Australian Sisters
Comments
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Awe Sue.....how cute!!!! Some babies don't crawl but walk! Hope he doesn't take off too soon! Happy Anniversary of your sons birth!
Glad the panadeine is kicking in!
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My little 'grand' neice is nearly 10 months old and not even attempting to crawl. You can tell she is a really bright little button, but she just doesn't have the inclination or need to move as her parents (first timers) spend every one of her waking seconds adoringly playing with her. So for her, I'm thinking it's a case of every single toy is given to her and she doesn't need to figure out how to get to anything. I reckon she'll go straight to walking around the furniture soon as her little legs are really strong.
Still not feeling well. Just took my last Emend. I looked at the bedside clock and I thought it said 1.30am so I lay there wondering if it would be too early to take the tablet, but then I thought I wanted to try and stay on top of any nausea, so I got up to take it. Heck it was 5.30am - I can't even read a clock properly. But I felt better knowing it was 24 hours since the last tablet.
Last night Sarah bought a friend (boy) around for dinner. We had the most basic bbq you could imagine, and oh my lord he is 6'8" tall! a whole foot taller than me and I felt like a midget. The funny thing was seeing Paul with him. Paul is about 6'1" but he looked so dwarfed next to him. Sarah is only 5'6". Nice guy though but heck he had to drop his head to walk through any doorways.
Hope everyone has a nice Sunday today, sleep ins, reading the paper, maybe a nice lunch. I'm going back to bed to see if I can catch a few more zzz's
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Jenn (((hugs)))) it does seem that we are met with bc everywhere we turn - but nice you are in a lovely location.
Kate (((((hugs)))) too - hope you feel better soon - sleep really does help a lot, get as much as you can while feeling yukky.
Sue - you poor thing, bad backs are the pits. I'm also having a lot of pain in my lower back at the moment, it's not too bad when I'm still, but getting up from a seated position is murder at the moment, I saw my chiro last week, and that helped for a few days, but now it's back to where it was.
Kylie - how are you going?
We are still having major issues with our road. DH went down to have a look about an hour ago, and said we wont be going anywhere soon. So, I've called our neighbour on the big farm, and he's meeting us there shortly. We are going to take both our cars down, and have him tow us through the mud holes and we'll leave both cars on the other side. It could be another week before the water stops running into it, and I can't stay away from work that long. Will probably stay with a friend in Canberra while it dries out. DH can do some shopping on Tuesday and stay here with the dogs.
And apparently we have worse weather to come in April! I can't imagine it worse than it was a week ago.
Chrissy - well a thousand tomatos is probably overstating it a bit lol but I think there is still another 7 or 8kg ready to pick, and that's after the 4 odd kgs picked yesterday. Today am stewing quinces in the slow cooker - we have heaps of them this year - last couple of years the birds took them all.
Love to all
Trish
xoxo
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Suzie, pardon me if youve already tried this or know of it and know it wont work but many years ago my back was so painful I was walking around all bent over and in real agony. I actually thought the pain was radiating from higher up but it only took a finger poking my coccyx from the dr to show that without having had an accident or anything that ever stood out, I had bruised my coccyx bone/tail bone. A month or so with one of those hammoroid ring blow up cushions and the pain was gone.
They were available at any chemist/pharmacy, didnt cost much and it stopped the pressure on the coxic bone (lowest bone in the spine) when I was sitting.
BTW at night I placed the ring in the position to best help my coccyx have no pressure on it and built up the surrounds with blankets and pillows etc so that I could sleep comfortably without causing pain elsewhere.
Hope this info helps.
Also hope everyone is enjoying their sunday arvo. Ive finished work and am sitting down to enjoy the rest of mine now.
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Thanks Lyndal - unfortunately it's classic sciatic pain deep in one buttock - the panadeine is working and allowing me to function. Not applying heat seems to be helping which is interesting. I might cancel my physio appt tomorrow and give myself a few days to recover from all of the pummelling. I managed to get lots of work around the house done today - cleaning bathrooms and folding washing but no floor cleaning - so that's a lot better than I've managed for the last week or so.
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Hugs and best wishes to everyone.
Kate how are you going after your dreadful time? I can relate to the trying to read the clock experience...
