TRIPLE POSITIVE GROUP
Comments
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Pbrain, I am so glad you are here to explain this stuff to us in a way we can all understand
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yes we are lucky to have Pbrain!!! and lots of others for that matter - so many of you bring so much information to this thread!!
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I'll be in the chair today at 11am for my last round of FEC! Halfway through chemo!
My tummy is very sore this morning as I doctored up a tomato sauce last night and put in too much garlic. I paid the price for most of the evg so I'm fairly tired!
Don't feel like eating but must do in prep for my chemo cocktail!
Have a good day all and chat soon!!
:-)
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football - you might want to stay away from citrus and acidic foods like tomato for the short term, eating blander stuff seems to work better. Chemo agents irritate all of your soft tissue and there is a lot of that in the digestive tract. Congrats on the last FEC and on to the next!
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soecialk you are do right! Breakfast was cream of wheat, sugar free applesauce and green t. Now drinking lots of water
What a stupid mistake I made!!! Ugh!!
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FOOTBALL:
Congratulations on the half way mark! Yay you! Keep your chin up! Sounds like you are doing pretty good.
I'm glad you are able to enjoy some sense of taste. I lost all taste during chemo and for a little while after and still managed to gain 14 pounds! NO FAIR!!! I'm still working to get rid of the last 9. UGH!!
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Oh I'm trying to catch up and I thought pape by page and commenting when I do was the best way.
I can't help but laugh that the first thing I read was Linda and about vitamin D--cuz I went to my primary yesterday and of course I'm way low so I'll take that once a week pill--so easy to remember too.
Well of course one of my reasons for going was my cousin and I decided we didn't need our thyroid meds anymore cuz it tested fine and when my Dr. saw I wasn't taking it she was not happy and of course the nurse asked me if my cousin was a Dr. and I said no, we just figured our thyroid stopped cuz all the all the things our bodies have been thru. Q--do u always listen to your cousin, A. yes, not my sister so much, she's much more strict about things.Well there were more Q&A's equally answered and then the Dr. came in and read everything and said --(and she is so so sweet) but she said I can't believe how u look at things, but u'r thyroid is fine. Of course I said see we both knew why it stopped working, no one really does any studies on the "after" of all this crap and of course I said more, but she just laughs at me, never gets upset with my goofy logic. But she was nice enough to make sure my pain meds were stronger.
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OK I'm done, but as usual I'm lost, well not literally--well u know what I mean.
FBN I hope this goes well for u, but I feel so bad that u have so much fear--they should have something for that, but I guess they don't, please try to relax u'r thoughts into promising and light thinking, don't think long term, nne of us know anything long term and there are loads of women who have lived long and had a good life.
Ok u ladies are unbelievable but now my brain has been strained so. I'll check in again, of course, no one get rid of me that easily.
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Update - I have my CT scan scheduled for tomorrow afternoon - so glad I don't have to wait longer for this test and it will be done right at the cancer center so the results should be quickly delivered to my MO. Please send positive mojo my way...
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UPDATE: Remember I posted
In the medpagetoday article is states:
"Ovarian suppression is already bad for quality of life and symptoms, and an AI makes it worse, Ganz said, noting that even in postmenopausal women, only about 60% of women stick it out to 5 years of tamoxifen or AI therapy."
Well my Onc feels it's seems like an off the cuff remark by Dr. Ganz and not backed up by data. My onc said that isn't her experience… but she hasn't given me any idea what her experience is or what the data says. Hard to believe there isn't any data on this. Not sure why she isn't giving me numbers on anything. At the beginning she did. Even gave me an article when we were considering doing Zometa to prevent bone mets (ended up not going that route because a month later they said it didn't. Granted 6 months later they said it did).
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Well ladies, I had my port removed yesterday. It was done as an outpatient procedure. I'm a bit sore and bruised today but I got up and went to work. I feel like I have closure now and can move on past BC. The last 15 months have made me appreciate my friends and family. Everyone has been so supportive. Although I don't post often, I try to catch up with everyone's news at least weekly. You guys have been a wealth of information and I love that there are so many personalities here. Love the laughs and the tears. Keep the info coming.
Much love,
G
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hi all
Appreciate your kind words! So today was round 3 of FEC and my last one. Next 3 will be taxotere and herceptin
Today was a bit difficult. Felt nausous for most of the infusion and still feel off now. I've taken my anti nausea pills so no vomiting. Dry mouth is starting already. Ugh! I've noticed that I've had some tingling and numbing in my right foot and hand. Weird! Comes and goes
Hoping that it doesn't get worse then this!!
Let's go rangers!
1-0 now for the good guys. Life is good!! Lol
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FBN - you look gorgeous! That chair you are on is the same as what I had here in Australia! lol. And last FEC! Yay!!
Don't worry about the Taxotere - my boss is on it at the moment, and she has had four treatments so far, and her last one was a week ago and she was in at work yesterday and today, and looking good - she said it's not easy, but she's coping with it.
