Australian Sisters
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Hello all
Sorry - I've been a bit quiet too. Work has been overwhelming, it's just too busy.
We are drying out a bit. We still have creeks of water running through the property, and especially down the driveway and onto our dirt road. The back verandah is still a swimming pool, but going down slowly. More worrying now is our road - there seems to be a spring that has come up, right in the middle of the road, and I'm struggling not to get bogged in it. Problem is you can't go around it as the paddock on either side is also waterlogged. Ground too soft and wet to get a truck load of gravel in too. Maybe I'll just have to stay at home for the next week lol
Sue - hope your back is getting better. Mine has been playing up a lot too - all this damp weather isn't helping.
Jenn - good to hear from you too. At least the FEC is finished now - and I'm sure that as you've had so much trouble with it the Taxol will be kind to you. And - as Sue says - Herceptin is easy.
Kylie - I didn't have to do rads (I had a mastectomy and clear margins) but if you do decide to come down to Canberra for them, let me know and we can organise a catch up!
Kate - thinking of you too sweetie - don't go overboard with all your activity! I know you'll have fun with the wedding though
Chrissy - hope all is well with you?
Racy, I second your thoughts about the aches and pains - we all do that when we get a new ache I think, and I"m the same - wait two weeks and if it's gone (which it usually is) then I breathe a sigh of relief.Love to you all
Trish
xoxo
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Hi all!!! I'm home again and the computer is finally working like it should.....lol! I can't believe how quick it is now! Apparently a lot of my problems were coming from the memory breaking down so that has been replaced and a little more added to it and voila! all good!
The doc appointment went well and her burnt about a dozen spots for me and then changed my pain meds to Tramadol.............mmm.....not sure if they wil be good for me or not so it's a just wait and see once I've finished the ones I have. I'm hoping they work just as well but whatever happens I can't go back to the others as it is now no longer available
Thank you Julia Lizzard errr Gillard.Trish it's typical for Australia, first we get the drought them we get the flood..........don't mind the water but not the destruction that comes from too much all at once! Sure hope things dry out even more for you without causing more problems. A spring in the middle of your road? Really? Wow!
Jenn sure hope you are feeling a it better and try to take it easy.......I know you work but I'm sure there would not be a problem taking a few days off. Thank goodness the FEC is done and dusted and hopefully the Taxol will be gentle with you. (((((Hugs))))
Kate you amaze me the way you are going through the chemo! Well done you!!! Just don't be doing too much as I know that is easy to do when you are feeling okay.
Racy I always follow the two week rule with aches and pains and it seems to work wonders on the psych doing it that way. It gives you a chance to let the worry go while still being aware.
Sue, I'm sure hoping that sciatic pain disapates soon as time really in the only healer for it.........unfortunately. It would be nice to be able to pop a pill and the pain would be gone...........Ah! we can dream can't we?
To those I have missed I hope you are all doing okay and loving life!
Love n hugs. Chrissy
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OK so is there something wrong with me???
I was just out the back and heard our back neighbour with the electric shears about to tackle the jasmine creeper which grows along our shared back fence. I have 4 golden palms there and last time they got their shears out they very kindly cut about 8 fronds which went way up higher, like not drooping down over their yard or anything. So I went out the back this time just to keep an eye on her. Anyway she was on her stool and she saw me so she left and went inside. Then she came back out and by that time I was actually transplanting some ground covers right near the fence. I could hear her on the other side, so I said, "hello neighbour" .... nothing. So then I said, "helloooo" ... still nothing. So then really loudly I said, "hello, it's your neighbour saying hello" and look if the fence wasn't between us there would have been a metre between us at most.
Now I know she's not deaf... I met her probably a year ago when we first moved here and I popped my head over the fence to indroduce myself and also tell them that we had 4 dogs and that if they caused any trouble (excessive barking etc), could they tell us about it and we would deal with it. Haven't seen hide nor hair of them since then and the conversation was awkward as they looked like rabbits caught in the headlights.. obviously they aren't into neighbours.
