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  • Delvzy
    Delvzy Member Posts: 454
    edited December 2016

    Thanks Chrissy I will have to practice. I don't usually post photos of myself but I quite liked that one in the chair the Carribbean is amazing but Paris still owns my ❤️. The 28 hour flight from NYC via Paris then back to Melbourne is probably what collapsed my vertabra I was diagnosed only 6 weeks later with my spine mets. It has all happened in the "last 3 months quite unbelievable how I ran in Central Park with extensive spine and rib mets only 3 months ago beats me. Just going back over earlier posts and just realised Mel had psssed so sad she was so young

  • Delvzy
    Delvzy Member Posts: 454
    edited December 2016

    Katty where do you live now USA or Aus? Trish I hope your new job is working out. Smurfette thanks fir thinking of me and Chrissy I just realised you had a bone scare a few weeks ago glad it was arthritis 😀I am getting on top of my pain I just have to pace myself. Having a day in bed with s migraine I haven't had one for months but this one is a little bugger doesn't want to go. I have always got relief by going to a chiropractor but don't want to do that now I have bone mets. I went into my profile to update my status but it doesn't seem to have saved

  • chrissyb
    chrissyb Member Posts: 11,438
    edited December 2016

    Delvzy your changes are in your info line, what don't you think is there?

    Yes, happy that it was just my arthritis playing up.........strange how we can think that is a good thing.....lol. I'm glad you are getting on top of your pain and pacing yourself is the perfect way to help. Right now, erring on the side of doing too little is way better than doing too much......it won't take you long to learn your limitations for now............but don't worry if you think they should be more as with time more will come. Having more good days than bad is the optimum to aim for.

    Bugger about the migraine! You may find that after your rads are done and you've had some time for everything to settle, you may be able to return to to chiro so long as the one you go to understands your mets and is gentle. Your migraine may also be caused to the constant stress you have been under.........having a quiet day in bed is not all bad either as it will allow your body an easier time to heal itself.....Oh! and never feel guilty about spending that time resting.

    Yes, I agree, Paris is a most beautiful city and worthy of it's reputation but hubby and I also spent five weeks driving the country side of France and I am still awestruck at the thought of all the wonderful places, scenery, castles, monasteries, vineyards, woodlands, sea and sand as well as all the prehistoric places we visited......just awesome and I would return in a flash.......lol.

    Yes, it's very sad about Mel but good that she passed when she did as she had a head MRI done just the day before and they found brain mets.........her poor little body just gave up, it had had enough. She was indeed a very sweet girl and such a fighter........cancer was not all that she fought.

    Well another hot one is forecast for us tomorrow so another day of hibernation coming up.....not that I mind.....lol.....being under a slow moving ceiling fan makes things very comfortable indeed.

    Love n hugs. Chrissy

  • Kattysmith
    Kattysmith Member Posts: 688
    edited December 2016

    Hi Delvzy,

    I'm still in Houston, Texas and have been for 64 years. Hope you are feeling better and that you can enjoy the holidays!


  • Delvzy
    Delvzy Member Posts: 454
    edited December 2016
    1. Katty we have a new life to channel and a lot of the house renovations are in Houston Texas so it has fired my imagination. I have been to the states twice but never to Houston. where did your stage 1V come back you had gone a long time and were probably as shocked as me ( I was 8 years) really thought I was in the clear. Are you going ok I hope to start to feel better and go back to work part time next February but we will have to see how much better I get. at the moment i am very tired and find it hard reversing to drive or sitting for too long but I miss work. Chrissy it wasn't in my profile I had to re-do it yesterday. It makes me feel horrible seeing it written there I so hope to be ned like yoi Fi you know of others girls that have gone from extensive bone only mets to Ned ??
  • Kattysmith
    Kattysmith Member Posts: 688
    edited December 2016

    Del, after 12 years it came back in the same left breast and about a dozen small tumors just under my skin in various places on my torso, arms, back, side, then neck...they started popping up here and there. I told myself that they were just fatty lumps / cysts like two of my dogs had gotten and I'd never heard of cancer presenting that way...that's me, always whistling past the graveyard. Nothing happening here, nope! Then one grew rapidly to the size of a golf ball. The surgeon removed that one and biopsied two more -all cancery. I couldn't believe it, then got laid off 4 days later (I was the main wage-earner, not my hubby) then my ex-husband, my son's father, died unexpectedly the next week, right after I had told mour 34 yr old son my cancer was back and it was terminal. Talk about a shitstorm.

