Bonfire of the Goddesses

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  • chabba
    chabba Member Posts: 3,600
    edited June 2012
     
  • ptdreamers
    ptdreamers Member Posts: 639
    edited June 2012

    VR So glad that hubby is okay. Take a deep breath and relax alittle now.

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited June 2012

    Into the fire - biopsy punches.  Who thought that was a good idea.  And LE.

    The dr punched my axilla to get a biopsy of a possible probably cancer lymph node that is in LE arm, I am so unhappy.  I was 'asleep' during procedure, didn't register, but my arm was marked, limb alert.   He was supposed to be using the tiny needle like he used on other side in neck for that possible cancer node (showed in PET CT)  but seems the needle did not work in SWOLLEN TOUGH axilla, didn't ask permission to go for the punch.  I would have said cut it open and take it out without poking the bear.

    VR - I like to read good news on here, so happy for your family, the relief is longtime coming when we have to wait so long for results and appts.

    SASSY - I know the LE, the massages have helped me and when I stopped sleeping on that side, it helped a lot.  Hope you are better soon.

  • veggy
    veggy Member Posts: 4,150
    edited June 2012

    I am home and very tired. Everything went well. They really doped me up for the long ride home. Gentle hugs

  • jo1955
    jo1955 Member Posts: 7,545
    edited June 2012

    veggy - Gentle healing (((HUGS)))

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited June 2012

    Vr--Oh My---haven't been on---bless your husbands survival, with his history-------yes I do believe the angels are there. Sounds like ST. Michael.. ...new computure--excuse mistakes--------you both have been through so much, I was there at a point.  Please, listen whatever you can do to reduce the stress ---do so....there is so much--take advantage of whatever is available.-------I'm not adept at bringing links back with this new  machine. I will go look at the Catholic archives to see if we have archived the archangeles. Prayer can keep our spirits whole and together.  That is my belief. I haven't got another way to deal with this craziness. I know that there are others that have no belief, but then what do you have , but nothing. I'd rather have something than nothing. In thousands of years man(women) have prayed. So, what does it mean? Part of us in our spirit, believes something. Why? Who knows. BUT I do know God, Mary, Joseph. The Saints   ----Our Novenas give me an understanding that I didn't have before. VR--Blessyou and your DH and may God, Jesus, Mary, and the Holy Court of Heaven Surround you both and bring healing and peace.

  • veggy
    veggy Member Posts: 4,150
    edited June 2012

    I went to bed a little early last night. Now I am awake and starving.

    Tuesday I got all marked up for surgery. We got a hotel room and stayed the night. We found a chinese restaurant and ate. I was able to sleep with the help of my anti-anxiety meds. 

    I got to the hospital early on Wednesday They took me to a private room to register. They had me and my DH walk to the operation area and we hugged and hugged once more. I walked to the OR room and froze in the doorway. That's when I got nervous. I was in surgery for 4.5 hours. I woke up in the recovery room. I didn't get sick. I heard the nurse say that my husband could come in and then I went back to sleep. 

    They took me to my room and the nurses were in and out all night. I'd sleep for 5 minutes and wake up. I had a catheter. I never had one in my life. I must have drank 3 pitchers of water suring the night. I had no problems... just felt like a truck ran over my chest. I had a normal diet and kept everything down. I was up and walking on Thursday.

    The nurses were wonderful and so was the surgeons. My mom and dad and some friends came down on Thursday. They were surprised to see how good I looked.I haven't looked at myself yet. I'm not brave enough. I have to massage my TE's downward as much as possible. 

    They released me on Friday. The plastic surgeon wanted me to go home and get some rest. My room mate and her family were very loud. My youngest son came with my DH. He just held on to me. My older son stayed home to help straighten up the house. His choice. 

    I have to take little walks today, drink lots of fluids and use this stupid breathing machine to exercise my lungs.  Tuesday I'll find out from pathology information on the cancer. I'm not going to worry myself about that. Right now I just want to grab some toast and have a little bit to eat. Then I'll go back to bed.

    Love you all!

  • dancetrancer
    dancetrancer Member Posts: 2,461
    edited June 2012

    veggy - thanks for the report - sounds like you are recuperating steadily which is great to hear! 

  • jo1955
    jo1955 Member Posts: 7,545
    edited June 2012

    Veggy - Thanks for the update.  Sounds like you are recovering slowly.  Rest up.

