TRIPLE POSITIVE GROUP
Comments
-
PBrain-and group. The ONLY person who matters is you. You get to choose how you approach today and tomorrow and so on. You get to choose if you live in the panic mode of awaiting the next blow or the whatever-I will deal with it IF and when it occurs. My very best friend in the entire world sort of enjoys a bit of a martyr hat. I used to tell him I would support his decisions as long as he was happy. Then, realized that was crap. Told him I would suppot his decisions regardless, be his friend, and love him forever. He chooses happiness or not. I just support him regardless. That is what I choose for the women on this thread. I will support your decision regardless. It is YOUR decision. And I will not fall into the trap of "woulda shoulda coulda" with anyone. We choose what is best at that moment in time.
I got your back. Wherever it is. And I will defend it to the death. Would be nice if I had a pirate to help with the slashing and bashing though. Seriously. You choose. I stand up and say. Hell Yes! Best choice ever!!!!
0 -
pbrain, I also think you have the right attitude. We support you no matter what. When others are giving there opinions of how you should live your life, I suspect they are really just reflecting their own fears. Those who think you should move on probably just don't want to deal with thinking about life and death issues. Those who think you should change your lifestyle probably just want to convince themselves it will never happen to them because of their healthy lifestyle. (Although I think your brother and SIL also truly do care about you, it doesn't mean their opinions on how to live your life are right.)
Everyone is afraid of dying, and therefore are afraid of cancer. It strikes something primal in each of us when someone close to us (or US!) is diagnosed. I TRY to remember that reactions I see to my diagnosis, tx, etc. are all about THEM, not about me. (easier said than done, but I am getting better at it)
0 -
Dance Trance,
I think you are right. Others' reactions are about them, not me. In my daily life, I don't feel I'm all about BC- it's really only when I come here, and of course, when I'm wondering about things like high fat dairy. (any thoughts on that- even if it's organic?) and trying to force myself to exercise frequently enough (does yoga count for the required 150 minutes)..
But other people see me and think BC- because of that fear. Last summer at a weekend gathering of a group of college friends, literally two weeks after I was done with radiation, one friend presented me with a scrapbook of my BC year. A f-ing scrapbook of the year I'd like to forget most in the world. Weird. I think people hate that I don't want to talk about it and that I don't cry more about "almost dying." Well I'm about the living. For some reason people think that BC is public property. While people with other illnesses such as depression, or diabetes, are allowed to be private.
Pbrain, you're awesome- smart, beautiful, courageous, and helpful, and generous--- such a gift to those of us searching for information about this f-ing disease. No one knows where it comes from. And that's the sad goddawful truth.
0 -
momwriter thanks for the laugh this morning… a breast cancer scrap book? OMG when you think about it, it's pretty hilarious. I think you should make one and bring it out every time this friend comes over. I mean you could have some real fun with this. Just the bills alone could fill up 1/2 a volume. Glue some of the hair that fell out (might have to improvise. I'm sure you didn't save any). Get a picture of a medical waste dump. Title it "RIP Lefty."
OK I need to stop.
0 -
Lago you made me laugh until I cried!
I make quilts for people I love. A friend gave me several pink BC T-shirts. For my cancer quilt. I used to wear those T shirts. Pre BC. Used to think Pinktober was nice. Pre BC. There will be NO BC quilt.
0 -
well just got the call from the hospital for the results of my genetic consult. When my hubby and I met with the counsellor 4 weeks ago she alluded to the fact that she would be surprised of I was BRCA + due to the fact that my mother had cancer in her 70s and that neither my sister nor any of my cousins or blood relatives had cancer at younger years. My aunt had bc at 80 and my paternal grandmother had colon cancer at 80
So now I have to wait until then end of June for my results.
If I'm positive I suspect that this would mean a hysterectomy and having my right boob that never developed but that just hangs there removed
Would that assumption be correct? Anyone test positive for this? If so what were your next steps?
0 -
Football the genetic counselor is probably correct. More often those with BRCA gene tend to get breast cancer early and seems more often hormone negative. Yes the recommendation is to remove the breast prophetically and ovaries & tubes. I think they let you keep your uterus. Whoo Hoo! I tested negative
0 -
I met with my genetic counselor today. She said BRCA 1 is usually associated with triple negatives. She gave info about direct and familial links. BRCA 2 positive w/o doing anything, the risk is 40-50% of new primary. Removing remaining breast, ovaries & tubes drops it to 10% to less. I have a 1-2% chance due to no others in my family with breast/ovarian cancers except my mom who may or may not have had ovarian cancer at 18. But, I have a daughter to think about!
0 -
Sort of like Goldilocks. We can call it the Goldilocks dilemma. The post treatment survival attitude we should adopt to please others.
Too carefree or too obsessed ? Insert other descriptives we get wrong. Now if we could all get it just right!
Mommawriter
You bet yoga is included in the exercise count ! I can link many articles as to both the physical and mental benefits for breast cancer survivors if you're interested . Not just breast cancer either!
Fatty cheese. I have almost completely left it out of my diet since dx. I eat very little meat but prior to BC I ate cheese almost daily . My favorite food. So far everything I read regarding fatty dairy points to a negative implication for breast cancer.
0 -
my memory of these things is not stellar and of course I miss lots of posts but I cannot recall one of the ladies in this forum as being BRCA positive. Certainly not common in triple positives .
0 -
Happy Monday Ladies: I have an unusual question (if there are any of those). A big percentage of us are on Vitamin D because of very low levels (me before dx). I have a friend who (no breast cancer) is on Vitamin D and they are seeing a trend of skin cancers with her (basal, squamous) and she's someone who NEVER has or does get burned (she's pretty much always covered up). So, now they took her off the D and no more skin cancers. I did a Dr. Google search (dangerous I know) and find there truly is a link. I've had so many the past few months and certainly wondering.
