Australian Sisters
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Hi everyone. Yes it's me. Kate. I know I have been M.I.A. for a while. Sort of geting on with life. But I did still keep up with you all, both on here and FB. Keeping tabs on all the goings on. Well, I have some bad news. And I hate being like this, but after a good talking too from Trisha (XXX) I guess I should not be a stranger and let you know, that after a bone scan and Cat Scan, I have mets to spine, hip, ribs and also to lungs. There you go. I am reeling from this. I was always told that my cancer was so tiny and caught early. So I guess I just went with that and thought it was all over and done with. preventative measures only. Seems the little suckers had other ideas for me. I don't know yet what the treatment or anything else is. I see my Onc on Monday so I guess I will know more then. At the moment, I am reeling from how something so little and not to worry about has invaded my body.Maybe I was just plain ignorant, or it was my usual half glass full attigude. No matter. I can't figure it out now. I will let you know what is going to happen after I know on Monday.
Love to everyone.
Kate0 -
Oh Kate........I'm am so saddened to hear this news. Never forget that we are all here for you. I can imagine how you are feeling but don't get too down, there are still things to be done and you can still have a good life even with the dreaded mets.
Hopefully your treatment will knock those little buggers back and keep them there for a long time.
Love n hugs. Chrissy0 -
Thanks Chrissy. And thanks for all your support over the past few weeks. I feel like I am about to step into an abyss. But I also know that many people have been there too and are still here, so that is what I am hanging onto at the momtent.
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Kate, I've been thinking of you. I'm deeply sorry to hear this news on top of everything else you've been going through lately.
Chrissy is very wise so take notice of her.
I hope you are getting the best care possible. There is hope.
I will pray for you, Racy xxx.
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Kate, very sorry to read your news...take care0 -
Oh my god Kate - this is total crap - are we never safe? I'm so sorry. I just can't believe this.
We are all here for you ((((((((((((((((((((((((((((((((BIG HUGS))))))))))))))))))))))))))))))))
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Kate!
With being triple+ there are likely many good options for treatment to keep the cancer down for a long long time. Let us know when you have your plan and visit the Stage IV threads to see that many women, like Chrissy are not only surviving but living their lives with this.
Jenn0 -
Kate big hugs. We are all here for you so come and chat any time you need to.0 -
Kate, hugs and prayers. Hang in there... this is the reality for all of us.0 -
Kate, I am so very sorry to hear this terrible news. My thoughts and prayers are with you and I am sure that your oncologist will find the right treatment for you. ((((hugs))))
Mandy xxxxx0 -
Oh Kate.....I am so very sad to read your news. When I was first diagnosed 18 months ago, I didn't eat or sleep for days.....I had a really hard time coming to terms with it (I do still have some pretty shitty days), but you do learn to live with it.
Once you have a plan in place you will feel a little more in control & will come to appreciate so much in life.
As Jenn said, being triple pos you have so many options for treatment so fingers crossed you find one that works for you.
Don't listen to stats......I was given 6 to 12 months & I'm still going strong 18 months later, living a full life & I feel fantastic......with the help of a drug or 2....lol
Big (((((()hugs)))))) to you Kate, deep breaths & one step at a time xxx
If you're up in Perth & feel like a cuppa & a chat just let me know & I'll be there.
(((Hugs)))
Karen xxx0 -
Kate, I have been thinking of you often. Please remember you are loved by us all.x
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Kate, i am saddenend very much about your news, another name on mums special prayer list. But really this sucks big time, as mentioned by others, we are all here for you. xtra xtra hugs.
they say get it it small and you are much better off for not getting mets. and the mets have to be already there to get them, already planted. so are we really better off and are we safe if it small, as mine was tiny and already a grade 3, which i must ask, i got a copy of the letter sent to the gyny's, and the breast cancer was called a Ti-NO-MO infilerating carcinoma, what the heck is TI-NO-M0 , i know the second word stands for invasive, but the ti-no-mo word?
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Hi everyone - it's been yonks since I posted here, I apologise for being away so long. It wasn't for lack of thinking of you all, just a general lack of any time to do it. Have been totally embroiled in packing up our townhouse in Colorado, selling it and getting our new lives started here in Perth. Plus we have a new grandchild in the Czech Republic, a girl named Victoria and she's a delight. We went to visit her and her mum and dad (our son) when we left Colorado.