I'm keeping everything crossed that you'll be the same (((hugs)))
Trish
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trisha & football - same chairs in my center in Florida too!
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Yay FBN! You do look great! .
Our chairs are a bit different. Are yours heated? I love the heat. It helps during infusions.
Gigif, happy your port went away.
Much love to all.
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Special - oncology wards all over the world must have the same chairs!! lol
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Article that appear today at the top of my Yahoo page. I am a moley person person - have over 20 on my left arm - who else is moley?
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Lago - I found some data for you compliance/non-compliance with AI therapy. This study looked at 12,000 patient records:
Mean adherence over the first 12 months of therapy ranged from 82% to 88% in the three data sets. Between 19% and 28% of women had fewer than 80% of days covered. For women with 36 months of continuous eligibility, the mean adherence decreased each year, ranging from 78% to 86% in year 1 to 62% to 79% in year 3 within the three data sets.
Source:
Partridge A, LaFountain A, Mayer E, et al. Adherence to initial adjuvant anastrazole therapy among women with early stage breast cancer. J Clin Oncol 2008;26:556-562.
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linda, very interesting article. I have many, many moles and your article made me count the ones on my left arm! I have between 15 & 20 on that arm, depending on if you count the little tiny ones. Most of my larger ones are on my back and I just made my appt yesterday for my yearly skin check. I know there are others on this site that also have had cancerous and pre cancerous moles removed.
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FBN, yay for last FEC!
GIGIF, glad you got your port out. I remember how glad I was when men came out.
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thanks dance. I still feel they really don't know.
I only had a few moles on my left arm but now since treatment I think I have a few more. Ironically this arm hasn't seen sun in 3+ years. I always wear my LE sleeve. Will have to count later
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Gigi - congrats!
FBN - great pic!
Linda - saw that article and another that contradicted it somewhat. I am extremely moley. Too many to count. All that have been removed were non-cancerous. None lit up on petscan, thankfully! Found the article interesting as it does seem to apply in my case.
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I am moley everywhere - but so are all my siblings and my mom was also. But no skin cancers and me the first and I would assume only breast cancer. I am the baby - the sister closest to me in age is 16 years older than me - my mom was 46 when I was born. She didn't have any idea she was pregnant until about 5 months - she thought she had gone through the change of life and was gaining weight until I started moving alot LOL. So who knows on the mole connection - but I did think it was funny as it was like my top news story on yahoo.
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ditto Linda505..
Moley me and lots in my family... I am the family history of cancer of any kind!
Thinking of you for the Ct Linda!
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Don't know if you guys ever read that article about taller women are at more risk for getting breast cancer, the taller the more the risk increases. We all talked about cutting off our legs at the knees. Seriously some of this stuff can drive you crazy. Certain things you really don't have any control over so don't sweat it. Have they really answered the question "What causes breast cancer?" No. They can only talk about risk but still not what actually causes it.
So keep that in mind when you read the articles. There are many factors involved with us getting breast cancer.
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yep Lago - and here I am moley and 5'4" LOL. I think mine came from wearing army boots for 10 years - I am gonna suggest a study on that!!
Thanks ashla ! Nervous but I am feeling like this is just chemo related - but will feel better to eliminate the other and my MO agreed.
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Lilnda 5' 4" is about average for the US depending on who's chart you reference (could be + or - .5) I'm 5' 6" so I only have to remove 2"
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yes the chairs! All leather, reclining or a foot rest option. Lol. No hear but we can request blankets. Lol. And there is a tv available. Wow! Just like first class without the travel!! Lol
As for miles I have none and am a short 5'2" and the first with breast cancer unless you count my moms sister who was 80
So who knows
Still feeling queezy and nausous today with dry mouth kicking in. My fatigue level is higher than last time around and I sit hear waiting for my home care nurse to call for my neulasta shot. What a waste of a day!!
Argh!
Atleast the ny rangers won!! Woo hoo!
:-)
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Actually on a little serious note - I think I was exposed to some really bad stuff while I was in the army - especially basic. I will link an article - there is actually legislation that is pending to declare this something for the VA to consider for veterans who where stationed there. I was only there for 3 months but during that time we went out to the field for a week and they gassed us and one of the canisters blew up and caught fire and caught the hill on fire and we have to hightail it out of there and marched about 6 hours through haze and smoke. The majority of my platoon got sick the next week including me - with a weird virus that was never identified. I only found out about this as I am still in touch via FB with a couple of my army friends from back then - two girls that I was in basic with both came down with breast cancer in the last year and both contacted me after they saw my post and one of them sent me the info. Nothing I can do about it...
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Oh Linda I'm certainly no expert but I'm sure there were things u were exposed to that most of us have never been, I never thought of that but u never know.
FBN u look great really.
I forgot already but congrats on no port!!!!
And what are moles? That everyone is counting?
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