TRIPLE POSITIVE GROUP
Comments
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Oh Bren I'm sorry u have such a nitemare experience with it. My mom had it done in the 50's and she said it was OK-no pain pills, but like Lago said it depends on what they did. I know when I had my hysterectomy she told me their were nerves that were involved and to this day I can feel a pinch where she said but it wasn't that bad anyway. It seemed to me everyone's was about the same so maybe I shouldn't say anything about it was nothing--well of course the drains were a PITA for everyone I think, not hurting just there all the time.
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Well i am one of those who hurt! Took me 3 weeks to be off the Big pain pills. And bending down was not good.but we are all different. I have feeling left in places along the side and under arms although my P'S did remove my side boobage. My L side is more numb but that's probably due to the 6 surges on that side compared to one on the R. Also getting out of a chair was near to impossible for me. Thank God I had my magic chair ! A lift chair was the only thing that helped. I slept in it. It helped put me on my feet without using my arms. I didn't realize how hard it is to get up out of a chair without using your arms. All of that was because my knees are bone on bone. If you want an approximation, simply sit in a chair that is lower and soft. Now work your way to the front of the chair. Kinda butt scooting your way. But remember it's probably uphill! Now that your but is at the edge of the seat, cross your arms over your body. Now lean forward as much as possible. When you feel your but off of the chair try to rise not using your arms. I promise you it ain't easy. LOL so I only sat in kitchen type chairs or my lift chair for weeks. Hard chairs are much easier to get up from.
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Oh moon I'm so sorry --see I spoke to soon--like I said every operation is different with different surgeons too, Not that one Dr. is better than another It's just where they have to go I guess. Well I think we have to know our arms are pretty useless but I didn't think about other things really hurting. U'r right about the chair of course, but I did sleep in a recliner even at the hospital cuz I always sleep in one, I hate beds so that might have been another reason it was easy for me. I'm sorry u went thru that--did u have help with u'r drains then cuz if u were in pain the movement of taking care of them must have not been to nice.
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Cami, no prob, just thought i better speak up so people know there are a variety of reactions to BMX I would say Thank G it is just a memory but I am having my squishies and my L side boobage done in 3 weeks. Worried all over again. With using my cane to walk now that's not going to be easy. I cannot use the cane only for stability and not lean on it like normal. So i will be sitting a lot! I hope I won't need drains but we'll I am not counting on it. I've had then every time. Even when they just took out the TEs. LOL oh well I need to quit whining. I don't want to scare anyone.0 -
Moon u'r not whining so please don't say that--u'r explaining and like we said everyone is so different. We can all have the same operation same Chemo and rads yet our bodies for ever reason take it differently. I remember being on the drains 3 months--so that's not usual, it was just me so I hope no one hets nervous reading this--Actually a lot of women go thru this without a lot of complications and go back to work with time and are doing well. So this is a disclaimer LOL
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LOL. We are the people with the "Scenic Detours" on our "journey" of BC! LOL you never what will happen so prepare for the worst scenario and be ever so grateful when it's so much easier than you thought!0 -
Well I also found out I must have a high tolerance to pain because I never took any pain pills after BMX or during chemo. I found sitting in a recliner uncomfortable and preferred a regular chair. Easier to get out of. Ideally you want a chair that allows you to put your feet under your butt as you lift with arms. (For my graduate thesis many years ago I did a 2 year project on the elderly & seating. Designed and build a chair for the home-bound elderly.)