But today just astounds me, I mean what does it take to reply back with an acknowldedgement that she was spoken to. How rude!!! I shouldn't take it personally, but honestly I am bald and ugly so already feel like an alien walking around on this planet. And the insecure part of me thinks it's because I'm ugly, whereas the secure part of me knows it is really about her and her attitude and nothing to do with me at all. But honestly ... I am gobsmacked!!
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Am working from home today. That saved me from the 2hr driving there and back, and sitting in our horribly ventilated building.
I managed to get out for a 3/4hr walk with the dog before I started work and then at lunchtime I dashed off to the post office to pick up my parcel from TLC in the USA. I ordered a scarf "padder" and a "fringe" that I can wear with scarves or hats. The fringe is just the matching colour for my wig and I think it looks good. I'll put a piccy on the Facebook group...
Off out for dinner tonight as it's my younger daughter's 19th birthday today. She is the one with Down Syndrome so has been looking forward to her birthday since last birthday ;-)
No sore back or headache today. Had a brain wave last night and looked up the SEs for denosumab (the drug I'm either getting or not getting (placebo) on the trial I'm in). Sure enough, two of the main SEs are headaches and back ache. I thought I was on placebo because had had no SEs but at my last appt my trial nurse said she thought I was on the drug because my calcium levels have dropped which is also one of the SEs... Looks like she might be right! NOTE: one of the requirements of the trial is I have to take a calcium/vit D tablet everyday. Those things are horse pills - really hard to get down in that first week after every tx when I'm nauseous :-(
Jenn0 -
Hi Jenn, have you started your Taxol yet or do you get a bit of a break?
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First taxol/herceptin is next Thursday. Enjoying a break, but dreading the bone ache/pain thing from the taxol...
Still amazed (read jealous) at how well you have tolerated your tx so far (except for the infection thing of course)... :-P
Jenn0 -
I had a serious talk with the physio today and asked how long he would treat before recommending MRI's etc. He said a month. He agrees it's classic sciatic pain. He did give me a new exercise which was really painful but really interesting - I think it helped. I'm going to work tomorrow and see how I'll go - another treatment lined up for Friday afternoon.
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Kate, nothing wrong with you, that is very bizarre behaviour from them. My first thoughts are that she is a beaten wife and cant afford to mingle with neighbours or have any friends so that she can hide the bruises easier. Or that they are wanted criminals hiding from the law ( Mind you I watch far too many real life crime shows on Foxtel lol)
At one stage with one of my neighbours I called the cops on them a few times in the space of 2 months for unbelievably loud parties that they used to throw every friday and saturday night. Always started at 10pm and went on till around 11am and so loud that it almost sent me into a nervous breakdown. They came over and we discussed the problems and have never had any hassles since. And when we see each other over the fence etc, we still say a few pleasant words to each other. So with your neighbours and never having had a problem with them, her not acknowledging you is just bizarre and weird.
Jenn hope you have a good night for your daughters 19th. Hope your happy feeling that your are in fact on the drug and not the placebo (personally I think thats really cool).
I know what you mean about the blasted calcium tablets, I hate hate hate taking them as they are so huge. I ALWAYS have trouble swallowing them down and if I wasnt more scared of losing bone mass than I am of having a tablet stuck in my throat I would so be throwing them out in the trash. Thank god arimidex are tiny pills, thats one blessing. I accidentally overdosed myself last night on them all. Took the pills earlier in the night which is not my usual practice. Then just as I was going to bed I took them all again. Realised immediately what I had done and not quite knowing what to do, i put my fingers down my throat to get them out of my system. Had to go to bed with that revolting yucky chalky taste in my throat from the pills coatings, Hope I never do that again lol.
Been a bit absent minded the last few days, just found out I forgot to place an order for my shop that I place 6 days a week and have never forgotten before. lol I wish I could blame chemo brain.
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Lyndal - what shop?
Kate - I agree that you are not weird. The neighbour is the one with problems from the sounds of it...
