Australian Sisters

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  • alesta29
    alesta29 Member Posts: 240
    edited March 2012

    Hey Oz girls - just want to pick your brains about something non-bc related.

    My son and his girlfriend are living in Melbourne and a friend is going out to see them. I have a few bis and pieces to send out but wanted to send them a voucher for somewhere like Amazon, but notice that there isn't one there. I know that US / UK ship there but wondered, price-wise, is it worth the postage?

    TIA

    Laurie  

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited March 2012

    Alesta - I often order books from Amazon and the postage is reasonable, but I wanted to buy some Skecher shoes and the postage was nearly as much as the shoes were - couldn't believe it. I guess it depends on what you're ordering.

    Sue

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited March 2012

    Hi Laurie

    I quite often get books from Amazon, sometimes the US site, and occasionally from the UK site.  The only reason I use the UK site is that sometimes they have free shipping if you spend over a certain amount.  The shipping can be pricey, but not super expensive.

    I must admit though - now I have an iPad and just have my books downloaded onto that, it's so much easier! lol

    Trish

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited March 2012

    Kate, good luck today - I'll be thinking of you, I really hope that this treatment is gentle on you too - don't feel bad that you have mild se's, you do not have none :-) you are fatigued and it's affecting your emotions too xoxo

    Chrissy - I have multifocal glasses, I love them, been wearing them for years and years - I actually can't remember when I first got them so long ago.  Some people take forever to get used to them, but I took to them really quickly.  You have to make sure that your head is pointing in roughly the same direction you are looking in (does that make sense?) othewise you are looking through the wrong section of the lense.  There is a downside, you can't lie on the lounge and watch tv as easily but I can live with that lol

    Jenn - how are you going at the moment?  Hopefully getting completely over FEC xoxo

    Kylie - how are you going today?  Hope the nausea wasn't too bad yesterday xoxo

    Sue - hope your back is getting better too

    Racy and Lyndal - hope all is well with you both too

    We are still having water issues.  Well - rain issues.  Our neighbour went out to do her shopping yesterday, she's retired and only goes out once a fortnight, anyway when she came back she got bogged.  The road is now totally impassable.  We are all stranded!!! lol - it's not that bad, well we are all unable to use the road, but our neighbour's car has been pulled from the bog and is on the other side.  If we have an emergency or something, we can drive down to our side of the bog and walk through it to her car.

    Just as well I'm stocked up with food lol  we had another 20mm yesterday - just what we didn't want, we can't get the boggy bit fixed unitl it's dried out completely.  We'll get a backhoe in and dig down to solid ground then get it filled with gravel.  But can't do that while it's still filling with water.

    Trish

    xoxox

  • kyliet
    kyliet Member Posts: 587
    edited March 2012

    Chrissie, thanks for connecting me to facebook.

    Trish, Hope you dry out soon, it takes the fun out of being at home when you are stuck.

    Kate, all the best today. My thoughts are with you.

    I have felt so much worse this time, than last time. Drinking and resting and will hopefully feel ok soon.

    Hello to everyone. Kylie x

  • jezza
    jezza Member Posts: 295
    edited March 2012

    alesta

    The Book Depository ships free worldwide. Maybe check them out.I am from Melbourne. I hope your son is enjoying it here.

    So many of my friend's kids are living in England!

    jezza

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited March 2012

    Alesta - I always compare the prices between the Book Depository and Amazon - often the Amazon price is less even with postage added but sometimes it's not. I'm very pedantic when it comes to the price I pay for books.

  • alesta29
    alesta29 Member Posts: 240
    edited March 2012

    Thanks for the advice



    Laurie x

  • Kate60
    Kate60 Member Posts: 523
    edited March 2012

    Well today's infusion was the pits... my veins played up something cronic and I needed to be re-canulized 4 times in the end they used my left arm, the one that I haven't let anyone touch due to the SNB being taken from that arm. I am a brave girl but oh I was in tears I have really lovely raised bruises now because the saline kept bursting through the vein and into my arm making it very painful. Actually I had had enough and told them I would just leave and come back another day thankyou very much!