This video gives you an idea but the chair actually isn't good. The arm rests should extend farther, closer to the end of the seat if not beyond: http://www.youtube.com/watch?v=TwpQVf2DPmM0 -
I don't know when post mastectomy pain goes away which is intolerable for me lying down in my bed, but I still have to sleep most if not all of my nights in a recliner. I did not have to take any powerful pain meds, just Tylenol, and once my drains were gone, nothing for pain. Guess healing takes us down a long road.0 -
honeybair do you have implants? Although I never had major pain it took a long time to get used to them. I'm over 3 years out and they are not as comfortable as the real thing.0 -
I should add that I really think alot of the pain-level varies by the number of nodes they remove. They only took three of mine, all from one side, which I credit to my quick recovery.0 -
I had 10 on one side and 4 on the other. I was doing great with recovery but of course wasn't doing any heavy lifting. Age plays a part in it too as well as health. I was in excellent health, great shape and only 49. Everyone is different.0 -
I have some feeling on the upper part of my breasts above the scar line, but no feeling below the scar line. I only had a SNB with my MX and still had excruciating pain. I am sure part of it was the expanders, even though they had very little fill in them. I slept on the sofa for weeks before I could handle getting back into bed with my DH and risk having him accidentally bump me. I would say it probably took me a year to get used to having f@@bs and the lack of sensation. But after that they just became part of the new normal. Now the recent ALND is taking a lot longer to heal and get used to!0 -
Chick-thanks for the link to the abstract. Makes good sense. Reduction in mitochondria DNA will reduce ability to fight. So-for those of us taking estrogen blockers-and our little power house of the cell (does this sound like 4th grade?) the mitochondria flops over on its back and lets us gain weight without eating and so on. A question for more research and to text to my MO. Hmmm. My chemo brain is stuck on the picture of the cell. Pbrain---? Help!
Interesting to read about lack of feeling. I had both MX but 6 months apart. Still no feeling in either axilla or along either scar or outside of upper arm. No implants though-maybe in a year or so. I had 23 nodes first and 8 second.
See the cardiologist tomorrow for the results of the double decker nuclear non-treadmill. Am guessing was Ok in general since no one has called. Am also going that the PET scan last week was ok-as no one has called.
My youngest came a week ago and is still here. I am delighting in young adult company. Most her friends have left to return to graduate school but it has been lovely having a house full of her Herd again. And she has been cooking. she is vegan and trying hard to convert me-won't be hard wiht the wonderful items she is cooking. She plans to stay at least another week and do child care for a friend this weekend-for her 13 year old daughter. I am proud of all my children. No one in jail ever.
Sweet dreams and love to each.0 -
Mitochondria, metformin (an inexpensive drug with a long history and wide use) and research
December, 2012:
http://www.jefferson.edu/web_options/tags/news_fullstory.cfm?articleID=367
Since then:
June, 2013 exchange discussing other aspects of metformin as an antioxidant:
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Susan no jail is great! LOL. Hoping your scans are as clear as can be. Bren here's hoping your alnd heals faster. Lago the only thing wrong with the video was she leaned on her arms to get out of the chair. No go!!! LOL Texas I think you are right the number of nodes make a difference too. Honeybair, I actually slept in my recliner for almost 6 months. Because I was so beat by surgeries and chemo and bad knees I couldn't make it up the stairs. If I made it up once a week for a shower that was a good week. Much love to all.0 -
Moonflwr well yes that is true for our surgeries but the video is for elderly that have balance issues. This was the closest thing I could find.0 -
LOL. You're forgiven. But that is pretty much the way I have to get out of a chair. That's what giving me moments of OMG here we go again! With the no arms. I'm just hoping I heal fast enough to use my cane when I need it. When I first get up I don't usually need it but as I get more tired I lean on it more and more. Where are we having fun yet? LOL0 -
for everyone who did rads and had fatigue - how long did it last? I'm still sooooooo tired. Getting Herceptin (and labs) right now so we'll see if my Rbc is part of the problem. Or maybe post rads + starting Tamoxifen is causing it? (4 weeks post rads, 2 weeks into Tamoxifen)0 -
McKatherine,
For me, the last few weeks of rads and a few weeks post rads were the low point of my year of treatments... Physically and psychologically. My labs weren't great but no worse than at other times.
It does get better! Eat well and if possible... Exercise.0 -
MX,surgery is tomorrow, why I feel so sad lately...especially the weather is all gloomy just make it worst.