Jenn0 -
I own and run a fast food/sandwich bar in a major shopping centre Jenn. Half is deep fried foods like Gems and chips, fish, spring rolls, chico's etc and the other half is a large salad bar and we make fresh sandwiches for customers. Tiring but mostly fun.
Was why I couldnt work through chemo, the smells were vile. but even then I never missed placing a stock order lol.
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Oh yes, working in there would have been too challenging Lyndal. Mmmmmm, potato scallops???
I'll let you in on a secret. I spent ages putting together a report for a meeting for one of my trials the other day ie: Monday this week. Got to that evening and realised I'd created a report for the WRONG TRIAL. Had to hook online at 10pm to do the right one ready for the meeting the next morning. I was sooo upset I did this. Never would have made that mistake before chemo :-(
Jenn0 -
lol Jenn, you picked my weakness, potato scallops are the best of all, specially on a roll with some of my extrememly popular gravy and a bit of cheese. mmmm yummy
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Oooo I can feel the pounds piling on the hip and tum!!!!! But I'm with both of you on the potato cakes!
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Hi Chrissy, I hope you are well.
Trish said to PM you and see if you could add me to your sisters facebook page.
My facebook is under Kylie Luke with a picture of a beach.
Hugs, Kylie x
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Well Chrissy that was hardly a PM. I blame the fact of FEC yesterday and I feel awful.
Hope everyone ok.
Sue - have you tried a TENS machine for sciatica? Hubby has it really bad from broken back and physio recommends a valium to relax everything and the TENS. Works sometimes. x
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Morning ladies, it's my day off today. I absolutely love my job! I finished my first project yesterday.
I saw the GP again yesterday about my latest breast redness. It's fading with antibiotics so seems to be another infection. I will have to find a way to manage this long term.
I'm going to pilates this morning, then lunch with a friend, then meeting with the coordinator of my wellness program, then back to the gym.
Have a good day all.0 -
Kylie - I had never heard of that - I looked it up - will investigate further.
I'm acutally at work!!! Lucky sitting doesn't hurt. Have a meeting way up the road today, so will leave early and walk slowly.
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Hello all
I'm working from home today and tomorrow, our road is getting so bad that I almost got bogged yesterday, so to take some pressure off it staying at home for the next 5 days (Monday is a public holiday here for Canberra Day).
Kate - you have a weird neighbour - it's not you! I know you are feeling like an alien at the
moment, but we've all been there. At times I felt just like that - almost like a man, no hair, one missing breast, feeling nothing like myself. It's a horrible feeling, but don't let that get you down. And you aren't ugly! Ok - the outside of you is taking a hiding at the moment, but inside there is a beautiful talented woman screaming to get out again lol That applies to you too Jenn and Kylie! This too will pass - although it seems to go on forever when you are in the middle of it.Sue - hope your back gets better soon - I'll have to look up TENS too - my hubby has a chronic bad back and drs are amazed that he can even walk upright most of the time.
Jenn - I can sympathise with your error on Monday - I've done exactly the same thing (well not exactly the same obviously we do different work lol) and it's so annoying. Just chalk it up to one more thing about chemo that sucks.
Lyndal hmmm.. now I'm craving scallops too!
Racy - have a great day - so glad you are enjoying your job and so glad the antibiotics seem to be working.
Oh - did I mention it's raining agian?!! sigh we'll start building the ark tomorrow I think
Trish
xoxox
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Just woken up, I wish I could have stayed asleep. Breast care nurse rang to check I am ok, they are a great support.
Our TENS machine is a 'Pro-Tens'. We had to get it via referal from the physio, apparantly there are dodgy ones about. It has four sticky pads, -ve and +ve which you place on your skin, and you can adjust intensity and frequency. Hope that helps.
Going back to sleep hopefully xxxx
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Kylie I would love to add you to the facebook girls but like Trish I can't find you. Have you got your privacy setting set very high? If so you won't come up on the list when I put in your name. If you want to do it another way just friend me and then I can add you. Christine Bout and I went to School in Port Pirie.
Kylie take it easy and be gentle with yourself and make sure you take all the meds recommended for your nausea and take them even if you think you don't need them as I assure you, you do. When you are feeling better we can sort out the FB thing.
