Australian Sisters
Comments
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Lucy don't stress the wine my onc told me to have a glass if I felt like it and that was during chemo It seems to make very little difference what our life style is or has been. Another bit of advice I got was to eat my vitamins rather than take them though I have had vit d and b as supplements. Don't stress, I know it's easy to say but I really feel that stress is the worst thing.
Jenn I am sure you will be fine with your exam. If you get a chance at Christmas do get in touch as I would love to see you.
I actually managed to stand on the glass of the sky tower
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So Chrissy's afraid of heights!!?? I thought that girl was afraid of nothing (well almost nothing lol) Well done Aly too, not sure if I could have stood on it though.
Lucy - I don't think a glass here and there is going to hurt you - enjoy! Unfortunately for me, I lost my taste for alcohol completely after chemo. Can't even stand the smell of it now.
Melbourne (as much as I don't like Melbourne) sounds like the next best place to have our reunion next year. It would be good to see Delvzy - and maybe Ariom could come too? Any others near Melbourne?
Jenn, will keep my fingers crossed for you about your exam. My cholesterol is going up very slightly each year on Aromasin too, not so that I have to take anything yet, but it seems to be a common se of AIs. My biggest se on Aromasin is that I'm losing a lot of hair. I'm starting to get bald patches (eeek!) Have ordered some biotin to take as well as the biotin shampoo, hopefully that will help.
Mandy - thanks for worrying about me honey xoxo Yes - we are flat out until Christmas (almost up to the day) The weekend was pretty full on for me, it turned out to be a much bigger day on Saturday than I thought. I'd had a work trip that I had to do on Thursday, and it was a two and a half hour drive to the meeting each way. That took more out of me than I realised. By the time Saturday morning came, I still hadn't recovered. Feeling much better today though. Early nights for me this week, as there's an even bigger weekend coming up.
Stay well girls.
Trish
xoxo
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Hi Lucy....I'm 22 years out and I really really enjoy my wine!!! Nice to meet you...we all know how tough it is at first but everyone here will help you through.
Jezza xx
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Jezza, 22 years...way to go!
Trish, I'll be in Canberra on the 13/14 December. Let me know if you have time for a coffee.
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3 years yesterday since my diagnosis!
Jenn
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Happy Cancerversary Jenn!! Hope you celebrated as every year is a milestone.
Love n hugs. Chrissy
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Hi Jenn...congrats on being 3 years out 😃
Jezza ..wow 22 years !! I'm definitely going to pluck up courage and have that glass of wine after hearing that ..and I'll toast you with it 😃
Mandy ..Trisha ..I've seen where a few other ladies on this side have said that can't stand different foods or drinks since chemo ..
Been busy today ..Got the Christmas 🎄 tree up , and other inside decorations up ..also cooked some "reindeer poop " ..They made it on this week's Better Homes and Gardens show .
Take Care
LUCY xc
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Reindeer Poop? What next?.....lol. Sounds interesting so would you care to share the recipe?
Heading home in a few hours so better get going and get organized. Will be sad to say bye to Aly but I have had a wonderful time and I've got some great shots to remember my trip.
Have a great day all!
Love n hugs. Chrissy
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Three years Jenn! Go girl! xoxo
Ok - I'll bite (so to speak) what's reindeer poop? lol
Tammy - yes! apart from processing Santa and pet photos I have no bookings that weekend (thank goodness!) Where will you be staying?
Trishxoxo
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BaHaHa..
Chrissy and Trisha.. Here's the link for reindeer poop...
https://au.lifestyle.yahoo.com/video/watch/2563190...
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Chrissy I have a question for a friend going thru treatment. She has had a double mx with 5 tumours 4 estrogen and 1 triple neg. she had clear margins and 2 onc's have recommended radiation and 1 said she won't need it. She is terrified of the side effects can you offer any insight or advice?
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Jenn, congratulations on a milestone!!
Trish, we'll be staying with DH's sister but I'll have my car so I can meet anywhere.
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Tammy what about here: http://www.thepalettecafe.com.au/This is the café I did the photography for and they have great coffee. It's opposite the Mint (if that's any help to you). If you look at the Contact Us on the site there's a map. It's easy to find and has great parking, always a help in Canberra.