Please tell me verything going to be okay.0 -
SORIYA Will Be PRAYING FOR you!0 -
soriya123 you'll do great. It's the gloomy weather that's getting to you. See you on the other side.0 -
McKatherine, my experience was similar to ashla's. Exercise really does help, even if it's just a bit of walking.
Soriya, everything is going to be ok. It's quite natural to feel gloomy, these aren't exactly fun times. You'll get through it though. Good luck tomorrow and keep us posted once you're up to it.
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soriya - will be thinking of you, let us know how you are when you feel up to it!
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Lago... I do not have implants. Just did not want to undergo all the additional surgery and made the decision to have no reconstruction. So I just pad up and go. I had 20 nodes removed plus other extensive surgery under my arm, so all that must contribute to my discomfort. Just grateful for recliners,Soriya...will be thinking about you and know that what you are feeling pre-surgery, we all felt. You will be fine.
Alaska Angel, thanks for the links pertaining to the knowledge of how cancer cells operate. I take metformin and have been on it for several years, so hope it will help me to remain recurrence free.
I gain so much from coming here. Thanks to all of you who post regularly.0 -
soriya, it is normal to feel sad and anxious going into MX surgery, and the weather this time of year definitely does not help. Just remember that the anticipation is usually much worse than what really happens. Praying for you. Keep us posted.0 -
soriya123....I will be thinking of you tomorrow. Best wishes and keep us posted when you can. I know you'll do great .0 -
Soriya U are going thru what I call the I'm not doing it--time but then u do it, but it gives me a sense of power thinking I can change my mind. Never have cuz once u get up tomorrow and get going it goes well, when u'r in the hospital everyone is all over the place and it's just all for u, then it's over and u think that's it.??And before u know it u'r home, this time tomorrow night it will be all over that's all--U'll be fine, just let us hear from u as soon as u feel like it. (((HUGS)))
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Saw my cardiologist today-EF up to a big old 55! Yipee! Is so nive to walk and breath at the very same time! Doubled a couple meds despite my ability to talk and breath at the same time-guess he wants me to walk, talk, AND breath. Reminded me-as they all do-I will NEVER EVER have herceptin again. Or any cardiac impacting chemo. Hmmm. No kidding.
Is anyone taking metformin? I had a clinical therapist mention it to me-and promptly forgot (thank you chemo brain) and was reminded-when Alaska posted the links. I will visit with my MO in a couple weeks. With everything else I have thrown at this body a bit of metformin cannot hurt. Unless it causes more weight gain like the hated estrogen blocker I take with dismay every morning. My intellect really does understand the need to damage and destroy all estrogen in my body-but what I would give for a tiny bit of moisture some place-any place. A bit of weight loss ability. Less bone and muscle pain. And suddenly-I am losing hair again. I have lost my hair 3 times. Yes three. And now the hair on my arms is falling out. My leg hair is not growing. No big deal to either. The other areas are shedding again. So far my head seems intact-but to go a 4th time? Seems just wrong. Only thing I can grow is hair. No matter how much I water my chest nothing grows. And the Edward Scissorhands scars remain. I reminded a friend of this today when she asked why I wasn't ready to start seeing male species again. That and the fact that obviously my picker is broken. I do not pick well.
Sleep well my lovelies. (Am drinking tea from my Wicked mug-which remindes me of the Witches in Oz)
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Oh Susan u have to add something to the tea. Ahem, after a while u won't think u have any scars. And u'r EF is going up--good. The picker in u is off right now--so just stay away for the time being. And yes breathing is a very important part of all of this horrible crap.It's kind of funny (not) but when all this starts it's told to u we're going to do this, tht, and this and u think OK let's do it. Then after u realize no one sid oh BTW so many things can happen in the mean time and after so don't get to comfortable thinking that what we're doing is all that there is. U will no doubt end up with more /Drs. than u ever thought possible. And meds, maybe lots.hahaha
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