    That being said, I'm doing well and have been asymptomatic with no progression since chemo, then Ibrance. My onc thought I had a tumor in my left lung, but he now thinks it was just inflammation. I'm feeling really well and often say that if I didn't know that I had cancer, I wouldn't know that I had cancer. I know that won't always be so, our luck doesn't last, but hoping I have some good years left.

    I hope with all my heart that you start improving and feeling better very soon. {{Hugs from Houston}}


  • KarenAus
    KarenAus Member Posts: 66
    edited December 2016

    I went to my onc after the last session in hospital and pulled the plug on the femara. I have had too many life threatening side effects with all this cancer cure to continue. My onc was not surprised and was very sympethetic.

    I am feeling more human every day and coming out of a funk I didn't realise I was in. There is no way I could have kept this up for 5 years.

    I am booked to reco on the 14th Jan and once that is all done I can get on with the rest of my life. Whoohoo.

    KarenAus

  • kyliet
    kyliet Member Posts: 587
    edited December 2016

    Hi everyone! It is coming up to Christmas quickly! I have been doing lots of visits to the Southern Highlands from The Central Coast and am exhausted. I need to catch up on some tests and scans in the New Year :(:(

    Delvzy I hope you are having some relief from your pain 💙💙

    Hugs to everyone, Kylie x

  • Delvzy
    Delvzy Member Posts: 454
    edited December 2016

    girls s miracle I have got my spirit back now 5 weeks after my extensive bone mets discovery and 10 days after second radiation I am zooming around in my car and going back to work part time Friday morning , I had to get my head around it, can you tell me what the letrozole side affects are ? I had aches in my ribs and felt sick but not sure if that's the drug or radiation. I will get swapped to go on the trial in January but I have started taking the drug before bed to see how that works .so excited having lunch with friend first nice outing bar docs and hospital❤️💙💚 tests in 2 months

  • Kattysmith
    Kattysmith Member Posts: 688
    edited December 2016

    That's great news, so glad you're feeling better! Have a great lunch with your friend!

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited December 2016

    Delvzy, glad you're in a happier place now.

    I've just had a blood test and I'm dreading the results....what will be will be...my liver enzymes were borderline last test and cholesterol creeping up....

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited December 2016

    Delvzy ..So glad to hear you are feeling better...

    Tammy ..Hope you have good results from your blood test .

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited December 2016

    Thanks Lucy!

    I have just 2 more days of work before my Christmas break. Can't wait to rest and say goodbye to 2016....I hope 2017 brings all of us good things❤️


  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited December 2016

    Hello Girls!

    Sorry I've been missing in action for a while. I've been so busy with Santa photos and work. I can start to breathe now lol.

    Delvzy, I'm so happy read you are in a better place now, I hope your pain is better.

    Tammy - how were your blood tests?

    Chrissy - are you going ok?

    Kylie - hope you have everything ready for Christmas!

    I haven't even started anything Christmas yet. I have a pile of Christmas cards that I haven't even had time to open yet. That's on my list of things to do tonight lol.

    I'm still loving my job, and it's such a pleasure to go to work each day. I'm here for half a day today, then off for two weeks.

    My love to you all, I may not have been posting here, but grab a quick minute or two to read, and think of you all everyday.

    Trish

    xoxo

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited December 2016

    Hello Trish! Enjoy that last minute Christmas feeling!

    No call back regarding the blood test so I'm assuming nothing urgent! I'm just going to enjoy Christmas and see the Dr in the new year.

    Wishing everyone a happy and safe Christmas and New Year 😘


  • aussie12
    aussie12 Member Posts: 421
    edited December 2016

    Hi all

    Merry Christmas and a great New Year to everyone.

