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  • Lucy55
    Lucy55 Member Posts: 2,703
    edited October 2016

    Chrissy ...I would love to come and meet you all. ☺

  • aussie12
    aussie12 Member Posts: 421
    edited October 2016

    Hi all

    Lots of news and activity on the forum over the past week.

    Well I've had my surgery and came out Tuesday, only 7 days not 10. My bowel is working quite well at the moment and I've only just started to eat properly the last few days. I'm still very sore and tired but just going slowly with everything. I have staples all down my chest again, from about 10cm above my belly button all the way to under my knickers plus across where my stoma was, very sore. The hospital was great and all the staff there great. My surgeon found some nodules on my uterous but said that pathology on them came back fine.

    You won't believe that last Wednesday, the day of my surgery my Mum who has demitia fainted and broke her leg !!! So she ended up in another hospital on the other side of the city and had surgery last Friday. My poor family had to spend hours with her as she kept getting out of bed (ouch) and going a bit crazy at times. She has since calmed down and won't be going back home as she needs 24hr care. What a horrible week for my Mum and my family.

    Will update you all as I can

    Carol

  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    Oh Wow Carol! What a week for you and your family! Sure hope your mum heals well.

    So glad everything went well for you......must have been a really good girl to be set free after only 7 days and not the expected 10.....you have done very well indeed! Oh ouch on those staples! I've only had staples once and they were soooo painful but I must admit that it was about thirty years ago so I guess they hafe improved since then.... lol.

    Yes, do take things very gently and slowly, you have masses of healing to do and while you are doing that you are going to be very tired.

    I held my breath when you said you gad some nodules but breathed with relief when you said B9.........yay!!!!!

    Love n hugs. Chrissy

  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    I'm heading off to the city tomorrow for head and chest CT. I've been getting really breathless without much exertion so my doc wants to see if something is amiss and I've had a headache for a few weeks with little to no let up so he wants to check that as well.

    Keeping my fingers crossed that my long affair with NED is not over. I am staying over night with my sister and then seeing my doc Thursday for results. I'll let you all know.

    Hoping everyone is doibg well.

    Love n hugs. Chrissy


  • aussie12
    aussie12 Member Posts: 421
    edited October 2016

    Hi all

    Good luck Chrissy with your Ct, I had a bad headache yesterday and get migraines as well so I know how you feel.

    I have my staples out tomorrow, can't wait as they seem to pull on the stomach. Some of my pain has gone but still very tired.

    Mum is still in hospital, I haven't been to see her yet, maybe next week if I'm better.

    Carol

  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    Thanks Carol, headaches that won't disapate are the real pits as it's hard to know how to get some relief. I haven't had a mygrane for many years and since then don't really have headaches at all, another reason my doc wants to check.

    Oh getting thise staples out is going to be such a relief! You wont know youself that's for sure! Your tiredness will take some time to pass as your body is really woring overtime to heal so you'll just have listen to your self and rest when necessary........but that too will pass given time.

    I'm sure your mum understands why you haven't been to see her and will be over the moon when she sees you much like your old self.

    Take it easy and don't push too hard.

    Love n hugs. Chrissy

  • Smurfette26
    Smurfette26 Member Posts: 269
    edited October 2016

    Chrissy hope the CT results don't show a return of cancer. Thinking of you.

    Carol good luck with the staple removal.

    Hugs all. Donna.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited October 2016

    Chrissy - ((((hugs)))) I'll be in your pocket until you know xoxo

    Carol, getting those staples out will be a relief!

    I had my six month check up with the onc on Monday, everything is fine. I too have been getting more headaches than normal, and feeling dizzy periodically. I don't have any other symptoms (blurred or double vision) and I think it's to do with a bad case of hayfever, and my onc agrees. We are keeping an eye on it though - and if anything changes I have to see him straight away. I'm not terribly worried at this stage though, Canberra springs can create havoc for those of us that get hayfever. I'm using Nasonex every day now, and the symptoms do seem to ease with it.

    Trish

    x0x0

  • shirleytai
    shirleytai Member Posts: 7
    edited October 2016

    Hi Australian Sisters,

    I am new here. I am from Melbourne, 36 years old. Found my lump in July this year, had a lumpectomy in August and now having chemo. Now I am in half way of chemo, I started thinking if I should have an MRI scanning which should have been done before the surgery. Talked to my radiologist yesterday and he said it is not necessary but he would book for me after the chemo before the radiotherapy if I insist. So what should I do? Did anyone have similar experience or any advice?

    Hugs

    Yi

  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    Hi Yi! Welcome to BCO.

    An MRI is not really necessary unless you have really dense breasts. Your normal work up and staging when you were first diagnosed is enough to let your docs and you know where your cancer is and what needs to be done.

    As your radiologist says, not necessary but if it will put your mind at ease go for it.

    Love n hugs. Chrissy

  • shirleytai
    shirleytai Member Posts: 7
    edited October 2016

    Thanks Chrissy, and you are right

    I just overthink sometimes:(

  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    No probs Yi, we all have a propensity to over think things at times........I think it comes with the territory.

    Love n hugs. Chrissy

  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    It is with a heavy heart that I let you all know that our girl Mel gained her wings on Wednesday 19th October. Her Funeral will be held Thursday 27th October at 12.30pm in the Heysen Chapel at Centennial Park, Adelaide.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited October 2016

    Hello Yi - welcome to our wonderful group of sisters. How are you handling chemo? What regime are you doing? I'm almost six months out of chemo, and feeling pretty good, and have a full head of (short) hair!

    It's so, so sad to hear of Mel's passing. She tried so hard, and fought for so long. I've been crying for her. I'd love to be able to get down to Adelaide for her funeral, but finances are against me. Chrissy, please give her mum a hug from me, and tell her that Mel was in my thought often xoxo

    Trish

    xoxo

  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    Will do Trish.

