TRIPLE POSITIVE GROUP
Comments
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lol Camille.. Agree about adding stuff to the tea but us BC girls can't even do that anymore with a clear conscience.
Susan I so hear you about the SE's of the AI. I've just about given up on the hair on my head. It came in darker.... ???... Curly , thin and so fine. I have no idea how to manage it. Tomorrow I am going pixie.
Every few months my lashes disappear. Mostly when I have someplace important to be. The dryness is yucky but I do have a solution for the weight loss.
Buy the $25 plus shipping and handling shampoo for hair loss Nicky recommended. Also the $25 monthly bottle of monoxidil for hairloss. Then the $15 per mo fish oil tabs to moisturize
...well everywhere. Then fill the $150 per mo ... I think .. Script for Latisses .. For eyelash loss.
Biotin.. Forgot the biotin tabs...
This plus all the other stuff we're taking to fix us all up.
You do these things and you won't have any money left for food!0 -
Hi Susansgarden. I'm glad if what I posted provided some food for thought.Cancer has unknowns and uncertainties that plague patients, families, practitioners, and bean counting in providing medical care. We want definite answers and definite treatments and especially, definite results. That is why it has always been easy to use simple concepts to sell the "need" for more and more people to go through the misery of treatments whether they work for only a small percentage, or even work just for a short time. The one that has been used the most effectively of all to encourage wider and wider use of chemotherapy for the lowest risk patients is the concept that chemotherapy somehow works to "wipe out every last cancer cell". But how many of those patients understand that chemotherapies still don't wipe out stem cells?
Your question in your post asking why we are doing chemotherapy if it doesn't actually wipe out every last cancer cell is so intelligent.
There are a group of issues involved with breast cancer, including aging and the body's diminishing ability to repair damage with aging, the loss of the supportive aspects of hormones like estrogen and testosterone, and the growing percentage of obese among all ages.
The most common appeal to patients about metformin involves its ability to help keep weight off. But the effect of stabilizing the extreme highs of sugar levels in the blood is less obvious to the average person. In an equally counterintuitive way, surprisingly, the majority of patients and their medical providers fail to grasp that one particular value of metformin is that it appears to be its ability to kill stem cells, when something so nasty and yet easy to sell to patients as chemotherapy does not, shows how hard it is to get people to get that concept. People generally would rather run to a very nasty treatment under the oversold belief that the nastier the treatment is, as well as the more sophisticated its administration is and the more expensive it is, the better it works. But that blind belief is not necessarily valid.
Time after time, I see the unproven statement made that adding chemo to trastuzumab is "more effective" when in fact the trials didn't clearly demonstrate that. Doctors generally encourage that sales pitch for using chemotherapy as part of treatment because it is such a simple concept and an easy sell to panicked patients when there is no definite cure. But what is true is that adding trastuzumab to chemo gets better results whether or not the chemo helps at all.
The reason that standard hasn't changed is because the trials for the use of trastuzumab included chemotherapy whether or not the chemotherapy had any beneficial effects. People like the notion that chemotherapy is capable of wiping out all cancer cells. Yet when it was being used for HER2 positive patients by itself, it was pitifully inadequate.
There MAY in fact be synergy between chemotherapy and trastuzumab that boosts the protectiveness of them both over the use of one agent alone, or, there MAY NOT BE synergy, or the synergy may be short-term effect only, or it may only be equal to the damage incurred with chemotherapy (which people often refuse to acknowledge to themselves or anyone else, IS carcinogenic in itself).
But a common, widely used, inexpensive drug with a long history of being studied like metformin MAY in fact be more powerful because it can kill stem cells and chemotherapy can't.
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Help me ladies! I have my 1-year mammogram today at 1:30 and I'm petrified!!!
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Thoughts and prayers for a NED...Hugs0 -
Pbrain remember… worrying about something that probably won't happen is wasted energy. Also don't panic if they want to do more views or an US. They like to be uber careful now that you were diagnosed once.0 -
Ashla I think u'r weight loss program is a go. LOL--And my conscous SP is totally free about any likker I comsume. hahaha
PBrain I'm sure this is scary, but again with all the stuff u have been thru it will be fine--Let us know.
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best wishes PBrain! I got the whole dense breast treatments on all my mammos . I'm getting used to them doing the extra look see!0 -
Pbrain---- best wishes !!0 -
pbrain NED! That's it. NED♡0 -
Help scared I think after all this time I am getting my period back. Is this normal my last one was Feb 2012 AND at that time it was 4 days Early and it was only for a day or two. I had an oblation done back in 2010 it did not stop them but it was much lighter and less days.
I have not had one since the first chemo back in Jan 2012
OR could this be the tamox that I have been on for over a year???
If it is my period are they going to want me to have a hysterectomy?
P.S. I will be 46 in Feb 2014 Diagnosed less then 2 weeks before my 44th birthday.
Sorry if this is TMI0 -
ang7894 It could be your period coming back but it also could be the tamox… I'm betting the tamox but you need to call your doctor and get this checked out. Not sure if this is a call to onc or gyno. I would probably call both.
And don't assume they will want to do a hysterectomy even if it is your period coming back. I mean that's why you are on Tamoxifen and not one of the AIs in the first place… because Tamoxifen works on premeno women.0 -
Hello Ladies, I came across this information on another board and thought some might be interested. someone shared articles about how evening primrose oil (GLA) can increase the effectiveness of hereptin 30-40 fold.
http://www.news-medical.net/news/2005/11/03/14257.aspx
http://www.eurekalert.org/pub_releases/2005-11/nu-poc102705.php
http://www.dailymail.co.uk/health/article-367355/Evening-primrose-oil-help-beat-breast-cancer.html0 -
NED!!!
Thanks for talking me down from the ledge. I read your posts while I was waiting for the results.
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Whoop! Awesome News, PBrain!!!!0 -
Great news Pbrain!!!0 -
Great News Pbrain.. Celebrate....0 -
yeah pbrain! congrats and thanks for updating us
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YYYAAAYYY PBrain, told u so, told ya so
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yay Pbrain!0 -
So happy for you Pbrain!!!!!!!!!!!!
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Yay Pbrain! Happy Dance!!!0 -
Just catching up. YIPPEE AND YEAH PBRAIN!!!!!!!!!!!!!!!0 -
pbrain - awesome!
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Congrats Pbrain!0 -
Yaye PBrain!!!0 -
Jane...so so happy you are dating NED.....xoxo
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How clever Chicka D.... Dating NED... Never heard that one. Gotta remember it and hope to use the expression often!
Yeah PBrain!
Chicka hope things are getting better.
Important for all to remember that with all our fears, scanzieties and surgeries... We Do get mostly good news here too!0 -
Yay pbrain! CONGRATULATIONS!
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yeah PBrain...I knew It!!!! Ladies surgery went well. im still at the hosital. my hubby told me BS took 2 lymph nodes n no ALND. i took pain killer every 4 hrs. LOL I will find out the results in a week. okay i dont understand why some of you had ALND done????
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Soriya it's over , isn't that a good feeling and take whatever u need for comfort. I hope u go home soon, but it is kinda nice to be in the hospital and pampered.
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