Sue - I hope your back gives you a break from pain. You did well doing all that cleaning!
Trish - did you have to stay away from home?
We went to a school info night last night, I must keep a scarf in the car. It was the first time I had been up properly since No.2. I haven't had any dramatic SEs just feel really really nauseaus and weak, I am hoping to get something (anything) done today.
Kylie xx
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Hi Kylie, sorry you are still feeling weak and nauseated, chemo really sucks. Don't try to do too much today, just take it as it comes. If you can't get much done, that's ok, you need to rest as much as you are able to on chemo. xoxo
We got the cars to the other side of the bog on Sunday - only after I buried the car up to the chassis though lol my DH was not happy with me, apparently I was supposed to stop THIS side of the bog so he could attached the tow rope to the underneath of the car! I didn't realise and thought I'd just drive in as far as I could. Well after much swearing and DH thigh deep in mud the rope was attached and our neighbour pulled me out. I drove to work this morning, and am going to spend the next couple of nights in Canberra with a friend until the road is fixed.
Kate - how are you feeling? And Jenn? Glad your heart scan went well, will keep my fingers crossed it stays that way all the way through Herceptin.
Hugs to you all
Trish
xoxxo
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Kate- visions of that are too funny. I am sure they weren't while it was happening.
I admire you all so much for working, I just made an emergency appt at dentist for FIL. It took me four phone calls to get the basics right, and yes I was writing it down.
I really really hate all this. My vocab has condensed to 'hot, cold, tingly, burning, hungry, tired, wired, nauseaus and generally whingy." xxx
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Hello everyone. I'm here - just. I've spent the best part of the last 72 hours in bed, just getting up for the basics every few hours or so. I'm hoping today I will turn the corner and feel better but until then I'm just going back to bed, it seems the only thing that helps. I can't believe that each treatment can be so different, the last one was easy, probably too easy, but I'm paying for that good one now I can tell you.
I too have the hot and colds constantly and my back is throbbing again so the neulasta must be working, which is good.
I hope I turn a corner today. I too admire anyone who can work through this.
xxxx
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Hi girls! So sorry to hear that both Kate and Kylie are really feeling under the weather but just as Trish said, rest is the best thing until you are feeling better.
Kylie do you have some good anti-nausea meds? If you do but it isn't enough given, make sure you ask for more for the next round. The docs usually only give what the average dosage would be but as we all know, we are not average and everyone is different and have different reactions. Please don't push yourself trying to do things at the moment, they are not going anywhere and most if not all can wait until you are feeling less nauseated and fatigued.
Kate every treatment can be different but boy you have had both ends of the spectrum from one treatment to the next. You are doing the right thing by staying put in bed.
Jenn good to hear that you heart test went well and you are good to go with your Herceptin. I hope you had a great relaxing time in Port Macquarie and arrived home feeling a whole lot better.
Trish your word picture of you DH up to his armpits in mud trying to attach the tow rope had me rolling on the floor (well almost)......lol. At leaset you can stay with a friend for a few days until the road is fixed so that is a good thing. Here's hoping the rain stays away now for a few weeks to allow everything dry out.
Sue how is your back? Gosh I hope it is finally starting to settle. Sciatic pain is really the pits!
Alyson how are you today? Sure hope you had a good weekend!
Racy, I noticed on a couple of other threads that you are still really concerned about that rash on your boob. Please go and get it biopsied so you will know one way or the other. There is nothing worse than thinking the worst constantly and that sets you up for a whole heap more stress that we can all do without.
Had a lovely day on Sunday with DD2 and her partner. They are such good company and the laughs just keep coming when they are around.
I have the pre-admission interview with the hospital today in about an hour. Luckily they are happy to do it by phone and didn't expect me to go to the city just for that but the anaethetist does so I have his appointment on Friday. Then a week between and then all the bloods and ECG at the beginning of the next week prior to admission on the Friday. Oh man! this is now getting close and I'm not sure. I know I need it done and I know I will be a wholel ot better off after it is done and healed but this is really starting to get to me. I have had heaps of ops over the years but this is the first on that I've had to go through all this hooha. Yes I know this is a huge op........I've seen it done...........maybe that's why I'm feeling like I do because I really know what is about to happen......lol. Maybe it's just the waiting that is getting to me...............I will survive and get through. I know when that week arrives I will be okay it's just all this waiting!.................UGH!!!!!!!!!!!!!