    Okay!  I want to throw in uterine polyps.  I had one removed yesterday and now I know why I felt so bloated for the past several months.  Sure glad I insisted on a TV US during my last pap test.  What we say was a "spongy" looking mass that the doctor thought was a thick lining but turned out to be something else.  Slept 11 hours last night and still am a bit sore - have to be careful how I sit. Won't get path report until Jul 10th.  Into the fire with all this BC crap.  

  • Stacie
    Stacie Member Posts: 25
    edited June 2012

    Doing chemo now and soon RADS. Up early in a quiet house and this thread caught my eye out of curiosity. Thank you dear sisters! For the morning laugh, smile, and tears. I needed that! As I lay here recovering from round 5 of 6 TAC amongst what I call my "arsonal" of crap all over my house, I look forward to the day I can call it all ashes.

  • glostagirl
    glostagirl Member Posts: 93
    edited June 2012

    Hi all.....I haven't posted here in a while, but have lurked and smiled at your fun posts.  

    I am just back from New Orleans where I had Stage 1 of a DIEP reconstruction surgery.  While there, lying in bed with mucho pain and nausea I began planning a Bonfire of the Goddess's party to burn all my mastectomy bras, woo-hoo. Got the idea from this thread.  

    I have a copper firepit bowl, I plan to invite a few close girl friends and a few friends who've also had BC, serve up some champagne, some good eats and dance around the flames.  Can't wait.  I'll post a few pictures from the event.

  • jo1955
    jo1955 Member Posts: 7,545
    edited June 2012

    Stacie - The day will come when all this is in the past.  (((HUGS)))

    glostagirl - What a party you are going to have.  Can't wait to see the pictures. 

  • badger
    badger Member Posts: 24,938
    edited June 2012

    hi ladies, nothing to throw in today but the hot dry weather that's wilting everything.

    SAS glad you're back on-line, I heard "Let It Be" the other day and thought of you.

    VR thank G-d your DH is OK!

    Veggy rest & heal that's job 1.  Please do use the spirometer to keep your lungs clear.

    Jo good for you for insisting, will wait with you for path report and pray for B9 results.

    glostagirl a friend of mine had a similar party post-divorce and burned all pics of him.

    I just threw some bay laurel branches on the sweet fire in honor of our many victories.

    Sending good thoughts and ((hugs)) to all.

  • joan811
    joan811 Member Posts: 1,981
    edited July 2012
    Jo  -  hoping for a good report for you.  It amazes me how we have to tell the medical personnel what to do.
    Diane - hoping for the best for you too....sorry to hear you had to go through all this.
  • joan811
    joan811 Member Posts: 1,981
    edited July 2012

    Veggy, It sounds like you have had a lot of support from your family.  Keep focusing on your recovery.  I hope you will take time to pamper yourself....sending positive thoughts your way.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited July 2012

    I catch up on reading and then forget by posting time.

    Veggy----I posted to you sweetie on Fuzzy;s romp room.

    Essa, barbaric-----and and assault and battery if it wasn't on the consent.________so, hope it's negative

    Jo, you don't need to wait till july 10th if you don't want too. Go to the medical records department of the facility that did the BX. CAll ahead for directions b/c it may be at a different building. You can sign a release form, you will need a picture ID. they have a legal right to charge a fee per page, many facilities wave this out of good pr. The difference is if the news is negative---are you ready to read it on your own. I most always pick my stuff up early ---so I know and can research before I see the doc. Over time it has been extremely beneficial. For example, I knew what kind of brain sx I needed. My MO had never heard of it. Duh that would have been a wasted visit. Good luck !

    VR--hope all continues well with DH----------St MICHAEL to surround him.

    Hungry-------must go eat

  • jo1955
    jo1955 Member Posts: 7,545
    edited July 2012

    SAS - Thanks for the info.  Since the procedure was done on Friday, I will wait a day or two to make sure the documents got in my records.

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited July 2012

    Veggy - thinking of you.  Each day you are a step closer to living comfortably and w NED. 

    Sassy -  I hear you on LE, the arm did a few rips this weekend from the biopsy punch aftermath, swollen again

    Into fire the 'windstorm' that hit NW IN and here took out 20 entire trees and the tops of 20++ more.  Blew over everything, damaged barn and house a bit, nothing bad.  Could just have done w the rain.  Power out two days then again yesterday.

    Into fire th ecolleague of the onc I just started seeing, I do not like that man.  Had to see him for the LE and infection I was getting, had a 1.5 temp, swollen arm, hot arm, but nooooo, he did not see signs of infection, acted like I was tehre to get free drugs and all I wanted was antibiotics to get me through long weekend.  I am soooo out of there, hate this new oncs place, except the intake and outtake aassistants.

