TRIPLE POSITIVE GROUP
Comments
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I wonder about the timing - maybe your guys know this. It looks like to participate you need to have finished AC, but does it matter when? And can you have already had a year of Herceptin? I doubt I am eligible since I'm so far out from diagnosis and tx, but am just curious...
I clearly need to start keeping up with the Clinical Trials forum and the .gov website - and start advocating for myself!
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saralmom - I am about as far out from treatments as you and am curious also about your questions.
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Sorry that I don't have time to read this whole thread right now. Will have to do that the next time I go in for my Herceptin.
Gemzar with Herceptin put my liver mets into remission 7 years ago.
I have continued with Herceptin alone and am still in remission. No SE at all.
Denise
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Denise that's awesome regarding your long term remission. Keep it going. 40 nodes!? Where did they find 40? That's a lot of nodes! Did they take them from both sides?0
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Denise - love hearing about such a long remission!! So great!
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I was thinking the same when I saw 40 nodes! Holy cow!
What wonderful news of hearing about your remission! Thanks for sharing, Denise
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Hi Ladies. I have been lurking here for about two weeks now, and figured it was time to introduce myself. I am so grateful to have found you all and really cannot tell you all how much you have helped me.
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Welcome SLOGeek. Sorry you had to join us. The beginning is so scary because there is so much you don't know. Feel free to ask questions. No question is stupid.0
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Hi, SLO - Welcome! Let us know how we can help and what questions we can answer. Much love to you.
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Hi SLOGeek...
You will find a wonderful warm group of people here. Welcome and as Lago said, "Sorry you have to join us"
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On the TDM-1 trial - here is the scoop on AC. You can either enter the trial BEFORE you do any AC, at which point your AC phase becomes part of the trial. (That's what I am doing - hence my getting enrolled in the trial before CelloMom, even though she applied earlier, since I haven't started AC yet and will begin next week).
OR
You can start the TDM-1 trial AFTER you finish all four AC treatments. Apparently, once you start AC, you can't officially be enrolled in the TDM-1 trial until you finish the AC. You can't start in the middle.
If you are already doing AC, Sara, you can sign up for the trial NOW, then they will process your tissues and do all the blood tests etc. so you would be ready to start when you are done with AC.
Your first/next step would be to find a hospital that is administering (?) the trial now near you, and get an appt with an oncologist there ASAP. Even if you don't get into this particular trial, it would still be a good idea to get a second opinion from an onc at a top research hospital and have that relationship.
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I wonder why the TDM-1 trial is only looking at AC when there are so many of us HER2+ doing THC?
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It was told that AC with trastuzumab could cause damage to heard
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windlass - thanks for the response. I actually had AC last year in April and May. And I'm almost done with my year of Herceptin. So I wonder about the timing - do you need to be JUST out of AC, and can you have had Herceptin at all already...
I did have a second opinion - and actually a 3rd opinion - when I was first diagnosed and planning for treatment. But perhaps it would be good to check in again about new things that are coming up in treatment options... It feels like such a pain - I just want to be able to trust my doctor and I mostly do, but this is kind of nagging at me - not necessarily THIS trial, but her openness about things that may come along in the future too...
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Probably because THC includes Herceptin already. Since T-DM1 has Herceptin as part of the molecule, you wouldn't do it at the same time as THC. And since the other part of T-DM1 (Maytansine) is a chemo drug, you wouldn't do it concurrently with T&C. Oh good lord, I'm not sure that what I just wrote even makes sense to me!
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Lol Cello,
Makes sense to me. There isn't much of a difference in the results of AC-TH and TCH, so it makes sense that they might be able to generalize results for both....I hate that we have to wait for the results!!!
I go for revision surgery tomorrow (closing up the wound I busted open back in Oct.)...Here's hoping it goes well!! I need to finish my fills before I start Rads.
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SLOGeek02 - as others have said welcome but sorry you had to join us here. You will learn so much from everyone here.
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Welcome SLOCGeek!! Sorry you are here... but these ladies are awesome and you will find great support here!!
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My second once per 3 week herceptin yesterday. Little cough and nausea but the smell is so gross. Chemo flashback. Other than that no SE. Libraylil
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I have a really bizarre question, If im wearing a prosthesis, will it show up on the scanner at airports. The last thing I want is someone to suspect something. It will be embarassing and upsetting at the same time. Let me know for those of you with prosthesis.
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Reninrah you might want to read this thread: Outraged by TSA
No odd questions here. Chances there is an entire thread about it
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hi everyone...back from MX and diep, also reduced right side. Awwsome PS here in upstate NY New flat, hard tummy and new smaller ta tas! Home after 3 days and doing great, although carrying around 4 drains, but doable. Now the wait for the lymph node report. Wouldnt be a normal day without worrying about something. so glad to hear about the remission with herceptin, that is so much hope for all of us and the world of Cancer.
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HI all,
Anyone have any recs for lotions/moisturizers and cosmetics that don't have all the bad stuff in them and also don't contain soy? I am finding that if they don't have the nasty stuff that they do have soy or some form of soy. I figure that the soy is at the end of the labels so it isn't too much, but wonder if there is some other stuff that some of you may have already researched and found to be chemical and soy free.
Thanks,
V
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Products by Korres and Boscia seem to be the best from the research I have done. Check www.cosmeticsdatabase.com for products you want to check on. A very surprising number of them have ingredients that we should not be using!
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Hi Vmarie I use a little brand called Malibu Secret, you can google it. nothing harmful and it smells like the beach. Also it is the only body lotion formulated like a face lotion that works On anti aging .
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nmoss - how are you feeling?0
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Yikes, my first day of pre-chemo fasting and I am STARVING. I start AC on Wednesday afternoon.
Please send encouragement!
(Here is the thread: http://community.breastcancer.org/forum/69/topic/766523?page=1 )
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Hi all - just wanted to know if any of you guys are on this new Metformin trial? Trial is about pxs who are not diabetic using metformin on a daily basis and seeing if this helps to reduce BC reoccurence..... I havent decided if I want to go on it yet or not. Wanted to know if any of you gals have heard about it?
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Redinrah: I have not heard about the trial, but I have been reading a lot abot insulin and glucose regulation with regard to BC. Is that the idea behind the trial? Have you been offered a spot in a clinical trial?
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