Australian Sisters
Comments
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Kate: keep the aircon on!
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Trish, it's likely noone noticed your omission. They would have been looking at all the buffet food.
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Hi Racy. I've been on an anti-depressent for the past 6 months. I just fell in a big glum heap then and realised that despite everything, I couldn't find any joy in anything and I just felt bleak every moment of the day. Best thing I ever did was getting them. Within a few weeks I just felt myself coming back and then I just stabilised and became normal again. Still had life's problems and ups and downs but everything was manageable and in context. Depression is such a horrible thing to have. This was prior to BC dx.
I haven't seen a cousellor yet. I did have a session with a social worker and she has given me contact details for one. Honestly though... I get all my therapy from here. Who better to talk to and get advice from. Could a Non BC counsellor really benefit me more than you (and all my other Aussie Sisters here) do? I do promise though, that if it really gets rough I will act on it. But at the moment I feel that my needs are being met here.
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I see lots of rain in QLD at the moment - hey can you send some over here please?????
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Hey Chrissy, do you follow ma111's thread 'no more chemo'? She is under palliative care and just went back to work! She seems to be a great lady, like you.
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The rain is a nice change. Don't really want to swap for 40 degrees.
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Kate - sometimes it's good to talk to a councillor even though you have us. I spoke to one last month, and she had lots of good things for me to try. I was in a dark place and felt I wasn't coping with work and life in general. She really helped. Not that you guys couldn't, but somehow talking to someone who is trained to deal with cancer patients really helped.
It might be worth a try if you feel you need it :-)
Glad you are feeling better today.
Trish
xoxo
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Yay Kate! I'm so glad that you have passed the hump! Overall, you have had a very good reaction to everything. You will know if and when you will need to get some help emotionally but sometimes, as Trish said, the councilors can give you some other tools to cope that you just don't think of on your own.
Racy, yes I read her thread everyday and I agree she is a wonder.
Trish, don't give it another thought, I have done exactly the same thing and believe me, no one really notices. When the weather is hot, I usually just wear an Ahhhh Bra as it squishes the one I have down a bit and I don't bother to put in a foob on the other side.
Jenn, when is your next round of chemo due? Sorry, my mind is on a go slow today and I can't remember if you told us or not.
Lyndal and Sue how are you two doing? Is it hot where you are?
It's so dang hot that I've decided to sit in the aircon and watch the tennis! The only way to keep cool but I'm going to hate the electric bill when it comes.....lol.
Love n hugs all. Chrissy
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Chrissy, my next tx is Thursday week (the 2nd of Feb).
I'm off on annual leave all of this week except Friday. Organised these days months ago and am enjoying them. Had a cup of tea at a girlfriend's house after my walk. Now snuggled on the couch under a blanket watching Foxtel. Not because I feel unwell, but just because that's what I feel like doing :-)
Jenn0 -
Forgot to ask Jenn - how did your daughter do yesterday? Did you have to chase her around Sydney?
Trish
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She did great Trish! Got the bus and got home with no problems :-)
regards Jenn0 -
Great! Well done!
Trish
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Hi ladies, good to hear everyone is doing well today. Had the day off work, slept in and realy enjoyed hearing the rain pelt down. So glad I wasnt in peak hour traffic in it haha.
Just cracked a tooth or lost a filling, hate that theres never any dentists available when you actually need them. Apointment at 9 tomorrow and wouldnt you know, I gave all my painkillers to my mum when her arthritis flared up sigh. Stil its nothing in comparison to the chemo soi I will suck it up and present myself there tomorrow.
Hope everyone continues to do well and have a good day tomorrow.
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Tonight was the night... The hair had to come off as it was itchy, painful when I woke up this morning, and sooo much was falling out today.
So, here is the hair journey http://www.facebook.com/media/set/?set=a.10150414653061560.359270.506521559&type=1&l=71ae211509
No tears yet. Probably later.
Jenn0 -
Oh Jenn, you are truly beautiful! I have tears in my eyes and a smile on my face for you bravery. Well done!!
Your daughters are as beautiful as their mum and your son is a very handsom young man.
Love n lots of hugs. Chrissy0 -
JENN - YOU ARE BRAVE AND BEAUTIFUL (really, you have a great head!!!!) xxxxxxxx0
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Honestly JENN, you have blown me away with your gutsiness..
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This whole thing still sucks, but I felt good today and didn't have to imagine putting my terrible thoughts in my "cancer box" at all.
To explain: My brain just goes round and round with negative cancer thoughts lately, so I came up with an imaginary wooden box. Every time I notice my brain going into overload I imagine taking the thoughts and putting them in the box and shutting the lid.
It seems to be working :-)0 -
Jenn - you look great!!! It will grow back, don't worry. I remember the day I had mine buzzed and when Steve came home and saw me his face lit up in a big smile - I'll never forget that moment. The hairdressers told me I have a nice head shape - they were sweet.
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I like your wooden box idea. I have Negative Nellies and (try) to turn them into Positive Penny's. Works for me
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Jenn - big step - and you look beautiful - you do have a lovely shaped head xoxo
Great idea about the box - I like it :-)
Kate - how are you going? Feeling ok?