Hope your day is a good one!
Love n hugs. Chrissy
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Chrissy - you are SO brave - I'm still resisting. My hip/leg is still sore but the panadeine is working and lasting the whole 6 hours, so maybe it is improving. Didn't take any last night and slept fine.
Kate & Kylie - I can't remember ever being that sick - I thought TCH was tough. I can only remember crying for the first 10 days, but the subsequent treatments were manageable owing to meds to help.
Hey, I was 2 years PFC on Saturday!!! and I didn't remember until Sunday
Sitting here at work trying not to fall asleep.
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Kate - you poor thing, I was wondering if you were having a bad time this round. Sleep, sleep and more sleep - the only way to get through it sometimes. xoxoxo
Chrissy - I can understand your apprehension, but just look forward to how much better you'll feel. My DH's cousin recently had a hip AND a knee replacement done. They were supposed to be done in the one big op, but something (and I can't remember what now!) prevented that, so he had his hip done on a Friday and the knee on the Monday. He came through it all fine, and is now on top of the world. And as for the waiting - well we can all relate to that - you'll have to find ways to distract yourself.
Hope everyone else is going well
Love to you all
Trish
xoxo
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Hi all,
Feeling as good as it gets this week (3rd after last chemo). Hating the thought of Friday and having to go back to being a cancer pt again.
Yes, my heart function test yesterday looked good. Today I did the pelvic ultrasound and I will pick up the report tomorrow. The radiologist did say that he couldn't get a measurement anywhere near as thick as the last scan in January so that is a bit of good news and I may be saved from having to have a D&C before I start Tamoxifen, although I know my gynae is keen to get rid of the ovaries - I'll give that due consideration later...
Pre-chemo bloods tomorrow, onc appt on Thursday and first Taxol/Herceptin on Friday. All while still working full-time this week (I did a few extra hours last week to make up for the appts this week).
Sorry to hear that we have Kate and Kylie not feeling great from the chemo :-(
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Sue, is your hair appointment tomorrow? I'm looking forward to hearing that you like the result.
Kate, I do hope you feel better soon and that your husband is able to wait on you. Kylie and Jenn, look after yourselves too. Chemo is not a happy experience and I'm looking forward to it being over for all of you.
As I posted elsewhere the rash that I had has cleared but I am still following up with my docs to get a diagnosis. Although the chances of it being cancer are slight, I can't help worrying. It's annoying because everything else is going really well for me.
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Hi again. I'm at about 75% now. Managed to stay awake all day but just lay on the lounge and watched tv all day. I managed to hang out two loads of washing but otherwise it's been a very unproductive day but baby steps and I think I will be that much better tomorrow. I have to go to the surgeons tomorrow afternoon and fill out paperwork for the port. I know they want me to go private but being only one wage it's the gaps that I don't want to pay. So I am filling out paperwork for the public hospital.
Chrissy. Yes you are so brave and I know you will do it well. I'm sure it will be painful initially but in the long run - yes you will be running! and it will all be worth it. You know we are all here for you.
Jenn - that's good news about your scan and possibly not having to have a d&c. Hoping that Friday goes well for you and that taxol/herceptin will be much easier for you.
Susie - Way to go being 2 years out now. Another of many milestones for you I am sure. I really hope they work out what is wrong with your back soon.
Kylie - Sorry you've been unwell too. I can add pathetic wailing to the vocabulary and a huge amount of 'woe is me'. I really don't rise up to being sick, I'm not stoic at all and tend to feel very sorry for myself indeed. Not a pretty picture.
Trisha - Are you still away from your home due to the floods? Did someone here say that even more and worse rains are expected your way in April? Hoping you get home soon and that gardens are salvagable and that you didn't loose too many little lambs.
xxxxxx
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Racy - YES it's tomorrow - really looking forward to it. I should look beautiful going for my Zometa infusion in the afternoon
The pain is now in my upper leg - bloody hell - hoping the onc doesn't think it's something more serious. I did a bit of a read up on sciatica yesterday and treatment was listed as traction and manipulation - both of which I get from my physio, so that's good.
