TRIPLE POSITIVE GROUP
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Ashla- haven't heard of anywhere like that - but I'll start looking!!! In the meantime I'll see about training in my DS's, lol!!
I love reading these thanksgiving posts. It's 3am and I can't sleep, so I'm thankful to all you great ladies for being there no matter what the time!
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Oh Nicky sorry u can't sleep, did u overdo or just wake--which is common now a lot of nites for a lot of us. And I always hate that cuz all day u feel floopy.
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Cami I Love that word to explain the feeling. Floopy. And Nicki sleeping is over rated! LOL not really. I used to go to sleep at 12 midnite and then wake up at 2 am and only fall asleep again at 5 am. Then get up for real at 10. Now I go to sleep at 2 am and wake up at 10. LOL if I were working I'd be a mess. Unless it was 2nd shift. Just go with the flow. Much love.0 -
Its been a long time since I've slept a full night through, unfortunately! It used to freak me out, all I'd be thinking about was how hard the next day would be. Now, though, I've realized that actually if I do nothing for the day, no one will say anything! Not being stressed out about not sleeping was a huge lesson learned.....
Nicky0 -
Nicki that is a hard learned lesson! But you did learn it. Much love.0 -
thank you! Knowing that of the night is really tough, that I can come here means a lot 😊. Did doze a bit - hence the gap before replying, it's now 5.40, so nearly ok for me to get up and make tea!
Today will be good. My youngest DS has a competition so in going along to watch. I get to sit down and chat with plenty of people I know and spend the day with my son. That's something to be thankful for.
Nicky0 -
Nicky that wonderful for u and u'r son and when u come home just relax if u need to.
Moon my first 4 months of chemo I worked and when my nites were getting screwed up I was working in a daze, of course I missed days couldn't do the whole week but usually like 3 days I could manage, Then when I started more chemo I couldn't work anymore and my nites became days and days nites and still I'm all screwed up. Like now it's almost 3am and I'm awake--I just took my pain meds but they don't knock me out really so here I am--boring the hell out of this thread. And I may continue. Our tree is up and the outside lights are all up and I did order 2 lighted long ribbony things in gold to frame my window, That should come this week--I hope. Before my GS was born my SIL put up the tree a week before Christmas and took it down the next day and that's all there was--NOW there are more decorations in and out and he puts it up around now and stays til after the first of the year--which I enjoy.
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There appears to be some additional upside benefit to the ESD as Lago calls it... Arimedex. http://m.hopkinsmedicine.org/news/media/releases/potential_for_added_medical_benefits_uncovered_for_widely_used_breast_cancer_drug
Exemestane, a synthetic steroid drug widely prescribed to fight breast cancers that thrive on estrogens, not only inhibits the production of the hormone, but also appears to protect cells throughout the body against damage induced by UV radiation, inflammation and other assaults, according to results of research by Johns Hopkins scientists.
A summary of the research, performed on a variety of different animal and human cells, was published online in theProceedings of the National Academy of Sciences on Nov. 4, and suggests that exemestane’s effectiveness against breast cancer could be due to more than its ability to halt estrogen production, the scientists say. The study’s results further imply that the drug, a so-called aromatase (estrogen synthesis) inhibitor, could potentially be prescribed more widely, including to men, as a way to counteract the wear and tear on cells that often leads to chronic diseases.
“Cells already have their own elaborate protective mechanisms, and in many cases they are ‘idling.’ The right drugs and foods can turn them on to full capacity,” says Paul Talalay, M.D., the John Jacob Abel Distinguished Service Professor of Pharmacology and Molecular Sciences at the Johns Hopkins University School of Medicine. “In our cell studies, we found that exemestane does exactly that,” he adds.0 -
ashla it may have benefit. Right now it does in rats. From my understanding of the article they need to do clinical trails in people. As we know what works for rats may not work for humans.0 -
Very interesting article... I had heard that before about sulforaphane..... wonder if enough sulforaphane would do the trick? wonder if combining the exemestane with sulfloraphane would allow a lower dose of the exemestane producing fewer side effects?0 -
Lago..... I'm just trying to find an upside ....of course hopefully preventing recurrence is the most important one.... To this friggin drug!0 -
Hello Ladies, any of you had nipple sparing mastectomy? That what im going to do on dec 4. my BS toldme she can save my nipple for me since my cancer isfar away from my nipple.
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I was not able to save my nipples. I was under the belief it was due to my large breast size but perhaps I was mistaken.
Good for you! Seeing yourself without headlights the first time can be quite shocking so I am happy you don't have to do that. You do get used to it though.... Yesterday was 1 month since saying goodbye to my girls and it hasn't been so bad. Not a party,... But not horrible either. I do have TEd that were pretty full from day one so that has helped the transition.0 -
soriya - yes, I had nip sparing BMX, as I was originally a lumpectomy candidate so they would have been spared anyway. Do you have a specific question?
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OneTexas, i have question for you, do you able to get up, walk n sit comfortable on one week post surgery? I am worry because my MO already scheduled me for Herceptin exactly one week after surgery. i will sit on that chair at least fo 90 mins for Herceptin. u think i will be okay? thanks
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speciak K, yes i do have question. nipple sparing mx, does BS going to remove all your breast tissue or leave some? i kinda read about it, but i am so confused. Thanks
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specialK i am aslo canidate for LX, but im so tired of biopsy on my both breasts. so i decided to do MX on my right. im too scared to do both right now, maybe in the future i will do my left too. until now my BS still want me to think about MX. since my last biopsy is benign she asked me think it over n let her kno by monday....but my answer will be the same MX.