    So, yes a referral has been put in to the surgeon by the oncology unit for me to have a port inserted. I was told it might be before my next round. I am going public this time. Same surgeon just will have to wait a little bit for it. But heck it's not really life or death and they are going to prioritize my case, so hopefully won't have to wait too long. I can't/don't want to have a repeat of today especially with 12 months of Herceptin infusions ahead grrrrrr. But apart from that horribleness I then went out for a really yummy lunch afterwards and then just came home and watch a really good movie called 'Why I wore red lipstick for my mastectomy' it has the main character from Scrubs in it and I howled with laughter and some of the silly things that happend to her that I so related to. It was very very entertaining. Good that I can laugh at this feckin disease hey?

    Having the neulasta shot tomorrow by DD. She is studing giving injections at uni at the moment and so she is coming down from Perth specifically to give it to me. Fingers crossed she does it well. It will certainly give her confidence to have given a real injection and not just on practice fat pads.

    I am not pre-empting anything, but I just had a sense of dread about today and I was right. And I also have a sense that this round will be different from the others. I guess I will just have to do the usual and wait, watch and see.

    xxxxxx

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2012

    Awe Kate........((((((((bigs hugs))))))).  What a trauma for you but I am very glad that the chemo nurses have requested a port for you as it will make getting treatments a whole lot easier.

    I haven't heard of that movie but it sounds like a goodun.

    Love n hugs.  Chrissy

  • Linda1966
    Linda1966 Member Posts: 441
    edited March 2012

    Alesta, maybe its worth checking to see if they have a kindle in which case you can simply purchase credits for them and they can buy their kindle books online from amazon and have them delivered a minute later to their device. Im technologically challenged to say the least, but even I can operate a kindle and its become a life saver and my favorite possession.

    Kate, Im so sorry you had it so rough. It was somewhere around chemo 3 when they did something similiar to me and I had to delay  chemo for a week or two. I guess its great that you got to get the chemo, but please keep an eye on that arm, gently massage the bruises now and then and keep an eye out for a severe pain and inability to raise or use the arm. If that occurs it may well be blood clots and you would need to get to an er for a blood thinning injection. Its easily fixed by that, but it wont be fixed if no action is taken.

    I truly hope that doesnt happen, just want to make sure you are aware that it could as I dont want you suffering needlessly. I remember when it happened to me, i was miserable from the chemo at the time and didnt realise for 3 days (when the pain and nausea should have been starting to ease) that my arm was in agony.

    Hope you feel okay and get a good nights sleep mate. hugs to all  

  • racy
    racy Member Posts: 976
    edited March 2012

    Kate, I'm sorry you will be having another surgery! But glad that things seem to be going better with your daughter.



    Happy weekend everyone, and Kate and Kylie get lots of rest.

  • AussieSheila
    AussieSheila Member Posts: 439
    edited March 2012

    I hear what you are all saying re the injections/infusions.  I have got a 'thing' about sharp things being forced into my body thanks to some people not being able to do it right.  I have to get a bone and a body scan done before the 29th to cross out any progression outside the bones.  If I have any, I can't get my colostomy reversed.  Believe me when I say, I need to get rid of this thing and, as I told the onc registrar on Wednesday, I am going to be in a double blue funk if that doesn't happen.

    So.........after walking out of my local radiology clinic looking like a cotton bush, and nearly in tears after being yelled at by a Dr about there being no risk of lymphedema from injections in node negative arm, I went looking further afield for new practitioners.  As there have been quite a few new ones open up in Hervey Bay recently, I started ringing them all.  The one I can get into  for the body scan don't do bone scans...........so I have to go to another radiologist down the corridor from them.  Then there's the drink water for body but have injection for the bone scan with three hours between needle and scan.  Bone scan receptionist gives me phone # to ring bone scan office, whose receptionist, on hearing of my need to get two scans on one day, takes over and rings the other mob to arrange things just right for me on the day.  Some people just do their jobs so well, while others can't even find a good place to stick a needle.

    Every nurse in training should spend three months in the pathology labs taking blood until they can do it without making a baby cry.  A lot of the ones I've met have turned me into a big baby who would like to cry just thinking about donating my blood to them.

    Sheila.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2012

    Sheila I sure hope your scans come back clear so you can have the reversal.  You are right about some people knowing how to do their job prperly and other who couldn't give a dam.  The last scan I had, the young lass who gave me the isotope was in and out and I was still waiting for the sting!!!  I felt absolutely nothing.........I so wished I could put her in my pocket and keep her for all blood draw etc.