Kate - glad you are feeling a wee bit better.
I might be 2 years PFC but only 15 months post last herceptin - whatever
Sue
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Hi Susie, So sorry the pain is continuing. If you hadn't been so far out of treatment I would have suggested that if you took Taxol/Taxotere it might be residue pain from that as I did see yesterday an article about how the pain from taxanes can continue long long after treatment... I saved it on my home emails and I'm at work now so will try and copy it up when I get home tonight.
Jenn
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Sue, sciatic pain radiates down the back of the leg. It's a nerve pain. I really hope you will be ok.
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Kate hope you feel much better today, hanging out the washing is a big thing! lol Good luck with your paperwork, can understand you wanting to go public, the gap fees are just too much sometimes. Having said that, I actually rang the aneasthetist yesterday as I hadn't received a bill from her for the port removal and got a pleasant surprise. She only claims what she gets back from my health fund and medicare! First time I've had an anaesthetist do that. The surgeon was the same, so the whole port removal cost me my excess which was $250!! I'm happy.
Jenn - can totally sympathise with your reluctance for the next chemo treatment, but we'll all be with you xoxo
Kylie - how are you going now?
Sue - hope you are feeling better too?
I have finally made my appointment to go to the dentist. I've been having lots of problems with my teeth. One of them got very loose during chemo and now the two next to it are loose, and I'm getting abcesses. So will have to have them out I think. I hate the dentist - usually throw up before I go. :-(
I stayed with friends in Canberra last night, and with any luck the road might be finished today, so I can go home this arvo. DH is ringing me at some stage today to let me know how they are going.
Hope everyone has a good day
Trish
xoxo
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Racy - I know all about sciatic pain - not the first time I've had it. It's back up in the bottom today and the panadeine hasn't kicked in yet. I just took my naprosyn so that will help when it kicks in. Just about to have my shower to go to the haridressser. I'm not going to wet my hair so they can see how frizzy it is in the morning
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Morning girls! Yup, I hope you were all sitting down as I'm here very early.......for me........lol. Don't know what woke me up....oh yes I do!............I had to go to the loo...............and once that was done I thought I might as well stay up............lol.......
Sue can you post a pic of the new do? Would love to see the results. Glad that sciatic pain is receding.........finally. I don't get that only once many years ago now but DH often does because he tries to lift something that should be lifted by two or not at all.........lol.............men!
Trish your driveway is getting fixed very quickly! What are you doing to it? Did you manage to get all your produce bottled and put down for later? Hope you enjoyed the tomato soup again.......lol.......I just wish I had enough to make some for myself.............yummmmm. I remember when I had my huge veg garden I had enough tomoes to have soup, eat them fresh, make tomoe sauce as well as preseve some just as puree for spagetti etc..........oh I miss not being able to do all that!
Kate you hung the washing?!! That seems like an easy job but actually it's quite a hard job as wet cloths are heavy! Hoping you are feeling a lot better today and over the worst..............
Jenn sometimes knowledge doesn't help us particularly when it comes to SE's of drugs as it makes us very reluctant to consume them..............understandably so. I sure hope this next lot are much easier on you.
Kylie how are you doing today?..................sure hope you are on the up side and feeling better.
Racy is today your last day of work for this week?
Thank you for the compliment saying I'm brave to have the knee op but take it from me brave is one category I would never put myself in. Determined yes brave no......lol........The whole reason for doing this is I'm so sick of not being able to do the things I truly like to do because of constant knee pain and I don't want to have to keep taking more and more pain killers in order to cope with it. I'm hoping I will be able able to get off a lot of the pain meds and give my liver a little break.................lol
The phone interview with the hospital went fine yesterday. She just pretty much went over all the things I already knew but I guess they have to make sure I understand all the implications of my decision to have it done and the recovery after. Ooo that reminds me I need to ring Palliative care to organise a toilet riser so I don't have to put too much strain on the other knee when rising from the throne..........lol.
Hope all have a good day!!!