How are you Brissy ladies going? I heard about the floods up there again! Hope you are all dry and safe.
Trish
xoxo
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Hi Trish - I decided to work from home - coming home on the bus yesterday was a nightmare. We're on a hill, so safe. It was a good idea to stay here as the pool has needed draining twice since yesterday - I can keep an eye on it.
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Glad you're on a hill Susie. My sister lives in Gympie on the flats and she is scared. Not a cloud in the sky over here and another absolute stinker ahead.
I'm feeling OK still. Funny thing was, I was cooking dinner last night and I tasted it and it was really nice and flavoursome, but an hour later when I served it up, I couldn't taste a thing, so I put more salt onto my serving and still nothing so a bit more salt. My brain told me that salt usually tastes something so I realised it was my tastebuds had gone! It just happened that quickly. Mouth isn't sore or anything and my gastro tract is still working well. No sickness. Every now and then I get hit with a wave of inertia, like I am being dumped in a wave, and I can just be sitting still. That happens quite a lot. I think all my SE's are in my brain, not tummy like most.
JENN, how was it sleeping eu la naturel? or did you wear a cap?
xxxxxxx
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Hey Kate,
Sorry to hear about the taste buds. Did you suck ice-cubes during your chemo? I did and that seemed to work for me and I've lost no taste...
I slept last night in a terry cloth sleep cap. I mail-ordered two of them as well as four under wig caps from the USA a couple of weeks ago. It was really comfortable and did not come off. I got them from www.tlcdirect.org and it was reasonably quick delivery.
Jenn0 -
Hey Jenn. Yes I sucked and sucked and sucked on the ice ! I haven't had brekky yet but my coffee this morning tasted like coffee at least, so maybe it was my cooking (although hubby said it was delicious).
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Love your photos Jen. I went for synthetic too, liked them way better. You look gorgeous.
Kate hope your feeling okay and good luck with the tastebuds. if something starts tasting funny, try other things. Oddly I found some of the stuff I would never eat normally was what I could taste and enjoy while during chemo. Would recommend avoiding spicy food though haha. Packets of BBQ chips were a favorite, not healthy, but I could taste em lol
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My goodness, you must all be putting on your waders with all the rain you are having over east. How is SA? Gals it is so hoooot over here. I am over it, and we have another week of 40 degrees. We have evaporative cooling and it is going flat out.
HOw is everyone? Jenn, when is your next cycle? Is it next Thursday? I think you are 8 days ahead of me.
So far I haven't lost any hair, except for the usual amount. Do you think I could dodge that bullet? I am going up to the wig library on Friday in Perth. I hope they have some nice ones otherwise I will go and buy one. I loved yours Jenn. Honestly who could ever tell??
I am definitely over the worst. Day 4 for me was the pits, but that was about it. Does it get worse each cycle? or is this an indication of what each cycle will be like for me?. I am mostly just still very tired, and sleeping like a teenage again. I haven't slept so soundly for about 30 years, so it's quite nice actually.
Hope everyone is doing well.
Love Kate xx
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Kate, hate to be the bearer of bad news, but you are bound to lose every hair on your body including most of if not all of your eyelashes. The loss of the nose hairs was the weirdest, nose would run without any warning, just a drop on the floor. The natural brazilian is wonderful, enjoy while you can rofl. Id love to say it wont happen, but FEC makes it a guarantee. Thats what my dr said and its what happened to me and everyone I know. Dont stress about it, just organise for a wig or wigs and maybe try a different look for a while. When your finished chemo and everything starts coming back, you can speed up the improvement to your face with eyelash and eyebrow tint. Amazing how a bit of darkening on both found what little hair was there and made it look fabulous.
Its been pouring here, but cleared up this arvo and I believe it should hold till Friday when we are due for more rain sigh.
Hope all are well and forgive me for busting the bubble of hope that you could dodge the bullet Kate
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All good Lyndal. I know I am not really that special.... but hopeing?? Anyway it is so hot over here and my hair is like a birds nest and I am actually waiting for the green light to either shave or cut it very short. But I don't want to do it until I really 'know' for certain. Guess it's only another week away.
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Since we are 8 days apart Kate, you should be ok with the hair for another week. I chose last night for the shave because my hair hurt when I woke up yesterday morning like when you've had it up in a ponytail all day and then take it down? I didn't want to wake up to that pain again for another morning...
Have had a bit of a sad day today. Actually felt a little nauseous again for most of the day. Not enough to take anything but enough to remind me...
I need to get back to work to get back to normal for the next week before it all starts again. I dialled into a work telecon yesterday and it felt so good to be using my brain and talking to work people. Our "trial in progress" abstract for one of my trials is being submitted to ASCO 2012 at the end of the week which is very exciting because I am one of the included authors :-)
Off to some friends for an Australia Day BBQ tomorrow. It's supposed to rain all day unfortunately...
Sounds like everyone is doing OK. Hope you all enjoy your day tomorrow!
Jenn0
