when they come and you get a person who is agressive, can be a little scarey.. anyway i am tired, just been back to gym today, going to have a rest and a bite to eat first.
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