Australian Sisters
Comments
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Tammy I also take Curcumin on a daily basis and do notice a difference when I run out.......note to self, don't run out!......lol. I get the Natural Factors brand from IHerb called Theracumin which has everything necessary for the best absorption
Had my first massage treatment today.......talk about ouch!!! Poor girl was barely touching me to begin with but by the time she had finished the 45 mins I fell soooo much better. I'm a little sore now and I'm guessing it will be worse tomorrow but after that it will get better. I'm thinking that a therapeutic massage on a regular basis is definitely in my future.
Hope you are all doing well.
Love n hugs. Chrissy
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Hi everyone.
So sad to hear of Mel's passing. That was a beautiful gesture with the star. Thanks so much Chrissy for being there for her 💙💚
Good news on your scans Chrissy, damn about more arthritis.
Trish, 1 year is great! I have shocking hayfever atm and use Nasonex.
Carol I hope both you and your Mum are doing well (hugs)
Yi, welcome to the board, sorry you have to be here, but a great group for saving your sanity and giving support 💜💜
Tammy, 4 years is excellent.
Jen, hooray for 5 years.
I am 5 years on the 11th November 🌷🌷
Hugs to everyone, Kylie x
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Kylie, roll on 11 November!
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Thanks Tammy xx I wish this site had 'like' buttons
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Hi Ladies
I am hoping to see a plastic surgeon to clean up under my arms. I had double mastectomy las year and no recon, I am flat and no mor bras thank god.
Because I don't have a verandah anymore I am hoping for a tummy tuck so I can get rid of the buddha look and was wondering if anyone else has had this done.
If I can get the surgeon to call it medical I am covered by Medibank privet. I think they will get out of it cheaply due to me not getting a reco. Hoping this can be done before the end of the year if the admins from both surgeons can get their acts together.
KarenAus
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Woohoo Kylie!!! Roll on the 11th!!! An early congrats on that one my girl.......it's a good feeling to hit that mile stone.
Hey Karen how have you been? Long time no hear.....lol. Can't help you on the tummy tuck thing but they do the same thing for some recons so I can't see why they wouldn't come to the party with calling medically necessary and have Medicare cover it for you. Anyway, goodluck on that one......let us know what your surgeon says.
Had my second round of massage today.......oh boy! am I sore tonight! I will be so glad when the weekend arrives as according to the masseuse the soreness with have disappeared by then.....I can't wait.....lol. Aside from that, I actually feel way better so will definitely be keeping up with the massage on a regular basis. We're not sure whether that will be once a month or every six weeks yet, I was told to just go with what I'm feeling. I'm up for that.
Take care all! Love n hugs. Chrissy
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Want it done before chrissy, preferably this month.
I am doing alright aprt from the hormone poison. I am getting SEs and will see how long I can stick with it.
KarenAus
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Which one are you on Karen?
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Femara, was on anastozole but couldn't cope with it.
KarenAus
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How long have you been on the Femara? why I ask is that I had heaps of SE to begin with but over time they have almost gone. I also take bio available curcumin wich helps as it acts as an anti inflamatory.
I sure hope things get better for you also.
Love n hugs. Chrissy
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just had a bone scan it's not costocondritus it bc back in my bones in multiple sights ribs back and back of skull. I am in total shock and don't know what's in store for m
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I'm so sorry to read of you progression Delvzy. Thinking of you and sending hugs. Donna.
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Oh damn Delvzy! Take a deep breath, with bone mets even though wide spread it is still possible to get to NED and live a long life. I'm seven years up with bone mets and living life to the full.
It's going to take a little while to come to terms with this DX but once you find the right treatment that is going to work well for you things will settle down.
If you want my phone number so we can talk just pm me........I'll be happy to give it to you.
Love n gentle hugs. Chriss
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Delvzy ..So sorry to hear your news ...Thinking of you ...
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Hi all
Delvzy sorry to hear your news.
I'm feeling better but still get tired, I have another week off then back to work.
I know we have a facebook page, could someone tell me the name of it please, thanks.
Carol
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thanks girls quite frankly I am so lost
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(( Delvzy ))..only 3 am , but I have woken thinking of you .I wish there was something I could say or do to help ...
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Oh Delvzy - I'm so sorry to hear this news. I can imagine you feel lost, it's what we are all afraid of hearing. There's not much I can say to you, except I'm thinking of you and sending you (((hugs))) When do you see your onc again?
I've been missing a bit lately, I managed to pick up a nasty chest cold that's not letting go, and my DH has come down with it too. He's doing a show, opening night was last night, and he's as sick as a dog, but the show had to go on, so he got up from his sickbed and did his best.