    Carol

  • chrissyb
    chrissyb Member Posts: 11,438
    edited December 2016

    Hi girls! Merry Christmas to each and every one of you!

    Delvzy, so glad you are feeling a bit better........one day at a time lovely and you will be amazed.

    Tammy, really happy that there has been no call back as this usually mean everything is good.

    Yay Trish! Soooo happy to hear that your job is perfect and you are very happy doing it.......... it took a while but alls well that ends well.

    I'm good, just been busy with geandkids birthdays.......lol......they are all very close together at the end of the year. The last one was the baby, well not a baby any more as he turned eighteen.......that means all my grands are now adults. ......where have the years gone?! We are heading down to DD2 for Christmas and Boxing Day and then returning home for some much needed rest. As much as I love cooking, there has been so much of it over the last few weeks that I'm really looking forward to eating left overs for a few days. ......lol.

    Well it's time for me to finish prep ready for the morning. Merry Christmas to all, I'm so very thankful to have you all in my life. Xxxxx

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited December 2016

    Hi Girls

    I hope you all had a great Christmas day.

    We went up to my step son's and had a lovely Christmas lunch there. It was a great day. When we got home, we just had a ham sandwich for dinner, we'd eaten a lot during the day. This morning I thought I was doing chemo again, really bad big D and very sick. Lucky I still had some Ondansetron so didn't get sick. But have had a horrible morning. I think the ham was on the verge of turning. Bob was fine, but he has a cast iron stomach.

    I'm feeling human again now, but not able to even think about eating, but able to drink lots of water. Ham has been thrown out. lol. But the memories of 12 months ago was definitely not welcome :-)

    Love to you all


    Trish

    xoxo

  • aussie12
    aussie12 Member Posts: 421
    edited December 2016

    Hi all

    Trish I seem to get an upset stomach when I eat some cold meats even when they seem to be good. Yet last week I had a Rogan Josh curry and everything was fine. I go to the toilet most days about 5+ times, that's from my bowel surgery. I had to buy some nappy rash cream as my bum has been so sore !!!

    In other news my SIL in Queensland fell and broke her leg today and will probably need surgery.

    We had Christmas breakfast at my sister's and Mum came out of the old people's home for it so that was good.

    Hope that 2017 will be a better year for most of us.

    Carol

  • Smurfette26
    Smurfette26 Member Posts: 269
    edited December 2016

    Popping in to say I hope everyone had a wonderful Xmas. I had the most amazing time. Christmas 2015 was a non-event for hubby and I as I had chemo a couple of days before but we made up for it this year. Beautiful day with our children and their families. We got the best present. My daughter gave us a framed drawing by our grandson. He wrote "my family" and drew pictures of himself, Mummy, Daddy and BABY. ??? My daughter has poly-cystic ovarian syndrome and they have been hoping for another child for years. They had gotten rid of all their baby stuff as they thought it would never happen. Nate's 6 and she has finally fallen pregnant again. Big gap but such exciting news. Due date is June 11th. We got a second framed picture with an ultra sound pic of bub.

    My December Oncology check up was a non event. Literally. Hubby took the day off, drove the 70klms to be told, "Oh. Dr's December clinic here was cancelled. Didn't you get a letter?" Obviously I wouldn't have been there if I had gotten a letter. Doh. They called Tamworth and tried to organise a video call but Dr was at Armidale hospital. I have been re-booked for the January clinic. Really wanted to talk to him about my blood tests results but can wait. I did email him but no reply as yet.

    I have befriended a young woman with BC on Facebook. She is having a really rough time with infections and hospital stays. The fact that she is a cleaner and works 2 jobs isn't helping but she can't get anything from Centrelink. She had to have her port removed due to infection then got another infection where the stitches were removed. She has already missed 1 chemo as the nurses at her hospital are saying her veins are bad and are refusing to administer her infusion via IV. She was scheduled to have a new port inserted next week but that has been cancelled as she still has an infection. Would chemo be given to a patient with an infection? Being unable to get the port next week means she will miss another treatment and she can feel her tumour growing. Obviously she is freaking out. Her cancer is aggressive. Grade 3. HER2+. Thoughts ?