    Let us know how you go!

    Love n hugs.  Chrissy

  • AussieSheila
    AussieSheila Member Posts: 439
    edited March 2012

    You're right there Chrissy, good hairdressers and phlebotomists are hard to find anywhere!

    I think I might have a more severe case of scanxiety this time as it's a double edged sword for me.  I will have to hit the Melatonin that night to get even a minutes sleep.

    Sheila.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2012

    About the hairdressers I totally agree!!!  That's why I do my own hair now as I can never get it cut just the way I like it.............they all want to either make me look 100 or 16!!!!  The hair is still falling so I have to be careful how it's cut so I can lift it a bit with the hairdrier when I wash it so I can still pretend that there is more there than there really is.........lol.

    Take it easy and if you find you can't sleep give me a yell and we can chat by phone......I'm always here.

    Love n hugs.  Chrissy

  • Linda1966
    Linda1966 Member Posts: 441
    edited March 2012

    Scanxiety is truly a horrible thing. Sure hope it goes brilliantly for you so you can have the reversal Sheila. Hervey Bay hey. Does that mean you came down to the RBH for your treatments? or can they do them locally?

    I met some truly wonderful women from Hervey Bay while I was doing my chemo a few years ago. They and their families had to stay in the free accomodation attached to the RBH  for the duration and said that it was as pleasant as it could be for them. I often think about them, but havent seen any of them the last few checkups. We used to meet up all the time in the oncology waiting room. They were also in my LGFG session

  • Alyson
    Alyson Member Posts: 3,737
    edited March 2012

    Morning Aussies.

    Do hope you are surviving the rain, well those of you in NSW and northern Vic. See you can expect similar rain in April, its bad enough for you but we get the tail ends.

    Sheila I told one Rads Doc that it would be over my dead body he would use my LE arm for the injection for a scan. Then he managed to cause a massive hematoma on my other arm. I told him if he didn't get a vein with the next attempt he could call someone who knew what they were doing. Do hope the scan is clear.

    Must check flight arrivals as DS and Dgf are arriving home this afternoon. It has been 15month since we have seen them and hopefully they will be home permanently at the end of the year. (And hopefully there might be a wedding)

    Chrissy will be in touch - we are planning a trip later in the year. Decided not to come in June with DD. Her DH has decide to have a break and go too which I am really pleased about. 

    Must go and get moving and tidy up as Dgf's family are coming over as well.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited March 2012

    Kate - sending you lots of hugs, you poor thing.  I was thinking about you all day yesterday, hoping you weren't having problems.  Even though it means another surgery, the port insertion is really a piece of cake, that is if you can manage to get around any infections.  I understand how anxious you will be about that.  You will probably be uncomfortable for around a month once the port is in, but then if everything goes well, you'll forget it's there most of the time, it really does make it so much easier to have infusions though.

    Sheila - I'm keeping everything crossed for you that your scans show no progression.  I can understand how much you wan't that bag removed.  My brother was diagnosed with bowel cancer only a month after my diagnosis.  What a shock for us both.  We became the "cancer twins" lol.  He was very lucky though - it was caught super, super early, and everything went well - he ended up only having his bag for 7 weeks!

    Alyson - I really didn't need to know about more rain in April!!  I hadn't heard about that, I'm just going to hope it doesn't eventuate!!  Our road is still impassable, we are in for a dry sunny day today, so hope it's enough to dry the wet spot out enough to get a backhoe and a truck load of gravel in tomorrow or Monday.

    Laurie - I'll second what Lyndal has said about finding out if they have a kindle or an iPad.  I have an iPad with a kindle app - and have read a few books on it now.  It's so easy and the books are cheaper too!  I didn't think I'd be able to read on an iPad, but it's brilliant!

    Hope everyone else is travelling well - Chrissy - remember the recepie you gave me for tomato soup?  I'm making it today, our tomatos are finally ripening, and I have roughly a thousand ready to pick in the vegie garden today lol.  Lots of bottling to happen today and tomorrow as well.

    Love to you all

    Trish

    xoxo

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2012

    Lol Trish and I though I was doing well with my tomatoes!!!   A thousand!!!!   How many pants do you have?!  I am surprised they have survived with all that rain!  Mine have been producing enough for us to eat tomatoes every day but not enough for soup :( .............I only have four plants and they are in pots so I can't complain as I haven't bought tomatoes all summer and they are still producing well.  Glad to hear that things are a little dryer over there today and hopefully you will be able to get your road sorted.