What about 2.30 on Saturday afternoon?
Delvzy - why is your friend being recommended radiation if there were clear margins? Were any of them near the chest wall? I'd also be questioning why no chemo if one of the tumours was triple negative - that seems like the "nasty" tumour in her mix.
Chrissy will no doubt have more info when she gets on here (I think she has been travelling back from NZ)Trish
xoxo
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Hi.. Just wondering, are there many other "Bris -Vegas " girls on this thread, or are most "south of the border " ??
I'm continuing my endeavours to buy a new floor rug today.. I went back to Rugs a Million twice yesterday, buying.. then returning what I'd bought.. They just didn't look as good in the room as I imagined when I got them home.. I 'm sure the sales assistant has me pegged as "the crazy lady " by now.. Hubby's not too impressed either because he has to.keep carting them to and fro in his ute.!!
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Hi Lucy - I'm in Brisbane too
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Triish she has just finished 6 months of a lighter dose weekly chemo. Now she is confused because 2 have said radiation (probably because of the triple neg one ) and 1 has said she doesn't need it
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lucy55 I do that with cushions lol. I carry bags of them home on apro then cart them back to the shop because they don't suit.
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Hi girls! Finally home! I had a wonderful time with Aly in Auckland and it was really hard to say goodbye. The get together was fun as well and so lovely to catch up with Rae and Tammy again and get to finally meet up with Annette.
Delvzy you asked a question for your friend regarding rads or not, Considering she has clear margins I would be thinking they are recommending purely for the fact she had a triple negative tumor. Maybe I would have asked the 3rd onc why he was not recommending it and if possible, I would probably still ask that question and then ask the same question of at least one of the two who are recommending. By asking, she will be able to make up her mind knowing she has both sides of 'why'.
Hope this has helped.
Bit tired now girls so I'll catch up a bit more tomorrow.
Love n hugs all! Chrissy
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Chrissy.. Great to hear you had such a good time away.. It would be such fun to meet up with the girls from here.
Delvzy.. HaHa about the cushions.. I finally got the rug I wanted yesterday ( hubby and shop assisted both breathed a sigh of relief 😃), but now I want new cushions for my couch to tie the look together.. I'll be thinking of you while I'm trying to choose.!!
Susie.. Oh good... Another Brisbane girl.. I'm not alone after all 😃
Only 4am here.. Every since BC dx I'm awake half the night.. So sick of it.!!!
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Lucy - there are 2 other Brisbane ladies on here too
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thx Chrissy for the info I will pass it on
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ugh.. Awful night for me... Spent a lot of it awake.. Kept worrying that they may of missed something in the "good" breast.. :-( ...So I lay awake "googling ".. Double ugh !!
Trying to be positive...But..hard to know if reading too many different threads here is good or bad..It certainly does come between me and my sleep..
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Lucy don' go to Dr Google. There is so much rubbish on there. If you must only go to reliable medical sites such as BC sites from UK. Canada and US butbe careful especially with stats. Remember that most are now out of date and that you are an individual.
These days I only visit sites for friendship and to chat to people who understand exactly what you mean. The couple of fun threads I have seen you on are just fine.
Big hugs.
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Hi Lucy,
The likelihood of there being cancer in both breasts is relatively LOW. Many many women have a single mastectomy and are fine. Having said that - we all know the fear that you are feeling. It's unfortunately not going to go away anytime soon and is part of the whole "stupid cancer" experience.
I can say that after three years I am finally at a point where I don't think about cancer every moment of every day and I sometimes have a whole day where cancer thoughts don't impinge on my minute to minute living.
regards Jenn
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Jenn.. When I discussing surgery with my BS I wanted to have a BMX.. But he just said "it isn't necessary.. BC doesn't travel...Survival stats work out the same.. I will.keep you monitor you " etc etc.. I can't really see how the stats can be the same..?? Anyhow, when I was in the Wesley Hospital having my surgery so many of the nursing staff, and staff from the breast clinic told me I was lucky to have the doctor I have.. that he is so thorough, and nothing is too much trouble for him...Well.. He does seem extremely well organised, is happy to spend as much time with his patients as they want..has a lovely bed-side manner etc.. So I am trying to put my faith in his opinions... and stop worrying.. But it's not easy.. I have BMX Envy.. HaHa 😃.. Did you have to talk your doctor into doing yours ?