    LE

  • joan811
    joan811 Member Posts: 1,981
    edited July 2012
    SAS - good advice to pick up the reports and not wait.  I did that routinely and was able to call and make appointments because I knew what was "next"....as far as "news" - we've all been through it and sometimes we just need to know.
    Sending best thoughts for a good outcome, Jo.
  • veggy
    veggy Member Posts: 4,150
    edited July 2012

    Into the fire with all this pain, tubes and pain pills that make me sleep all day. Last night in the middle of the night, one of my drains decided to pop its top and leak. I had to get changed from head to toe. So disgusting. This sucks.

  • veggy
    veggy Member Posts: 4,150
    edited July 2012

    I'm waiting for the surgeon to call with the pathology report. I'm too tired to worry.

  • jo1955
    jo1955 Member Posts: 7,545
    edited July 2012

    Veggy - Crossing fingers for good results.  (((HUGS)))

  • FireKracker
    FireKracker Member Posts: 5,858
    edited July 2012

    Into the fire goes this damn LE...boy does that suk!!!!!!!big time.

    Someone called it the silent disease....whell stay quiet while i burn it to hell and back.

    im soo sick of all this crap that comes with bc.

    all of it into the fire!!!!!!!!!!!!!!!!!!every little thing!!!!!!!!!

    Have i told you lately how much i hate bc?????????

  • nibbana
    nibbana Member Posts: 349
    edited July 2012

    First of all, veggy, hugs to you.  Speedy healing and I hope you get good results.

    Oh man, I could throw so much into the bonfire it could be seen from space!

    Let's see, the breast cancer swag bags. Don't you think I can get the same information with a Google search???

    The icky surgery stuff, especially the drains some brotha' named Jackson-Pratt invented (I guess.) 

    Bad MOs, burn baby burn, disco inferno!  

    Bras, those did go into the real fireplace!

    Side effects from Tamoxifen! Oh estrogen, why can't you play nice like your sista progesterone?

    Endless medical appointments, bah, burn!

    Stupid comments people make. When I first heard of this in early diagnosis I thought, "Now, why can't they be more compassionate, people only mean the best?" When you hear nothing but STUPID comments all day it grates on the nerves until you're ready to walk around with an M16 all day! If you don't know what to say, keep your lips zipped! 

    That's all I have for the fire today. 

  • jo1955
    jo1955 Member Posts: 7,545
    edited July 2012

    nibbana - It has been almost 2 years since my dx and I still find crap to throw into the fire.  There was so much stuff - that is why I started this thread.  It does feel good to throw stuff in and watch the flames get hotter.  Come everyday and toss something in if it will make you feel better.

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited July 2012

    waiting two damned weeks to find out if the path report says cancer or not.

  • jo1955
    jo1955 Member Posts: 7,545
    edited July 2012

    DianeEssa - That is so wrong.  What is it taking so long?  I had my results in 3 days.  Of course, I am also waiting for path report from recent D&C - had a huge polyp removed - Tamoxifen induced.  I have to wait 10 days so tell you what - we will wait together. Okay?

  • jo1955
    jo1955 Member Posts: 7,545
    edited July 2012
                                 
  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited July 2012

    no better day for a bonfire than sometime in autumn, but let's do one today anyway since we can and won't really feel the heat.

    i will pretend that this is w brannches oof the treetops oof over 40  trees ((20 wholetrees++ and toops of soo manny) we llloost inn winndstormm this week.  Feels o sad for trees and birds and willldliife

    EDT - I will wait w you, but I am calling office in morn, am not a good waiter.  Jo I guess he wants every possible result he can get on biopsies to see receptors, type of cancer, and more?? Still, think he just isn't in a hurry but I am, I need to know.  And in evennn moore of a hurry now that they ripped up a 'malignant viable neoplasm" quote from PET CT report.  I fixed that sentence, all the typos from LE swelling in r arm, type quickly tto get off computer as it makes it oorse so l side is a mess sometimes too LOL,  hapyreadiinnnng.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited July 2012

    Essa look at what I wrote to Jo --you can pick up ANy reportable --which all are---dx'd stuff from Med records once it is signed by the profesional responsible. Just make sure you are ready to read it. The words you see are written in greek, latin, and sometimes german. Sometines words can lead you to a dictionary that gives many meanings, unless you have a beginning knowledge to decipher. Sometimes it's explicit.Depends on what you can handle on first reading--------more on FRR. L&H&P's sheila