Anyone heard of this?
I'm certain to ask my oncologist tomorrow (my 6 month checkup). Wondering if I'll ever get to once a year.
Thanks ladies!
0 -
my onc recommended that I continue vitamin d which I was taking before cancer
0 -
Yes, me too footballnut and I have it checked every 6 months but I'm wondering if it can be a cause of skin cancer breakouts. I will ask my onco tomorrow and see if she knows.
0 -
My MO said there was no link between Vit D and breast cancer. He asked where I read it or who I got my info from.
0 -
my hubby who has colitis also takes vitamin d because it reduces....... Wait for it...... The risk of cancer
What a bad day today! Can't wait for the stomach cramping to stop! All day! From c to d since 7 am. Enough !!!!!!!!!
0 -
Momma2. There are so many different train of thoughts on these things. My onco and my primary care doctor both think there is a link (I don't think it has been definitely determined, however) so I'm watched carefully and adjust my Vitamin D according to my levels, too much is not a good thing either.
I'm probably way off base about the skin cancer thing but was just curious if anyone had heard of it.
Ashla is the big researcher so I'm guessing if it's out there anywhere, she'll find the link.
0 -
Football: I hope you feel better VERY soon. I know it's difficult and hard to believe but you'll be at the end before you know it. We are all here for you!
0 -
tx Arlene! I just finished eating poached eggs on white toast with a bit of strawberry jam and a banana. Alittle bit of apple juice and am hoping that I'm okay for the rest of the day!
Now my stomach hurts from cramping all day! Cramps are now achy muscles!! Lol
Thank goodness for all of you!!!!
0 -
Hey all,
FInally got a call from my MO about my CT results and Hep blood tests. CT was clear - nothing on liver and abdominal cavity looks fine. Bloods test neg for all types of hepatitis. So he is almost 100 percent certain that my elevated liver tests are just chemo related.
Relieved!!
0 -
That's great Football. Oddly enough, peanut butter and crackers worked well for me. Hopefully the cramping eases soon too.
0 -
Arlene - I'm curious about the Vit D and skin cancer analogy - they are coming fast and furious with me. I stopped taking supplements in March for surgery, then ended up having two more surgeries so did not re-start. Just had my D tested on Fri - it has dropped to 22. I just had another biopsy the week before and have another basal cell carcinoma on my lower back.
Foot all - hope you are feeling better soon!
Linda - yay!
0 -
SpecialK: It's odd isn't it. I'll let you know if my onc has any thoughts on it.
0 -
Oh I just had a thought--yes on occasion I do get one--Since I thought Vit D was associated with the sun and most people want to stay out of the sun these days because it's so disruptive to the skin in many ways, could they be thinking in that direction for Vit D.? All I know is I take a once a week pill for Vit D. and a few a day for pot (yes don't I wish) and mag.
0 -
all i know is my treatment center wanted me om 50,000 units immediately, before they even did any surgery or anything. and i was reading on here, that it is supposed to help with muscle and bone pain from hormonals, and i did forget about them for awhile, and now am back on em. it does seem to help with the aches of that therapy, for me anyway. i get alot of sun, not enough to burn, but really, plenty every day.
0 -
another day and here I go again! I'm on fire!! After a day of c to d yesterday I find that my body likes the washroom and my favourite chair is becoming the toilet!
Good grief! My butt is ON FIRE and my abdomen is burning. Waves of coolness fall over me
Unfortunately I've experienced this type of thing before way before diagnosis. It would either happen if I ate something bad or had a really bad hangover
The plan for today is to try to sleep some more then soak in Epsom salts
Yesterday I managed to drink g2 which helped. I had poached eggs and toast for "dinner" with a banana and did okay with that
Hopefully the end of this is near
For the 3 days that I couldn't go, I retained 3 pounds. Well, that's gone now. Lol
Of course with such a bad day I had a bad evg and started crying again with my hubby back to the " being dead in a year" junk. The emotional roller coaster is nuts isn't it?????
Atleast football starts in less than 80 days! Can't wait! I'll be done chemo by then!
Have a good day all!!
0 -
Hey Footballnut - my turn to be your cheerleader LOL . I told you we will be watching the Buc's win the Superbowl for many many years in the future!! LOL. Can you take Imodium?
0 -
Footballnut some of that emotional mood swing stuff might be chemo-pause, maybe the waves of coolness too. I assume chemo is doing this to you. As far as indigestion are you taking something for it. Hopefully next round the Metamucil works for you (just don't wait to take it) and you won't have to take something so harsh on your stomach that causes your big C to become the big D. This happens to a lot of women here.
0 -
Yep what Lago said!! I took her advice on round two with the C and got some Metamucil and use that leading up to chemo and through the first few days and only took a couple of stool softners - ones without laxatives and although I still was constipated it did eventually move and doesn't seem to be heading to D ....yet.
0 -
OK I'm jumpin in here not really knowing anything--but FBN maybe u should take Metimucel (sp) daily thruout everything and if u do get the D ask for Lomitol (sp) it might make a difference for u so things are more bearable. Sometimes what u take has to be constant in order to take care of the job it needs to do.
0 -
I had my first chemo Thursday and so far I have had it aaaalllll! Vomiting diaherria heartburn acid reflux my insides are on fire I have to stay propped up I can't lay down exhausted now my tongue is getting sores! I hope I can get it together soon because this is almost more than I can handle. I thought I was tough but this is cutting me down to size quick!
0