Hubby and I found a nice house in Canning Vale to rent, close to his job, and we've just moved in. The transition from life in the US to life here has been rough but since this is the 3rd time we've done it, the learning curve wasn't as hard as the first time! At least this time we already have a network of friends here and that always makes it easier.
I just read Kate's news and felt like someone hit me in the stomach. Having said that, Kate, this support group loves you and will support you with whatever you need. I know a few women who have come back from metastasized breast cancer and are doing fine now. I would be more than willing to meet with you to chat about it. Only problem is I have no car at the moment!
I agree with Karen - don't listen to the stats and doom-sayers. They don't know YOU and your personal strength. Sending thoughts and prayers and love your way today Kate.0 -
Kate, Im so very sorry to hear this crappy news. We might not chat often, but in the ways that count I consider you and the women here as real sisters, certainly of the heart. I hope you can feel the love and hugs Im sending to you and that you know if you want to chat - whether its cancer related or not, Im here for you.
I hope you can get thru the weekend without stressing and that the meeting with the onc gives you a plan of action that you can be happy with.
Im feeling devastated for you right now hun. Also so bloody angry that this has happened to you. (insert expletive) cancer!!
Take care and please let us know how you get on. Love, hugs and my thoughts are all with you.0 -
Hi all
Kate I'm so sorry to hear your bad news, hopefully with the right drugs they can get it under control.
Marnie welcome back to Western Australia I had wondered if you where on your way back here, I live in Ellenbrook.
I just got an appointment on the 18th November to see the Plastic Surgeon again, outpatients clinic. I don't know why I just can't get my surgery date unless I have to see the surgeon again so he can rebook me !!!
I've still had a bit of an upset stomach, I spoke to a chemist and she said I'm best to see the Doctor if it gets worse again as she thinks it's not the stomach or a virus. It hasn't been as bad today.
Hope that everyone has a good weekend.
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Kate, my love, I'm so glad you came to us for support xox we are all sisters here and will be with you every step of the way. There are no words for how I'm feeling, and certainly none that can be printed. Still sending you (((((hugs))))
Trish
xox0 -
Marnie I was only wondering last week how your move had gone. Welcome back to Oz!
Trish
xox0 -
Dearest Kate....I do hope you're holding up ok.....Monday must seem like a lifetime away xx
Marnie....welcome to Perth!! You, me & Aussie (& Kate if she's in town) should have a catch up. We are scattered pretty well all over the place.....I'm in Iluka, you in Canningvale & Aussie in Ellenbrook. Kate is in Bunbury..
I've been very unwell since yesterday morning, woke up with nausea (nothing unusual) & gradually started to feel 'weird' & very weak & my temp went up to 38.8! Between the onc & my GP they had me blood tested & on antibiotics & I have pretty much slept since 12.00 o'clock yesterday....& will probably go back to bed shortly....or maybe just lie on the couch! I feel really weak but I'll be ok in a day or 2 but it scares the bejesus out of you when you have Mets!!!
Have a lovely weekend girls & you hang in there Kate.....I hope you have some meds from your GP to help keep you calm xxxx
(((Hugs)))
Karen xxx0 -
Hi Girls, Karen you poor love. hope this will be over soon and you feel better in no time and try not to worry, yea, easy said than done, i know.
Kate, thinking about you. lots of big hugs, will be anxious to hear how it goes monday. keep us posted. xx
hey girls, if you want to whip over to new zealand site and read musicals article, well link she got how air nz gave this poor women the brush off about her BC. Bc has become a happy disease because of all the catch it early and your cured, even some medical pros dont think its a big deal, read KT post, a nurse apparently said that. to her or somwbody, she nurses heaps of BC ladies, its no big deal, BC. well thats until they get it. they don't know what is ahead of them. I would never wish Bc on anyone, not even an enemy, but there are A FEW bALLOONS that will get popped one day, i hate to say.
Marnie. A BIG WELCOME, lovely to see you. be good if you could meet up with karen one day and Kate and who ever is over that way when you are mobolised with a vehicle. Be a lovely time for you all,
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Hi Girls. What would I ever do without you all. Think I'm big and tough and all that crap, but I am just a big scared baby at the moment. Thanks for all your love.