Love n hugs. Chrissy
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Warning BIG whinge coming.....
Im having one of those emotional, fed up! what's the point? kind of days today.
I got up at 5.00am with DH to see him off to work and I was relieved to realise that I felt OK and today was going to be a good day, in terms of feeling motivated to make these bloody tissue paper decorations that I need to do (wedding is in less than 3 weeks and I haven't even started).
Before the sun heats us up again I have managed to get out and water my garden after 4 days. It is such a sad sight. Bloody heat! and I feel sick again, really off. So I have had a good weep and felt sorry for myself and just everything is just too much for me. I am also really fed up with looking the way I do. .
I am trying to stay positive, you know, only one more chemo to go, nearly at the end etc etc etc, just hang in there, this is normal, everyone goes through this.... but I think my hormones are really suffering today as I can't seem to talk myself out of this. I know it will probably only last today and I'll be over it by tomorrow. I suppose it doesn't help that although I'm not having trouble sleeping, I get so hot and then cold all the time, so sleep is disrupted by getting on top of the bedding or back under it probably 20 times during the night.
Sorry to whine like this, cause I know each and everyone of you has also been through this, so it isn't news to you. Just thought I'd better jump on here and let it all out instead of hanging onto it all by myself.
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Kate letting it all out is the best thing for you to do and you know we understand. When you feel sick it's very hard to get motivated to do anything so don't beat yourself up over it. You will get through and begin to feel better soon. Do you still have anti-nausea meds left? If you don't, ring your doc and get some and for the bext few days even id you think you don't need them, take them as they will help you get passed all of this.
You are doing really well considering you are a cancer patient and the way you look is not a matter of choice but one that is thrust upon you as you go through your treatment. Hang on to the fact that it will end soon and then you can start getting your life back to where it was. I think coming to terms with the outward changes that come with treatment is just as hard as the treatment itself but always there is a ligth at the end of the tunnel and it does get better.
Love n ((((((((hugs))))))))) Chrissy
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Thanks Chrissy. I kinow you are right. I do 'know' it too, I just don't believe it at the moment.
I only had my 2 emend tablets, nothing else. When I met with my MO and he asked about SE's from previous cycle (which I hardly had any) so I didn't ask for, or was offered anything else. Mind you I've never been given anything more than the 2 emend tablets. Would my GP be able to give me something perhaps or does it have to be prescribed by MO?
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Dear Kate, we understand the way you feel, yes been there too. You are entitled to winge and complain - it sucks going through chemo and all that comes with it. Not feeling well is bad enough, but to feel ugly and miserable on top of it is worse. Remember that while going through this, it's one day at a time, and on a bad day it's one hour at a time.
Cry and complain to us to get it out of your system, it does help. You have been doing so well and the end is in sight. Don't feel bad about not getting anything done - everything will wait until you are feeling better.
And we also know you can't feel positive all the time, that's just not possible. So you are allowed to feel the way you are at the moment.
Hang in there sweetie, and sending you lots of (((((hugs)))))
Trish
xoxoxo
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Kate your GP can and will probably give you some maxalon if you ask.......not probs at all. Do stress how nauseated you are and he/she may even give you something else that is a little stronger. When you see your MO again just tell him/her how sick you were and insist on a good supply of anti-emmetics.
The secret with these is to not ever feel sick as once the nausea starts it's hard to control.
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Kate - I was given Onadestron as well as Emend and it worked really well. I don't like your onc - meany.
I am SO happy with my hair - it was worth every cent!!! She said some curl will come back in the next couple of days, but that's fine, my hair was never dead straight anyway. Steve's not so sure, but I keep smiling
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Sue your hair looks fabulous!!!! Love it!!!! Isn't it strange how being happy with our hair makes us feel a whole lot better?
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Thanks Chrissy - you should have seen it when I went in - total afro!! The difference is amazing. The Cacau compresses the hair ie it removes the frizz. She had said my hair was a totally different texture after it grew back.
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Zometa infusion this afternoon - Steve's coming with me as he wants to hear me discuss my pain with the onc and he knows I've lied to him before. I'm sure the onc will agree it's definite sciatic nerve pain.
I do feel so HAPPY!!!!!!!!!!!!
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