Alyson ..Hi ..Thanks for your reply ..I enjoy the fun threads too ..A bit of light relief ...But there is also a caring element that runs through them..
It is a shame that there are very few "oldies " on these sites ..I guess everyone gets sick of the constant reminder of BC by coming here ..and want to move on .
Susie ..Oh good ..So there are a few of us Brisbane girls here ..
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Trish, sorry for the delay in reply. The Palette Cafe sounds great. I'll PM you my mobile number in case you need to contact me.
Lucy, these are tough decisions and very personal. As others have said the constant worry will pass. I like the friendship from the topics and the knowledge that help with many questions or worries is just a click away
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Hi Lucy, as Jenn mentioned there are some who choose to have a Unilateral Mx. I am one who had a right Uni too, I never considered removing the other side and I knew I didn't want reconstruction either. I am coming up to the 2 year anniversary of my surgery and I have absolutely no regrets, about my decisions.
I spent some time here, just prior to my surgery and Jenn and Chrissy and the others, gave me lots of great information. I also got involved in a local BC support group in the small town where I live. There were a number of ladies there, who had chosen the same surgery as I had and were doing fine with it.
t wasn't a difficult transition for me. I guess having had My Mother with BC and her being a Uni, it wasn't a big step for me to do the same. I was very fortunate to discover in my final pathology, that I had a non invasive final Dx. I do have the fear that it may happen in my other side, but I don't dwell on it too much and have found that as the time has passed the visits to my surgeon and regular testing, don't cause as much angst as they did in the first year.
There has been a departure, recently, of a few of the really long standing members, but there are still some around. Erica is one who has a good site that she started and maintains called breastfree.org which has lots of information and pictures of Umx and BMX and clothing, forms and bra options.
All the best, I look forward to catching up on the boards.
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Lucy, most of us on the 'fun' sites are oldies and mostly grandmothers who love showing off little ones. Several of us here as well. I find it great to chat with folk of all ages and have made some really wonderful friends young and old.
Please give a thought for a young friend who was very busy on the threads when she first was dx, she had some treatment through pregnancy and continued again after having a lovely little boy., She has just learnt the BC has progressed after 5 years OK. Really feeling for her at present..
I am trying to get my decorations up so had better continue.
Big hugs
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Ariom.. Hi.. Thanks for your reply.. I did go and get fitted for a prosthesis a few weeks ago.. Wearing it does make me feel more balanced that just having a soft form one..I will have a look at Eric's site too.. originally they thought my dx was DCIS as well , but unfortunately there was a "surprise " after surgery when pathology came back and there was a 7mm tumor which hadn't shown on mammogram or ultrasounds.
Alyson.. Hope your decorating is going well.. I'm a grandma too...(and proud of all the little ones 😃 ). But I meant "oldies " as in the sense of long term survivors..rather than age.. I enjoy chatting with people of all ages as well .. Sending prayers for your friend.. That is terribly sad news, especially for a young mum like that.:-(
Tammy.. Yes this board seems to be very good.. Always someone happy to help .
We are off to my daughters church tonight. it is their Christmas Carols evening.. My SIL plays the drums in the church band.. Should be nice and loud, and uplifting.. And hopefully get me into the Christmas 🎄 Spirit 😃
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Hi girls!! Well it's that time of year for me again, as of tomorrow it will be 11 years since original dx and 5years and 7months since stage IV......guess you could class me a 'long term survivor'..........lol.
Lucy I'm also a one hung low girl and never had recon either. I don't use the pocket bra's with my prosthetic as I have found that a lot of the pretty normal bra's will do the job with a little clear elastic sewn across the top of the cup it holds the prosthetic in just fine. You will find that as time goes by the fears will lesson and the obsessional thoughts will dissipate but all that can take upwards of two or three years. We have all experienced what you are now and some days are really hard to get through, we know but hang in there, it does get better.
Thought I'd share a couple of pics of Auckland for you all.
Love n hugs all! Chrissy
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