I take my inspiration from Chrissy and Karen. Truly I do. The unknown is the worst of it. I am sure once I know all the details and have a plan of action, I will feel better. Apart from my back which is driving me crazy (deep bone ache in pelvis area) I feel really great!!!! full of energy etc. I am not lying around crying and saying woah is me. I will just deal with what I have to deal with, once it is all known, but I have been, to be honest, shit scared and rocked to my core. I would have not been so bad if my initial diagnosis was a little more grim at the start, but it wasn't, so it has come as a mighty big surprise. Two years to the month. I think I hate October now.
Well on a more sunny note, I had an absolutely fantastic week in Singapore last month. I loved every single minute of it. Hey next September we are doing a HUGE road trip (I'd like to say if I am still around, but I don't want to sound dramatic) We have two weddings within a week of each other. One near Gilgandra NSW and then my niece is getting married in Gympie a week later. So the plan for the moment is to bring the 3 dogs too and stay in dog friendly places and do the trip in a month. It would be terrific if I could catch up with the Brissy girls then.
Lots of love from me to you all - in return for the love you have, and continue to show me.
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PS and and Karen, of course when I come up next I would love to meet up again. I am actually driving Paul back up there tomorrow for his flight, but I will be turning straight around and coming home. I mean who would want to meet at 5.00am on a Sunday morning? next time when I come to pick him up it is more civilised (7.30 at night) so I could come up in the afternoon perhaps and meet with you then.
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Hi ya Kate. Oh yeah, the unknown is a real scary thing as is hearing you are stage IV but with time and knowledge it does get a little easier. I think coming to terms with it all and then letting go allows you to enjoy each and every day. The bottom line is that no one really knows when the end will come and in reality neither do we.........the difference is that it is more than likely that it will be BC that does the deed.
If rads for you pain is not suggested if I were you I would bring it up as it will not only ease the pain level but kill cancer as well. The draw back with it is that once an area has been irradiated it cannot be done again.
Karen, yuk girl! Sure hope that nausea clears off soon and you feel better.......sleep is probably the best thing for you right now as your body is really taking a bit of a beating.
Welcome back to Aus Marnie!!! If finances allow come join us at the get together in Sydney at the end of the month we would love to meet you.
Well I had a shit night last night......ugh! I hate it when I don't sleep! Never mind, I did make up for some of it this afternoon........here's hoping I can sleep tonight.......lol.....if not there will be, once again, a lot of crocheting and jigsaws done!
Have an enjoyable weekend all!
Love n hugs. Chrissy0 -
((((((((((((((Kate)))))))))))))))
I think we all hate October, but those of us who were diagnosed/surgery etc in October hate it most of all.
I just had to have a biopsy while on my scanning visit to the Wesley Breast clinic - luckily it wasn't cancer, but I think I might do this sort of thing in November next year.
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Sue I am glad your results were okk.
Karen I hope you're feeling better soon.
More hugs Kate.
5 weeks on femera. My joint pain is less,but I have whacked on the weight and I dont think it is mixing too well with my bipolar meds. Thinking arimidex is the lesser of two evils. Pretty bad when ds(13) sticks his head around the doorway in the mornings and asks what mood I am in today.
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A thought. Trisha suggested I get another opinion. That would meaning seeing an Onc up in Perth, which would be difficult as I live 2 hours away, but...I guess it wouldn't hurt any and might just confirm what my Onc down here has to say (re treatment etc) and if not, well, then I'll have to think about it a bit further. What do you guys think? Karen. Can I ask who you see and if he/she is good?
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Kate, I agree with Trish, unless you have total confidence in your local onc. You need to be sure you are getting the best treatment.
Also, if you post the recommendations on this site, you will get others' views.
Wishing you the best, Kate. Keep in touch as we care very much about you.
Racy xxxxx.
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Thanks Racy. I think I will def explore a 2nd opinion. It can't hurt at all. I guess if I have all the facts then I can make decisions. xxxxx0 -
Kate, you know I think you should get a second opinion. The fact that your onc made a very aggressive HER2 cancer sound almost trivial makes me question him. This cancer is bad, no matter how small it is. We know this, how could he not know it.
I know it's hard having to travel further, but you need the very best care you can get now.
We'll be with you tomorrow. What time is your appointment?
Trish
xox0 -
Kate, i also agree with Trish, another opinion will be very beneficial. I hate cancer , its so unfair.
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