    Alyson I will wait with baited breath till I hear from you!   This is sooooo exciting!  Have fun with you DS and GF while they are there!

    DD2 and partner are coming up to stay over night tomorrow as they are finally moving into their house and want to sort through the things that good ol' mum has stored in her shed.........lol........better go and remake the bed and give it the once over to make sure no spiders have moved in and to freshed it up.

    Hoping Kate is having a beter day today and Jenn and Kylie also.

    Love n hugs all!   Chrissy

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited March 2012

    Sitting in my cousin's beautiful house at Port Macquarie. Lovely walk around the waterfront this morning. So nice to get away except for one thing this morning I'll tell you all about later - but you need to know that her mum (not a blood relation to me) died of breast cancer last year....



    Jenn

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2012

    Jenn I'm truly sorry to hear about your cousin's mum.  It just seem like at every turn we are confronted with more BC.  I so glad you are enjoying your weekend!

    Love n hugs.  Chirssy

  • Kate60
    Kate60 Member Posts: 523
    edited March 2012

    Well feeling about 50% right now, pretty blah. Right from the get-go this one has been different. Sarah gave me my nuelasta shot. Hmmmm. Well it wasn't bad but she didn't jab the little needle in, just gently slid it in, so of course felt that, but it was a teeny sting only. Unfortunately she withdrew the syringe before she had put it all in. I don't know how much was still left but it was a long squirt... I hope there is enough to do the trick in me. I'm pretty sure most of it was in me.

    Hoping this is my bad day and tomorrow will be better. I'm not too bad I suppose, just fatigued and feeling really off - yep just bloody blah! xxxx

  • racy
    racy Member Posts: 976
    edited March 2012

    Kate, rest up and be kind to yourself. Only one more! Isn't your daughter a nurse?

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited March 2012

    Still in major pain. Bought some Panadiene Extra last night and they seem to do the trick. I did find some Digesic I had left but want to avoid taking them at this stage. I left the physio yesterday, worse than when I went in. I've decided to give my back a rest from heat seeing it hasn't really helped so far. Had a long nap this arvo and felt much better when I woke but the tablets are wearing off right now and I feel it.

    Hugs to Jenn and Kate. Kate - glad you've decided to get a port - you won't regret it.

    Sue

  • Kate60
    Kate60 Member Posts: 523
    edited March 2012

    Oh Susie, so sorry your back isn't any better. Take the digesics! they'll at least give you some proper relief, panadiene extra maybe not so much.

    Racy - Sarah is a student nurse and is just learning about injections. I was her first proper patient! she can only get better... :)

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2012

    Kate tell your daughter the best way to give an injection is to use a throwing motion like she would throw a dart.  That's how I was taught when I did my nursing and believe me it works with some practice.  Thae painfull part of most injection is the breaking of the skin and thats the purpose of the quick jab.

    So sorry you are still feeling blah.................take it easy, rest up and keep drinking that water.  One more to go!

    Sue so sorry you have no relief from your back pain but glad the panediene extra are at least giving you a little relief.  Have you checked into the Tens unit yet?

    Racy have you relaxed and rested up after your work week?

  • racy
    racy Member Posts: 976
    edited March 2012

    Chrissy, yes and looking forward to next week.



    Were you a nurse?



    Sue, sorry you still have pain. Lucky you have your onc visit this week, and the hairdresser :-) .

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2012

    Way back when but haven't used the knowledge for a long, long time and of course as time passes so do techniques and ways of teaching but just sometimes the old way really are good and relevant to now.

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited March 2012

    Can't wait for the hairdresser appt!!! Even if it doesn't do much, it's worth trying. All the reviews I've read about seem positive.



    My back doesn't actually hurt - the pain is in my bottom - deep in. Even had some tingling in my toes on that foot but that seems to be ok at the moment. The panadeine is kicking in - love it. Have to take sennacot to alleviate the SE's of the pain killers though.



    We just skyped with our son in London as it's his birthday. Alexander is SO cute - he's 9 months old today. Still can't crawl which is weird but he can stand. As soon as he saw me he smiled which was nice.