    My scans have come back all clear........yay!! What is causing all my pain is my ever increasing arthritis........thank you Femara for both keeping cancer at bey and encouraging the arthritis.......lol. Allgood!!

    Love n hugs all. Chrissy

  • shirleytai
    shirleytai Member Posts: 7
    edited October 2016

    Congrats Chrissy for your results, and thanks Trish, I am doing ok with the chemo. I think I am receiving the TC drugs, ended up in the hospital for the first time as for 0 neutrophils, so they started giving me Naulasta for the rest 3 treatments. Plus lost my hair from the first round :(

    Yi

  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    Thanks Yi!


  • Smurfette26
    Smurfette26 Member Posts: 269
    edited October 2016

    Chrissy happy to hear your scans were clear.

    So very sorry to read of Mel's passing. Thinking of all those who loved her.

    Hugs all.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited October 2016

    Hi Yi my neutrophils bottomed out too, did the neulasta shots, which helped a lot. I did TAC, the T was Taxol, 12 weekly doses. I didn't need the neulasta for those, only the AC. While I was doing the Taxol infusions, I sucked on iceblocks during the infusion, and it helped a lot with the yucky taste change. It might help you too. Remember, just take one day at a time, and sometimes it's just one hour at a time. Good to hear you are going ok though.

    Trish

    xoxo

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited October 2016

    So sorry to see this news about Mel :-( Cancer is still a ba..ard..

    Such good news Chrissy, that those tests came back well!

    March sounds good for me for the get together. Hopefully a lot of our daughter's issues will be sorted. We got her NDIS funding plan through this last week, and we have gone from NO support to enough to cover the support she needs.

    Gotta run, Jenn

    PS: had my annual follow up with my breast surgeon this last week. She told me she never wants to see me again! It's five years since my diagnosis in December..

  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    Yay Jenn!!! Great news on getting the support you need for your DD, that's got to lift a whole heap of weight off your shoulders.

    Double Yay for hitting the five year mark!

    Thanks Jenn, as you may guess, I'm pretty happy with the results overall. .......long may they continue.

    I will be attending Mel's funeral on Thursday and will say goodbye from us all.........she sure was a little fighter. She used to contact me when she was feeling hopeless and overwhelmed as did her Mum and we'd have long conversations.

    Love n hugs all. Chrissy

  • aussie12
    aussie12 Member Posts: 421
    edited October 2016

    Hi all

    Sorry to hear about Mel, very sad news.

    I am still having my good and bad days but slowly getting there. I'm going to see Mum in hospital tomorrow as I feel good enough to drive there. Hopefully she will be better and maybe getting out of bed.

    Carol

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited October 2016

    So sorry to hear the sad news about Mel 😞 it really isn't fair ..

    Chrissy ..So glad to hear your scans are clear ..🙂

    Carol ...glad you can visit your Mum ..

    Shirleytai ..Welcome ...there's great comfort on these boards , particularly this thread . I am from Queensland ..

    Trish ..Wow ..hard to believe it is 6 months since you finished chemo ..

    Well I am 9 days post hysterectomy ...The operation went well , and I was so happy yesterday to get my pathology back , and its all good 🙂 Chrissy , thanks so much for " holding my hand " before it all ..

    Hugs to all ..

  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    Yay Lucy! Glad it all went well and that the path report was all good! You are very welcome with the 'hand holding', any time. Just rest up now so you can heal and remember you have had major surgery and your innards take a while to heal even though you feel fine.

    Carol I hope the good days far out do the bad ones b6t good to hear you are getting out and about. Hope the visit with your Mum went well.

    I'm heading down to Mel's service tomorrow......going to be a loooong day.

    Love n hugs all. Chrissy

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited October 2016

    Chrissy, I'm glad you're well and were able to represent us at Mel's service.

    Yi, as you can see Chrissy is a wonderful support to us all.

    It is my 4 year anniversary this week.....I'm hoping for many more!



  • chrissyb
    chrissyb Member Posts: 11,438
    edited October 2016

    Yay Tammy!! Congrats on your four years!!! and keeping everything crossed that there are indeed many, many more years in your future.

    Mel's service was lovely as funerals go. She had an incredible friendship with Guy Sebastian and to show his appreciation for her friendship and how special she was, he has paid for a star to be named for her so now when you look to the night sky, she will be there shining down on us all.

    Hope everyone is coping with what's happening in their lives.

    Love n hugs. Chrissy

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited October 2016

    Chrissy, how lovely about the star!


  • Lucy55
    Lucy55 Member Posts: 2,703
    edited October 2016

    Tammy ..4 years and going strong. !!!😃

    Chrissy ..What a lovely , lovely story about the star ..

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited October 2016

    Thanks Lucy!

    Trish, I saw on the Femara thread that you use curcumin. What brand? I fell over a few weeks ago when walking down a hill and fell on my right knee and hands. I lost some skin and they felt fine at first but my right knee is now getting sore, as are all my joints....I need to try something

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited October 2016

    Yay Jenn on getting to 5 years and Tammy to 4! Next Friday will be one year out from my dx for this second round.

    Chrissy that's so sweet about Mel's star, what a lovely thought.

    Tammy - I take BioCurcumin Plus from Nutrivital. I get it from a local health food shop here, but you might be able to find it in Sydney somewhere - or order online, here's the link: http://www.nutrivital.com.au/product_detail.php?seq=4

    Hopefully the link works, if not google Nutrivital and BioCurcumin Plus. The curcumin has to have black pepper in it to activate it. It's helped me a lot.

    Trish

    xoxo


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