Sue Tens units are little miracle machines! I never thought that you wouldn't know about them or I would have said something! Thanks Kylie for doing that. Sue I think you will find that by using it you will get an enormous amount of relief. Take it easy on that walk to the meeting!
Kate there is nothing wrong with you it is your crazy neighbour that has the problem. No matter what you look like at the moment, and I think you are beautiful by the way, you are still you.............a warm, caring and loving woman.
Racy so glad that boob redness is fading. I hope the flare up of that infection can be either controlled or totally gotten rid of sooner rather than later. I cannot imagine having to deal with that forever. I'm so glad you are enjoying your work!
Jenn chemo brain is a real thing! That's why it is not recommended that you work in an area of import until you are done and dusted with treatment. It has been proven that during chemo the brain does not function as well as it should and that is another reason why people say rest, rest, rest. I sure hope the stuff up hasn't caused you too many problems.
Trish I sure hope that rain stops soon and gives the land a chance to dry out a bit! Just as well that you can work from home.
Hope all are having a good day!
Love n hugs. Chrissy
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Hi lovely ladies. Thanks for confirming to me that although I am an alien I am still OK. I know it is my neighbours problem. I reckon they are in witness protection. Weird. Anyway, I'm dropping it. Odd people!!!
Tomorrow is chemo day at 8.30am. 2nd to last one - yay. I know I have done really well with minimal side effects but that now beggars the question (which I will ask my MO tomorrow) is it working? Heck I've lost all my hair and my finger nail moons are all black, so it's doing something... but maybe it's not 'strong' enough for me. I feel like a chemo fraud. Everyone keeps ringing me asking how I am, and when I say I'm really well I don't think they know what to say. Trust me, no one is more surprised than I am that I have had so few SE's. So I hope sincerely that it is just me and that they do have the dose right.
Chrissy - how are you new glasses?
Jenn, really hoping that Taxotere is way easier for you
Trisha ... the rain! Gosh I hope you get your driveway back soon.
Lots of love to everyone, Kate xxxxxxx
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Kate don't worry about not having SE's from the chemo just thank your lucky stars. There are a lot of people who get almost no se's and then others get them all...............everyone reacts differently but you can be assured that it is doing it's job.
My glasses are just great although it did take me a couple of days to get used to the increase in strength of the right lens.......lol.......particularly with reading but all is fine now. I think it also had a lot to do with the narrow band that comes with tri-focals and the fact I perhaps wasn't looking in the right place. I'm loving the fact that they are sooooo lite!
Good luck with your chemo tomorrow!
Love n hugs. Chrissy
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I made it through the day of work. I left early for the workshop and walked relatively slowly. My knees gave me more trouble than my back - I actually think the exercise would have been good for it. Only stopped for one rest on the way.
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Yay Sue!!! Sorry your knees gave you a bit of gyp though...........if it's not one thing then it's another! I guess thats part of getting older.....lol.
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Chrissy - I know, I'll be 60 this year - not looking forward to it. I know I need knee replacements, but my physio said to avoid it at all costs. My hip/leg pain is back, probably from doing my exercises. Looking foward to my treatment tomorrow arvo. Hey, one good thing about being off sick for most of the week - tomorrow is Friday!!
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hi im sandy72. i have stage 2 breast cancer grade2. i was in chat rooms today chaters said i lied about my breast cancer what do you think.please help.
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May I ask you, gforce72, who is david_63?
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Hi gforce,
Where in Australia are you? What cancer centre are you going to?
You seem new to online talking to people. Is it something you are not used to?
regards Jenn0 -
Hi gforce and welcome to the australian room. Im in brisbane and had my masectomy at Wesley Hospital and Chemo at RBH and currently only on Arimidex to keep those pesky hormones from misbehaving. Where are you at in your treatment? Recently diagnosed or post treatment?
I had no idea we even had chat rooms.
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Hi Racy and Jenn, hope you ladies are well and enjoying a relaxing Thursday night.
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