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Soyia I'm just going to chime in here, altho I'm not familiar with what is really going on. But if u are having u'r breasts removed the week before H it shouldn't be problem, there is surprisingly no real pain from that and sitting in a chemo chair should be very comfortable for any length of time, cuz it's actually more comfortable for siting than laying down. So that should be fine.
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Kayb
You are absolutely right! Have no idea what I was thinking. Grasping for some upside to the S/E 's from anastrozole!
It would be great, however, if it was true.
Posting early in the morning may not be a good idea for me...0 -
soriya - you may not be the most comfortable having Herceptin, but since all you have to do it sit there you should be ok - but you will not be able to drive. My Her2+ status was known prior to nip sparing surgery so my BS removed all breast tissue possible, including coring out the nipple areola complex, and doing a separate pathology on that. The nipples lay pretty flat and while they look like nipples they do not function at all like them - they are just decorations, and they have no feeling, just like the regular skin. In essence, they are just like a rebuilt nip with tattoos, so all you are doing with nip sparing is waking up with nipples already there and skipping having the procedures to put them back later. That being said, if you lose an expander, have more breast surgery, have complications, this can result in the nipples being non-symmetrical. The one thing to consider is that if you have nipples added later you can put them where you want them - nip sparing means they end up wherever they end up - implants may push them out of alignment.
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Thank you specialK!!!
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Thank you Camillegal!
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sorry ladies more question. any of you take curcumin supplement?any brand that you would recommend? Thanks
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Soriya,
I also had Nipple sparing, as much breast tissue as could be removed was on both side. My NAC were removed cleaned/cored and then placed back. My skin envelope are was also made smaller.
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Soriya. I was moving around quite well after a week and went back into office after two so you should be fine just sitting in a chair but will need someone to drive you. The drains really are the hardest thing to deal with in my opinion as they are in the way and it is hard to figure out what to wear that is both comfortable and hides the drains.
Special K, saw your response to Soriya. What does her2 status have with being able to save the nipple. I am confused but then again, so much of this is confusing to me.0 -
onetexas - I was not linking the Her2 status with the nipple - what I meant by that was they were very thorough in removing as much tissue as possible throughout the breast, including the nipple areola complex, because I was Her2+. The question went back to whether all breast tissue was removed when a nipple sparing BMX/MX is done.
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At last!! I’m finally caught up!! For the time being. Ok most of this is probably too old to comment on by now but …
Bebe, welcome but sorry you have to be here. If I had to do it all over again, I would want to do the chemo first because then you can see if it’s working. That being said, I can say that after being finished with treatment but at the time I, like Iago, wanted that thing out of me asap. But you can keep your hair! I did the cold caps and kept mine, as did many other women. Check out the cold caps thread.
Ok harkening back to the discussions of caviar shampoo etc awhile back – I ordered some when I saw y’all raving about it. It’s just ok, IMHO. At least on me. However, I ordered it on ebay and I find that there are an awful lot of suds considering it’s supposed to not have sulfates. So I’m wondering if I didn’t get the real thing?
Girlstrong, great news!! Thank you for posting!
Bluefox, if that 26% included her2+ women who were stage IV at diagnosis, that could be right, no? They didn’t state the stage and of course that is very important information.
Susan, egad. Can they get you that pertuzamab stuff? Seems like it might really make a difference in your case.
Pbrain, chickadee – re the eye phobia, I seriously can’t even read the posts about it without feeling squeamish … Cow eyeballs, I remember those!!! Blech!!!
Lago, sorry you didn’t get the job. The thing about being young is, you have no idea how much you don’t know. As you get older you realize just how clueless you really are! Or maybe I’m just speaking for me.
Goulaw, re the bone scan and aches and pains – when you had the bone scan 6 months ago, did you have aches and pains then? Or are they new? Honestly you could have aches and pains for a lot of reasons, certainly including being on herceptin and going through chemo, so that doesn’t strike me as a reason to worry (though I realize it’s hard not to sometimes). Do your aches and pains respond to pain meds?
On that note, I have had a bone scan and a CT scan, but no PET scan. Is that something I should have had? I was having some vague symptoms (this was around the time of rads) but I think it was mostly just to make sure there wasn’t anything else floating around in there. They came out benign, thank God. This was in January or February…. But I am wondering whether I should have had a PET? Is there a certain point after finishing treatment that they order more scans to make sure it hasn’t recurred? I’m curious what the protocol is on that….
Soriya, I take doctor’s best curcumin c3 complex, the brand was recommended to me by LeeA—I didn’t research brands myself but just went with her recommendation.
Sorry about the novel....
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Wow, after reading how well most of you did after your MX/BMX's, I feel like I must have had my BMX back in the stones ages with dull instruments instead of by an accomplished surgeon at a renowned cancer center. I was in terrible pain for the whole first week! I felt like my chest was on fire and ached horribly. Even with pain pills I don't think I slept the first week. After 13 years I can still remember it vividly. It was the worst pain of my life - and I can usually handle pain pretty well. They must have come a long way in the way they do the surgery, and I am so glad that those of you who have to have it done now fair so much better.0 -
cypher most of us get CT scans others get PET scans. I think one is a bit more detailed but also more $$.
Bren it might also be your BS did such a good job that many of your nerves were disturbed but not destroyed and that's why you felt pain. I was pretty numb in the breast area. Still am as well as a few dead spots in my armpits.0