I've also quit work. The people there turned out to be a nightmare, and it just wasn't worth it to keep on. So I finished on Monday morning - went home sick and just never went back. It's a small world, and Canberra is certainly a small town. Someone I've known for around six years called me on Thursday afternoon and wanted to know if I was interested in a position that he thought was made for me. Long story short, I'll be starting at Pegasus Riding for the Disabled next Thursday as their Operations Manager.
Delvzy - please let us know how you are going, and come on here to rant, cry, vent whenever you want to. We are all here for you sweetie.
Trish
xoxo
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thank you girls for all your encouragement and kind words. As you can imagine I had got to 8 years and thought I was ok. I spoke to Chrissy who was very helpful on the phone but I guess it's all a bit unknown atm. Waiting for oncology to ring me Monday to make an appointment. I have been having panic attacks and my back has been going into such bad spasms I can't sit or stand u but I am not sure if it is cancer spots in my spine or anxiety 😥
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Wow Trish!! So much happening over there! hope your cold takes a hike soon......there's nothing worse than a cold that won't let up.
Hope your DH feels better soon, it's really hard to sing when a cold hits.
WOWZA on the job side of things! That job sounded so promising too. Really chuffed for you about the new one though.......sounds right up your alley.
Delvzy so glad you called, just remember you can do it anytime that you feel the need.
I'm sitting in the Thebaton concert hall waiting for my son in laws band 'Experience Floyd' to begin their only gig in Adelaide for this year. They are really fantastic!
Take care all! Love n hugs. Chrissy
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Delvzy (((hugs)))....sending you positive wishes....
Trish, if it isn't right best to move on....and you haven't wasted any time!
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Delvzy, so sorry for your news. Sending gentle hugs.
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Sorry for the essay, but I am feeling a bit emotional. My 5 year anniversary is next week and my daughter has organised a luncheon. This is lovely, but I have to drive 200km to get there!
This daughter and my eldest son had moved out of home when I had treatment and we didn't see much of them.
Anyway my youngest, who was 11 when i had treatment, has just gotten really upset over the lucheon, where it is being held and in his words "people coming to celebrate who never helped when you were sick".
I was brought to tears, my 16 year old saying "Mum that was a really terrible time". Cancer is hard on kids
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Kylie a nicer thing for them to do would have been to organise to spend the day with you at home. Your youngest is a sweetheart but oh so right in his observations. Perhaps, to make things easier for you, I would speak to your DD and tell her that the luncheon is a lovely idea but you would prefer to celebrate with them at home.........let them do the travelling. If they care so much this will not bother them.
Sending gentle hugs,
Love n more hugs. Chrissy
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Chrissy, wise words....
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Unfortunately Chrissie my youngest contacted her to ask could it be moved and let's just say it wasn't good. She has a new bubba and means well so we will go, but I knew you would all understand
Thanks everyone for all the love and support over the last 5 years 💖💗💖💗
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Kylie (((hugs))) yes sometimes we just grit our teeth and wonder why. Yes - we understand. When it's family though it does make it harder. Friends, you can just forget about.
Trish
xoxo
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Just wondering if any of you have come off the hormone inhibitor and why.
I have just got my Dex backand I have lost 12% of my density putting my in osteoperosis and also looks like I also have osteoarthritis in my hands since I started this poison.
I am not convinced this is the best option for me to start with but worried due to double mastectomy is that if it comes back it is in my bones or lungs. I have heard stories of it comeing back even though being taken and others who came back without. I just don't know.
Karen Aus
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Hi Karen
I understand your distress. I came close to giving up all together on an AI. I started on Aromasin, that was horrible and i couldn't stay on it. I then went onto Aromasin, and it treated me relatively gently for over three years, before horrible side effects started. I then went onto Femara, and it seemed that the ses were going to make me stop that too. With my onc's blessing I went onto half a tablet a day instead of a full one, and I've been on it for over a year now and tolerating it well.
I don't have problems with my bone density though, I have super dense bones. My last DEXA showed a 9% loss in density - but I was off the scale to start with (on the high end) and the loss only brought me down to the very highest level.
What about Tamoxifin? I'm not sure if that causes problems with bone density or not. It will be my next choice if the Femara becomes problematic for me. I know you have to weigh up the quality of life versus the ses we get from the AIs, we have to make that decision ourselves.
Good luck with deciding - let us know what you decide to do.
Trish
xox
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I can't use temoxifen due to have a blood clot in my heart whele on chemo. This is my 2nd inhibitor which is Femara.
I worked it out and this has happened in less than 8 months.
KarenAus
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