    Thinking of you and wishing health and happiness for all in 2017.

    Hugs Donna.


  • Lucy55
    Lucy55 Member Posts: 2,703
    edited December 2016

    Just popping in quickly to say I hope you all had a wonderful Christmas , and wishing a Happy Healthy New Year for us all ..xx

  • Delvzy
    Delvzy Member Posts: 454
    edited January 2017

    Just popping in to say I hope you all had a wonderful Christmas and wishing you all a great 2017. Thank you for all your support re my recent diagnosis, still having up and down days but more up than down, waiting to hear from Peter Mac re referral for trial. Great to hear that you are having a rest Chrissy Trisha glad photos are all done and Smurefett so nice of you to befriend the girl with the infections. I was so lucky the first time around with no problems with chemo etc and even this time I have had wonderful support and no problems . Radiation wasn't pleasant but I have less pain hoping to be like u chrissy Ned ps trying to either walk 3.5km every 2nd day or bike 🚴 ride 10km also doing light weights and 1/2 push-ups x

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited January 2017

    Delvsy ..So glad to hear you are having better days ..and you are doing great with the exercise .!!! I need to get out walking more , or on my push bike again ...If just this stinking heat would pass ..

    Love to all ..

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2017

    Hi girls, Happy New Year to you all and here's hoping that 2017 brings nothing but good things for all of us.

    Speaking of good things......lol......I am beginning to put together the get together on the 24th to 26th March. What I need from you ladies is a yay or nay for attending said get together as I need numbers for who I will be booking accommodation.

    For those who have never joined us, we usually meet up on the Friday afternoon at our accommodation (which I will book) and it is usually serviced apartments with shared rooms. This way we keep costs down for each of us. The rest of the time is spent chatting, comparing, laughing, eating having a glass of wine if you like and generally having a good relaxing time. We can always squeeze in a little shopping and or site seeing as well.

    So far those registered with moi are Aly, Wynette and of course myself. Just leave a yay or nay here or PM me. If you don't want to come for the whole weekend that's fine too.......spending just the Saturday has been done before.

    Waiting to hear from you all. Oh, Delvzy, so glad you are beginning to feel somewhat better.

    Love n hugs. Chrissy

  • aussie12
    aussie12 Member Posts: 421
    edited January 2017

    Hi all

    Chrissy where is the get together going to be ? I might be able to make it this year as I have long service leave coming up.

    Carol

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2017

    Oh my gosh!! Sorry girls, the get together is in Melbourne, 24th to 26th March.

  • aussie12
    aussie12 Member Posts: 421
    edited January 2017

    Hi all

    Chrissy I have looked at some fares and they seem ok I would come over to Melbourne on the Wednesday and probably leave the Monday night. I would need the accomodation for those days. My long service is delayed but I think that I would still like to come as I've been feeling a bit depressed mainly with my work so I want something to look forward too. I will decide this week what I will do. Is there anything that I need to know before I book?

    Thanks

    Carol



  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2017

    Hi Carol, nothing really but we usually do the get together just the Friday and Saturday nights due to work commitments of some but I'm happy to extend for the Sunday night as well. If you want to do the Wednesday and Thursday you may need to book for yourself.

    I will be hopefully booking a share accommodation somewhere in or near the city itself. The share accommodation helps to keep costs down. Let me know what you decide so I can book my tickets as well as I would normally return home on the Sunday afternoon.

    Looking forward to seeing you Carol.

    Love n hugs. Chrissy

  • aussie12
    aussie12 Member Posts: 421
    edited January 2017

    Thanks Chrissy. The reason why I would stay longer is because coming from Perth it's crazy to just stay for a couple of nights. I've got relations in Melbourne that I would try and see on the Thursday. Will let you know soon.

    Carol

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2017

    Hold the booking Carol!!!! We have just worked out that that weekend is the Grand Prix weekend and airfares are through the roof and accommodation impossible. I'll keep you informed.

    Are you on Facebook? If so come and join our bco group on there. It's a private group so you are still safe.

    Live n hugs. Chrissy

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